Guest guest Posted June 27, 2001 Report Share Posted June 27, 2001 Hi Alice: I read your post and thought I would respond. I am feeling the same way. My son (11) has had OCD for about 18 months. He was the most sweet, unaggressive boy until OCD -- I find it very, very difficult to take his swearing, his total meltdowns and his pain. Most of the time, I feel for him so much that I don't even think about how I feel, or about the feelings of my husband or other 2 boys. However, my older son (14) is having a VERY hard time dealing with 's OCD -- he is turning into one very angry young man. He never wants to be around, and feels that his own problems don't matter. My youngest son (8) is very shy and lives in fear of 's OCD and the associated rage -- we never know which we're going to see. Right now, is tired and feeling low with a bad cold. These factors definitely make OCD worse. also has mild TS, but none of us pay any attention to it, as OCD rules the roost here. I also with for my other children that they could lead a " normal " life, with more typical problems that might actually be discussed and addressed. Apparently not! We do try to spend time alone with each child -- we (my husband and I) each run a business as well, so I feel that I am on a treadmill that is cranked up to full speed, and set on " up hill " . The only thing that keeps me going is knowing that no matter how terrible I feel and the others feel, no one feels worse than . I am new to this group, but it alreadfy feels so good to know that there are people out there who understand the overwhelming dispair and incredible pain that comes with OCD. I'd like to say something funny or encouraging, but I'm not there today. Maybe tomorrow! By the way, is on 150 mg of Zoloft (and 1 mg. of Risperdal), and OCD still rears its ugly head! Is Ami on anything? I'm sorry if I missed that in one of your earlier posts. Take care -- watch out for the good days, so you can really enjoy them! (Canada) Re: OCD book > >Hi Jule, >I have already mailed you to say I got the book. I read it, then put it >away in it's envelope, for a time that felt right. >I popped out to the shops, and when I came back I found Ami, with the book >cutting it up into pieces. >Obviously this was not the right time. I feel so depressed and disheartened >by this. For the last few days Ami's behaviour has been off scale- throwing >chairs, knives and forks, obscene language the works....... She is not >going to join me in this fight over ocd.. I feel too tearful to write more. >I'd like to hear from other members who have kids in denial; kids who refuse >help; kids who verbally abuse their parents and siblings; kids who throw >tempers that are off the scale. In addition tonight, my 13 year old son had >a melt down of really bad language and destructiveness. It was partly >fuelled by Ami's aggressive, unreasonable behaviour. Its hard for other >kids too. They should be able to be terrible teenagers without serious >mental illness in the family. Feeling like shit right now. >Alice in the UK. > > > Re: New Member > > >Alice: > >A very warm welcome to the group! I loved the image of your daughter >dancing sans knickers and kicking the headmistress as this was ME at >that age (blush -- and no comments, ). > >On a more serious note, I would really encourage you to visit >amazon.com (or amazon.co.uk) and get a couple of the books Kathy R >suggested: OCD in Children and Adolescents by March and >Mulle, and either Freeing Your Child from Obessive Compulsive Disorder >by Tamar Chansky or Obessive Compulsive Disorder: Help for Children >and Adolescents by Mitzi Waltz. Both of these latter books are good, >but Mitzi lists resources in the UK, and the book has a forward by Jim >Hatton, a well-known psychologist who treats OCD. I think you might >find Mitzi's book a bit more useful. If you can't get the books >locally, amazon.com ships internationally. My friend in Oz is always >ordering books through them. > >As far as meds go, and even ERP, it's tough when the child doesn't >recognize that she has a problem. You might want to try and pick up a >copy of Kissing Doorknobs, which is a fiction about a teenage girl >with OCD. She might see it, read it, and recognize herself. I could >also send you a copy of Kids Like Me if you write me off list at the >following address: jmonnens@... > >Jule > > >You may subscribe to the OCD-L by emailing listserv@... . In the >body of your message write: subscribe OCD-L your name. You may subscribe >to the Parents of Adults with OCD List at >parentsofadultswithOCD-subscribe . You may subscribe to >the OCD and Homeschooling List at >ocdandhomeschooling-subscribe . You may change your >subscription format or access the files, bookmarks, and archives for our >list at . Our list advisors >are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. >Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail >Pesses, Kathy , and Jackie Stout. Subscription issues or >suggestions may be addressed to Louis Harkins, list owner, at >lharkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2001 Report Share Posted June 28, 2001 Hi , Thanks for your mail. It is terrible how this OCD (maybe ODD too) impacts on the family. My one break is when they see their Dad every other week end, but as I said to Jule, Ami's behaviour is sometimes so bad that his new wife is trying to stop visits. Ami is in complete denial that she has ocd. The disorder word is the crunch for her. Consequently - no therapy (none available anyway) and no meds. Was going to try inositol, but haven't found a source, using the net, in the UK yet. Sure there must be one. I hope Ami doesn't get worse, but if she does she may agree to help one day, and I think I could persuade our general practitioner to prescribe.....I hope. We'll see. Right now we're in the middle of a long meltdown which could last days, and I feel too tired to think. Kept going by all the mails. Knowing others mums cope with more, and worse. Knowing you all care. I will be ready to enjoy the good days, of which there are some. Recently it's just been the compulsions - milder, and has been quite loving both ways....until now. It will pass! Good Luck with . Hope the cold's better soon. Alice Re: New Member > > >Alice: > >A very warm welcome to the group! I loved the image of your daughter >dancing sans knickers and kicking the headmistress as this was ME at >that age (blush -- and no comments, ). > >On a more serious note, I would really encourage you to visit >amazon.com (or amazon.co.uk) and get a couple of the books Kathy R >suggested: OCD in Children and Adolescents by March and >Mulle, and either Freeing Your Child from Obessive Compulsive Disorder >by Tamar Chansky or Obessive Compulsive Disorder: Help for Children >and Adolescents by Mitzi Waltz. Both of these latter books are good, >but Mitzi lists resources in the UK, and the book has a forward by Jim >Hatton, a well-known psychologist who treats OCD. I think you might >find Mitzi's book a bit more useful. If you can't get the books >locally, amazon.com ships internationally. My friend in Oz is always >ordering books through them. > >As far as meds go, and even ERP, it's tough when the child doesn't >recognize that she has a problem. You might want to try and pick up a >copy of Kissing Doorknobs, which is a fiction about a teenage girl >with OCD. She might see it, read it, and recognize herself. I could >also send you a copy of Kids Like Me if you write me off list at the >following address: jmonnens@... > >Jule > > >You may subscribe to the OCD-L by emailing listserv@... . In the >body of your message write: subscribe OCD-L your name. You may subscribe >to the Parents of Adults with OCD List at >parentsofadultswithOCD-subscribe . You may subscribe to >the OCD and Homeschooling List at >ocdandhomeschooling-subscribe . You may change your >subscription format or access the files, bookmarks, and archives for our >list at . Our list advisors >are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. >Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail >Pesses, Kathy , and Jackie Stout. Subscription issues or >suggestions may be addressed to Louis Harkins, list owner, at >lharkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2001 Report Share Posted July 8, 2001 , I too am new to this group and I have an 11 year old son with OCD. His is so low key that I forget it is there. It's only manifested when he sleeps outside of the home- he just cannot do it! He has the Pure O of OCD so you don't see anything overt. He hides everything so well that I am pretty much on my own with the knowledge of his OCD. He calls it "parex"- a new he invented. lee in SF wrote: Hi Alice:I read your post and thought I would respond. I am feeling the same way.My son (11) has had OCD for about 18 months. He was the most sweet,unaggressive boy until OCD -- I find it very, very difficult to take hisswearing, his total meltdowns and his pain. Most of the time, I feel forhim so much that I don't even think about how I feel, or about the feelingsof my husband or other 2 boys. However, my older son (14) is having a VERYhard time dealing with 's OCD -- he is turning into one very angryyoung man. He never wants to be around, and feels that his own problemsdon't matter. My youngest son (8) is very shy and lives in fear of's OCD and the associated rage -- we never know which we'regoing to see. Right now, is tired and feeling low with a bad cold.These factors definitely make OCD worse. ! also has mild TS, but noneof us pay any attention to it, as OCD rules the roost here. I also with formy other children that they could lead a "normal" life, with more typicalproblems that might actually be discussed and addressed. Apparently not!We do try to spend time alone with each child -- we (my husband and I) eachrun a business as well, so I feel that I am on a treadmill that is crankedup to full speed, and set on "up hill". The only thing that keeps me goingis knowing that no matter how terrible I feel and the others feel, no onefeels worse than . I am new to this group, but it alreadfy feels sogood to know that there are people out there who understand the overwhelmingdispair and incredible pain that comes with OCD. I'd like to say somethingfunny or encouraging, but I'm not there today. Maybe tomorrow! By the way, is on 150 mg of Zoloft (and 1 mg. of Risperdal), and OCD stillrears its ugly head!! Is Ami on anything? I'm sorry if I missed that in oneof your earlier posts.Take care -- watch out for the good days, so you can really enjoy them! (Canada) Re: OCD book Hi Jule,I have already mailed you to say I got the book. I read it, then put itaway in it's envelope, for a time that felt right.I popped out to the shops, and when I came back I found Ami, with the bookcutting it up into pieces.Obviously this was not the right time. I feel so depressed and disheartened by this. For the last few days Ami's behaviour has been off scale- throwing chairs, knives and forks, obscene language the works....... She is notgoing to join me in this fight over ocd.. I feel too tearful to write more. I'd like to hear from other members who have kids in denial; kids who refuse help; kids who verbally abuse their parents and siblings; kids who throwtempers that are off the scale. In addition tonight, my 13 year old son had a melt down of really bad language and destructiveness. It was partlyfuelled by Ami's aggressive, unreasonable behaviour. Its hard for otherkids too. They should be able to be terrible teenagers without seriousmental illness in the family. Feeling like shit right now.Alice in the UK. Re: New MemberAlice:A very warm welcome to the group! I loved the image of your daughterdancing sans knickers and kicking the headmistress as this was ME atthat age (blush -- and no comments, ).On a more serious note, ! I would really encourage you to visitamazon.com (or amazon.co.uk) and get a couple of the books Kathy Rsuggested: OCD in Children and Adolescents by March and Mulle, and either Freeing Your Child from Obessive Compulsive Disorderby Tamar Chansky or Obessive Compulsive Disorder: Help for Childrenand Adolescents by Mitzi Waltz. Both of these latter books are good,but Mitzi lists resources in the UK, and the book has a forward by JimHatton, a well-known psychologist who treats OCD. I think you mightfind Mitzi's book a bit more useful. If you can't get the bookslocally, amazon.com ships internationally. My friend in Oz is alwaysordering books through them.As far as meds go, and even ERP, it's tough when the child doesn'trecognize that she has a problem. You might want to try and pick up acopy of Kissing Doorknobs, which is a fiction about a teenage girlwith OCD. She might see it, read it, and recognize h! erself. I couldalso send you a copy of Kids Like Me if you write me off list at thefollowing address: jmonnens@...JuleYou may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribeto the Parents of Adults with OCD List atparentsofadultswithOCD-subscribe . You may subscribe tothe OCD and Homeschooling List atocdandhomeschooling-subscribe . You may change yoursubscription format or access the files, bookmarks, and archives for ourlist at . Our list advisorsare Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D.Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, GailPesses, Kathy , and ! Jackie Stout. Subscription issues orsuggestions may be addressed to Louis Harkins, list owner, atlharkins@... . Quote Link to comment Share on other sites More sharing options...
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