Re: question/ friends? - Patti

[Guest guest]

Patti,

I found this same thing on my local FEAT board. I decided on

ABA/biomed and chelation. My " three pronged attack " . I have no

affiliation with any, just the desire to help my son recover.

So they think I am crazy... welcome to my little wacked out

family!

Shan

> Hi Patti,

> I have had this type of thing happen several times and it never

gets any

> less disappointing. That is why we surround ourselves with other

parents

> of autistic kids because you know they will understand.

> Heidi

>

>

>

>

>

>

> >From: pphawkins@j...

> >Reply-EOHarm

> >EOHarm

> >Subject: question/ friends?

> >Date: Sun, 12 Jun 2005 13:50:34 -0500

> >

> >

> >Hey y'all,

> >

> >Just want to toss this out there. I have a group of friends,

about 25

> >women, all of whom I've known 15 years or more, and all of whom

have the

> >same job I do. OK, don't laugh, but we are basketmakers....I know

> that's

> >strange, but I design and exhibit and teach around the country.

These

> >women live from one coast to the other, and we have had our own

email

> >group for years, since we understand each other well and can vent

about

> >our job frustrations, etc. We have also supported each other

through

> >deaths, divorces, cancer, and many other life crises. I have

long truly

> >considered these as among the best friends I have in the world.

I tell

> >you all of this, so you can understand what has happened....

> >

> >Since my son's dx last year, and my " new " life in the world of

> biomedical

> >treatments and now political activism and " professional book

buyer and

> >distributor! " , I have maintained regular contact with these

friends. At

> >first they were oh so sorry for my plight, wanted to cheer me up,

> >etc.....but this past week I sent them a long email sharing some

of the

> >things I've been doing lately--like our progress with the doctor,

the

> big

> >push on Washington, etc. I was really excited about it and

wanted to

> let

> >them know what was happening--also hoping to get maybe a few of

them

> >interested in getting mercury out of vaccines (since that should

be

> >everyone's fight, not just the autism community). But I SWEAR I

wasn't

> >arrogant, or (too) pushy, I don't think..... just passionate!

> >

> >So far I have not received ONE reply to my email, and these women

are on

> >email every single day. The group emails continue to come...with

links

> >to knitting sites, and discussions about someone's wedding, and

the

> usual

> >job info, etc....and nothing about what I said. I finally

contacted one

> >of these friends individually and asked, did my message get out

there,

> >since no one even commented? She told me yes, but after all, it

was a

> > " bit intense " , you know, not one of your usual joking, fun emails.

> >

> >I'm a big girl, but my feelings are a bit wounded here. I have

found

> >this with other friends, too, whom I used to " do lunch " with,

once upon

> a

> >time, B.A. (before autism) (before activism). I honestly don't

have the

> >time for as much " fun stuff " any more, since I seriously have so

many

> >more urgent things to deal with these days. I've also decided

that I am

> >never going to be comfortable just watching things happen, and

sticking

> >my head in the sand, while I live in my own comfortable little

world

> (not

> >that it's very comfortable these days). I would NEVER judge or

> criticize

> >them or their lives, but they just don't comprehend the passion I

have

> to

> >fight this fight, not only for my son, but for everyone else's

kids!

> >

> >OK, I've vented, and I feel better now. It's just kind of

strange that

> I

> >have never met any of you, and yet I bet you understand where I'm

> coming

> >from. I just wondered--is this a familiar scenario?

> >

> >Thanks for listening.

> >

> >patti

> >

> >

> >

> >

> >

[Guest guest]

Patti,

I found this same thing on my local FEAT board. I decided on

ABA/biomed and chelation. My " three pronged attack " . I have no

affiliation with any, just the desire to help my son recover.

So they think I am crazy... welcome to my little wacked out

family!

Shan

> Hi Patti,

> I have had this type of thing happen several times and it never

gets any

> less disappointing. That is why we surround ourselves with other

parents

> of autistic kids because you know they will understand.

> Heidi

>

>

>

>

>

>

> >From: pphawkins@j...

> >Reply-EOHarm

> >EOHarm

> >Subject: question/ friends?

> >Date: Sun, 12 Jun 2005 13:50:34 -0500

> >

> >

> >Hey y'all,

> >

> >Just want to toss this out there. I have a group of friends,

about 25

> >women, all of whom I've known 15 years or more, and all of whom

have the

> >same job I do. OK, don't laugh, but we are basketmakers....I know

> that's

> >strange, but I design and exhibit and teach around the country.

These

> >women live from one coast to the other, and we have had our own

email

> >group for years, since we understand each other well and can vent

about

> >our job frustrations, etc. We have also supported each other

through

> >deaths, divorces, cancer, and many other life crises. I have

long truly

> >considered these as among the best friends I have in the world.

I tell

> >you all of this, so you can understand what has happened....

> >

> >Since my son's dx last year, and my " new " life in the world of

> biomedical

> >treatments and now political activism and " professional book

buyer and

> >distributor! " , I have maintained regular contact with these

friends. At

> >first they were oh so sorry for my plight, wanted to cheer me up,

> >etc.....but this past week I sent them a long email sharing some

of the

> >things I've been doing lately--like our progress with the doctor,

the

> big

> >push on Washington, etc. I was really excited about it and

wanted to

> let

> >them know what was happening--also hoping to get maybe a few of

them

> >interested in getting mercury out of vaccines (since that should

be

> >everyone's fight, not just the autism community). But I SWEAR I

wasn't

> >arrogant, or (too) pushy, I don't think..... just passionate!

> >

> >So far I have not received ONE reply to my email, and these women

are on

> >email every single day. The group emails continue to come...with

links

> >to knitting sites, and discussions about someone's wedding, and

the

> usual

> >job info, etc....and nothing about what I said. I finally

contacted one

> >of these friends individually and asked, did my message get out

there,

> >since no one even commented? She told me yes, but after all, it

was a

> > " bit intense " , you know, not one of your usual joking, fun emails.

> >

> >I'm a big girl, but my feelings are a bit wounded here. I have

found

> >this with other friends, too, whom I used to " do lunch " with,

once upon

> a

> >time, B.A. (before autism) (before activism). I honestly don't

have the

> >time for as much " fun stuff " any more, since I seriously have so

many

> >more urgent things to deal with these days. I've also decided

that I am

> >never going to be comfortable just watching things happen, and

sticking

> >my head in the sand, while I live in my own comfortable little

world

> (not

> >that it's very comfortable these days). I would NEVER judge or

> criticize

> >them or their lives, but they just don't comprehend the passion I

have

> to

> >fight this fight, not only for my son, but for everyone else's

kids!

> >

> >OK, I've vented, and I feel better now. It's just kind of

strange that

> I

> >have never met any of you, and yet I bet you understand where I'm

> coming

> >from. I just wondered--is this a familiar scenario?

> >

> >Thanks for listening.

> >

> >patti

> >

> >

> >

> >

> >

[Guest guest]

Patti,

I am in PA.taylorleea1 <rcnilson@...> wrote:

Patti,I found this same thing on my local FEAT board. I decided on ABA/biomed and chelation. My "three pronged attack". I have no affiliation with any, just the desire to help my son recover. So they think I am crazy... welcome to my little wacked out family! ;)Shan> Hi Patti,> I have had this type of thing happen several times and it never gets any> less

disappointing. That is why we surround ourselves with other parents> of autistic kids because you know they will understand.> Heidi> > > > > > > >From: pphawkins@j...> >Reply-EOHarm > >EOHarm > >Subject: question/ friends?> >Date: Sun, 12 Jun 2005 13:50:34 -0500> >> >> >Hey y'all,> >> >Just want to toss this out there. I have a group of friends, about 25> >women, all of whom I've known 15 years or more, and all of whom have the> >same job I do. OK, don't laugh, but we are basketmakers....I know> that's> >strange, but I design and exhibit and teach around the country. These> >women live from one coast to the other, and we have had our own email> >group for years, since we

understand each other well and can vent about> >our job frustrations, etc. We have also supported each other through> >deaths, divorces, cancer, and many other life crises. I have long truly> >considered these as among the best friends I have in the world. I tell> >you all of this, so you can understand what has happened....> >> >Since my son's dx last year, and my "new" life in the world of> biomedical> >treatments and now political activism and "professional book buyer and> >distributor!", I have maintained regular contact with these friends. At> >first they were oh so sorry for my plight, wanted to cheer me up,> >etc.....but this past week I sent them a long email sharing some of the> >things I've been doing lately--like our progress with the doctor, the> big> >push on Washington, etc. I

was really excited about it and wanted to> let> >them know what was happening--also hoping to get maybe a few of them> >interested in getting mercury out of vaccines (since that should be> >everyone's fight, not just the autism community). But I SWEAR I wasn't> >arrogant, or (too) pushy, I don't think..... just passionate!> >> >So far I have not received ONE reply to my email, and these women are on> >email every single day. The group emails continue to come...with links> >to knitting sites, and discussions about someone's wedding, and the> usual> >job info, etc....and nothing about what I said. I finally contacted one> >of these friends individually and asked, did my message get out there,> >since no one even commented? She told me yes, but after all, it was a> >"bit intense", you know,

not one of your usual joking, fun emails.> >> >I'm a big girl, but my feelings are a bit wounded here. I have found> >this with other friends, too, whom I used to "do lunch" with, once upon> a> >time, B.A. (before autism) (before activism). I honestly don't have the> >time for as much "fun stuff" any more, since I seriously have so many> >more urgent things to deal with these days. I've also decided that I am> >never going to be comfortable just watching things happen, and sticking> >my head in the sand, while I live in my own comfortable little world> (not> >that it's very comfortable these days). I would NEVER judge or> criticize> >them or their lives, but they just don't comprehend the passion I have> to> >fight this fight, not only for my son, but for everyone else's kids!>

>> >OK, I've vented, and I feel better now. It's just kind of strange that> I> >have never met any of you, and yet I bet you understand where I'm> coming> >from. I just wondered--is this a familiar scenario?> >> >Thanks for listening.> >> >patti> >> >> >> >> >

[Guest guest]

Hey I am in PA!!

Who here has sent copies of EOH to Santorum?

Why haven't I gotten my copies yet!!

I am always last.........

~Becky

> > Hi Patti,

> > I have had this type of thing happen several times and it never

> gets any

> > less disappointing. That is why we surround ourselves with

other

> parents

> > of autistic kids because you know they will understand.

> > Heidi

> >

> >

> >

> >

> >

> >

> > >From: pphawkins@j...

> > >Reply-EOHarm

> > >EOHarm

> > >Subject: question/ friends?

> > >Date: Sun, 12 Jun 2005 13:50:34 -0500

> > >

> > >

> > >Hey y'all,

> > >

> > >Just want to toss this out there. I have a group of friends,

> about 25

> > >women, all of whom I've known 15 years or more, and all of whom

> have the

> > >same job I do. OK, don't laugh, but we are basketmakers....I

know

> > that's

> > >strange, but I design and exhibit and teach around the

country.

> These

> > >women live from one coast to the other, and we have had our own

> email

> > >group for years, since we understand each other well and can

vent

> about

> > >our job frustrations, etc. We have also supported each other

> through

> > >deaths, divorces, cancer, and many other life crises. I have

> long truly

> > >considered these as among the best friends I have in the

world.

> I tell

> > >you all of this, so you can understand what has happened....

> > >

> > >Since my son's dx last year, and my " new " life in the world of

> > biomedical

> > >treatments and now political activism and " professional book

> buyer and

> > >distributor! " , I have maintained regular contact with these

> friends. At

> > >first they were oh so sorry for my plight, wanted to cheer me

up,

> > >etc.....but this past week I sent them a long email sharing

some

> of the

> > >things I've been doing lately--like our progress with the

doctor,

> the

> > big

> > >push on Washington, etc. I was really excited about it and

> wanted to

> > let

> > >them know what was happening--also hoping to get maybe a few of

> them

> > >interested in getting mercury out of vaccines (since that

should

> be

> > >everyone's fight, not just the autism community). But I SWEAR

I

> wasn't

> > >arrogant, or (too) pushy, I don't think..... just passionate!

> > >

> > >So far I have not received ONE reply to my email, and these

women

> are on

> > >email every single day. The group emails continue to

come...with

> links

> > >to knitting sites, and discussions about someone's wedding, and

> the

> > usual

> > >job info, etc....and nothing about what I said. I finally

> contacted one

> > >of these friends individually and asked, did my message get out

> there,

> > >since no one even commented? She told me yes, but after all,

it

> was a

> > > " bit intense " , you know, not one of your usual joking, fun

emails.

> > >

> > >I'm a big girl, but my feelings are a bit wounded here. I have

> found

> > >this with other friends, too, whom I used to " do lunch " with,

> once upon

> > a

> > >time, B.A. (before autism) (before activism). I honestly don't

> have the

> > >time for as much " fun stuff " any more, since I seriously have

so

> many

> > >more urgent things to deal with these days. I've also decided

> that I am

> > >never going to be comfortable just watching things happen, and

> sticking

> > >my head in the sand, while I live in my own comfortable little

> world

> > (not

> > >that it's very comfortable these days). I would NEVER judge or

> > criticize

> > >them or their lives, but they just don't comprehend the passion

I

> have

> > to

> > >fight this fight, not only for my son, but for everyone else's

> kids!

> > >

> > >OK, I've vented, and I feel better now. It's just kind of

> strange that

> > I

> > >have never met any of you, and yet I bet you understand where

I'm

> > coming

> > >from. I just wondered--is this a familiar scenario?

> > >

> > >Thanks for listening.

> > >

> > >patti

> > >

> > >

> > >

> > >

> > >