Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Theresa, Sorry, I'm behind in responding. What you are saying here is what we have experienced. Until the most recent aa urine we'd not been seeing a read out for ammonia-it was apparent though with intermittent hyperventilation. I've tried AKG with no success. I've been stimied on the b's for a couple of years as she has been so much better without supplementation of any. I was blaming the choline/serine intolerance on soy intolerance. This past year I'v been supp choline with an egg yolk supp. It has not seemed to make much difference. Aspartate and glutamate levels in plasma/urine are low. In the past I had used a mineral supp that was aspartic bound and it caused much distress! Calcium has been wnl in plasma and cellular rbc and magnesium on the high side. That said, things come back recommending more magnesium. A recent start of a calcium/sodium channel blocker for seizure control[father's insistance as he refuses to honor strict gfcfsf for this] has her a bit on the manic side. The bacterial thing makes sooooo much sense to me. I can recall begging for treatment when she was little and I felt she was ill. She was always better the few times I could get her on something. She never ran fevers as a youngster - only fever in 21 years was the initial start of chelation when she was 16. Then last spring when she was on ldn for Dr. McC's study, she had 4-5 episodes of low grade fever. I've had a few crp's run on my own the past several winters when I thought she was ill. Always elevated. When repeated in 4-6 weeks, they are normal-lab error is all I hear. She's been a responder to lod. I'll try to lower protein as she does eat high fat/protein. I haven't read any of Yasko's so I guess I'd better do so. Thank you, > > > > > > > > > > Please can someone explain? Tom has high ammonia, some > really > > > bad > > > > > behaviour recently. Also bacteria but, Dr Usman thinks, > not > > > > > necessarily too yeasty. Soooo, we're cutting l glutamine > > which > > > > > apparently encourages ammonia, cutting back on meat (good > bye > > > SCD, > > > > > unless we go for the nuts only version) and introducing > > > Liverlife and > > > > > Milk Thistle. Any other thoughts? > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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