Re: The Sue Saga Continues!

[Guest guest]

In a message dated 3/14/2004 6:29:15 AM Central Standard Time,

sv014e6391@... writes:

I'm not planning

on having a baby but you never know, Amy's shown me it's not

impossible for us petite ladies

I know you meant that as a compliment, but please be careful. I guess I

should be flattered or happy that women have found " inspiration " in me... but

I'm

not. Having Olivia could've easily cost me my life (or hers.) I'm not a

religious person, but I truly believe someone was looking out for us. So many

people have written to me since I had her and even though I try to tell them the

whole story, you just can't comprehend what it takes. I was in pain for more

than half of my pregnancy because she was so active (and big) compared to me.

I was hell bent on keeping her in until she was safe, despite what effect it

had on me. I couldn't even swallow my own saliva towards the end and some

women (with SMA) have issues with that before they're pregnant. Even now that

the threat of my health is over, I still deal with a lot of issues. Is she

going to resent me when she's older? Am I somehow depriving her because I can't

be an active mother? I mean, these are just my own issues, and for the most

part I don't dwell on it because I know I'm doing the best I can and she is

very loved. I just want people to know what I went through was one of the

roughest, scariest things ever and there are so many what-ifs. If one of you

girls

I know got pregnant and something went wrong, I'd feel in some way

responsible, ya know? I know there were women before me who did it and there'll

be women

after me, just needed to say my piece. Sorry so long. =)

Good luck with Kev!

*Amy*

Mother to Caitlyn Mae - born to heaven 3/26/98

Olivia Isabelle - born to earth 9/18/03

Wife to Will 11/03/95

http://community.webshots.com/user/blueyedaze

[Guest guest]

HOORAY!!!!

Jenn (Izzie)

[Guest guest]

Amen! I always worry people will be like, " Well, did it, " and

then something horrible will happen. I'd feel so responsible.

Everybody is different and has different situations.

Jenn

[Guest guest]

In a message dated 3/15/2004 10:13:24 AM Central Standard Time,

nekrosys@... writes:

Amen! I always worry people will be like, " Well, did it, " and

then something horrible will happen. I'd feel so responsible.

Everybody is different and has different situations.

I've had quite a few girls say that to me and it's like, ack don't use me as

an excuse. Heh. I'm pretty convinced we are the exceptions, NOT the rule.

*Amy*

Mother to Caitlyn Mae - born to heaven 3/26/98

Olivia Isabelle - born to earth 9/18/03

Wife to Will 11/03/95

http://community.webshots.com/user/blueyedaze

[Guest guest]

blueyedaze@... wrote:

> nekrosys@... writes:

> Amen! I always worry people will be like, " Well, did it, " and

> then something horrible will happen. I'd feel so responsible.

> Everybody is different and has different situations.

>

> I've had quite a few girls say that to me and it's like, ack don't use

> me as

> an excuse. Heh. I'm pretty convinced we are the exceptions, NOT the

> rule.

Yes, I think in the last 10 years or so I've heard of more women with

SMA having children. (Back when I had Emili in '93, I was a medical

freak - I thought they were going to put in a sideshow at a circus!)

But when you think of the ratio between women with SMA who have babies

to the number of women with SMA, it's pretty small. Counting you, me

and the other Amy, I've known 4 women with SMA who have had viable

pregnancies.

I also think it's invaluable to be in a committed relationship.

Attendants will not take care of your kids, and unless I had a windfall

of money to pay an around-the-clock nanny, there is no way I could've

done the parenting thing solo, especially when they were small.

Just my opinions though,

Jenn

[Guest guest]

In a message dated 3/16/2004 12:20:35 PM Central Standard Time,

nekrosys@... writes:

Yes, I think in the last 10 years or so I've heard of more women with

SMA having children. (Back when I had Emili in '93, I was a medical

freak - I thought they were going to put in a sideshow at a circus!)

But when you think of the ratio between women with SMA who have babies

to the number of women with SMA, it's pretty small. Counting you, me

and the other Amy, I've known 4 women with SMA who have had viable

pregnancies.

At least where I am, the doctors were clueless about SMA & pregnancy. How

severe was their SMA? I'm still astounded that someone of my size carried a

healthy baby to term. The docs doown in NJ were too.

I also think it's invaluable to be in a committed relationship.

Attendants will not take care of your kids, and unless I had a windfall

of money to pay an around-the-clock nanny, there is no way I could've

done the parenting thing solo, especially when they were small.

Oh yes... can't even imagine being a single parent, SMA or not!

*Amy*

Mother to Caitlyn Mae - born to heaven 3/26/98

Olivia Isabelle - born to earth 9/18/03

Wife to Will 11/03/95

http://community.webshots.com/user/blueyedaze

[Guest guest]

blueyedaze@... wrote:

> At least where I am, the doctors were clueless about SMA & pregnancy.

> How

> severe was their SMA? I'm still astounded that someone of my size

> carried a

> healthy baby to term. The docs doown in NJ were too.

The only other women I knew, besides us three on list, supposedly had

SMA type 3. Although, besides better neck control she didn't seem all

that much stronger than me. Don't you love being a med school " teaching

case " ? After I had my kids, I think they paraded every doctor in the

hospital through my room at one point or another!

Jenn

[Guest guest]

In a message dated 3/17/2004 10:06:54 AM Central Standard Time,

nekrosys@... writes:

The only other women I knew, besides us three on list, supposedly had

SMA type 3. Although, besides better neck control she didn't seem all

that much stronger than me. Don't you love being a med school " teaching

case " ? After I had my kids, I think they paraded every doctor in the

hospital through my room at one point or another!

Oh man, I would've viciously attacked someone if they bugged me when I had

Olivia! My OB was the most wonderful and respectful man, he wouldn't have

allowed any students to " learn " from me. The only thing they did document

was

the intubation. Did I ever tell you that while he was finishing up my

c-section, the residents who were observing questioned him as to why he WASN'T

tying

my tubes? He was pissed. =)

[Guest guest]

blueyedaze@... wrote:

> Did I ever tell you that while he was finishing up my

> c-section, the residents who were observing questioned him as to why

> he WASN'T tying

> my tubes? He was pissed. =)

Amy -

Oh, man that is totally horrible! I guess there are still lots of

medical professionals out there that are completely against us

reproducing. I just try find the supportive ones. Sometimes that is

not easy. My OB with Ravyn was absolutely wonderful! It was a total

night and day experience with Emili's birth.

Jenn