Re: RE: SMA friends to Mom -to Mom

[Guest guest]

,

Thank you for the advice,

I will check into the care provider for Matt for school.

It would not be a bad idea to start interviewing now.

Take care

Steph

[Guest guest]

,

Your son will also qualify for the school to pay for a full time assistant for

him if you decide to put him in public school. I had one from elementary school

through high school. They helped me in the classroom, and helped me use the

restroom. In college the school no longer pays, but a different state agency

does.

bvarney123@... wrote: Hi Jay?

wears diapers when we go out .He is going to posibly be

homeschooled.So I dont have to worry about what to do at school.

He goes potty on his rifton pottychair at home.He rarely go in his pants at

home.

Never # 2. He only pees in his diaper out in public . He is getting a little

older but he seems to be fine for now with it.

[Guest guest]

,

All I can say is to make sure everything and all scenarios are discussed.

I feel the same way. Getting that special aid that cares for Talelah as much

as you do is going to be hard.

I know there are very special people.You just have to interview several

until someone clicks.You will know when you find that uniuqe person.

Good Luck!!!

I have to do the same thing.

Talked to Judy she said she had talked to you.

She really likes you.She said she might call Dr. Bach.

Well take care, Varney

[Guest guest]

In a message dated 5/21/2002 2:49:07 PM Pacific Standard Time,

monica@... writes:

> Since this came up, I've been wondering about aids. I'm worried, not just

> that my daughter will be able to go the toilet when she needs to, but what

> about in the situation that she needs to be coughed and suctioned, what if

> she chokes, etc. Will an aid be able to do the medical things she

> requires. I know how fast she can go down, and it's not like there would

> be time to call me and have me run over to the school to help her.

Maybe she'll qualify for a nurse? There's a girl at my school who has an LPN

with her the majority of the day. The school pays for it, I'm pretty sure.

Personally, I wouldn't like the idea of having somebody follow me around like

that, but I don't need that constant care. Also, if you're thinking of just

in emergencies not all the time, every school has a nurse. The nurse could be

easily trained and called when needed.

[Guest guest]

Since this came up, I've been wondering about aids. I'm worried, not just

that my daughter will be able to go the toilet when she needs to, but what

about in the situation that she needs to be coughed and suctioned, what if

she chokes, etc. Will an aid be able to do the medical things she

requires. I know how fast she can go down, and it's not like there would

be time to call me and have me run over to the school to help her.

At 10:32 AM 5/21/02 -0700, you wrote:

>,

>Your son will also qualify for the school to pay for a full time assistant

>for him if you decide to put him in public school. I had one from

>elementary school through high school. They helped me in the classroom,

>and helped me use the restroom. In college the school no longer pays, but

>a different state agency does.

>

> bvarney123@... wrote: Hi Jay?

> wears diapers when we go out .He is going to posibly be

>homeschooled.So I dont have to worry about what to do at school.

>He goes potty on his rifton pottychair at home.He rarely go in his pants at

>home.

>Never # 2. He only pees in his diaper out in public . He is getting a little

>older but he seems to be fine for now with it.

>

>

>

>

>

[Guest guest]

-

My helper at school was trained especially for me and my needs.

When I was trach'd I had a aide & a nurse. 2 people following me around

in school wass SO unneccesary! My aunt insisted I had 2 ppl. there were

many fights between the three of us, who does what/when/ect...

~jodi

[Guest guest]

On 21 May 2002, at 18:12, lynnie53@... wrote:

> -

> My helper at school was trained especially for me and my needs.

> When I was trach'd I had a aide & a nurse. 2 people following me around

> in school wass SO unneccesary! My aunt insisted I had 2 ppl. there were

> many fights between the three of us, who does what/when/ect...

Hi Jodi

How frustrating that must have been for you! Do you just have 1

person with you now?

TuftySue

Wanna E Me? sue@...

Wanna See Me? http://www.tuftysue.co.uk

[Guest guest]

On 21 May 2002, at 15:52, wrote:

> Since this came up, I've been wondering about aids. I'm worried, not just

> that my daughter will be able to go the toilet when she needs to, but what

> about in the situation that she needs to be coughed and suctioned, what if

> she chokes, etc. Will an aid be able to do the medical things she

> requires. I know how fast she can go down, and it's not like there would

> be time to call me and have me run over to the school to help her.

As some of the others said, you need to interview a few people until

you get *just* the right person. Don't let them be alone with your

daughter until you're confident you know they know what they're

doing. They are some very good carers out there, 4 of my 5 are

brilliant, I totally trust them with every situation that could crop up.

I am in a bad situation at the moment, I hired a new PA about a

month ago and she's not suitable for the job. My vent tube came

disconnected last week and she just sat there, didn't put it back on.

I had to do an alarm so mum could come and rescue me. Now I

have the horrible job of " letting her go "

TuftySue

Wanna E Me? sue@...

Wanna See Me? http://www.tuftysue.co.uk

[Guest guest]

oh my gosh, tufty!! what was she thinking???

I hired a new PA about a

month ago and she's not suitable for the job. My vent tube came

disconnected last week and she just sat there, didn't put it back on.

I had to do an alarm so mum could come and rescue me. Now I

have the horrible job of " letting her go "

TuftySue

------ http://USFamily.Net/info - Unlimited Internet - From $8.99/mo! ------

[Guest guest]

I know, it was awful! She hasn't been here all week due to her

having a " bug " , which is as belivable as me riding a bike She's

back tomorrow and is supposed to be learning how to do suction but

we'll see.

TuftySue

On 22 May 2002, at 17:21, wrote:

> oh my gosh, tufty!! what was she thinking???

>

> I hired a new PA about a

> month ago and she's not suitable for the job. My vent tube came

> disconnected last week and she just sat there, didn't put it back on.

> I had to do an alarm so mum could come and rescue me. Now I

> have the horrible job of " letting her go "

>

> TuftySue

Wanna E Me? sue@...

Wanna See Me? http://www.tuftysue.co.uk