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Re: Facial Spasms

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Yea it's been happening to me more frequent, especially in my lips. My

neurologist even saw it happening he just said it's part of the disease

process, my tongue fasisculation have gotten worse as well.

~s, GRADUATE of Class 2002~

" Challenges are what make life interesting; overcoming them is what makes l

ife meaningful. "

- J. Marine

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I DO I DO!

MY facial spasms are not as ffrequent lately but I take depacoat and that

helps...

my tongue has major jumpy's hehee it's kinda gross

jodi

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I get annoying twitches like ticks around my eyes which I've had off and on

for many years. Every so often I get a finger or toe that moves rythmically

up and down by itself for several minutes and that is weird to watch and

feel.

Do any of you get any other strange sensations like soft prickling ( almost

electrical ) in a small area that comes and goes?

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My son, Danny (20), gets twitches in his face sometimes. Usually his

nose or an eye. It's not noticeable by others, but really annoying

for him. It mostly happens if he has missed a meal and is really

hungry. Don't understand the connection but eating better does help

to prevent it.

> Hi Y'all

>

> As we are talking about twitching i wanted to know, do any of you

have facial

> spasms, little twitches? and do you know if they are related to

sma? I do no

> one else can see them and it doesnt happen often but i can feel my

cheek

> moving and twitching - thank goodness no one else can see it!! it

seems to

> be happening more frequently too.

>

> thanks

> xx

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" Every so often I get a finger or toe that moves rythmically

up and down by itself for several minutes and that is weird to watch and

feel. "

The same thing happens to me. Recently, I couldn't stop my middle finger from

moving up and down by itself and it lasted the whole day, not only several

minutes as happened before.... It lasted exactly from the morning when I woke up

until the evening when I went to bed - and the next morning the strange

sensation stopped. But, it was driving me crazy - whenever it happens it's just

so weird...My mom was telling me that I perhaps just overworked my finger and

hand during the day, but I don't think so... Is this really a part of SMA

symptoms or something? I mean are there some scientific proofs about it?

Radmy

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  • 5 years later...

I have been able to control facial spasms by staying completly away

from anything containing caffeine or sugar or alchohol. No coffee or

decaf coffee which still has some caffeine, no chocolate, no tea, no

cola drinks or root beer drinks that contain caffeine or sugar, No

alchoholic drinks, no herbal stimulantants such as ginseng or others.

Other muscle spasms in other parts of my body can occur with

exersion, so no long strenuous physical therapy sessions. Light

exercises only for me.

>

> Hi Y'all

>

> As we are talking about twitching i wanted to know, do any of you

have facial

> spasms, little twitches? and do you know if they are related to

sma? I do no

> one else can see them and it doesnt happen often but i can feel my

cheek

> moving and twitching - thank goodness no one else can see it!! it

seems to

> be happening more frequently too.

>

> thanks

> xx

>

>

>

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I have noticed that the all over body twitches have gotten worse

through the years. The twitching use to be bad just after strenuous

activity but now seems to be all the time. I'm not sure when that

started? I have just recently experienced the facial spasm--quite

annoying.

Suzanne

> >

> > Hi Y'all

> >

> > As we are talking about twitching i wanted to know, do any of you

> have facial

> > spasms, little twitches? and do you know if they are related to

> sma? I do no

> > one else can see them and it doesnt happen often but i can feel my

> cheek

> > moving and twitching - thank goodness no one else can see it!! it

> seems to

> > be happening more frequently too.

> >

> > thanks

> > xx

> >

> >

> >

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I too have had them. Called fascilations. Mostly under my right eye.

If I look in the mirror I can see the twitching. Others don't seem

to notice it but it's bad enough to distract me.

They come and go. Last winter I had spell that lasted about a month.

It seems anytime I have a weird health problem the Doc's blame it on

SMA. Not always so sure.

> > >

> > > Hi Y'all

> > >

> > > As we are talking about twitching i wanted to know, do any of

you

> > have facial

> > > spasms, little twitches? and do you know if they are related

to

> > sma? I do no

> > > one else can see them and it doesnt happen often but i can

feel my

> > cheek

> > > moving and twitching - thank goodness no one else can see

it!! it

> > seems to

> > > be happening more frequently too.

> > >

> > > thanks

> > > xx

> > >

> > >

> > >

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Hi,

I have had twitches for many years. They come for anywhere from a few minutes to

lasting about a month. Sometimes a finger or toe will move my itself or I get

them around an eye or corner of my mouth. Don't know why. They don't hurt and I

don't worry about them.

Merry Christmas

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