Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 woah grrl! .jessica. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 by a stranger with whom i was arguing. " nex time i'm gonna make it so you don't need that wheelchair, bitch. " waving a gun at me. At 01:52 AM 11/2/2004, you wrote: >how many of you have been verbally abused by someone b/c of your disability? >by whom? >what exactly was it about, i.e. being a burden, unrealistic goals, etc? > > >kimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 i grew up in around a lot of boys in my family so they ruff housed me but it was more like treating me as an equal but i was born to a vey young mother (pregnant at 16 had me at 17) and as i was grewing up so was she and she experimented with A LOT of drugs and had lots of boyfriends and well she wasnt very nice to me when she was on a drug bindge... never hurt me physicaly but verbaly... once when i was 13/14 i met a guy and we were really close friends and i sorta had a crush and at that age my mom and i had many many verbal fights (cuz i was raised to stick up for myself) and she seen i was making a type and asked what i was doing. i told her i was making a type and she asked for who so i told her. she then said " does he know you're in a wheel chair? " and i didnt answer i just shrugged my shoulders and she said " cuz i bet if he did know he wouldnt like u any more " i got very very made and told her " well i bet u feel stupid cuz he does know and he does like me so get the f*** out of here!!! " the thing was he didnt know cuz we met on the phone and built a friendship on the phone... i was scared after that... but i ended up telling him and we r still the bestest friends!! another time was when i was 19 and i lived with my grandma and her and a friend were getting drunk and it came time to put me to bed and she said something like " yeah we should have put u in a hospital " i cussed her out too... but we made never talked about it again so we just burried it... > how many of you have been verbally abused by someone b/c of your disability? > by whom? > what exactly was it about, i.e. being a burden, unrealistic goals, etc? > > > kimi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 Ksmile96@... wrote: >how many of you have been verbally abused by someone b/c of your disability? >by whom? >what exactly was it about, i.e. being a burden, unrealistic goals, etc? > My mom definately - a burden she must bear Helpers at grade school - complained about my weight & difficulty in caring for me Nurses in hospitals - same as above Bus drivers - extra work -- Jenn Malatesta http://www.isoc.net/brokeninside/nekrosys/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 wrote: > My mom - a burden she had to bear when I was young, and is glad she > has now passed on (to my husband) so she could 'live her own life'. And don't you love the way moms constantly bring the 'passage of the burden' up whenever and to whoever they want? Urg! -- Jenn Malatesta http://www.isoc.net/brokeninside/nekrosys/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 I was verbally abused by some classmates in junior high, It got really bad and lasted almost two years... I didn't tell my mom, because I didn't want to hurt her and I didn't think there was anything she could do about it. Eventually I did tell her and she was hurt and also angry, but it helped to talk about it. Then I went to high school and on to university and nothing like that has ever happened to me again, but it still lingers. One good thing, though, my mother is a teacher and now she is very attentive to verbal abuse among her students. She always tells them to come to her if they are verbally abused by anyone - and to not abuse anyone else, either. She will not tolerate it!!!! They can pick on her if they want, she tells them, 'cause she can handle it and she gets paid for it!!! I think she is the coolest! Lene > > >how many of you have been verbally abused by someone b/c of your disability? > >by whom? > >what exactly was it about, i.e. being a burden, unrealistic goals, etc? > > > My mom definately - a burden she must bear > Helpers at grade school - complained about my weight & difficulty in > caring for me > Nurses in hospitals - same as above > Bus drivers - extra work > > -- > Jenn Malatesta > http://www.isoc.net/brokeninside/nekrosys/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 In a message dated 11/2/2004 2:19:39 PM Pacific Standard Time, nekrosys@... writes: >how many of you have been verbally abused by someone b/c of your disability? >by whom? >what exactly was it about, i.e. being a burden, unrealistic goals, etc? > My mom definately - a burden she must bear Helpers at grade school - complained about my weight & difficulty in caring for me Nurses in hospitals - same as above Bus drivers - extra work I was on the bus the other day and the driver was such a jerk. He got irritated with me and started yelling at my friends because he thought I wasn't properly secured (I was secured just fine). He stopped the bus and came to where we were sitting and coped an attitude in front of everyone else. As if that wasn't enough, he basically held us captive on the bus. We wanted to get off at a certain stop and he wouldn't let us. He overheard us saying that we wanted to get to the BART station and he said that he knew a better stop. What he didn't know was that we had planned on doing something else before we went to the BART station. We kept telling him we wanted to get off but he just ignored us and it's not like I can jump off the next time he stopped since he controlled the ramp. Dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 DeTannous@... wrote: >I was on the bus the other day and the driver was such a jerk. > I actually had a bus driver tell me that " my kind " shouldn't be allowed to ride on the bus in front of all the other passengers. Grrr! -- Jenn Malatesta http://www.isoc.net/brokeninside/nekrosys/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 I get a lot of crap with transportation for the disabled. I've been called every name in the book from crippled idiot to mother f***ing b**** for just sitting on the bus minding my own business. They talk to the disabled passengers as though we can't hear or understand what they're saying. Their supervisors are not much better. The TA here is being investigated for many issues. I made sure this was one of them. I'm also glad so many other people made these issues public by calling in with their experiences and writing into newspapers. > > >I was on the bus the other day and the driver was such a jerk. > > > I actually had a bus driver tell me that " my kind " shouldn't be allowed > to ride on the bus in front of all the other passengers. Grrr! > > -- > Jenn Malatesta > http://www.isoc.net/brokeninside/nekrosys/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 In a message dated 11/3/2004 6:54:20 PM Pacific Standard Time, lilredhalo@... writes: where is it that those of u with the bad transportation abuse live? i'm like soooo omg at ur stories!!! every where i've gone be it bus, taxi, or strolling down the street or at school everyone is way nice and helpful!! even overly helpful and nice!! omg thats sooo crazy!! I live in San Francisco and usually everyone is very nice and helpful.... even perfect strangers. This case was an exception. Dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 In a message dated 11/3/2004 10:08:55 PM Eastern Standard Time, kendra@... writes: I'm in Albany, NY. So when are we hanging out? Amy Wife to Will 11/3/95 Mother to Olivia Isabelle 9/18/03 http://www.babiesonline.com/babies/o/oliviathegreat/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 when i was a kind i had a few boys around the neiborhood call me " robo-girl " but i called the other kid " yuck mouth " cuz he had really bad teeth and the other " pig-pen " cuz he was always dirt and instead of others around laughing at me they started laughing at then cuz everyone new it was true lol they all learn i had a quick and sharp tongue and i got respected for it from then on. where is it that those of u with the bad transportation abuse live? i'm like soooo omg at ur stories!!! every where i've gone be it bus, taxi, or strolling down the street or at school everyone is way nice and helpful!! even overly helpful and nice!! omg thats sooo crazy!! > > > > >I was on the bus the other day and the driver was such a jerk. > > > > > I actually had a bus driver tell me that " my kind " shouldn't be allowed > > to ride on the bus in front of all the other passengers. Grrr! > > > > -- > > Jenn Malatesta > > http://www.isoc.net/brokeninside/nekrosys/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 I'm in Albany, NY. > where is it that those of u with the bad transportation abuse > live? i'm like soooo omg at ur stories!!! every where i've gone be it > bus, taxi, or strolling down the street or at school everyone is way > nice and helpful!! even overly helpful and nice!! omg thats sooo > crazy!! > > > > > > > > > > > > >I was on the bus the other day and the driver was such a jerk. > > > > > > > I actually had a bus driver tell me that " my kind " shouldn't be > allowed > > > to ride on the bus in front of all the other passengers. Grrr! > > > > > > -- > > > Jenn Malatesta > > > http://www.isoc.net/brokeninside/nekrosys/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 In a message dated 11/3/2004 7:43:27 PM Eastern Standard Time, kendra@... writes: get a lot of crap with transportation for the disabled. I've been called every name in the book from crippled idiot to mother f***ing b**** for just sitting on the bus minding my own business. They talk to the disabled passengers as though we can't hear or understand what they're saying. Their supervisors are not much better. The TA here is being investigated for many issues. I made sure this was one of them. I'm also glad so many other people made these issues public by calling in with their experiences and writing into newspapers. Thats troy for you. Me and Amy have nver ridden on cdta together, but by myself everytime someone got on the bus who was in a wheelchair there was this dark murmur from the other passengers. Especially on central Ave in Albany. on a busy a bus going out of Albany! Hot damn some people had to get off cause there wasn't enough room. there were some seriously pissed people. But I never heard any comments. Will Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 I never get negative comments either. I'm on Long Island. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Yeah I rarely ride CDTA. I've even gotten it from the bus driver while he's buckling down the chair about how it's a waste of space and time to allow these wheelchairs on the bus. You bet your ass I spoke up about it to him. I mostly get this harassment from STAR bus!! Which is disabled ONLY buses. HELLO!!! If you don't want to be working with the disabled, get another job! Capital area transportation is horrific! > Thats troy for you. Me and Amy have nver ridden on cdta together, but by > myself everytime someone got on the bus who was in a wheelchair there was > this dark murmur from the other passengers. Especially on central Ave in > Albany. on a busy a bus going out of Albany! Hot damn some people had to get off > cause there wasn't enough room. there were some seriously pissed people. But I > never heard any comments. > > Will > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 We should get together one day. It'll be great to meet! > > In a message dated 11/3/2004 10:08:55 PM Eastern Standard Time, > kendra@l... writes: > > > I'm in Albany, NY. > > > > > > > So when are we hanging out? > > Amy > Wife to Will 11/3/95 > Mother to Olivia Isabelle 9/18/03 > http://www.babiesonline.com/babies/o/oliviathegreat/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Hi- I can't believe all of the negative experiences some people here claim to have. I have never had comments like that. _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 I live in Ohio. At the time of my incidents, I lived in Dayton. Both drivers on regular bus routes and on the special disabled shuttles gave me grief. I now live in Cincinnati and have avoided using public transportation for this and other reasons. Jenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 In a message dated 11/2/2004 4:58:55 AM Eastern Standard Time, Ksmile96@... writes: how many of you have been verbally abused by someone b/c of your disability? by whom? what exactly was it about, i.e. being a burden, unrealistic goals, etc? My mother...yes, biological mother. Let's see... She told me, many times over, that nobody will ever take care of me like she does. She told me, repeatedly, that I'll never find someone who will WANT to help me. She told me my going to grad school was a waste of everybody's time. I was her excuse for everything, especially if she did not want to do something. You name it, the woman said it to me...and never meant anything good by it. Amy M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 In a message dated 11/12/2004 8:58:13 PM Mountain Standard Time, nicoleroberts@... writes: > Do any of you have able-bodied siblings and notice just how > differently they are treated, especially in regard to the future, college > support etc? It's always bothered me how differently my able-bodied brother is treated. There's two of us with SMA, and one without. Even though he's the youngest, he's always been treated like the adult in the family. Ever since we were all little kids, my parents would always tell him to do this and that " for the kids. " He's always known that the two of us are the kids, and that he's better than that. (Sidenote: you don't have to be around him long to know how immature he is for his age.) There's also the issue that nobody ever bothered to parent him. My mom focused on me and my dad focused on my brother, and there was nobody left for the youngest. I was 16 years old and fighting with my mom every night because she wanted to get me to bed and out of the way, while I was still doing homework or whatever and not at all ready for bed. My 14 year old brother would be having the same fight with my dad. The 12 year old, however, never had a bedtime in his entire life. He could stay up all night and do whatever he wanted, nobody cared. Now he's 16, and my parents seem suprised by the fact that he doesn't respect their authority and takes the car out and does whatever he wants whenever he wants. Hmm, who could have possibly seen that coming... Oh, and there was (and still is, when I'm home) always the issue people have talked about with the parents always letting me know what a responsibility/burden I am, which was a very stark contrast with their constant praise of how helpful the youngest is. (I've yet to figure out what he's so helpful with... I've never seen him do much that involves getting off the couch.) Hmm, that was a pleasant little venting session. ~e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 In a message dated 11/12/2004 11:47:03 PM Eastern Standard Time, PurplGurl3@... writes: Oh, and there was (and still is, when I'm home) always the issue people have talked about with the parents always letting me know what a responsibility/burden I am, which was a very stark contrast with their constant praise of how helpful the youngest is Holy crap, e - that made my blood pressure rise. I have always been treated like a child in my family as well. A prime example: my mom comes over on friday evenings to help me with Olivia while Will goes out. I ask Nothing of her because I don't wanna hear her BS, but I needed to use the phone and she had the audacity to say " I can't stand watching both of you. " If she EVER degrades me in that way again in front of my daughter, she will never see either of us. Amy Wife to Will 11/3/95 Mother to Olivia Isabelle 9/18/03 http://www.babiesonline.com/babies/o/oliviathegreat/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Hi amy, That¹s sad but interesting and familiar and makes me think of something else... Do any of you have able-bodied siblings and notice just how differently they are treated, especially in regard to the future, college support etc? When I wanted to go to college my parents (esp step father) gave me a long speech on how they (my parents) would be doing me a disservice if they paid for my college or anything related to my independent living/adult future. The rational for this was that there is so much more to learn and grow from by learning to be independent and take care of myself. Since I left home 14 yrs ago, my parents have given me exactly zero dollars and nothing cents. I managed by scholarships and financial aid and HUD housing and food stamps to get through college and never return home and actually am OK with that whole process. BUT my able-bodied little brother is now in college and not only are my parents paying his entire school fee, but also his housing and *everything*, apparently he has a credit card in their name and billed to them that he can use for anything and everything. He has even changed his major after 2 yrs of college and so now starting over on another 4 yr plan and they are totally supportive of that!! Honestly, it kind of makes me queasy how they OVERLY support his life and future...but when I compare it to how things were when I was at his stage in life it leaves me with the sense of how much they didn't value or support my future even though I skipped a grade, got straight A's and wrote an internationally award winning play, there would have been NOTHING I could've done for my life to earn value in their eyes...or so it seems. It's hard not to be upset about it, although I would never bring it up now even if I thought they maybe could see the inequity (which I know they can't/won't see)! On 11/12/04 8:09 PM, " Ames24@... " <Ames24@...> wrote: > In a message dated 11/2/2004 4:58:55 AM Eastern Standard Time, > Ksmile96@... writes: > how many of you have been verbally abused by someone b/c of your disability? > by whom? > what exactly was it about, i.e. being a burden, unrealistic goals, etc? > My mother...yes, biological mother. > > Let's see... > > She told me, many times over, that nobody will ever take care of me like she > does. > She told me, repeatedly, that I'll never find someone who will WANT to help > me. > She told me my going to grad school was a waste of everybody's time. > I was her excuse for everything, especially if she did not want to do > something. > You name it, the woman said it to me...and never meant anything good by it. > > Amy M. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Hi- I always thought my parents expected me to do what I wanted to. I don't think they really cared what I did as long as I was happy doing it. It's really strange because is my sister and we both have SMA and the same parents but I don't remember our parents like she does. Oh well, perception is everything I guess. H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Did they help you do it, like they do your brother? On 11/13/04 3:11 PM, " jessica hagenah " <jhagenah74@...> wrote: > Hi- > > I always thought my parents expected me to do what I wanted to. I don't > think they really cared what I did as long as I was happy doing it. It's > really strange because is my sister and we both have SMA and the same > parents but I don't remember our parents like she does. Oh well, perception > is everything I guess. > > H > > > > > A FEW RULES > > * The list members come from many backgrounds, ages and beliefs So all > members most be tolerant and respectful to all members. > > * Some adult language and topics (like sexual health, swearing..) may > occur occasionally in emails. Over use of inappropriate language will > not be allowed. If your under 16 ask your parents/gaurdian before you > join the list. > > * No SPAMMING or sending numerous emails unrelated to the topics of > spinal muscular atrophy, health, and the daily issues of the disabled. > > Post message: > Subscribe: -subscribe > Unsubscribe: -unsubscribe > > List manager: (Sexy Mature Artist) Email: Esma1999@... > > > > > oogroups.com > > List manager: (Sexy Mature Artist) Email: Esma1999@... > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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