Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 I would highly recommend her bathroom be in her bedroom for " privacy " and access reasons. For me (and many w/ MD) we have to lay down in order to get dressed...its a huge hassle to have to get undressed in one room and then parade yourself naked down a hall to a bathroom....im always yelling " dont look im naked! " in my house since my bathroom is not in my bedroom. Id also recommend a roll in shower (Obvious) and if can be afforded, an accessible bathtub....I cant take a bath because my bathroom is too small, tub too tiny to accomodate me and a lift----every girl wants to take a bubble bath once in awhile!.....also it helps if there are no cabinets under the bathroom sink, so then she can pull her wheelchair right up and not hit her knees. I have normal bedroom furniture and bed, i just take away the usual chair that would be at my desk. i have full length mirrors on my closet. the only thing that i wishi had done differently in my room is get a smaller entertinment center for my tv/stereo/cd's etc...i have a really tall one, and i cant see or reach my items that are put on the top. lauren Jean-Yves Clavier <jyclavier@...> wrote: Hi, For those who don't know me, my name is Jean-Yves, and my dauther Lucile who is 4 1/2, has SMA2. We are starting in september the construction of a new house in France. We have already met many people for this and already agreed on the the house drawing and room general arrangements. But we are still wondering on a lot of details on the arrangement of the bathroom and Lucile's bedroom ! Well, I don't want to know everything about your intimacy, but I would be very curious to know more details on how you proceeed in your bathroom and bedroom (shower, bath, cleaning, desk, furniture, setting,... Well all these details, tips that you chose or developped to make thinks accessible or to make things easier for both children and parents ! So if you have any sketch, idea, picture, to show me, it will make me very happy ! Thanks a lot ! Jean-Yves jyclavier@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 wrote: ....im always yelling " dont look im naked! " ... Isn't that like putting up a " Wet paint, do not touch! " sign up on freshly painted surfaces... they always have to be sure... Later, Mike Briggs Photo Gallery: http://www.pbase.com/photogrif/ " Fish Gotta Swim, I Gotta Dive " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 when its your family thats around, they really DONT want to see! lauren photogrif <mabriggs@...> wrote: wrote: ....im always yelling " dont look im naked! " ... Isn't that like putting up a " Wet paint, do not touch! " sign up on freshly painted surfaces... they always have to be sure... Later, Mike Briggs Photo Gallery: http://www.pbase.com/photogrif/ " Fish Gotta Swim, I Gotta Dive " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 I agree with . Having an adjoining bedroom/bathroom is a MUST have. Also install the light switches at a lower height than is standard, as low as you can stand it is usually a good thing for ppl with SMA. N On 7/30/02 5:27 PM, " " <laurenmarie791@...> wrote: > > I would highly recommend her bathroom be in her bedroom for " privacy " and > access reasons. For me (and many w/ MD) we have to lay down in order to get > dressed...its a huge hassle to have to get undressed in one room and then > parade yourself naked down a hall to a bathroom....im always yelling " dont > look im naked! " in my house since my bathroom is not in my bedroom. Id also > recommend a roll in shower (Obvious) and if can be afforded, an accessible > bathtub....I cant take a bath because my bathroom is too small, tub too tiny > to accomodate me and a lift----every girl wants to take a bubble bath once in > awhile!.....also it helps if there are no cabinets under the bathroom sink, so > then she can pull her wheelchair right up and not hit her knees. I have > normal bedroom furniture and bed, i just take away the usual chair that would > be at my desk. i have full length mirrors on my closet. the only thing that > i wishi had done differently in my room is get a smaller entertinment center > for my tv/stereo/cd's etc...i have a really tall one, and i cant see or reach > my items that are put on the top. > lauren > Jean-Yves Clavier <jyclavier@...> wrote: Hi, > > For those who don't know me, my name is Jean-Yves, and my dauther Lucile who > is 4 1/2, has SMA2. > We are starting in september the construction of a new house in France. > > We have already met many people for this and already agreed on the the house > drawing and room general arrangements. > > But we are still wondering on a lot of details on the arrangement of the > bathroom and Lucile's bedroom ! > > Well, I don't want to know everything about your intimacy, but I would be very > curious to know more details on how you proceeed in your bathroom and bedroom > (shower, bath, cleaning, desk, furniture, setting,... > Well all these details, tips that you chose or developped to make thinks > accessible or to make things easier for both children and parents ! > > So if you have any sketch, idea, picture, to show me, it will make me very > happy ! > Thanks a lot ! > > Jean-Yves > jyclavier@... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Hi, I have a son, Danny, who is 20 y/o and has sma 2. It's great that you are researching and building with future in mind. We made many changes over years, only to need something different a short time later. Others are right about bath connected to her bedroom. Danny's isn't, and we would change that if we could afford it. Place lots of electrical outlets around her bedroom and be sure to give plenty of space for larger wheelchairs as she grows and possibly transfer lifts. As for furn., we got Danny an electric hospital type bed at age 11 and wish we had gotten one years earlier. With it he can raise his head up/recline/lay flat at the touch of a button (much easier on my bad back too). And since it's on wheels, we can turn the whole bed around so he can watch TV while laying on his side too (another reason for lots of space). We keep his clothes dresser in his walk-in closet so doesn't take up space in room and a low rack for her hanging clothes would be good so more accessible for her to see/choose. Try to bring her bedroom windows down low enuf for her to see outside from her w/chair and find a bedroom door knob/lever that she can open if possible. Lastly, we have an automatic door opener on our home's front entrance. He keeps a control (like a garage door opener) on his seat belt so he can let himself in and out. That added bit of independence is great. The rest of us just push the door open and it closes itself. Well, hope some of this helps. > For those who don't know me, my name is Jean-Yves, and my dauther Lucile who is 4 1/2, has SMA2. > We are starting in september the construction of a new house in France. >I would be very curious to know more details on how you proceeed in your bathroom and bedroom (shower, bath, cleaning, desk, furniture, setting,... > Well all these details, tips that you chose or developped to make thinks accessible or to make things easier for both children and parents ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Hi Jean-Yves, We've recently moved into a specially built bungalow, so I'll write a brief list of the changes we made to the regular design. 1. All light switches are 70cm from the floor and the rocker type. 2. All doors are 92 cm wide. 3. We have double swing hinges from the kitchen and ph's bedroom and bathroom, so he can push himself through either way. 4. His bathroom is ensuite, with double width swing doors, and is 14' by 6'wide, although with hindsight a couple of extra feet on the width would have made it much better. We've really struggled to fit the bath in, it's a Kingcraft up & down one. 5. He has a door outside for fire safety and his window is lower. 6. There's also an area for an L shaped work station surrounded by many sockets for when he gets his computer. 7. The roof in his room is reinforced to take the weight of a hoist in the future (to the bathroom). The bath is just being sorted out today, so I'll try to get some pictures to send for you. Debs New house arrangement > Hi, > > For those who don't know me, my name is Jean-Yves, and my dauther Lucile who is 4 1/2, has SMA2. > We are starting in september the construction of a new house in France. > > We have already met many people for this and already agreed on the the house drawing and room general arrangements. > > But we are still wondering on a lot of details on the arrangement of the bathroom and Lucile's bedroom ! > > Well, I don't want to know everything about your intimacy, but I would be very curious to know more details on how you proceeed in your bathroom and bedroom (shower, bath, cleaning, desk, furniture, setting,... > Well all these details, tips that you chose or developped to make thinks accessible or to make things easier for both children and parents ! > > So if you have any sketch, idea, picture, to show me, it will make me very happy ! > Thanks a lot ! > > Jean-Yves > jyclavier@... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 I wish we had built our new house with a adjoining bathroom to Jordan's Bedroom. However, because we couldn't afford that extra bathroom we placed Jordan's bedroom directly across the hall from the family bath and lined up the doors across from each other so he can scoot directly across the 4' hallway. Not the ideal solution, but it was a very nice compromise. The bathroom is huge enough for him to complete revolve his wheelchair, open under sink, and has a low threshold, shower we roll a shower chair into. Works pretty well, so consider proximity to bathroom as an alternative. Re: New house arrangement I agree with . Having an adjoining bedroom/bathroom is a MUST have. Also install the light switches at a lower height than is standard, as low as you can stand it is usually a good thing for ppl with SMA. N On 7/30/02 5:27 PM, " " <laurenmarie791@...> wrote: > > I would highly recommend her bathroom be in her bedroom for " privacy " and > access reasons. For me (and many w/ MD) we have to lay down in order to get > dressed...its a huge hassle to have to get undressed in one room and then > parade yourself naked down a hall to a bathroom....im always yelling " dont > look im naked! " in my house since my bathroom is not in my bedroom. Id also > recommend a roll in shower (Obvious) and if can be afforded, an accessible > bathtub....I cant take a bath because my bathroom is too small, tub too tiny > to accomodate me and a lift----every girl wants to take a bubble bath once in > awhile!.....also it helps if there are no cabinets under the bathroom sink, so > then she can pull her wheelchair right up and not hit her knees. I have > normal bedroom furniture and bed, i just take away the usual chair that would > be at my desk. i have full length mirrors on my closet. the only thing that > i wishi had done differently in my room is get a smaller entertinment center > for my tv/stereo/cd's etc...i have a really tall one, and i cant see or reach > my items that are put on the top. > lauren > Jean-Yves Clavier <jyclavier@...> wrote: Hi, > > For those who don't know me, my name is Jean-Yves, and my dauther Lucile who > is 4 1/2, has SMA2. > We are starting in september the construction of a new house in France. > > We have already met many people for this and already agreed on the the house > drawing and room general arrangements. > > But we are still wondering on a lot of details on the arrangement of the > bathroom and Lucile's bedroom ! > > Well, I don't want to know everything about your intimacy, but I would be very > curious to know more details on how you proceeed in your bathroom and bedroom > (shower, bath, cleaning, desk, furniture, setting,... > Well all these details, tips that you chose or developped to make thinks > accessible or to make things easier for both children and parents ! > > So if you have any sketch, idea, picture, to show me, it will make me very > happy ! > Thanks a lot ! > > Jean-Yves > jyclavier@... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 & list, We are also in the process of remodeling our son 's (6 years old Type 2) bedroom to help accommodate his special needs. In past issues of the MDA Quest I have seen advertisements for electrical door openers and now can't find them. Do you have a web sight or name that you could please forward to me. We are taking a 6' wide bedroom window and converting it into a double wide " French " glass doors and would like to have them on automatic openers for him. Also while on the subject of remodeling; I installed kitchen style wall cabinets in a " L " corner of his room to get everything possible off the floor and make more driving space below. Then below installed 2 floor cabinets and a " L " shaped wall table in-between the cabinets for his chair to drive under with his computer in the corner. This allows him complete counter access to all his toys and space for his home work & computer access from his chair. The bathrooms next and I reading with great interest on what ever you all have experience with. Unfortunately we'll have to make a tiny bathroom work like a big one. Thanks for the input and help of what works for you all. Gerry (Cole's father) ccoxcgc wrote: Lastly, we have an automatic door opener on > our home's front entrance. He keeps a control (like a garage door > opener) on his seat belt so he can let himself in and out. That added > bit of independence is great. The rest of us just push the door open > and it closes itself. Well, hope some of this helps. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Gerry, Sometimes you can find space in a bathroom by removing linen closets, or relocating the sink, toilets, or tubs to improve the space utilization. Obviously, larger room is better, so if you can't move a wall or " push " the tub into an adjacent room, perhaps shifting some things around will help. Re: Re: New house arrangement & list, We are also in the process of remodeling our son 's (6 years old Type 2) bedroom to help accommodate his special needs. In past issues of the MDA Quest I have seen advertisements for electrical door openers and now can't find them. Do you have a web sight or name that you could please forward to me. We are taking a 6' wide bedroom window and converting it into a double wide " French " glass doors and would like to have them on automatic openers for him. Also while on the subject of remodeling; I installed kitchen style wall cabinets in a " L " corner of his room to get everything possible off the floor and make more driving space below. Then below installed 2 floor cabinets and a " L " shaped wall table in-between the cabinets for his chair to drive under with his computer in the corner. This allows him complete counter access to all his toys and space for his home work & computer access from his chair. The bathrooms next and I reading with great interest on what ever you all have experience with. Unfortunately we'll have to make a tiny bathroom work like a big one. Thanks for the input and help of what works for you all. Gerry (Cole's father) ccoxcgc wrote: Lastly, we have an automatic door opener on > our home's front entrance. He keeps a control (like a garage door > opener) on his seat belt so he can let himself in and out. That added > bit of independence is great. The rest of us just push the door open > and it closes itself. Well, hope some of this helps. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 This is what worked for us in a trailer: instead of rebuilding walls and allowing room for a large door to swing in a tiny space, we took out the door and widened the whole space as wide as possible. I think we may have had a 5 ft opening, allowing access to everything. Instead of a door, we used a curtain. This works well when the bathroom is directly connected to the bedroom. jv O ======---,-----,----,---,--,-, o |--Q \ o ----\ \ o_ ________ () ()\_ Fish to Live, Live to Fish -<_>< On Wed, 31 Jul 2002, Gerry Hampton wrote: > computer access from his chair. The bathrooms next and I reading with > great interest on what ever you all have experience with. Unfortunately > we'll have to make a tiny bathroom work like a big one. Thanks for the > input and help of what works for you all. > Gerry (Cole's father) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.