Re: COALITIONS/Generation Rescue

[Guest guest]

Neurodiverse offense alert...reereereereet!

Exploitation meter just went through the roof!!!

Better acknowledge you were only kidding before this becomes web fodder.

:)knowele <Hunter@...> wrote:

And let all the kids have a vacation from GFCF diets!!! Can you justsee it, all of them stimming, hitting, screeching, smelly diapers....would'nt that make them sit up and notice! LOL!!!LaurieMom to Grace> > I am SO in on this! > > Last year when attending Unlocking Autism's PAC (Political Autism > Conference) I met with a handful of superb congressmen and senators. > Mostly, their honesty and support left me "stunned" (I am not being > naive here b/c I have met my share of really bad ones back in the > days when I was a canvassing activist fighting the gritty > environmental issues... I think that was a life-time ago).> > Anyhoot, I got the same message from everyone.....

Autism > organizations need to join together as one. There's a reason Autism > receives little support from the Capital and that's b/c the community > is so divided. I was told that the national children's diabetes > association receives the most support from the capital b/c it is ONE > organization fighting for the children, no confusions and no battles > for money/support amongst numerous groups. The recommendation was > that we all join together, as ONE.> > And, the children's diabetes association bring the children with them-> --the politicians can SEE the ill child and this makes it personal. > My congressman, now sadly retired, told me that after meeting with > those children the politicians can't sleep at night until they can do > something to help.> > So, what do you all say? Take our kids and have a big "melt-down" at > the Capital,

united as ONE?????> And let all the kids have a vacation from GFCF diets!!! Can you justsee it, all of them stimming, hitting, screeching, smelly diapers....would'nt that make them sit up and notice! LOL!!!LaurieMom to Grace__________________________________________________

[Guest guest]

Dang, and I was going to add poop smearing the halls of Congress. The sh** surely would be hitting the fan (pun totally intended!)! : )karen beauvais <jesusnowworld@...> wrote:

Neurodiverse offense alert...reereereereet!

Exploitation meter just went through the roof!!!

Better acknowledge you were only kidding before this becomes web fodder.

:)knowele <Hunter@...> wrote:

And let all the kids have a vacation from GFCF diets!!! Can you justsee it, all of them stimming, hitting, screeching, smelly diapers....would'nt that make them sit up and notice! LOL!!!LaurieMom to Grace> > I am SO in on this! > > Last year when attending Unlocking Autism's PAC (Political Autism > Conference) I met with a handful of superb congressmen and senators. > Mostly, their honesty and support left me "stunned" (I am not being > naive here b/c I have met my share of really bad ones back in the > days when I was a canvassing activist fighting the gritty > environmental issues... I think that was a life-time ago).> > Anyhoot, I got the same message from everyone.....

Autism > organizations need to join together as one. There's a reason Autism > receives little support from the Capital and that's b/c the community > is so divided. I was told that the national children's diabetes > association receives the most support from the capital b/c it is ONE > organization fighting for the children, no confusions and no battles > for money/support amongst numerous groups. The recommendation was > that we all join together, as ONE.> > And, the children's diabetes association bring the children with them-> --the politicians can SEE the ill child and this makes it personal. > My congressman, now sadly retired, told me that after meeting with > those children the politicians can't sleep at night until they can do > something to help.> > So, what do you all say? Take our kids and have a big "melt-down" at > the Capital,

united as ONE?????> And let all the kids have a vacation from GFCF diets!!! Can you justsee it, all of them stimming, hitting, screeching, smelly diapers....would'nt that make them sit up and notice! LOL!!!LaurieMom to Grace

__________________________________________________

[Guest guest]

Yes, just kidding, would'nt do that to my child, but can you just

picture it!?!?!

Maybe then they would understand what our kids really go thru with no

interventions! I am sooo tired of explaining why the mini m & m's the

school has been giving her reason why she has been hitting and bitting

herself for the last month! No it is not a behavoural problem, its a

medical problem!!! They just don't get it! But then again and I

did'nt either until we went to disneyland a couple of years ago and

gave her a GF/CF vacation... took a couple of days to work its way

back into her bloodstream, but needless to say we went back on the

diet when we got home.

So many of our kids are so high functioning and or well behaved that

alot of people don't get the problem... The kids are behaving well

BECAUSE of all we do!

Laurie

Mom to Grace

> >

> > I am SO in on this!

> >

> > Last year when attending Unlocking Autism's PAC (Political Autism

> > Conference) I met with a handful of superb congressmen and senators.

> > Mostly, their honesty and support left me " stunned " (I am not being

> > naive here b/c I have met my share of really bad ones back in the

> > days when I was a canvassing activist fighting the gritty

> > environmental issues... I think that was a life-time ago).

> >

> > Anyhoot, I got the same message from everyone..... Autism

> > organizations need to join together as one. There's a reason Autism

> > receives little support from the Capital and that's b/c the community

> > is so divided. I was told that the national children's diabetes

> > association receives the most support from the capital b/c it is ONE

> > organization fighting for the children, no confusions and no battles

> > for money/support amongst numerous groups. The recommendation was

> > that we all join together, as ONE.

> >

> > And, the children's diabetes association bring the children with them-

> > --the politicians can SEE the ill child and this makes it personal.

> > My congressman, now sadly retired, told me that after meeting with

> > those children the politicians can't sleep at night until they can do

> > something to help.

> >

> > So, what do you all say? Take our kids and have a big " melt-down " at

> > the Capital, united as ONE?????

> >

> And let all the kids have a vacation from GFCF diets!!! Can you just

> see it, all of them stimming, hitting, screeching, smelly diapers....

> would'nt that make them sit up and notice! LOL!!!

>

> Laurie

> Mom to Grace

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

,

Sorry it took so long to respond...just now catching up on my e-mail

and still having DSL problems (sitting on my front porch to send

this because it is the only spot at home that my PC card will get a

signal). Ugh!! Sometimes, " technology " is a real pain!

Anyway...

Please put NoMercury on your list. We are happy to work with any

and all groups to help our children and positively resolve this

crisis.

We may be tucked away here in the Mid-West but we would be honored

to join our voices with others to make a difference.

Alan D. , M.D.

Lujene G.

Co-Founders of NoMercury

> Thanks and JB.

> Bob - I'll collect the responses I've gotten from interested

groups so we can start a contact list.

> I really like the idea of a " peer network " .

> So far I've got NAA, UA, Generation Rescue, A-CHAMP, Charlotte

STAR, SafeMinds, Autism One and that really hot guy from

California. Did I miss anyone that has already responded?

> NAA-LI? NAA-NJ? You guys in?

>

>

[Guest guest]

I'm a bit late on this but wanted to add my $.02. I definately

agree that we (biomedically minded people) need to get together and

stick together. A-CHAMP is a must! I wanted to share this with you

since the type 1 diabetes people were mentioned. I have a daughter

with type 1 diabetes so I can tell you that when the kids get up to

make their speeches, etc. it is very powerful. People cry, it is

quite moving.

Check this out about the upcoming Children's Congress for the JDRF

(Juvenile Diabetes Research Foundation):

On Tuesday, June 21, 150 children with type 1 diabetes will pack a

special Senate Hearing on Capitol Hill during JDRF's 2005 Children's

Congress. They will listen to testimonies by JDRF International

Chairman Tyler , winning movie producer

Wick, champion Olympic swimmer Hall, Jr., director of the

National Institute of Diabetes & Digestive & Kidney Diseases Dr.

Spiegel, and some of their fellow Children's Congress

delegates. You, too, can listen and watch the hearing live on the

web at 10:00 am on June 21.

Each witness will give an impassioned testimony on the urgent need

for continued federal funding of diabetes research to find a cure,

using examples from their own lives as well as stories from people

with diabetes worldwide. After the hearing, all 150 delegates and

their families will meet with their respective U.S. Representatives

and Senators to put a personal face on their disease.

JDRF is the leading charitable funder and advocate of type 1

(juvenile) diabetes research worldwide. The mission of JDRF is to

find a cure for diabetes and its complications through the support

of research. Children's Congress has been held every other year

since 1999 and has become the largest media and grassroots event

held in support of finding a cure for type 1 diabetes, raising

national awareness about the disease and participating in personal

advocacy at the highest level of United States government.

The President and W. Bush are Honorary Co-Chairs of

Children's

Congress 2005; Congressional Co-Chairs are Senator (R-

ME), Senator Blanche Lincoln (D-AR), Representative Mike Castle (R-

DE), and Representative DeGette (D-CO). This year, six

honorary international delegates have joined Children's Congress

from Australia, Canada, Denmark, Greece, Israel, and the United

Kingdom.

Massachusetts' Moira McCarthy Stanford, a dedicated JDRF volunteer

and talented freelance writer, is Chair of Children's Congress

2005.

Her daughter, Stanford, 13, was diagnosed with type 1

diabetes at age 6 and, as ChairKid, will also testify at Tuesday's

hearing.

Now, let me say, this is wonderful for my family. I want nothing

more for a cure for my daughter. It would be amazing. I will say,

however, that it amazes me how much attention that they get from

Congress and the Senate when I compare it to our struggles to get

these same senators/congresspeople to do the very obvious... Take

thimerosal out of vaccines AND do the necessary studies to see what

the hell has gone on here with the autism community. Why are we

still fighting this battle? Who is protecting us? Where is Pres.

Bush for us (he's certainly not going to be our Honorary Co-Chair

anytime soon).

Our message is too painful and shameful... More reason for us to

stick together and dig those heels in... We will win!

-Sue

> > > > Autism Speaks would talk to people if they wanted to donate

> > money,

> > > but had nothing to offer these callers in terms of support?

So

> > they

> > > took the money and then passed the people on to UA - where

you

> > used

> > > your hard-earned resources to help these families and got

> nothing

> > in

> > > the way of support from the rest of the coalition? Sounds

like

> > they

> > > are using you - big time.

> > > >

> > > > Other than the wonderful support to families given through

UA

> > and

> > > your call center, what exactly is the Autism Coalition doing

with

> > > the millions and millions of dollars being funneled into it?

What

> > > are they doing for my daughter? I'm sick to death of

> organizations

> > > formed to " raise awareness " . SCREW RAISING AWARENESS. 1 in 6

kids

> > > in this country requires special ed services! If we are still

> > > unaware, we're in big trouble. (, you know I am not

> > > directing these comments toward UA - I fully support and am

in

> awe

> > > of all that you do.)

> > > >

> > > > I think the time has come for a new coalition. A coalition

in

> > the

> > > true sense of the word - one that will work TOGETHER for our

> kids.

> > > A group of like-minded orgs who are willing to really work as

a

> > > team. We all have different appoaches and agendas, but the big

> > > issue that we agree on is thimerosal.

> > > >

> > > > I propose a new Coalition and invite Unlocking Autism,

> > SafeMinds,

> > > Generation Rescue, TACA, Autism One, A-Champ PAC, CoMed, NAA

and

> > any

> > > other groups who wish to lend their voices to do so now. It's

> time

> > > to sing in unison. We can start with the Combating Autism Act

of

> > > 2005.

> > > >

> > > > The Combating Autism Act has got to be changed. It

specifies

> > that

> > > no research studies on immune, endocrine, gastro and

> toxicological

> > > issues can be done for 3 years!!!! Everything that we KNOW is

> > > important to help our kids get better will have ZERO chance of

> > > getting funded if this bill should pass as is.

> > > >

> > > > The Autism Coalition wrote this bill. Now the other

> > organizations,

> > > and parents that will support us, have to stand strong to

make

> > this

> > > bill work for our kids. NAA is working on this issue and we

> invite

> > > all other autism orgs, including Unlocking Autism, to stand

> united

> > > for biomedical, immune, gastrointestinal, toxicological and

> > > environmental research for our kids that will help them now.

> > > Together we can achieve great things....

> > > >

> > > >

> > > >

> >

> >

> >

> >

> > _____

> >

> >

[Guest guest]

The President may be showing up for Juvenile Diabetes but is directing any

funds towards researching a link between THAT disease and vaccines? Same old

story. It ain't the genes.

But I DO agree that we need some celebrities with ASD kids to get out there

and attract the media's attention.

Who is protecting us? Where is Pres.

Bush for us (he's certainly not going to be our Honorary Co-Chair

anytime soon).

Our message is too painful and shameful... More reason for us to

stick together and dig those heels in... We will win!

-Sue