Re: Anahad's Most Annoying Point

[Guest guest]

Well, , we do have HBOT!

Barb

(Mom of an older older kid--now a young man!)

Anahad's Most Annoying Point

> From the emails with JB, message #8834

>

> Anahad: " And even if all the studies were wrong and the microscopic

> amounts of thimerosal in some vaccines were behind the explosion in

> autism, it is extremely unlikely, according to experts, that removing

> heavy metals from a person's system would completely reverse brain

> damage.

>

> In well documented cases of poisoning by mercury, lead and other heavy

> metals, chelating has never been shown to cause brain cells to

> regenerate or undo extensive damage to them. "

>

> For the moment, I'll forgive the words " microscopic " and completely " .

> But I fear the above statement may be true for the older, more severe

> kids. The damage may be too severe for recovery.

>

> The most annoying thing Anahad's point is it may be true. The absense

> of any effort by public and private Institutions (hello CAN?) Autism

> Associations to find better ways to treat mercury poisoning. Trying

> and failing is OK, but they are not trying, they are not funding- and

> then they have the balls to criticize parents who seek the best

> available treatments for their brain damaged children.

>

> In the past, the doctor would say " autism diagnosis, I'm afraid

> there's nothing we can do. School districts do brains. " It is not a

> big win for us if the change becomes " mercury poisoning diagnosis, I'm

> afraid there's nothing we can do. "

>

> We are Doing Buttar's on my 7 1/2 year old ASD som for 5 months (some

> improvement, no drastic improvments yet, wishing with each round of

> chelation that we were operating less in the dark.

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

,

I am not an expert, but I understand that the brain of a pre-

pubescent child is particularly malleable. Is it not, therefore,

possible that once the mercury is removed from a child's brain,

the brain can be retrained to " adapt " to the

" permanent " damage that may have been done?

Neurosurgeons have used a procedure called a " functional

hemispherectomy " to treat some children with epilepsy who

experience " severe, uncontrollable seizures. " Here are two

excerpts from The Cleveland Clinic's website.

" A functional hemispherectomy is a procedure in which portions of

one hemisphere-which is not functioning normally (called the non-

functioning hemisphere)-are removed, and the corpus callosum is

split. This disconnects the communications between the various lobes

of the epileptic hemisphere and between the two hemispheres,

preventing the spread of seizures to the functional side of the

brain. "

" How effective is functional hemispherectomy?

About 85 percent of people who have a functional hemispherectomy will

experience significant improvement, and about 60 percent will become

seizure-free. In many cases, especially in children, the remaining

side of the brain takes over the tasks that were controlled by the

section that was removed. This often improves a child's functioning

and quality of life, as well as reduces or eliminates the

seizures. "

Here's the link to the full webpage.

http://tinyurl.com/24ahz

We have been using a treatment called neurofeedback with our HF nine-

year-old based on a similar premise. This is by no means a

" quick fix, " but I believe it can be effective in combination

with more traditional therapies (OT, SLT, etc.) in helping to recover

some of the skills that have been lost. (It seems particularly

helpful in addressing hyperactivity.)

Dr. Lynda of the ADD Centre in Canada, co-authored a book

– The A.D.D. Book – with Dr. Sears (pediatrician).

In this book, she dedicates an entire chapter to explaining the

fundamentals of this type of therapy. While neurofeedback therapy

may not be suitable for all children, it may prove helpful to some.

Here's a link to the ADD Centre's website

http://www.addcentre.com/index2.html

By the way, rumor has it that the military is using neurofeedback

therapy to treat post-traumatic stress disorder and brain

injuries. Maybe the folks at Walter can shed a little light on

the subject for us. Some athletes are even using it to improve their

athletic performance.

Finally, what does Anahad know? When he conducts thorough, objective

research on this matter – then I will be glad to listen to what

he has to say. Until then, he needs to move on to a subject about

which he is more knowledgeable.

P.S. We were 8 months into chelation before we saw any noticeable

improvement. Hopefully, you won't have to wait so long.

________________

From the emails with JB, message #8834

Anahad: " And even if all the studies were wrong and the microscopic

amounts of thimerosal in some vaccines were behind the explosion in

autism, it is extremely unlikely, according to experts, that removing

heavy metals from a person's system would completely reverse brain

damage.

In well documented cases of poisoning by mercury, lead and other heavy

metals, chelating has never been shown to cause brain cells to

regenerate or undo extensive damage to them. "

For the moment, I'll forgive the words " microscopic " and completely " .

But I fear the above statement may be true for the older, more severe

kids. The damage may be too severe for recovery.

The most annoying thing Anahad's point is it may be true. The absense

of any effort by public and private Institutions (hello CAN?) Autism

Associations to find better ways to treat mercury poisoning. Trying

and failing is OK, but they are not trying, they are not funding- and

then they have the balls to criticize parents who seek the best

available treatments for their brain damaged children.

In the past, the doctor would say " autism diagnosis, I'm afraid

there's nothing we can do. School districts do brains. " It is not a

big win for us if the change becomes " mercury poisoning diagnosis, I'm

afraid there's nothing we can do. "

We are Doing Buttar's on my 7 1/2 year old ASD son for 5 months (some

improvement, no drastic improvements yet, wishing with each round of

chelation that we were operating less in the dark.

[Guest guest]

As one who has done ALA only, for a few months, than DMSA chelation

for about a year 4 years ago and now TD-DMPS for the last year on our

now 8 year old, don't give up! I even have to add that we have NEVER

seen any mercury coming out of her on testing... (though we have done

very little testing, we can afford tests or therapy) We just keep

plugging away based on Dr Buttars saying if there are symptoms there

is Mercury.

That said, she is improving! We had a BIG plateu and so I tried

changing the protocal around a bit and we now have a kid who is stinky

and detoxing again!

She spent the day with Grammy on tue and I heard from my sis yesterday

how my mom was going on and on how much fun they had! She and Grampa

played hide and seek, Grammy and Grace watched Monsters inc

togather.... NOT a Disney sing along! They interacted and she spent

the time with them instead of stimming in the spare bedroom.

Her speech teacher was impressed with a couple of new things she is

doing in speech! She has severe language disorder, as well as Apraxia

and autism.... We are starting to see her answer some why questions,

as well as saying caterpiller or her own during speech and it was VERY

clear to all sitting there what she had said! Thew were VERY impressed!

So while she is not " cured " each time I write out that check for

another Rx for chelation I hope for cure but will take all the gains I

can get, we just keep plugging... Who knows maybe the reason that they

have never completely reversed brain damage is that they did'nt keep

going..... think about it, in lead or any other kind of metal

posioning they check the blood levels, chelate, wait I think 2 weeks

test again and either go on or stop if nothing is shown... Based on

my daughters testing we would have never even started!

We are the study! I just wish we were not and that someone had come

before us but...

MAybe Barb will chime in with the progress she has seen in Craig.

Laurie

Mom to Grace 8

> From the emails with JB, message #8834

>

> Anahad: " And even if all the studies were wrong and the microscopic

> amounts of thimerosal in some vaccines were behind the explosion in

> autism, it is extremely unlikely, according to experts, that removing

> heavy metals from a person's system would completely reverse brain

> damage.

>

> In well documented cases of poisoning by mercury, lead and other heavy

> metals, chelating has never been shown to cause brain cells to

> regenerate or undo extensive damage to them. "

>

> For the moment, I'll forgive the words " microscopic " and completely " .

> But I fear the above statement may be true for the older, more severe

> kids. The damage may be too severe for recovery.

>

> The most annoying thing Anahad's point is it may be true. The absense

> of any effort by public and private Institutions (hello CAN?) Autism

> Associations to find better ways to treat mercury poisoning. Trying

> and failing is OK, but they are not trying, they are not funding- and

> then they have the balls to criticize parents who seek the best

> available treatments for their brain damaged children.

>

> In the past, the doctor would say " autism diagnosis, I'm afraid

> there's nothing we can do. School districts do brains. " It is not a

> big win for us if the change becomes " mercury poisoning diagnosis, I'm

> afraid there's nothing we can do. "

>

> We are Doing Buttar's on my 7 1/2 year old ASD som for 5 months (some

> improvement, no drastic improvments yet, wishing with each round of

> chelation that we were operating less in the dark.

>

>

[Guest guest]

We are not giving up, and we are seeing improvement. We too have been

chelating various ways since 2001. It's frustrating to identify the

problem and not have a better defined method to deal with it.

It bothers me greatly that there has not been a national effort to

find better ways to treat heavy metal poisoning. Forget about

Thimerosal (for a minute)- we get warnings about fish, but no effort

to come up with treatment. Mercury has been a known poison all of

recorded history, yet no effort is being made on a national level to

find effective treatment.

Because of the reluctance to admit a neurotoxin might cause

neurological damage, valuable treatment years have been lost, and

continue to be lost, for all the wrong reasons.

That said, I will continue to offer my son the best available

treatment, and I will continue to send Generation Rescue's messsage

far and wide.

I do not mean to give Anahad more credit that he deserves. I just

hate the argument, " OK, it's mercury poisoning, but there's nothing

you can do about it " , because of the lack of national effort.

> > From the emails with JB, message #8834

> >

> > Anahad: " And even if all the studies were wrong and the microscopic

> > amounts of thimerosal in some vaccines were behind the explosion in

> > autism, it is extremely unlikely, according to experts, that removing

> > heavy metals from a person's system would completely reverse brain

> > damage.

> >

> > In well documented cases of poisoning by mercury, lead and other heavy

> > metals, chelating has never been shown to cause brain cells to

> > regenerate or undo extensive damage to them. "

> >

> > For the moment, I'll forgive the words " microscopic " and completely " .

> > But I fear the above statement may be true for the older, more severe

> > kids. The damage may be too severe for recovery.

> >

> > The most annoying thing Anahad's point is it may be true. The absense

> > of any effort by public and private Institutions (hello CAN?) Autism

> > Associations to find better ways to treat mercury poisoning. Trying

> > and failing is OK, but they are not trying, they are not funding- and

> > then they have the balls to criticize parents who seek the best

> > available treatments for their brain damaged children.

> >

> > In the past, the doctor would say " autism diagnosis, I'm afraid

> > there's nothing we can do. School districts do brains. " It is not a

> > big win for us if the change becomes " mercury poisoning diagnosis, I'm

> > afraid there's nothing we can do. "

> >

> > We are Doing Buttar's on my 7 1/2 year old ASD som for 5 months (some

> > improvement, no drastic improvments yet, wishing with each round of

> > chelation that we were operating less in the dark.

> >

> >

[Guest guest]

> As one who has done ALA only, for a few months, than DMSA chelation

> for about a year 4 years ago and now TD-DMPS for the last year on our

> now 8 year old, don't give up!

I'll chime in with my latest happy improvement -- my son with

Asperger's never used to do greetings at all. When my husband would

walk in the door from out-of-town trips he'd be met with something

like, " Make me a sandwich! " or silence. No smile, no hug, no notice

that he'd even been away.

I got back today from a few days away and my son ran to hug me,

grinning like crazy, saying, " I missed you, Mama! " Chelation, enzymes,

anti-virals....

Nell

[Guest guest]

My son is 25. He supposedly shouldn't make any progress, right?

Well, he's told us repeatedly (via typing on a computer) how much BETTER he

feels physically--aching joints gone, hypersensitivities lessened etc. etc.

At one point, he told us that the distances between objects was changing.

He typed out for me that his hands were changing and we should go get an OT.

(This after OT services were discontinued in high school due to lack of

progress for a long time.)

So, we got an OT who expected to stay for a month (since everyone knows that

20 year olds don't improve, right?) Well, they've been working with him now

for several years and he's gone from having a very clumsy thumb and side of

forefinger grasp to a beautiful pincer, then three-finger grasp, to stabbing

with a fork, now starting to do two-handed things like cutting with a knife

and fork. His sentences have gotten longer and more varied, although his

speech still hasn't " taken off. " But he thanks us over and over for

chelating him because he feels SO MUCH BETTER and continues to do so as time

goes on. Oh, and stomach issues have settled down a lot . . .

Mercury is TOXIC, so getting it out makes the body work better.

Barb

Re: Anahad's Most Annoying Point

> As one who has done ALA only, for a few months, than DMSA chelation

> for about a year 4 years ago and now TD-DMPS for the last year on our

> now 8 year old, don't give up! I even have to add that we have NEVER

> seen any mercury coming out of her on testing... (though we have done

> very little testing, we can afford tests or therapy) We just keep

> plugging away based on Dr Buttars saying if there are symptoms there

> is Mercury.

>

> That said, she is improving! We had a BIG plateu and so I tried

> changing the protocal around a bit and we now have a kid who is stinky

> and detoxing again!

>

> She spent the day with Grammy on tue and I heard from my sis yesterday

> how my mom was going on and on how much fun they had! She and Grampa

> played hide and seek, Grammy and Grace watched Monsters inc

> togather.... NOT a Disney sing along! They interacted and she spent

> the time with them instead of stimming in the spare bedroom.

>

> Her speech teacher was impressed with a couple of new things she is

> doing in speech! She has severe language disorder, as well as Apraxia

> and autism.... We are starting to see her answer some why questions,

> as well as saying caterpiller or her own during speech and it was VERY

> clear to all sitting there what she had said! Thew were VERY impressed!

>

> So while she is not " cured " each time I write out that check for

> another Rx for chelation I hope for cure but will take all the gains I

> can get, we just keep plugging... Who knows maybe the reason that they

> have never completely reversed brain damage is that they did'nt keep

> going..... think about it, in lead or any other kind of metal

> posioning they check the blood levels, chelate, wait I think 2 weeks

> test again and either go on or stop if nothing is shown... Based on

> my daughters testing we would have never even started!

>

> We are the study! I just wish we were not and that someone had come

> before us but...

>

> MAybe Barb will chime in with the progress she has seen in Craig.

>

> Laurie

> Mom to Grace 8

>

>

>

>

>

>> From the emails with JB, message #8834

>>

>> Anahad: " And even if all the studies were wrong and the microscopic

>> amounts of thimerosal in some vaccines were behind the explosion in

>> autism, it is extremely unlikely, according to experts, that removing

>> heavy metals from a person's system would completely reverse brain

>> damage.

>>

>> In well documented cases of poisoning by mercury, lead and other heavy

>> metals, chelating has never been shown to cause brain cells to

>> regenerate or undo extensive damage to them. "

>>

>> For the moment, I'll forgive the words " microscopic " and completely " .

>> But I fear the above statement may be true for the older, more severe

>> kids. The damage may be too severe for recovery.

>>

>> The most annoying thing Anahad's point is it may be true. The absense

>> of any effort by public and private Institutions (hello CAN?) Autism

>> Associations to find better ways to treat mercury poisoning. Trying

>> and failing is OK, but they are not trying, they are not funding- and

>> then they have the balls to criticize parents who seek the best

>> available treatments for their brain damaged children.

>>

>> In the past, the doctor would say " autism diagnosis, I'm afraid

>> there's nothing we can do. School districts do brains. " It is not a

>> big win for us if the change becomes " mercury poisoning diagnosis, I'm

>> afraid there's nothing we can do. "

>>

>> We are Doing Buttar's on my 7 1/2 year old ASD som for 5 months (some

>> improvement, no drastic improvments yet, wishing with each round of

>> chelation that we were operating less in the dark.

>>

>>

>

>

>

>

>

>

[Guest guest]

Barb, I am so happy for you and your son!! And having a daughter who

is 12..this is so encouraging to hear! Thanks!!

> My son is 25. He supposedly shouldn't make any progress, right?

>

[Guest guest]

This is SO inspiring, Barb! Thanks for sharing.

patti

[Guest guest]

There is a neurologist here in Seattle, who for all intents and

purposes is useless, but I like that he tells parents that

individuals with autism are ALWAYS able to make progress; age is not

a factor.

Your son is so fortunate to have you as his mother, Barb.

Ricci

> >> From the emails with JB, message #8834

> >>

> >> Anahad: " And even if all the studies were wrong and the

microscopic

> >> amounts of thimerosal in some vaccines were behind the explosion

in

> >> autism, it is extremely unlikely, according to experts, that

removing

> >> heavy metals from a person's system would completely reverse

brain

> >> damage.

> >>

> >> In well documented cases of poisoning by mercury, lead and other

heavy

> >> metals, chelating has never been shown to cause brain cells to

> >> regenerate or undo extensive damage to them. "

> >>

> >> For the moment, I'll forgive the words " microscopic " and

completely " .

> >> But I fear the above statement may be true for the older, more

severe

> >> kids. The damage may be too severe for recovery.

> >>

> >> The most annoying thing Anahad's point is it may be true. The

absense

> >> of any effort by public and private Institutions (hello CAN?)

Autism

> >> Associations to find better ways to treat mercury poisoning.

Trying

> >> and failing is OK, but they are not trying, they are not funding-

and

> >> then they have the balls to criticize parents who seek the best

> >> available treatments for their brain damaged children.

> >>

> >> In the past, the doctor would say " autism diagnosis, I'm afraid

> >> there's nothing we can do. School districts do brains. " It is

not a

> >> big win for us if the change becomes " mercury poisoning

diagnosis, I'm

> >> afraid there's nothing we can do. "

> >>

> >> We are Doing Buttar's on my 7 1/2 year old ASD som for 5 months

(some

> >> improvement, no drastic improvments yet, wishing with each round

of

> >> chelation that we were operating less in the dark.

> >>

> >>

> >

> >

> >

> >

> >

> >