Re: SMA III & similarity to post polio syndrome

[Guest guest]

For awhile I actually was in a post-polio discussion group because the

similiarities were so close.

Jenn

Joan Newman wrote:

> I've been reading at the post polio syndrome boards. My doctor

>told me that SMA III is almost identical to post polio but ours is

>genetic. When reading the posts and about post polio.. really

>describes well symptoms I have. I don't have pain or heart trouble,

>but the rest is to a T.

>It's really interesting reading.. & SO MANY have post polio syndrome

>it makes me feel not so alone. Too, if I tell people I have SMA

>they don't have a clue what I am talking about.. tell them it's

>similar to post polio syndrome (although I know type II & III are

>far more serious).. they listen.

>Well, better get moving..

>

>Joan

>

[Guest guest]

Really Jenn?

It is amazing the similarities of post polio... what I am finding really helpful

is how they approach it psychology.. they say pps people are adept at denial,

the need to learn that it is ok to be disabled & they need to learn to ask for

help.. I NEED to follow all of that advice!!! It's good to see that there are

many in that mode!!!

Joan

Jenn Malatesta <nekrosys@...> wrote:

For awhile I actually was in a post-polio discussion group because the

similiarities were so close.

Jenn

Joan Newman wrote:

> I've been reading at the post polio syndrome boards. My doctor

>told me that SMA III is almost identical to post polio but ours is

>genetic. When reading the posts and about post polio.. really

>describes well symptoms I have. I don't have pain or heart trouble,

>but the rest is to a T.

>It's really interesting reading.. & SO MANY have post polio syndrome

>it makes me feel not so alone. Too, if I tell people I have SMA

>they don't have a clue what I am talking about.. tell them it's

>similar to post polio syndrome (although I know type II & III are

>far more serious).. they listen.

>Well, better get moving..

>

>Joan

>

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