Re: Fosamax/ Bettylou

[Guest guest]

I don't mind your asking at all. h had outgrown her home stander (it was

midevil anyway!) and was standing at school daily. When we moved from KY to NC

we obviously had to change schools and docs. The school in NC couldn't accept

the statement from our Vanderbilt docs and needed one from NC. He refused to

give it and said that it would do more mental harm than physical good. By the

time I got approval to take her to another ortho we were on orders to move back

to Ky.

Normally I wouldn't have taken no for an answer, but we were in the middle of

other, more pressing, issues with h. This was all around the same time that

she was diagnosed with failure to thrive (right before she turned 7) and had her

g-tube placed. She also had some major respiratory issues at that time, before

we switched from c-pap to bi-pap. We were doing 6-8 pneumonias a year on top of

other various colds that were kept from turning to pneumonia. I just didn't have

it in me at the moment to fight over standing when her health was so poor. My

goal was to get her to gain a little bit of weight (at least past the

malnutrition) and get her lungs back to a healthier state and then work out the

ortho issues.

Hugs

Jeni

P.S. do you have a pic of the knee splints? Are they uncomfortable for him to

sleep in?

Bettylou Ross <eross@...> wrote:

Jenn, if you don't mind my asking, how did this happen? I can't imagine

our orthopedist withholding (or imagining he could withhold) permission

for this.

Bernie stands daily but still has knee and hip contractures, by the way.

We've been using fancy night splints on him for a month which are

actually helping, though. But I think the standing helps with other

stuff like bone density and digestion.

Jenifer Woody wrote:

> It wasn't a matter of pushing h. It was the orthopedist who refused

> to " allow it " .

Good point.

> I'd rather she be active and really live it up than have straight legs.

thanks

bettylou

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