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I don't trip and fall as much as I used to but I think it's because I am so

careful not to. I do have trouble on carpet in restaurants if it is not

laying out flat. Sometimes they don't stretch it good and there will be a

hump in it. I just have to really watch where I'm going. I've tripped and

threw food across the room before. Of course I always act COOL and blame it

on the carpet. Hey, someone has to take the blame.

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Hi, Gretchen ...

I have noticed that over the past few months I have a tendency to drag my

right foot ... I kind of catch my toe as the foot is coming forward during a

step. Its not serious at this point, but I think that is where the tripping

comes from. It is now pronounced enough that I notice the dragging. What is

" foot drop? " Is it this dragging?

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Hi Gretchen and all.

When I was between 5 and 8 was when I did my most falling. I was diagnoised

at age 5 due to the fact that I would trip and fall all the time over thin

air. Then at age 8 I had my 1st surgery and was put into metal springed

braces. This helped alot with the falling. It didn't stop it, but it helped.

Then when I stopped being a kid (you know going out and goofing off with your

school mates), and I got a FT job at age 17 I tripped even less. Of course I

wasn't being as active either. I could still trip over thin air.

Now at age 39 I have to be careful for the fatigue. Most of the time when I

fall it's due to being tired or stressed or hurried. I hate the falls, so

very scary. Take care all, Jeanie

**************

In a message dated 7/17/00 10:48:58 AM Pacific Daylight Time,

liliwigg@... writes:

<< Has anyone's propensity to tripping/and or falling changed, over time,

either you don't trip much now anymore, or you do trip more now? My own

trips seem to be much less than even 15 years ago.

Gretchen

>>

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Gretchen:

Interesting topic... The funny thing is that in some ways my balance

seems worse than it did before, but I seem to trip and fall less. Maybe it's

just that I am more attuned to my CMT symtpoms recently, especially since the

mail group. I think part of it is that I've been exercising more the past

few years and I've also become more used to my lack of balance. I think the

exercise helps the rest of me stay flexible and strong so that I can right

myself faster and easier when I feel like I'm going to fall. I also think

that I'm just more prepared for the possibility. When I have fallen and

hurt myself in the past few years it has mostly been when I was doing

something impulsive and careless like running without my AFO's (seriously

injured my hand that way five years ago).

I'm interestd in others' thoughts on this too.

: ) Marti.

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I use to fall alot. I would trip just to trip, it seemed. Sometimes if I

was not paying attention to what I was doing I would trip. Since the AFO's,

I hardly trip at all. I have tripped a few times in the splint, mainly

because I was walking to fast. Boy, you do fly when wearing the AFO's.

Can't seem to catch yourself.

Terry

-----Original Message-----

From: Gretchen Glick [mailto:liliwigg@...]

Sent: Monday, July 17, 2000 1:41 PM

Subject: [] tripping/falling?

Has anyone's propensity to tripping/and or falling changed, over time,

either you don't trip much now anymore, or you do trip more now? My own

trips seem to be much less than even 15 years ago.

Gretchen

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Definitely, a bump/raise on the floor if you do not see it can be awful. If

you are watching your step (as alot of CMT'ers do) there is less likelihood

of tripping.

Terry

-----Original Message-----

From: ktbugg54@... [mailto:ktbugg54@...]

Sent: Monday, July 17, 2000 2:07 PM

egroups

Subject: Re: [] tripping/falling?

I don't trip and fall as much as I used to but I think it's because I am so

careful not to. I do have trouble on carpet in restaurants if it is not

laying out flat. Sometimes they don't stretch it good and there will be a

hump in it. I just have to really watch where I'm going. I've tripped and

threw food across the room before. Of course I always act COOL and blame it

on the carpet. Hey, someone has to take the blame.

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Oh, yeah! That's foot drop! For me, it always happens so unexpectedly

that I have no chance to catch myself. Usually it's my head that

takes the worst of it! Also worse when I'm tired, because my reflexes

are even worse. Good luck with managing your CMT. It's tricky!

> Hi, Gretchen ...

>

> I have noticed that over the past few months I have a tendency to

drag my

> right foot ... I kind of catch my toe as the foot is coming forward

during a

> step. Its not serious at this point, but I think that is where the

tripping

> comes from. It is now pronounced enough that I notice the dragging.

What is

> " foot drop? " Is it this dragging?

>

>

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In a message dated 7/17/2000 11:26:44 AM Pacific Daylight Time,

littlet@... writes:

<< Definitely, a bump/raise on the floor if you do not see it can be awful.

If

you are watching your step (as alot of CMT'ers do) there is less likelihood

of tripping.

Terry >>

I can find hills in floors that no one else knows about.

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I think that as we get older, we become more aware of what makes us trip and

fall, and we are careful to try to not put ourselves in that position. I always

make sure I am near something to hold on to. If not My husbands arm is

available. I use a cane to steady myself as well.

Gretchen Glick <liliwigg@...> wrote:

Has anyone's propensity to tripping/and or falling changed, over time,

either you don't trip much now anymore, or you do trip more now? My own

trips seem to be much less than even 15 years ago.

Gretchen

---------------------------------

---------------------------------

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Hello the House,

You know now that you mention it, I don't trip like I used to. On the

other hand I don't do the physical things I used to either, less active. I

can credit that to the age factor I guess.

E

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-----Original Message-----

From: jacee17@... <jacee17@...>

egroups <egroups>

Date: Monday, July 17, 2000 6:21 PM

Subject: Re: [] tripping/falling?

>In a message dated 7/17/2000 11:26:44 AM Pacific Daylight Time,

>littlet@... writes:

>

><< Definitely, a bump/raise on the floor if you do not see it can be awful.

>If

> you are watching your step (as alot of CMT'ers do) there is less

likelihood

> of tripping.

>

> Terry >>

>I can find hills in floors that no one else knows about.

>

>

>>> I can find those invisable dust bunnies made from rocks, I do ok until I

get tired or hurt alot then, its worse. (Balance) ~>Becky M.

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In a message dated 7/17/2000 8:26:13 PM Pacific Daylight Time,

jege6666@... writes:

<< Hello the House,

You know now that you mention it, I don't trip like I used to. On the

other hand I don't do the physical things I used to either, less active. I

can credit that to the age factor I guess.

E >>

Let me put it this way. I don't trip as much now but I used to be able to get

up after I tripped before.

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Hello fellow CMTers,

I use to also trip a lot, but not as much now. I remember about 7

years ago, I was late for work and trying to walk as fast as I can. The

pavement I was walking on was made of brick, I tripped and must have rolled

about six feet. I rolled off the sidewalk into the gutter, and into the path

of a school bus. The driver of the bus didn't even slow down, I got up as

fast as I could and the bus whizzed by me. I hurt my knee and was really

embarrassed. I guess to other people walking by, it looked as if I threw

myself in front of the bus. I could feel my knee bleeding and hobbled onto

work, I was in a bad mood for the rest of the day. Another time I was walking

with my coworkers to get lunch. We were walking down Fulton St., a busy

street at lunchtime. Due to the high volume of pedestrian traffic the street

is closed to cars. The street also has cobblestones and of course I tripped.

There was a few teens behind me that started to laugh, and I turned around

and gave them a look, that stopped their laughter in its tracks. I guess the

look was similar to if you laugh again someone is going to get an ass

kicking. I also hurt my knee, one of my coworkers asked if I was all right. I

played it off and said yes. I have tripped so many times that my shins look

like a battle ground. But what amazes me the most is, when you trip most

people just walk by as if nothing happened.

In Love & Light,

Al Hasim

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In a message dated 7/17/2000 8:53:43 PM Pacific Daylight Time, paceu@...

writes:

<< I have tripped so many times that my shins look

like a battle ground. But what amazes me the most is, when you trip most

people just walk by as if nothing happened.

In Love & Light,

Al Hasim >>

I tripped at high school over a tree root. My papers went everywhere. I was

so embrassed. I kept thinking ohh when I look up people will be laughing at

me. Then I noticed no one was looking at me or offering to help.. Then I was

mad. To make it worse at our 10 yr reunion I told my friend the story and we

had a good laugh. Then she wrote it in the reunion news letter. It didn't

look as funny on paper. More like I was begging for apologies.

UGH FRIENDS! She signed my name.. I'll get her on the 20th.

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I know what you mean about falling. My knees are nothing but scars, Fell one

time and feet turned when I fell so that I have scars on both ankles. Never a

broken bone, that's a miracle.

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In a message dated 7/17/00 4:36:20 PM Pacific Daylight Time, jacee17@...

writes:

<< In a message dated 7/17/2000 11:26:44 AM Pacific Daylight Time,

littlet@... writes:

<< Definitely, a bump/raise on the floor if you do not see it can be awful.

If you are watching your step (as alot of CMT'ers do) there is less

likelihood of tripping.

Terry >>

I can find hills in floors that no one else knows about.

>>

****************

Same here. Jeanie

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I ALSO HAVE RIGHT FOOT DROP. MY ORTHOTIST FITTED ME WITH A HEIL BRACE WHICH

ALL BUT ELIMINATED THIS TYPE OF TRIPPING.THE BRACE IS FITTED ON THE OUTSIDE

OF THE SHOE AND IS VELCROED AROUND THE ANKLE. IT LIFTS THE TOE OF THE SHOE

AND STOPS IT FROM CATCHING ON EVERYTHING. I USE TO TRIP 5 TO 10 TIMES A WEEK.

I HAVEN " T TRIPPED ONCE IN THE 4 MONTHS SINCE I GOT THE BRACE

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I have braces also but still seem to catch my toes on stuff if I am not

looking down. I have to watch my feet when I walk or I trip. I think it has

more to do with the loss of feeling in my feet. Sometimes I just don't know

where they are if I am not looking at them. Does that make since?

Danieta

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In a message dated 7/19/2000 9:31:17 PM US Eastern Standard Time,

rdanietafost@... writes:

<< Sometimes I just don't know

where they are if I am not looking at them. Does that make since?

Danieta >>

I was told years ago, that " displacement " went along with my CMT. You might

think your finger is on the tip of your nose when actuality, it is on the

side of it. This is in the unconscious act.

from Indiana

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I have said before that I ever got stopped by the police they would think I

was drunk if they saw me walk and There is no way that I could pass any of

their tests.LOL BTW,where in Indiana are you. I may have asked before but I

don't remember.

Danieta

Also in Indiana

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In a message dated 7/20/00 5:29:54 AM, flyingk@... writes:

<< I was told years ago, that " displacement " went along with my CMT. >>

True. And it's also called proprioception. We don't always know where we are

in space, or where a part of us is. It's a recognized phenomena, as

says.

Kat

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In a message dated 7/20/2000 8:10:58 AM US Eastern Standard Time,

rdanietafost@... writes:

<< Danieta

Also in Indiana >>

LOL on flunking their test. I live about thirty minutes south of

Indianapolis. I use the line, (if I trip) " I can't do two things at once,

walk and chew gum "

from Indiana

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In a message dated 20/07/00 05:30:00 AM Pacific Daylight Time,

flyingk@... writes:

<<

<< Sometimes I just don't know

where they are if I am not looking at them. Does that make since?

>>

This is starting to happen to me now. I hit myself in the eye with my finger

the other day, Right in front of someone.. I wondered why I did that.. I was

trying to hit my forehead like dah sorta thing. Looked really funny I am

sure.

jenny

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