RE: swallowing difficulties?

January 18, 2004

i cant eat meat, or tough things like that. i used to be able to though.

. . .. . .

" Talkin' the talk, rollin' the walk'

January 18, 2004

I agree with ; age has nothing to do with swallowing ability. I

am 56 (type I/II) and have never had trouble chewing or swallowing. I

do need something to drink while eating, but if I have a glass of water

I can eat just about anything I want. I have to eat slow and if I am

very tired I need to rest between bites, but all in all eating has never

been a problem for me. I can also open my mouth quite wide and stick out

my tongue (but not touch my nose as someone asked, LOL. But Mike can!).

Also, like , I have very weak neck muscles and cannot hold my head

up.

Pamela

wrote:

Reply to:

I think its one of the huge variables w/ sma that i've noticed.

some people seem to have certain parts of their body more affected

than other parts, or have every part affected equally. some

progress fast, some slow and some don't even notice much

progression.

For me, swallowing isn't a problem. I'm sure my swallowing is

weaker than the average AB for sure, but I've never had

difficulty getting food down, chewing. I can eat any type

of food. The only thing that is sometimes difficult is saliva if im

laying down. My sma doesn't seem to have affected my facial

muscles much really for some reason. I can make expressions easily

and my speech isn't that affected. i do notice if i talk a lot my

voice gets tired/weaker/slurred. the rest of my body it has

of course taken a toll on. my neck is most affected (cant

support head sitting up)

January 19, 2004

i can eat tiny pieces of some meat, but not like a hamburger.

. . .. . .

" Talkin' the talk, rollin' the walk'

January 19, 2004

In a message dated 1/19/2004 3:54:46 PM Eastern Standard Time,

heaven20seven@... writes:

i can eat tiny pieces of some meat, but not like a hamburger.

I finely chop the meat in food procesor and lubricate it w/ sauce or butter.

s, the Unique Princess

" Follow your heart, your intuition, it will lead you in the right direction. "

-Jewel

January 19, 2004

have you tried a marinade? that typically makes the meat very tender.

if you marinade overnight and cut the pieces up small, i think it

would be best.

i dont eat meat regularly, so i dont have that problem. however, the

past year ive noticed a decrease in muscle strength in my jaw. its

more difficult to chew but not that it becomes such a big deal.

~Kendra

> i cant eat meat, or tough things like that. i used to be able to

though.

>

> . . .. . .

> " Talkin' the talk, rollin' the walk'

>

January 19, 2004

now you know why i have a gtube. not as a 'fashion accessory' as you

mentioned before, but because......it sometimes comes in handy!

. . .. . .

" Talkin' the talk, rollin' the walk'

January 19, 2004

In a message dated 1/19/2004 11:52:08 PM Central Standard Time,

heaven20seven@... writes:

now you know why i have a gtube. not as a 'fashion accessory' as you

mentioned before, but because......it sometimes comes in handy!

fashion accessory? who would say that? seems like a pain in the ass to me!

This chick i know - hers is like growing out. eww!

*Amy*

Mother to Caitlyn Mae - born to heaven 3/26/98

Olivia Isabelle - born to earth 9/18/03

Wife to Will 11/03/95

http://community.webshots.com/user/blueyedaze

January 19, 2004

In a message dated 1/18/2004 9:20:33 PM Mountain Standard Time,

blueyedaze@... writes:

> By the end, I wish I had had a g-tube,

> but unfortunately it wouldn't have even been possible to HAVE one because of

>

> how huge my tummy was.

>

you asked me why i have a gtube if i dont NEED it, referring to it as a

'fashion accessory'----a gtube nice to have sometimes.

. . .. . .

" Talkin' the talk, rollin' the walk'

January 19, 2004

In a message dated 1/19/2004 6:48:49 PM Pacific Standard Time,

abrcrombsweetie@... writes:

I notice if something is more difficult to

> swallow--like thick and dry, or too big of a bite,

> illl kinda of put my down as i swallow extra

> hard--as if to help it. ill have to pay closer

> attention next time i eat though...hmmm.

lol I do that and notice it most of the time. I've tried not doing it just to

see what would happen and I just can't help it.

January 20, 2004

In a message dated 1/18/2004 10:20:16 PM Central Standard Time,

blueyedaze@... writes:

By the end, I wish I had had a g-tube,

but unfortunately it wouldn't have even been possible to HAVE one because of

how huge my tummy was.

ehheheh

January 20, 2004

In a message dated 1/20/2004 12:15:54 AM Central Standard Time,

blueyedaze@... writes:

This chick i know - hers is like growing out. eww!

like i think that is like one of the weirdest things. and like i know the

same girl and like i dunno. Is she like the same one we like had like over.

like

January 20, 2004

In a message dated 1/20/2004 12:42:29 AM Central Standard Time,

heaven20seven@... writes:

you asked me why i have a gtube if i dont NEED it, referring to it as a

'fashion accessory'----a gtube nice to have sometimes.

A fashion accessory is a belt, dude. You've got some MAJOR mental issues. I

just don't get you at all.

*Amy*

Mother to Caitlyn Mae - born to heaven 3/26/98

Olivia Isabelle - born to earth 9/18/03

Wife to Will 11/03/95

http://community.webshots.com/user/blueyedaze

January 20, 2004

In a message dated 1/20/2004 3:42:21 PM Central Standard Time,

KingIbexx@... writes:

like i think that is like one of the weirdest things. and like i know the

same girl and like i dunno. Is she like the same one we like had like over.

like

I totally like think so. Wanna go steady?

*Amy*

Mother to Caitlyn Mae - born to heaven 3/26/98

Olivia Isabelle - born to earth 9/18/03

Wife to Will 11/03/95

http://community.webshots.com/user/blueyedaze

January 20, 2004

Jenn wrote: " In the afternoon, I

drink protein shakes because frankly I get bored eating cuz it takes me

so darn long. "