update on Hallam

[Guest guest]

has been sick since last Friday. She gave us a scare. We

called up to Madison, WI and they told us to take her to the ER here

and have them call back to Madison. The doctor on call for Dr.Schroth

wanted chest x-rays done also.

has bronchitis. The Doctor at our ER put her on a very

strong antibiotic and told Christen to keep doing what we have been

doing. He said since has SMA it was going to take her

awhile to get over it but she should be feeling better in a few days.

Her chest x-rays were good. It was a bad weekend. She was so sick and

her stats were not good. Her temp would go down then go right back

up! I slept were her all week end until yesterday because was so

sick. We did cough asst. every 4 hours, kept on BiPap as much as

possible. Constantly doing chest pt and gave abuteral treatments. We

also put her pedilite since she was running a fever.

Tuesday I insisted Christen take her to see Dr.Hough.I really was

worried she was getting pneumonia or a lung collapsed because her ox

level was staying around 88-94%. Well, I gave her the antibiotic

early on Tuesday because her fever was up to 101 at 4 am again and

Tylenol. When she went to the doctor around 10:45am she was jabbering

and feeling much better. She did her normal flirting with DR. Hough.

DR. Hough said she was pretty good for being so sick, ask Christen if

what we doing as far as her machines, asked what med. we were giving

her and if we were doing abuteral treatments. Come to find out that

Christen thought needed her reflex med. because she had gas

and acted like her stomach was upset. Well, the reflex med. counter

acted the antibiotic and that is why she was still sick. So he

prescribed another antibiotic because he did not think she had enough

of the other antibiotic and told Christen she did not need the anti-

reflex med. That is the reason she had gas was a side effect from

other med. and her stomach being upset.

She is so much better today and almost back to herself. We had to

cancel the pulmonary test and the visit to Stanford. We are going

Oct. 7th if DR. Hough gives a clean bill of health. We are

not doing the pulmonary test though till Nov. because lung

need to recover from her illness. So we only have to go for three

days this time.

When these kids get sick it is so scary! It is not like a normal baby

which is also scary it worse. They sound so bad and it just makes

them so weak. I spent every day praying and telling she had

to fight this because she had a lot in this life yet to do. She had

to help other babies like her so she could not give up.

I think I am more worn out than today. She did it

though.... she started bouncing back and that is all that counts. I

am firm believer of positive re-enforcement and pray works miracles.

Jeanna