Re: One last request for the Symptom Poll

[Guest guest]

What about misalignment of ears?

[Guest guest]

Geez-o-mighty. I can't believe I forgot that one. Thanks!

C./subscribe/Plagiocephaly

----- Original Message -----

From: kmgirard@...

Plagiocephalyonelist

Sent: Sunday, April 02, 2000 10:45 PM

Subject: Re: One last request for the Symptom Poll

What about misalignment of ears?

[Guest guest]

BAT EAR!!!!!!! Where do you come up with them???????

what is IUGR?

Kendra

" C." wrote:

OK, this is the list I'm going to use for the Poll.

Once I create the poll, I can't alter it without losing everyone's replies.

SO, could you all peruse this list and let me know if I left something

off? Or if something doesn't make sense?

Torticollis/Right Side

Torticollis/Left Side

Flat Spot on Right Posterior Side of Skull

Flat Spot on Left Posterior Side of Skull

Scaphocephalic Head Shape (long and narrow)

Brachycephalic Head Shape (entire back

of head flat)

Crossed or Lazy Eye(s)

Infantile Scoliosis

Cervical Spine Subluxation

Nose Appears Pushed to one side

Unilateral Prominence of Cheek

Unilateral Bulging/Bossing Forehead

Harlequin Eye (one eye larger than other)

Unilateral Bat Ear (one ear sticks out

and/or is curled forward)

Teeth Grinding

TMJ/Jaw Problems

Colic

Recurrent Ear Infections

In Utero Constraint

Breach Baby

Baby "dropped" early

Large for Gestational Age

Low Birth Weight

Large Head Circumference (in relation

to body size or over 50th percentile)

IUGR

Multiple Birth

Premature Birth

Part of Pregnancy was spent on Bed Rest

Gestation Diabetes in Mother

Delay in Gross Motor Skills

Delay in Fine Motor Skills

Delay in Early Speech Development

Vacuum Extraction/Forceps Delivery

Cesarean Delivery

NICU Stay

Slept/Sat in car seat or bouncy chair

for extended periods of time

Prone Sleeper (on tummy)

Supine Sleeper (on back)

Side Sleeper

Dislikes Tummy Time

C.

/subscribe/Plagiocephaly

[Guest guest]

Can't forget that one!!!

kg

kmgirard@... wrote:

What about misalignment of ears?

[Guest guest]

Hi there! You're doing a great job getting this thing organised. Well done.

Just one more.....

I know you've already got 'forceps delivery' .....

but does 'being turned inside, with forceps, presumably by neck/head,before

a forceps delivery' count as an extra one. It certainly was memorable for us!

Look forward to seeing final poll

Best wishes .

[Guest guest]

Sorry, just thought of one more we've had.

earlier development of motor skills in hand/arm on torticollis/flat spot

side, presumably because that's all he could see for first few months.

It started to even out at about 4 months.

Thanks

[Guest guest]

Um...would you want Plagiocephalic Head Shape (asymmetrical) too, or not?

-----Original Message-----

From: C. [mailto:crain@...]

Sent: Sunday, April 02, 2000 11:38 PM

Plagiocephaly

Subject: One last request for the Symptom Poll

OK, this is the list I'm going to use for the Poll. Once I create the poll,

I can't alter it without losing everyone's replies. SO, could you all

peruse this list and let me know if I left something off? Or if something

doesn't make sense?

Torticollis/Right Side

Torticollis/Left Side

Flat Spot on Right Posterior Side of Skull

Flat Spot on Left Posterior Side of Skull

Scaphocephalic Head Shape (long and narrow)

Brachycephalic Head Shape (entire back of head flat)

Crossed or Lazy Eye(s)

Infantile Scoliosis

Cervical Spine Subluxation

Nose Appears Pushed to one side

Unilateral Prominence of Cheek

Unilateral Bulging/Bossing Forehead

Harlequin Eye (one eye larger than other)

Unilateral Bat Ear (one ear sticks out and/or is curled forward)

Teeth Grinding

TMJ/Jaw Problems

Colic

Recurrent Ear Infections

In Utero Constraint

Breach Baby

Baby " dropped " early

Large for Gestational Age

Low Birth Weight

Large Head Circumference (in relation to body size or over 50th percentile)

IUGR

Multiple Birth

Premature Birth

Part of Pregnancy was spent on Bed Rest

Gestation Diabetes in Mother

Delay in Gross Motor Skills

Delay in Fine Motor Skills

Delay in Early Speech Development

Vacuum Extraction/Forceps Delivery

Cesarean Delivery

NICU Stay

Slept/Sat in car seat or bouncy chair for extended periods of time

Prone Sleeper (on tummy)

Supine Sleeper (on back)

Side Sleeper

Dislikes Tummy Time

C.

/subscribe/Plagiocephaly

[Guest guest]

Hi Group!! I am new to this list and just learning about the treatment options for plagiocephaly. I have 7 month old twins and Twin A has "mom diagnosed" plagiocephaly. I diagnosed it because our pediatrician insists it is not anything that won't correct itself and won't recommend treatment.

This list gives me the complete checklist as we visit our first specialist this week at the Cleveland Clinic. We are researching the helmet (which can be done here in Cleveland) or the DOC band (which would take us to Chicago - 2 hrs away). I would appreciate any comments/questions/advise you have to offer.

has several of these situations and we are going to fight to correct the shape of his head. I have just scratched the surface of this resource, and I appreciate all of you sharing your experiences.

Thanks,

Sue in Cleveland

----- Original Message -----

From: C.

Plagiocephaly

Sent: Sunday, April 02, 2000 11:38 PM

Subject: One last request for the Symptom Poll

OK, this is the list I'm going to use for the Poll. Once I create the poll, I can't alter it without losing everyone's replies. SO, could you all peruse this list and let me know if I left something off? Or if something doesn't make sense?

Torticollis/Right Side Torticollis/Left Side Flat Spot on Right Posterior Side of Skull Flat Spot on Left Posterior Side of Skull Scaphocephalic Head Shape (long and narrow) Brachycephalic Head Shape (entire back of head flat) Crossed or Lazy Eye(s) Infantile Scoliosis Cervical Spine Subluxation

Nose Appears Pushed to one side Unilateral Prominence of Cheek Unilateral Bulging/Bossing Forehead Harlequin Eye (one eye larger than other) Unilateral Bat Ear (one ear sticks out and/or is curled forward) Teeth Grinding TMJ/Jaw Problems Colic Recurrent Ear Infections In Utero Constraint Breach Baby

Baby "dropped" early Large for Gestational Age

Low Birth Weight

Large Head Circumference (in relation to body size or over 50th percentile) IUGR Multiple Birth Premature Birth Part of Pregnancy was spent on Bed Rest Gestation Diabetes in Mother Delay in Gross Motor Skills Delay in Fine Motor Skills Delay in Early Speech Development Vacuum Extraction/Forceps Delivery Cesarean Delivery NICU Stay Slept/Sat in car seat or bouncy chair for extended periods of time Prone Sleeper (on tummy) Supine Sleeper (on back) Side Sleeper

Dislikes Tummy Time

C./subscribe/Plagiocephaly

[Guest guest]

" Flat Spot on Right Posterior Side of Skull

Flat Spot on Left Posterior Side of Skull "

I thought that would cover it. Should I reword it?

C.

-----Original Message-----

From: Plagiocephalyegroups

Sent: Monday, April 03, 2000 7:18 AM

Plagiocephalyonelist

Subject: RE: One last request for the Symptom Poll

Um...would you want Plagiocephalic Head Shape (asymmetrical) too, or not?

-----Original Message-----

From: C. [mailto:crain@...]

Sent: Sunday, April 02, 2000 11:38 PM

Plagiocephaly

Subject: One last request for the Symptom Poll

OK, this is the list I'm going to use for the Poll. Once I create the poll,

I can't alter it without losing everyone's replies. SO, could you all

peruse this list and let me know if I left something off? Or if something

doesn't make sense?

Torticollis/Right Side

Torticollis/Left Side

Flat Spot on Right Posterior Side of Skull

Flat Spot on Left Posterior Side of Skull

Scaphocephalic Head Shape (long and narrow)

Brachycephalic Head Shape (entire back of head flat)

Crossed or Lazy Eye(s)

Infantile Scoliosis

Cervical Spine Subluxation

Nose Appears Pushed to one side

Unilateral Prominence of Cheek

Unilateral Bulging/Bossing Forehead

Harlequin Eye (one eye larger than other)

Unilateral Bat Ear (one ear sticks out and/or is curled forward)

Teeth Grinding

TMJ/Jaw Problems

Colic

Recurrent Ear Infections

In Utero Constraint

Breach Baby

Baby " dropped " early

Large for Gestational Age

Low Birth Weight

Large Head Circumference (in relation to body size or over 50th percentile)

IUGR

Multiple Birth

Premature Birth

Part of Pregnancy was spent on Bed Rest

Gestation Diabetes in Mother

Delay in Gross Motor Skills

Delay in Fine Motor Skills

Delay in Early Speech Development

Vacuum Extraction/Forceps Delivery

Cesarean Delivery

NICU Stay

Slept/Sat in car seat or bouncy chair for extended periods of time

Prone Sleeper (on tummy)

Supine Sleeper (on back)

Side Sleeper

Dislikes Tummy Time

C.

/subscribe/Plagiocephaly

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[Guest guest]

Sue,

I spoke with Cleveland over the phone last week and was very impressed with

them. They have a patent on their particular helmet and it sounded like a

very good option. We are in MI and Cleveland would be a 5 hour drive so we

are talking to UofM first this week and then will consider if we need to talk

with Cleveland of the folks in Chicago at Cranial Tech. I'd be very

interested in what you find out in person in Cleveland.

Good luck!

Robyn

[Guest guest]

Hi Sue!

Glad you're here! We are getting quite a collection of crazy Mom's who decided

to pop out a couple kids at once, so you're in good company

It will be hard for anyone here to tell you the DOC band is better then the

helmet or vice versa. Helmets vary so much between makers! I can tell you,

though, my daughter, Grace, has had pretty good luck with the DOC band. We go

to the Oak Brook, IL clinic. It's about a 3-hour drive for us. It's not too

bad, just check out a couple books on tape from the library, and pack some

cheerios for Jonathon and Tylenol for you, and you're off! The only bad thing

about driving that far is the price of gas (!) and I have to miss a day of work

every other week.

C.

-----Original Message-----

From: Plagiocephalyegroups

Sent: Monday, April 03, 2000 10:38 AM

Plagiocephalyonelist

Subject: Re: One last request for the Symptom Poll

Hi Group!! I am new to this list and just learning about the treatment options

for plagiocephaly. I have 7 month old twins and Twin A has " mom diagnosed " plag

iocephaly. I diagnosed it because our pediatrician insists it is not anything t

hat won't correct itself and won't recommend treatment.

This list gives me the complete checklist as we visit our first specialist this

week at the Cleveland Clinic. We are researching the helmet (which can be done

here in Cleveland) or the DOC band (which would take us to Chicago - 2 hrs away)

.. I would appreciate any comments/questions/advise you have to offer.

has several of these situations and we are going to fight to correct th

e shape of his head. I have just scratched the surface of this resource, and I

appreciate all of you sharing your experiences.

Thanks,

Sue in Cleveland

----- Original Message -----

From: C.

Plagiocephaly

Sent: Sunday, April 02, 2000 11:38 PM

Subject: One last request for the Symptom Poll

OK, this is the list I'm going to use for the Poll. Once I create the poll, I

can't alter it without losing everyone's replies. SO, could you all peruse thi

s list and let me know if I left something off? Or if something doesn't make se

nse?

1.. Torticollis/Right Side

2.. Torticollis/Left Side

3.. Flat Spot on Right Posterior Side of Skull

4.. Flat Spot on Left Posterior Side of Skull

5.. Scaphocephalic Head Shape (long and narrow)

6.. Brachycephalic Head Shape (entire back of head flat)

7.. Crossed or Lazy Eye(s)

8.. Infantile Scoliosis

9.. Cervical Spine Subluxation

10.. Nose Appears Pushed to one side

11.. Unilateral Prominence of Cheek

12.. Unilateral Bulging/Bossing Forehead

13.. Harlequin Eye (one eye larger than other)

14.. Unilateral Bat Ear (one ear sticks out and/or is curled forward)

15.. Teeth Grinding

16.. TMJ/Jaw Problems

17.. Colic

18.. Recurrent Ear Infections

19.. In Utero Constraint

20.. Breach Baby

21.. Baby " dropped " early

22.. Large for Gestational Age

23.. Low Birth Weight

24.. Large Head Circumference (in relation to body size or over 50th percent

ile)

25.. IUGR

26.. Multiple Birth

27.. Premature Birth

28.. Part of Pregnancy was spent on Bed Rest

29.. Gestation Diabetes in Mother

30.. Delay in Gross Motor Skills

31.. Delay in Fine Motor Skills

32.. Delay in Early Speech Development

33.. Vacuum Extraction/Forceps Delivery

34.. Cesarean Delivery

35.. NICU Stay

36.. Slept/Sat in car seat or bouncy chair for extended periods of time

37.. Prone Sleeper (on tummy)

38.. Supine Sleeper (on back)

39.. Side Sleeper

40.. Dislikes Tummy Time

C.

/subscribe/Plagiocephaly

------------------------------------------------------------------------------

------------------------------------------------------------------------------

[Guest guest]

HI SUE MY SON JUST GOT THE HELMET TODAY HERE IS A PICTURE OF WHAT IT LOOKS

LIKE THE DOCTOR TOLD ME BOTH BAND AND HELMET HAVE THE SAME EFFECT SO IF I

WERE U DONT WORRY I AM SURE IT WILL WORK ON YOUR CHILD.[unable to display

image]

[Guest guest]

Hi Sue!

Glad you're here! We are getting quite a collection of crazy Mom's who decided

to pop out a couple kids at once, so you're in good company

It will be hard for anyone here to tell you the DOC band is better then the

helmet or vice versa. Helmets vary so much between makers! I can tell you,

though, my daughter, Grace, has had pretty good luck with the DOC band. We go

to the Oak Brook, IL clinic. It's about a 3-hour drive for us. It's not too

bad, just check out a couple books on tape from the library, and pack some

cheerios for Jonathon and Tylenol for you, and you're off! The only bad thing

about driving that far is the price of gas (!) and I have to miss a day of work

every other week.

C.

-----Original Message-----

From: Plagiocephalyegroups

Sent: Monday, April 03, 2000 10:38 AM

Plagiocephalyonelist

Subject: Re: One last request for the Symptom Poll

Hi Group!! I am new to this list and just learning about the treatment options

for plagiocephaly. I have 7 month old twins and Twin A has " mom diagnosed " plag

iocephaly. I diagnosed it because our pediatrician insists it is not anything t

hat won't correct itself and won't recommend treatment.

This list gives me the complete checklist as we visit our first specialist this

week at the Cleveland Clinic. We are researching the helmet (which can be done

here in Cleveland) or the DOC band (which would take us to Chicago - 2 hrs away)

.. I would appreciate any comments/questions/advise you have to offer.

has several of these situations and we are going to fight to correct th

e shape of his head. I have just scratched the surface of this resource, and I

appreciate all of you sharing your experiences.

Thanks,

Sue in Cleveland

----- Original Message -----

From: C.

Plagiocephaly

Sent: Sunday, April 02, 2000 11:38 PM

Subject: One last request for the Symptom Poll

OK, this is the list I'm going to use for the Poll. Once I create the poll, I

can't alter it without losing everyone's replies. SO, could you all peruse thi

s list and let me know if I left something off? Or if something doesn't make se

nse?

1.. Torticollis/Right Side

2.. Torticollis/Left Side

3.. Flat Spot on Right Posterior Side of Skull

4.. Flat Spot on Left Posterior Side of Skull

5.. Scaphocephalic Head Shape (long and narrow)

6.. Brachycephalic Head Shape (entire back of head flat)

7.. Crossed or Lazy Eye(s)

8.. Infantile Scoliosis

9.. Cervical Spine Subluxation

10.. Nose Appears Pushed to one side

11.. Unilateral Prominence of Cheek

12.. Unilateral Bulging/Bossing Forehead

13.. Harlequin Eye (one eye larger than other)

14.. Unilateral Bat Ear (one ear sticks out and/or is curled forward)

15.. Teeth Grinding

16.. TMJ/Jaw Problems

17.. Colic

18.. Recurrent Ear Infections

19.. In Utero Constraint

20.. Breach Baby

21.. Baby " dropped " early

22.. Large for Gestational Age

23.. Low Birth Weight

24.. Large Head Circumference (in relation to body size or over 50th percent

ile)

25.. IUGR

26.. Multiple Birth

27.. Premature Birth

28.. Part of Pregnancy was spent on Bed Rest

29.. Gestation Diabetes in Mother

30.. Delay in Gross Motor Skills

31.. Delay in Fine Motor Skills

32.. Delay in Early Speech Development

33.. Vacuum Extraction/Forceps Delivery

34.. Cesarean Delivery

35.. NICU Stay

36.. Slept/Sat in car seat or bouncy chair for extended periods of time

37.. Prone Sleeper (on tummy)

38.. Supine Sleeper (on back)

39.. Side Sleeper

40.. Dislikes Tummy Time

C.

/subscribe/Plagiocephaly

------------------------------------------------------------------------------

------------------------------------------------------------------------------

[Guest guest]

" Flat Spot on Right Posterior Side of Skull

Flat Spot on Left Posterior Side of Skull "

I thought that would cover it. Should I reword it?

C.

-----Original Message-----

From: Plagiocephalyegroups

Sent: Monday, April 03, 2000 7:18 AM

Plagiocephalyonelist

Subject: RE: One last request for the Symptom Poll

Um...would you want Plagiocephalic Head Shape (asymmetrical) too, or not?

-----Original Message-----

From: C. [mailto:crain@...]

Sent: Sunday, April 02, 2000 11:38 PM

Plagiocephaly

Subject: One last request for the Symptom Poll

OK, this is the list I'm going to use for the Poll. Once I create the poll,

I can't alter it without losing everyone's replies. SO, could you all

peruse this list and let me know if I left something off? Or if something

doesn't make sense?

Torticollis/Right Side

Torticollis/Left Side

Flat Spot on Right Posterior Side of Skull

Flat Spot on Left Posterior Side of Skull

Scaphocephalic Head Shape (long and narrow)

Brachycephalic Head Shape (entire back of head flat)

Crossed or Lazy Eye(s)

Infantile Scoliosis

Cervical Spine Subluxation

Nose Appears Pushed to one side

Unilateral Prominence of Cheek

Unilateral Bulging/Bossing Forehead

Harlequin Eye (one eye larger than other)

Unilateral Bat Ear (one ear sticks out and/or is curled forward)

Teeth Grinding

TMJ/Jaw Problems

Colic

Recurrent Ear Infections

In Utero Constraint

Breach Baby

Baby " dropped " early

Large for Gestational Age

Low Birth Weight

Large Head Circumference (in relation to body size or over 50th percentile)

IUGR

Multiple Birth

Premature Birth

Part of Pregnancy was spent on Bed Rest

Gestation Diabetes in Mother

Delay in Gross Motor Skills

Delay in Fine Motor Skills

Delay in Early Speech Development

Vacuum Extraction/Forceps Delivery

Cesarean Delivery

NICU Stay

Slept/Sat in car seat or bouncy chair for extended periods of time

Prone Sleeper (on tummy)

Supine Sleeper (on back)

Side Sleeper

Dislikes Tummy Time

C.

/subscribe/Plagiocephaly

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0.0% Intro or 9.9% Fixed APR and no hidden fees.

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[Guest guest]

I was trying to get around saying " Right Posterior Occipital Positional

Plagiocephaly or Left Posterior Occipital Positional Plagiocephaly " . Somewhere

about the middle of that your brain starts to go numb.

C.

-----Original Message-----

From: Plagiocephalyegroups

Sent: Monday, April 03, 2000 3:38 PM

Plagiocephalyegroups

Subject: RE: One last request for the Symptom Poll

Guess I missed it....looking for that " big word " since you had the other big

names in there... *blush*

tracy

-----Original Message-----

From: Crain [mailto:acrain@...]

Sent: Monday, April 03, 2000 3:50 PM

Plagiocephalyegroups

Subject: RE: One last request for the Symptom Poll

" Flat Spot on Right Posterior Side of Skull

Flat Spot on Left Posterior Side of Skull "

I thought that would cover it. Should I reword it?

C.

-----Original Message-----

From: Plagiocephalyegroups

Sent: Monday, April 03, 2000 7:18 AM

Plagiocephalyonelist

Subject: RE: One last request for the Symptom Poll

Um...would you want Plagiocephalic Head Shape (asymmetrical) too, or not?

-----Original Message-----

From: C. [mailto:crain@...]

Sent: Sunday, April 02, 2000 11:38 PM

Plagiocephaly

Subject: One last request for the Symptom Poll

OK, this is the list I'm going to use for the Poll. Once I create the poll,

I can't alter it without losing everyone's replies. SO, could you all

peruse this list and let me know if I left something off? Or if something

doesn't make sense?

Torticollis/Right Side

Torticollis/Left Side

Flat Spot on Right Posterior Side of Skull

Flat Spot on Left Posterior Side of Skull

Scaphocephalic Head Shape (long and narrow)

Brachycephalic Head Shape (entire back of head flat)

Crossed or Lazy Eye(s)

Infantile Scoliosis

Cervical Spine Subluxation

Nose Appears Pushed to one side

Unilateral Prominence of Cheek

Unilateral Bulging/Bossing Forehead

Harlequin Eye (one eye larger than other)

Unilateral Bat Ear (one ear sticks out and/or is curled forward)

Teeth Grinding

TMJ/Jaw Problems

Colic

Recurrent Ear Infections

In Utero Constraint

Breach Baby

Baby " dropped " early

Large for Gestational Age

Low Birth Weight

Large Head Circumference (in relation to body size or over 50th percentile)

IUGR

Multiple Birth

Premature Birth

Part of Pregnancy was spent on Bed Rest

Gestation Diabetes in Mother

Delay in Gross Motor Skills

Delay in Fine Motor Skills

Delay in Early Speech Development

Vacuum Extraction/Forceps Delivery

Cesarean Delivery

NICU Stay

Slept/Sat in car seat or bouncy chair for extended periods of time

Prone Sleeper (on tummy)

Supine Sleeper (on back)

Side Sleeper

Dislikes Tummy Time

C.

/subscribe/Plagiocephaly

------------------------------------------------------------------------

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[Guest guest]

Guess I missed it....looking for that " big word " since you had the other big

names in there... *blush*

tracy

-----Original Message-----

From: Crain [mailto:acrain@...]

Sent: Monday, April 03, 2000 3:50 PM

Plagiocephalyegroups

Subject: RE: One last request for the Symptom Poll

" Flat Spot on Right Posterior Side of Skull

Flat Spot on Left Posterior Side of Skull "

I thought that would cover it. Should I reword it?

C.

-----Original Message-----

From: Plagiocephalyegroups

Sent: Monday, April 03, 2000 7:18 AM

Plagiocephalyonelist

Subject: RE: One last request for the Symptom Poll

Um...would you want Plagiocephalic Head Shape (asymmetrical) too, or not?

-----Original Message-----

From: C. [mailto:crain@...]

Sent: Sunday, April 02, 2000 11:38 PM

Plagiocephaly

Subject: One last request for the Symptom Poll

OK, this is the list I'm going to use for the Poll. Once I create the poll,

I can't alter it without losing everyone's replies. SO, could you all

peruse this list and let me know if I left something off? Or if something

doesn't make sense?

Torticollis/Right Side

Torticollis/Left Side

Flat Spot on Right Posterior Side of Skull

Flat Spot on Left Posterior Side of Skull

Scaphocephalic Head Shape (long and narrow)

Brachycephalic Head Shape (entire back of head flat)

Crossed or Lazy Eye(s)

Infantile Scoliosis

Cervical Spine Subluxation

Nose Appears Pushed to one side

Unilateral Prominence of Cheek

Unilateral Bulging/Bossing Forehead

Harlequin Eye (one eye larger than other)

Unilateral Bat Ear (one ear sticks out and/or is curled forward)

Teeth Grinding

TMJ/Jaw Problems

Colic

Recurrent Ear Infections

In Utero Constraint

Breach Baby

Baby " dropped " early

Large for Gestational Age

Low Birth Weight

Large Head Circumference (in relation to body size or over 50th percentile)

IUGR

Multiple Birth

Premature Birth

Part of Pregnancy was spent on Bed Rest

Gestation Diabetes in Mother

Delay in Gross Motor Skills

Delay in Fine Motor Skills

Delay in Early Speech Development

Vacuum Extraction/Forceps Delivery

Cesarean Delivery

NICU Stay

Slept/Sat in car seat or bouncy chair for extended periods of time

Prone Sleeper (on tummy)

Supine Sleeper (on back)

Side Sleeper

Dislikes Tummy Time

C.

/subscribe/Plagiocephaly

------------------------------------------------------------------------

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[Guest guest]

Grace could have gotten in to be cast the very next day! Except, if I was going

to use my insurance, I needed a letter saying they would cover it. That took a

week of constantly badgering them (it didn't even require preauthorization -

they were just slow). SO, I pretty much said to the insurance people (very

nicely, of course) " Grace has an appointment on Friday, I need a letter stating

the band is covered by then. " The appointment was penciled in, but they didn't

need to know that. They wanted photos and a letter from her cranio doc. But,

they accepted faxed photos, so we didn't have to wait on the mail (yay!). Then,

CT accepted a faxed copy of the letter from the insurance, saving time again.

So, we did make our Friday apt.!

You just have to remember, don't believe your insurance rep when they say,

" she/he is faxing it right now. " If you can't stay on the phone until it's

faxed, have them call you after it's gone through. I was told for 2 or 3 days

and several times a day, " She's walking to the fax machine now, I'm faxing that

right now, She's going to fax that first thing in the morning. " Ugh.

C.

-----Original Message-----

From: Plagiocephalyegroups

Sent: Monday, April 03, 2000 4:09 PM

Plagiocephalyegroups

Subject: RE: One last request for the Symptom Poll

well, in my case, my brain is numb already *grin* ( thanks to a nasty case

of bronchitis and less than normal sleep lately...) -- but you are right,

and I think your original categories cover it.

By the way -- about how long did it take for the Chicago Clinic to schedule

you for the casting once you called them? Did they have to approve your

insurance first? About how long did that take...? (nosy, nosy, I know...

trying to figure out what type of time-line we might be on).

-----Original Message-----

From: Crain [mailto:acrain@...]

Sent: Monday, April 03, 2000 4:38 PM

Plagiocephalyegroups

Subject: RE: One last request for the Symptom Poll

I was trying to get around saying " Right Posterior Occipital Positional

Plagiocephaly or Left Posterior Occipital Positional Plagiocephaly " .

Somewhere

about the middle of that your brain starts to go numb.

C.

-----Original Message-----

From: Plagiocephalyegroups

Sent: Monday, April 03, 2000 3:38 PM

Plagiocephalyegroups

Subject: RE: One last request for the Symptom Poll

Guess I missed it....looking for that " big word " since you had the other big

names in there... *blush*

tracy

-----Original Message-----

From: Crain [mailto:acrain@...]

Sent: Monday, April 03, 2000 3:50 PM

Plagiocephalyegroups

Subject: RE: One last request for the Symptom Poll

" Flat Spot on Right Posterior Side of Skull

Flat Spot on Left Posterior Side of Skull "

I thought that would cover it. Should I reword it?

C.

[Guest guest]

well, in my case, my brain is numb already *grin* ( thanks to a nasty case

of bronchitis and less than normal sleep lately...) -- but you are right,

and I think your original categories cover it.

By the way -- about how long did it take for the Chicago Clinic to schedule

you for the casting once you called them? Did they have to approve your

insurance first? About how long did that take...? (nosy, nosy, I know...

trying to figure out what type of time-line we might be on).

-----Original Message-----

From: Crain [mailto:acrain@...]

Sent: Monday, April 03, 2000 4:38 PM

Plagiocephalyegroups

Subject: RE: One last request for the Symptom Poll

I was trying to get around saying " Right Posterior Occipital Positional

Plagiocephaly or Left Posterior Occipital Positional Plagiocephaly " .

Somewhere

about the middle of that your brain starts to go numb.

C.

-----Original Message-----

From: Plagiocephalyegroups

Sent: Monday, April 03, 2000 3:38 PM

Plagiocephalyegroups

Subject: RE: One last request for the Symptom Poll

Guess I missed it....looking for that " big word " since you had the other big

names in there... *blush*

tracy

-----Original Message-----

From: Crain [mailto:acrain@...]

Sent: Monday, April 03, 2000 3:50 PM

Plagiocephalyegroups

Subject: RE: One last request for the Symptom Poll

" Flat Spot on Right Posterior Side of Skull

Flat Spot on Left Posterior Side of Skull "

I thought that would cover it. Should I reword it?

C.

[Guest guest]

Did most of you who are going to Cranial Tech have a referral or Rx from your

pediatrician or from the crainial facial folks, or nuerosurgeon?

Thanks. Robyn

[Guest guest]

Hi Robyn - I rec'd a referral from my ped to a cranial facial specialist and

he wrote the rx! Hope that helps some! Patty

P.S. We are going to Cranial Tech in Charlotte, NC

[Guest guest]

Grace had a rx from a Craniofacial Plastic Surgeon. She was referred to the Cranio doc by a doctor who ended up becoming her Pediatrician (her GP at the time poo-pooed me once too often).

C./subscribe/Plagiocephaly

----- Original Message -----

From: srmj4@...

Plagiocephalyegroups

Sent: Monday, April 03, 2000 9:47 PM

Subject: Re: One last request for the Symptom Poll

Did most of you who are going to Cranial Tech have a referral or Rx from your pediatrician or from the crainial facial folks, or nuerosurgeon? Thanks. Robyn

[Guest guest]

Kendra, haven't you figured it out by now? I just make that stuff up! Actually, I didn't even know it had a name until I ran across it the other day in a listing of dysmorphisms (deformations).

IUGR is intrauterine growth retardation. It's where the baby's growth slows down for some reason. Oftentimes they don't know why it happens. It can lead to a low birthweight and failure to thrive. I've actually read (and unfortunately experienced) that great stress might create a situation where IUGR happens.

C./subscribe/Plagiocephaly

----- Original Message -----

From: & Kendra

Plagiocephalyonelist

Sent: Monday, April 03, 2000 12:09 AM

Subject: Re: One last request for the Symptom Poll

BAT EAR!!!!!!! Where do you come up with them??????? what is IUGR? Kendra " C." wrote:

OK, this is the list I'm going to use for the Poll. Once I create the poll, I can't alter it without losing everyone's replies. SO, could you all peruse this list and let me know if I left something off? Or if something doesn't make sense?

Torticollis/Right Side Torticollis/Left Side Flat Spot on Right Posterior Side of Skull Flat Spot on Left Posterior Side of Skull Scaphocephalic Head Shape (long and narrow) Brachycephalic Head Shape (entire back of head flat) Crossed or Lazy Eye(s) Infantile Scoliosis Cervical Spine Subluxation Nose Appears Pushed to one side Unilateral Prominence of Cheek Unilateral Bulging/Bossing Forehead Harlequin Eye (one eye larger than other) Unilateral Bat Ear (one ear sticks out and/or is curled forward) Teeth Grinding TMJ/Jaw Problems Colic Recurrent Ear Infections In Utero Constraint Breach Baby Baby "dropped" early Large for Gestational Age Low Birth Weight Large Head Circumference (in relation to body size or over 50th percentile) IUGR Multiple Birth Premature Birth Part of Pregnancy was spent on Bed Rest Gestation Diabetes in Mother Delay in Gross Motor Skills Delay in Fine Motor Skills Delay in Early Speech Development Vacuum Extraction/Forceps Delivery Cesarean Delivery NICU Stay Slept/Sat in car seat or bouncy chair for extended periods of time Prone Sleeper (on tummy) Supine Sleeper (on back) Side Sleeper Dislikes Tummy Time C. /subscribe/Plagiocephaly

[Guest guest]

Robyn,

I got a Rx from the osteopath my baby goes too. The pediatrician and the

cranial facial expert both thought the other should write it and so neither

did! Sigh...

----- Original Message -----

From: <srmj4@...>

<Plagiocephalyegroups>

Sent: Monday, April 03, 2000 7:47 PM

Subject: Re: One last request for the Symptom Poll

> Did most of you who are going to Cranial Tech have a referral or Rx from

your

> pediatrician or from the crainial facial folks, or nuerosurgeon?

>

> Thanks. Robyn

>

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