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has been home since Monday Jan.24. She has not quit

jabbering since she walked in the door. She is doing very well and

Thank you all for your prayers. She was hospitalized since Jan.6th.

We do not know if we will be able to return to Stanford due to this

past incident on the plane. We have been looking at other options to

getting there like Amtrak or driving. Its also very costly and time

consuming for both for a once a month trip.We will do what we have to

do for my girl. She is doing so well on the hydroxyurea and has made

so much progress with the drug we have to find a way for the future

of all SMA Type 1 kids.

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