Females - that time of the month

[Guest guest]

Ha! " Surf the crimson wave... " is new to me. Funny. I took Depo. No

problems except for sever moodiness for the 1st 5 days after the shot, and

that it was a hassle to go to the doc every 3 month for the shot. Now I'm

on the mini pill. Camila. I only spot. It's nice. Medi-Cal (Medicaid)

covers my co-pay. And the pharmacy's on my way to work. I get the

prescription renewed at my annual GYN appt. I wish I could do the weekly

patch, but can't take estrogen for fear of blood clots.

Alana

At 03:14 PM 8/17/03 -0700, you wrote:

>Another post sparked my interest in this one. I'm just

>curious as to how many of you still surf the crimson

>wave. I gave that up a year and a half ago. Im on the

>Depo Provera shot. Just wondering if any of y'all are

>too. I know I dreaded that time of the month simply bc

>I cant take care of it myself so I depended on others

>to do it for me. So long to that embarrassing moment!

>

> ~

[Guest guest]

Menstruation isn't a problem for me - again, when I'm at home! I can

take care of myself. When I'm at a friend's house or at a public rest

room I require someone to hold me up while I take care of business

there since the bathroom is usually set up differently. At home I

prop my upper body against the side wall and I can rest my arm inside

the bar to steardy myself so it isn't a problem. So outside of the

home, it's a bit awkward when I have to tell my friends on the

side " could you just stand there and prop me up while I clean up a

bit " - plus it's a bit embarassing for us all, not to mention

disgusting!! Who wants to deal with that, especially from other

people!?!?! When I know I'm going to be menstruating and I'm going

out or staying at someone's house I will try to always use tampons

just because it tends to be less messy and easier to clean. I've

spoken to my gynecologist regarding the pill to decrease the flow

since it's so heavy but we're afraid of blood clotting and I'm not

going to risk it. I'm not one to jump at the option of the shots to

rid me of the curse either. I think that menstruation is a very

healthy and necessary part of being a female. I just wish it were

easier to deal with bathroom situations as a disabled female in

general.

~Kendra

> Females - that time of the month

>

>

> Another post sparked my interest in this one. I'm just

> curious as to how many of you still surf the crimson

> wave. I gave that up a year and a half ago. Im on the

> Depo Provera shot. Just wondering if any of y'all are

> too. I know I dreaded that time of the month simply bc

> I cant take care of it myself so I depended on others

> to do it for me. So long to that embarrassing moment!

>

> ~

>

> __________________________________

[Guest guest]

In a message dated 8/17/2003 6:26:59 PM Eastern Standard Time,

alrt@... writes:

> wish I could do the weekly

> patch, but can't take estrogen for fear of blood clots.

>

>

I'm on Orthoevra patch, I love it! I still bleed quite a bit. I just tell

my nurses when they first start that I have a period. A lot of them think I'm

to small to " really bleed "

Sincerely,

s, the Unique Princess.

[Guest guest]

I still get mine. I rather not risk complications, side effects or hassles of

taking any drugs to stop it just because it can be messy. I only do it as to

prevent pregnancy. Since I see no men I want to be with (who are available;-)

right I rather go natural. Blood clots can be serious. And there are other

risks to a forms of BC. I knew a girl who took depo and it caused her

depression/mood swings. Plus doctors like more frequent pelvic exams if you stay

on BC

and those I don't find fun.

Since the patch is out now I may try that when needed next. Easier then pill

since I can't swallow. However, I'll let people test the patch out for now!

Hard to say how safe/well new things work!

I used to get my period like clockwork and fairly heavy but the last year or

two its more like every 2-3 months and light. Couldn't find out why the

change.

I guess I never found it too embarrassing. I mean it's normal and healthy.

Not much worse than wiping sh*t off your ass daily. Or shaving or giving an

enema. Plus I mainly bathroom at home or in bedrooms/hotelrooms so it's kept

private. I mostly *flowed* (it must build up inside when sitting then the damn

breaks when I get picked up) when picked up and I only get picked up to bathroom

or dress so I would change/clean down there anyway period or not. I don't get

too grumpy or many cramps so I don't look hard to find ways to stop it. Plus I

know it's only 3-7 days of some mess and slight uncomfort which is tolerable

unlike the flu, pneumonia or oddities of life with SMA that can last weeks,

months or years.

[Guest guest]

Hi,

This is going to be pretty vague as I only saw part of it on the Evening

News several weeks ago. There's a new type of *surgery* where the Doctors

*burn* out the *uterus*? The Doctors insert a device which heats up. It's

suppose to be much safer, faster recovery time, and best of all it cuts down

on your periods. Did anyone else see this news item? It sounded like it was

something new in the States. I didn't catch what the proceedure was called.

Maybe someone on this list knows about it?

Take care

Bye for now

Females - that time of the month

> >

> >

> > Another post sparked my interest in this one. I'm just

> > curious as to how many of you still surf the crimson

> > wave. I gave that up a year and a half ago. Im on the

> > Depo Provera shot. Just wondering if any of y'all are

> > too. I know I dreaded that time of the month simply bc

> > I cant take care of it myself so I depended on others

> > to do it for me. So long to that embarrassing moment!

> >

> > ~

> >

> > __________________________________

>

>

>

>

>

[Guest guest]

hmm....i have never heard of that...do you recall if it interfered

with pregnancy or the chance of becoming pregnant in the future?

removal of the uterus or any other organ or tissue does not sound as

though it will be safe for women who desire to become pregnant. which

news channel/show did you catch this on?

> Hi,

>

> This is going to be pretty vague as I only saw part of it on the

Evening

> News several weeks ago. There's a new type of *surgery* where the

Doctors

> *burn* out the *uterus*? The Doctors insert a device which heats

up. It's

> suppose to be much safer, faster recovery time, and best of all it

cuts down

> on your periods. Did anyone else see this news item? It sounded

like it was

> something new in the States. I didn't catch what the proceedure was

called.

> Maybe someone on this list knows about it?

>

> Take care

>

> Bye for now

>

>

[Guest guest]

Hi, Kendra

<do you recall if it interfered with pregnancy or the <chance of becoming

pregnant in the future?

I honestly don't know. But, I would guess maybe it might cause a problem?

The thing I do remember was that you would still keep your ovaries.

Take care

Bye for now

Re: Females - that time of the month

> hmm....i have never heard of that...do you recall if it interfered

> with pregnancy or the chance of becoming pregnant in the future?

> removal of the uterus or any other organ or tissue does not sound as

> though it will be safe for women who desire to become pregnant. which

> news channel/show did you catch this on?

>

>

>

> > Hi,

> >

> > This is going to be pretty vague as I only saw part of it on the

> Evening

> > News several weeks ago. There's a new type of *surgery* where the

> Doctors

> > *burn* out the *uterus*? The Doctors insert a device which heats

> up. It's

> > suppose to be much safer, faster recovery time, and best of all it

> cuts down

> > on your periods. Did anyone else see this news item? It sounded

> like it was

> > something new in the States. I didn't catch what the proceedure was

> called.

> > Maybe someone on this list knows about it?

> >

> > Take care

> >

> > Bye for now

> >

> >

>

>

>

>

>

[Guest guest]

> Another post sparked my interest in this one. I'm just

> curious as to how many of you still surf the crimson

> wave. I gave that up a year and a half ago. Im on the

> Depo Provera shot. Just wondering if any of y'all are

> too. I know I dreaded that time of the month simply bc

> I cant take care of it myself so I depended on others

> to do it for me. So long to that embarrassing moment!

>

> ~

Hey

I use an IUD (Intra Uterus Device). I chose that method as it is

natural (no medicine or hormones buggering with my body) and after

four months my period stopped. Once a year I have it checked out to

make sure it is still in position and that's all the maintenance

needed. Every five years I have a new one fitted by my

gynaecologist. Easy as pie … :-) And it is covered by my medical

aid!

Adri

[Guest guest]

HI ,

It sounds like what you are referring to is an ablation. Which I'm in the

process of preparing for right now. I have had to go thru countless tests and

be treated by rediculous medications that I knew would not work. The ablation

is typically for women who cannot control the length or intensity of their

periods with oral contraceptions..one step before a total hysterectomy. The

upside to it, it's a 90 second surgery and 95% of women will never have a period

or cramps again, if they do it's only spotting...the downside, you must be put

under general anethesia and you cannot have any babies in the future..there's a

chance of getting pregnant, but it would have to be terminated...Hope this

helps..

Take Care all!

Leah

Re: Females - that time of the month

> hmm....i have never heard of that...do you recall if it interfered

> with pregnancy or the chance of becoming pregnant in the future?

> removal of the uterus or any other organ or tissue does not sound as

> though it will be safe for women who desire to become pregnant. which

> news channel/show did you catch this on?

>

>

>

> > Hi,

> >

> > This is going to be pretty vague as I only saw part of it on the

> Evening

> > News several weeks ago. There's a new type of *surgery* where the

> Doctors

> > *burn* out the *uterus*? The Doctors insert a device which heats

> up. It's

> > suppose to be much safer, faster recovery time, and best of all it

> cuts down

> > on your periods. Did anyone else see this news item? It sounded

> like it was

> > something new in the States. I didn't catch what the proceedure was

> called.

> > Maybe someone on this list knows about it?

> >

> > Take care

> >

> > Bye for now

> >

> >

>

>

>

>

>

[Guest guest]

I haven't really had a problem with side effects. It did take a good year of

changing things until we managed to get my period to stop, which wasn't much

fun. They ended up increasing the amount and frequency of my shot. I get it

every 8 weeks instead of the recommended 12, and they inject more than the

average dose. And it finally works! (until I take a flight across the Pacific,

in

which case the altitudes messs up my entire system, so this month has been not

so fun)

~e

In a message dated 8/18/2003 1:31:09 PM Pacific Standard Time,

bluesagacity4@... writes:

> I just recently started depo back in late April, and still got my period

> the only problem is it wouldn't stop. My doctor thought that it was common

> after the first shot and I received another in July which stopped the flow for

> two weeks, but guess what, I started again and have been flowing for 3 and a

> half weeks and I still going, a lot heavier now? I am going to see my doctor

> next week (the only time she could get me in) but I am not sure if there is

> anything she can do. Did anyone else experience this when they first started?

> Also I go depressed and can't sleep now after the depo shot, and my doctor

> says its a side effect of the shot. I don't know if I want to try a third

> one in September. Does anyone have any suggestions on something else to try

or

> should I try the depo one more time?

[Guest guest]

Hi All,

I don't know if this is going to give you any relief, Kendra, or not - but there

are those of us on the list who need another person to actually insert the

tampon (and pull it out). That can be really something. Requires the right

attitude and quite a bit of training of my PA's - and still doesn't work out

with everyone.

For males, some things just _are_ easier.

smiles

Taya

Taija Heinonen

UUSI POSTIOSOITE

Seilimäki 17 B 8

02180 Espoo

puh. 0400 911 686

e-mail: taija.heinonen@...

URL:http://personal.inet.fi/koti/juha.heinonen/

Re: Females - that time of the month

> hmm....i have never heard of that...do you recall if it interfered

> with pregnancy or the chance of becoming pregnant in the future?

> removal of the uterus or any other organ or tissue does not sound as

> though it will be safe for women who desire to become pregnant. which

> news channel/show did you catch this on?

>

>

>

> > Hi,

> >

> > This is going to be pretty vague as I only saw part of it on the

> Evening

> > News several weeks ago. There's a new type of *surgery* where the

> Doctors

> > *burn* out the *uterus*? The Doctors insert a device which heats

> up. It's

> > suppose to be much safer, faster recovery time, and best of all it

> cuts down

> > on your periods. Did anyone else see this news item? It sounded

> like it was

> > something new in the States. I didn't catch what the proceedure was

> called.

> > Maybe someone on this list knows about it?

> >

> > Take care

> >

> > Bye for now

> >

> >

>

>

>

>

>

[Guest guest]

Yes, I am aware of the difficulties most others with SMA have daily

and that I am blessed in some way to have the ability and

independence that I do currently have. I am just in search of other

options to maintain my independence so that I don't have to rely on

others moreso than I already do. If I can do it on my own, I shall

continue to do so until it is utterly impossible. Just because I'm in

a wheelchair and the medical field says 'anyday now' I won't move

because the books say so, doesn't mean I'm going to just submit

myself to their diagnosis and accept it.

~Kendra

> Hi All,

>

> I don't know if this is going to give you any relief, Kendra, or

not - but there are those of us on the list who need another person

to actually insert the tampon (and pull it out). That can be really

something. Requires the right attitude and quite a bit of training of

my PA's - and still doesn't work out with everyone.

>

> For males, some things just _are_ easier.

>

> smiles

> Taya

>

> Taija Heinonen

>