Re: MDA Bans Volunteers With Muscular Dystrophy, Judge Says

[Guest guest]

Very well put Kendra It should be based on the Individual and

not the disability this is the problem and I believe so stongly in

this and as Nick pointed out

I have explained my self and even gave everyone background on me

in my last post

Some people with MD wouldnt be able to do that job and it's

requirements thats understandable but others can do it Like me and

I'm sure theres alot more people with MD that can also,

My whole position is by excluding me I believe they are only

doing so becouse I have MD not becouse i cant preform the job. and I

will fight it.

Remember Not everyone is the same we all have different abilitys

and to exclude someone based solely on the the fact they have MD

without looking at that individual persons abilitys is not only wrong

but is a travesty of our entire justice system which is supposed to

garuantee us freedom from discrimination

Chad Rath

Coon Rapids, MN

[Guest guest]

In a message dated 4/26/2004 12:14:47 AM Eastern Standard Time,

alrt@... writes:

how can you be so sure someone is incapable of performing the essential

functions of a job after they stated that they can? are you judging chad

incapable of knowing what his abilities are?

I wasn't even talking about Chad. I don't think the MDA made their decision

to make anyone feel bad about themselves.

*Amy*

Mother to Caitlyn Mae - born to heaven 3/26/98

Olivia Isabelle - born to earth 9/18/03

Wife to Will 11/03/95

http://community.webshots.com/user/blueyedaze

[Guest guest]

In a message dated 4/26/2004 6:14:58 AM Eastern Standard Time,

Ksmile96@... writes:

i think amy was referring to the 2 who went to court not chad...am i right

amy???

Yes, you are right.

*Amy*

Mother to Caitlyn Mae - born to heaven 3/26/98

Olivia Isabelle - born to earth 9/18/03

Wife to Will 11/03/95

http://community.webshots.com/user/blueyedaze

[Guest guest]

All my comments were based on the court ruling on the two women that

could *not* preform a required job function - lifting. I have no idea

what Chad can or can't do or what reason MDA gave to reject his

application, therefore I am not making a judgement on his case.

I still do not understand why it is essential to serve as a role model

*at camp* though. It's not that I'm " brainwashed " into " accepting table

scraps " . If a person cannot do a job - for what ever reason, even with

modifications - they should not be hired. No amount of modifications in

the world, barring maybe an exoskeleton, would enable me to lift a kid,

so I wouldn't expect I should be hired as a counselor. It is *not*

discrimination to reject an applicant if they *cannot* meet the job

requirements with reasonable modifications.

Also, the increase in liability is not MDA's doing. If you need to

blame someone, blame the corrupt insurance industry. Blame the people

that make insurance for everything necessary because they are suing

everyone for every little thing.

Jenn

[Guest guest]

Malatesta wrote:

> All my comments were based on the court ruling on the two women that

> could *not* preform a required job function - lifting. I have no idea

> what Chad can or can't do or what reason MDA gave to reject his

> application, therefore I am not making a judgement on his case.

You have no idea what Chad can do?! He told us, like 4 times, what his

abilities are.

If people believe Chad, and I do, then how is it not obscene

discrimination? How can anyone be neutral in the face of injustice?

Nick

[Guest guest]

Nick Dupree wrote:

> If people believe Chad, and I do, then how is it not obscene

> discrimination? How can anyone be neutral in the face of injustice?

This getting throughly ridiculous. We are talking about being a *camp

counselor*. Don't we have more important battles to fight?

And with the things Chad wrote I know he is strong enough to lift his

daughter. But is he strong enough to lift a 8 year old? A 12 year

old? Can he help carry a teenager? Is his balance unaffected? If he

looses his balance can he regain it as easily as someone unaffected by

SMA? Can he physically react quickly or would he need extra time to get

up from a chair? from the ground? I don't know the answers to things

like this. I do not know Chad. I only know what he wrote online.

Therefore, I am neutral on his case. The other two women that sued

could not fulfill a job requirement with any amount of reasonable

accomodation, therefore they were rightfully denied the job. I have an

opinion on this case because even the women admitted they were unable to

fulfill the requirement.

Once again, if you need someone to be mad at and rail about the

injustice of it all, focus on the corrupt insurance industry and people

that sue over everything. Let's just say, hypothetically speaking, Chad

accidently drops a camper during a transfer. Now it has nothing to do

with his SMA. It could've happened to any other counselor on site. It

was a random accident. Now let's say during the fall the camper breaks

his wrist. MDA has to buy insurance to cover instances like these

because there will be medical bills, and in today's litigious society,

maybe a lawsuit from the parents. If they go to the insurance because

of an accident involving average-joe-counselor, they will probably have

to jump through some hoops before the insurance with cover it, but it is

likely it'll be covered. But if they go to the insurance and the

insurance company finds out the counselor in question had a known

physical disability that might make him even *slightly* more prone to

such an accident, then you can rest assured they will find some loophole

reason to not cover anything. In fact, it might void the entire

policy. This is not MDA's fault, any more than it's my fault that life

insurance companies won't even consider insuring me, or that adding me

to a health care insurance policy quadruples the monthly premium. MDA

literally cannot afford to take a chance like this. Sure there is

probably a one in a billion chance anything would go wrong, but like

anyone else, they need to cover their ass in the event it does.

Jenn

[Guest guest]

I'm still confused why a cook, DJ, or office clerk would be in any

position at any time to lift a camper, or why it would be necessary,

or why there aren't designated positions for these sorts of jobs.

I mean, in case of ANY emergency, not every employee carries a gun and

handcuffs. Last I checked, in the federal building I work in, only the

security guards - those hired to deal with the problem - had that

right. Even if, in an emergency, I, or the cafeteria waitress,

happened to be around the problem, not only is it not part of our job

description but its the responsibility of the security guards to take

care of us all. Employees helping employees. And yes, I CAN make a

parallelism from these two situations since we have an in-building

day-care center of infants to four-year-olds. I could easily go

volunteer there. When an emergency occurs, I wouldn't be lifting

children. There are other people for that. That's the difference

between a volunteer art director and a counselor or childcare provider.

Disability or not, employers do have the ability to allow certain " job

requirements " to not be universal. Not every position to every job, or

volunteer opportunity, at any and all organizations or corporations

have the same job requirements. Again...I don't see the necessity of

lifting a child to be a requirement of every volunteer position

(disabled summer camp or not).

~kendra

[Guest guest]

Kendra,

Beautiful, accurate & eloquent...Thank you.

Al

At 03:00 AM 4/27/04 +0000, you wrote:

>I'm still confused why a cook, DJ, or office clerk would be in any

>position at any time to lift a camper, or why it would be necessary,

>or why there aren't designated positions for these sorts of jobs.

>

>I mean, in case of ANY emergency, not every employee carries a gun and

>handcuffs. Last I checked, in the federal building I work in, only the

>security guards - those hired to deal with the problem - had that

>right. Even if, in an emergency, I, or the cafeteria waitress,

>happened to be around the problem, not only is it not part of our job

>description but its the responsibility of the security guards to take

>care of us all. Employees helping employees. And yes, I CAN make a

>parallelism from these two situations since we have an in-building

>day-care center of infants to four-year-olds. I could easily go

>volunteer there. When an emergency occurs, I wouldn't be lifting

>children. There are other people for that. That's the difference

>between a volunteer art director and a counselor or childcare provider.

>

>Disability or not, employers do have the ability to allow certain " job

>requirements " to not be universal. Not every position to every job, or

>volunteer opportunity, at any and all organizations or corporations

>have the same job requirements. Again...I don't see the necessity of

>lifting a child to be a requirement of every volunteer position

>(disabled summer camp or not).

>

>~kendra

>

>

>

>

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[Guest guest]

Strongly Agree!.........

-na

> >I'm still confused why a cook, DJ, or office clerk would be in any

> >position at any time to lift a camper, or why it would be

necessary,

> >or why there aren't designated positions for these sorts of jobs.

> >

> >I mean, in case of ANY emergency, not every employee carries a

gun and

> >handcuffs. Last I checked, in the federal building I work in,

only the

> >security guards - those hired to deal with the problem - had that

> >right. Even if, in an emergency, I, or the cafeteria waitress,

> >happened to be around the problem, not only is it not part of our

job

> >description but its the responsibility of the security guards to

take

> >care of us all. Employees helping employees. And yes, I CAN make a

> >parallelism from these two situations since we have an in-building

> >day-care center of infants to four-year-olds. I could easily go

> >volunteer there. When an emergency occurs, I wouldn't be lifting

> >children. There are other people for that. That's the difference

> >between a volunteer art director and a counselor or childcare

provider.

> >

> >Disability or not, employers do have the ability to allow

certain " job

> >requirements " to not be universal. Not every position to every

job, or

> >volunteer opportunity, at any and all organizations or

corporations

> >have the same job requirements. Again...I don't see the necessity

of

> >lifting a child to be a requirement of every volunteer position

> >(disabled summer camp or not).

> >

> >~kendra

> >

> >

> >

> >

> >A FEW RULES

> >

> >* The list members come from many backgrounds, ages and beliefs

So all

> >members most be tolerant and respectful to all members.

> >

> >* Some adult language and topics (like sexual health, swearing..)

may

> >occur occasionally in emails. Over use of inappropriate language

will

> >not be allowed. If your under 16 ask your parents/gaurdian before

you

> >join the list.

> >

> >* No SPAMMING or sending numerous emails unrelated to the topics

of

> >spinal muscular atrophy, health, and the daily issues of the

disabled.

> >

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> >

> >

> >

> >

[Guest guest]

Jenn Wrote:

This getting throughly ridiculous. We are talking about being a

*camp counselor*. Don't we have more important battles to fight?

-----------------------------------------------------------------

First of all I'd Like to say I dont believe this is ridiculous I

believe we are having a decent conversation involving disability

rights for those with Muscular Dystrophy and falls right in to the

things we deal with every day in life and is a perfect conversation

for this SMAfreinds board

I Completly disagree with this statement, although there are

other issues out there that need to be discussed also in regards to

disability issues, this I believe falls right in the disability

rights part of it (The Right to do what we want to do, if we can

physically do it, and are qualified to do so)Its called Freedom

without opression

What makes one issue more important than another if both issues

are an injustice? Just becouse someone wants to be a camp counsler

doesnt make it any less of an issue, you may not agree with it (ok)

we have different opinions but it doesnt make anything you want to do

and I want to do any less equal. or important

I have decribed all my abilitys and disabilitys (Read my previous

posts) in regards to my being capable of this duty as important as

that is, it is also irrelevant for one fact becouse if MDA Camp could

also have easly had me run programs or activitys, plan things annd

still been their to help the youngers.

As the question The letter I recieved specifically stated We do

not believe you to be able to carry out the nessessary dutys in

regards to voulunteering at camp thank you for applying blah blah

blah.

but do not undermine my beliefs by calling them ridiculous and

unimportant, I am sure there are things you do that I wouldnt agree

with but I would never say those things, We are humans we enjoy

different things importantance is in the eye of the beholder

Chad Rath

Coon Rapids, MN

[Guest guest]

Jenn, it is certainly NOT ridiculous and to say that it is feels to me like

you are being quite disrespectful, if you are tired of the subject just

delete the posts, don¹t start pronouncing them unimportant. If life isn¹t

in the details than where is it? Being a camp counselor is personally

important to Chad, to me it is not personally important but it is vitally

important to ME that people with disabilities are treated fairly and not

discriminated against in ANY and ALL circumstances. There is no more

important battle to fight and you fight it detail by detail.

On 4/26/04 8:03 PM, " Malatesta " <nekrosys@...> wrote:

> Nick Dupree wrote:

>

>> > If people believe Chad, and I do, then how is it not obscene

>> > discrimination? How can anyone be neutral in the face of injustice?

>

> This getting throughly ridiculous. We are talking about being a *camp

> counselor*. Don't we have more important battles to fight?

>

> And with the things Chad wrote I know he is strong enough to lift his

> daughter. But is he strong enough to lift a 8 year old? A 12 year

> old? Can he help carry a teenager? Is his balance unaffected? If he

> looses his balance can he regain it as easily as someone unaffected by

> SMA? Can he physically react quickly or would he need extra time to get

> up from a chair? from the ground? I don't know the answers to things

> like this. I do not know Chad. I only know what he wrote online.

> Therefore, I am neutral on his case. The other two women that sued

> could not fulfill a job requirement with any amount of reasonable

> accomodation, therefore they were rightfully denied the job. I have an

> opinion on this case because even the women admitted they were unable to

> fulfill the requirement.

>

> Once again, if you need someone to be mad at and rail about the

> injustice of it all, focus on the corrupt insurance industry and people

> that sue over everything. Let's just say, hypothetically speaking, Chad

> accidently drops a camper during a transfer. Now it has nothing to do

> with his SMA. It could've happened to any other counselor on site. It

> was a random accident. Now let's say during the fall the camper breaks

> his wrist. MDA has to buy insurance to cover instances like these

> because there will be medical bills, and in today's litigious society,

> maybe a lawsuit from the parents. If they go to the insurance because

> of an accident involving average-joe-counselor, they will probably have

> to jump through some hoops before the insurance with cover it, but it is

> likely it'll be covered. But if they go to the insurance and the

> insurance company finds out the counselor in question had a known

> physical disability that might make him even *slightly* more prone to

> such an accident, then you can rest assured they will find some loophole

> reason to not cover anything. In fact, it might void the entire

> policy. This is not MDA's fault, any more than it's my fault that life

> insurance companies won't even consider insuring me, or that adding me

> to a health care insurance policy quadruples the monthly premium. MDA

> literally cannot afford to take a chance like this. Sure there is

> probably a one in a billion chance anything would go wrong, but like

> anyone else, they need to cover their ass in the event it does.

>

> Jenn

>

>

> A FEW RULES

>

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> members most be tolerant and respectful to all members.

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[Guest guest]

Jenn,

First let me say that I have read many of your posts and you seem

like a well-rounded person. I do hope you do not feel offended but

I must agree with . Calling the subject ridiculous does come

off disrespectful. Although it may not be of importance to you or

others, it is to Chad and one of the wonderful things about

belonging to this group is sharing and discussing all of our

concerns. Don't get me wrong, I do not think we must be interested

or involved in all subjects and I can understand that even when

interesting some topics can linger on. But, I strongly believe that

members should be able to discuss their concerns and those of us who

think it isn't important or it has become ridiculous should simply

disregard the discussion.

-na

Note: We each define and fight our own battles and " Together " we

will win the War.

> >

> >> > If people believe Chad, and I do, then how is it not obscene

> >> > discrimination? How can anyone be neutral in the face of

injustice?

> >

> > This getting throughly ridiculous. We are talking about being a

*camp

> > counselor*. Don't we have more important battles to fight?

> >

> > And with the things Chad wrote I know he is strong enough to

lift his

> > daughter. But is he strong enough to lift a 8 year old? A 12

year

> > old? Can he help carry a teenager? Is his balance unaffected?

If he

> > looses his balance can he regain it as easily as someone

unaffected by

> > SMA? Can he physically react quickly or would he need extra

time to get

> > up from a chair? from the ground? I don't know the answers to

things

> > like this. I do not know Chad. I only know what he wrote

online.

> > Therefore, I am neutral on his case. The other two women that

sued

> > could not fulfill a job requirement with any amount of reasonable

> > accomodation, therefore they were rightfully denied the job. I

have an

> > opinion on this case because even the women admitted they were

unable to

> > fulfill the requirement.

> >

> > Once again, if you need someone to be mad at and rail about the

> > injustice of it all, focus on the corrupt insurance industry and

people

> > that sue over everything. Let's just say, hypothetically

speaking, Chad

> > accidently drops a camper during a transfer. Now it has nothing

to do

> > with his SMA. It could've happened to any other counselor on

site. It

> > was a random accident. Now let's say during the fall the camper

breaks

> > his wrist. MDA has to buy insurance to cover instances like

these

> > because there will be medical bills, and in today's litigious

society,

> > maybe a lawsuit from the parents. If they go to the insurance

because

> > of an accident involving average-joe-counselor, they will

probably have

> > to jump through some hoops before the insurance with cover it,

but it is

> > likely it'll be covered. But if they go to the insurance and the

> > insurance company finds out the counselor in question had a known

> > physical disability that might make him even *slightly* more

prone to

> > such an accident, then you can rest assured they will find some

loophole

> > reason to not cover anything. In fact, it might void the entire

> > policy. This is not MDA's fault, any more than it's my fault

that life

> > insurance companies won't even consider insuring me, or that

adding me

> > to a health care insurance policy quadruples the monthly

premium. MDA

> > literally cannot afford to take a chance like this. Sure there

is

> > probably a one in a billion chance anything would go wrong, but

like

> > anyone else, they need to cover their ass in the event it does.

> >

> > Jenn

> >

> >

> > A FEW RULES

> >

> > * The list members come from many backgrounds, ages and beliefs

So all

> > members most be tolerant and respectful to all members.

> >

> > * Some adult language and topics (like sexual health,

swearing..) may

> > occur occasionally in emails. Over use of inappropriate language

will

> > not be allowed. If your under 16 ask your parents/gaurdian

before you

> > join the list.

> >

> > * No SPAMMING or sending numerous emails unrelated to the topics

of

> > spinal muscular atrophy, health, and the daily issues of the

disabled.

> >

> > Post message:

> > Subscribe: -subscribe

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> >

[Guest guest]

The thing I think is ridiculous about this is refering to this situation

as an " obscene injustice " .

Jenn

[Guest guest]

Jenn,

you are an enlightened voice of reason.

Jerry

> The thing I think is ridiculous about this is refering to this

situation

> as an " obscene injustice " .

>

> Jenn

[Guest guest]

> > The thing I think is ridiculous about this is refering to this

> situation

> > as an " obscene injustice " .

> >

> > Jenn

An Enlightened Voice of reason is the last words Id ever use to

describe some of the things thats been said on here thus far, have

you even read the posts?

(Obscene)- Something found offesive by one or more persons in any

given situation.

Considering the topic of these recent posts, seems like a decent

descripive word to use although I havent used it myself, I think you

are taking things way to far, Why worry about how someone describes

something that is just petty.

Chad Rath

Coon Rapids, MN

[Guest guest]

I agree with Jenn.

As much as this group is open to be a support on issues like these, I think

it would be a good thing to allow a difference of opinion (such as Jenn's

input).

Also, one of the great things about living in America is that we have it so

good that we consider it an " obscene injustice " when we have to struggle to

achieve our goals or get what we want when we want it.

Lori

Re: Re: MDA Bans Volunteers With Muscular Dystrophy,

Judge Says

The thing I think is ridiculous about this is refering to this situation

as an " obscene injustice " .

Jenn

A FEW RULES

* The list members come from many backgrounds, ages and beliefs So all

members most be tolerant and respectful to all members.

* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

not be allowed. If your under 16 ask your parents/gaurdian before you

join the list.

* No SPAMMING or sending numerous emails unrelated to the topics of

spinal muscular atrophy, health, and the daily issues of the disabled.

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