oxypowder and die off symptoms

[Guest guest]

In a message dated 27/10/2006 22:41:14 GMT Daylight Time, sue@... writes:

However he has been extremely spacey and giggly, spaced out zoned out hard to reach and in his own world. Also skin has really flared up bad rashes and eczema. All thoughts on this appreciated.

>>That would all be die off here, ist the only time Sam gets eczema so its a big clue for us. Giggles and sometimes manic laughter too

Do you have any Candex at home? I give that first and chase with the Oxypowder, then do the probios a couple of hours later

HTHMandi in Poole

[Guest guest]

Hello,

My son started oxypwder last Friday and we are reall impressed with it

as he has had chronic constipation for years,due to heavy metal

toxicity we think. I would appreciate feedback from other parents as to

whether their child initially regressed badly (due to die off???) The

problem for us is that die off always looks similar to overgrowth of

candida, though my son has slept like a log from day 1 of Oxypowder

which is a good sign. However he has been extremely spacey and giggly,

spaced out zoned out hard to reach and in his own world. Also skin has

really flared up bad rashes and eczema. All thoughts on this

appreciated.

Thanks,

Sue

[Guest guest]

Sue,

there was a long thread on this, started by me at the beginning of the summer hols, it starts with message no. 16013, type that in and have a read, bit pushed for time at mo but will try to do an update later for you.

hth, Nikki

>> Hello,> My son started oxypwder last Friday and we are reall impressed with it > as he has had chronic constipation for years,due to heavy metal > toxicity we think. I would appreciate feedback from other parents as to > whether their child initially regressed badly (due to die off???) The > problem for us is that die off always looks similar to overgrowth of > candida, though my son has slept like a log from day 1 of Oxypowder > which is a good sign. However he has been extremely spacey and giggly, > spaced out zoned out hard to reach and in his own world. Also skin has > really flared up bad rashes and eczema. All thoughts on this > appreciated.> > Thanks,> > Sue>

[Guest guest]

Thank you Nikki, I have read all the previous posts with interest

and I am wondering how these children are doing a few months on.

Cheers,

Sue

> >

> > Hello,

> > My son started oxypwder last Friday and we are reall impressed

with it

> > as he has had chronic constipation for years,due to heavy metal

> > toxicity we think. I would appreciate feedback from other

parents as

> to

> > whether their child initially regressed badly (due to die

off???) The

> > problem for us is that die off always looks similar to

overgrowth of

> > candida, though my son has slept like a log from day 1 of

Oxypowder

> > which is a good sign. However he has been extremely spacey and

giggly,

> > spaced out zoned out hard to reach and in his own world. Also

skin has

> > really flared up bad rashes and eczema. All thoughts on this

> > appreciated.

> >

> > Thanks,

> >

> > Sue

> >

>

[Guest guest]

We've had no die off with oxypowder BUT it dealt with behaviours

that were pretty bad due to impaction. So perhaps die off hidden by

lovely honeymooon period of " look no screaming in pain " , hard to tell

Steph xx

> > >

> > > Hello,

> > > My son started oxypwder last Friday and we are reall impressed

> with it

> > > as he has had chronic constipation for years,due to heavy metal

> > > toxicity we think. I would appreciate feedback from other

> parents as

> > to

> > > whether their child initially regressed badly (due to die

> off???) The

> > > problem for us is that die off always looks similar to

> overgrowth of

> > > candida, though my son has slept like a log from day 1 of

> Oxypowder

> > > which is a good sign. However he has been extremely spacey and

> giggly,

> > > spaced out zoned out hard to reach and in his own world. Also

> skin has

> > > really flared up bad rashes and eczema. All thoughts on this

> > > appreciated.

> > >

> > > Thanks,

> > >

> > > Sue

> > >

> >

>

[Guest guest]

One thing I noticed has been the ceasing of his manic jumping on the

bed last thing at night. He is getting to bed a lot easier.

Thanks,

Sue

PS if you get the chance please look at my post in Autism Mercury

re; scd problems.

> > > >

> > > > Hello,

> > > > My son started oxypwder last Friday and we are reall

impressed

> > with it

> > > > as he has had chronic constipation for years,due to heavy

metal

> > > > toxicity we think. I would appreciate feedback from other

> > parents as

> > > to

> > > > whether their child initially regressed badly (due to die

> > off???) The

> > > > problem for us is that die off always looks similar to

> > overgrowth of

> > > > candida, though my son has slept like a log from day 1 of

> > Oxypowder

> > > > which is a good sign. However he has been extremely spacey

and

> > giggly,

> > > > spaced out zoned out hard to reach and in his own world.

Also

> > skin has

> > > > really flared up bad rashes and eczema. All thoughts on this

> > > > appreciated.

> > > >

> > > > Thanks,

> > > >

> > > > Sue

> > > >

> > >

> >

>

[Guest guest]

OK Sue, time for an update on Greg since Oxypowder!!!

Firstly there is good news and not so good news, i shall start with the GOOD news.

Since doing an oxypowder clear-out at the beginning of the summer, my ds has been regularly pooping ever since now this is quite a big deal here, because he has been chronically constipated for years, requiring ever increasing amount of laxatives plus other stuff and regular use of bisacodyl suppositories. This is a boy that would not go for 2-3 weeks at a stretch (literally !!!) so this is BIG for us and him . I have everything crossed except my hands as i type this cos' putting it down in writing is quite scary as i dont want to upset this pattern, it is so wonderful after the non-pooping era!!!

All we are doing to help with bowel movemnets at the moment is Mag. Citrate 200-400 mcg daily, plus 1 B5 500 mcg and copious amounts of fluids which is keeping things stable and on-going hopefully.

At the time of doing the oxy clear-out, ds reactions were very severe, including alot of severe aggression, tantrums and hideous eczema on his legs, so i had to stop after less than a week (i think, memory is a bit hazy on this) cos i felt he and we could not cope with this reaction much longer. Anyway things improved once stopping for a while then he seemed to slip back a bit, but i recovered him back using CS for 5 days.

This yo-yo effect has unfortunately been ongoing ever since. My take on what happened with the oxy and what has been happening since is that the oxy did a clear-out of entrenched med-resistant yeast, evidenced by black n white specks in the stool that came out whilst on it, also bacteria as well i expect, despite testing showing a reasonably healthy gut, False neagatives i hear Mandi shouting!. But because of this it left behind a raw, inflammed gut which would be very susceptable to re-infection, which is what i believe has been happening, despite me carpet-bombing the area with probiotics and Sacc. B.

Things got quite bad recently, loads of aggressive behaviour, this shouts bacteria problems to me, i tried CS with no effect, so out of despairation resorted to Antibiotics (Arghhhhhhhhhhhhhhhh). I managed to get some Trimethoprin out of my GP (don't ask how!!!) which is used mainly for uti's but also for soft tissue infections so my research has told me. Anyway, this has had a wonderful effect, i have my happy child back plus more, he is non-verbal but has started babbling for England, its just lovely to hear So the antibiotic is killing off the bacteria infecting the inflammed gut and hopefully helping to heal it as well, my problem is how to keep this going once the course of antibiotics is finished, any suggestions anyone? I do plan to ask Dr H about doing a trial of Pentosan Polysulphate (as suggested by Sally - thanks) to help heal the inflamamtion, but any other ideas would be gratefully received.

So, re: Oxypowder, i would say that people seem to have varying reactions to it and IMHO the worse the reaction the more messed up the gut is i feel and the more possible problems you might have afterwards in healing it, so i think everybody should be aware of this, using it is a good indicator IMO of how inflammed your childs gut is and go carefully if your child has a bad reaction too it, but having said that it was still a good thing for us to do re: CONSTIPATION!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Nikki

> > >> > > Hello,> > > My son started oxypwder last Friday and we are reall impressed > with it> > > as he has had chronic constipation for years,due to heavy metal> > > toxicity we think. I would appreciate feedback from other > parents as> > to> > > whether their child initially regressed badly (due to die > off???) The> > > problem for us is that die off always looks similar to > overgrowth of> > > candida, though my son has slept like a log from day 1 of > Oxypowder> > > which is a good sign. However he has been extremely spacey and > giggly,> > > spaced out zoned out hard to reach and in his own world. Also > skin has> > > really flared up bad rashes and eczema. All thoughts on this> > > appreciated.> > >> > > Thanks,> > >> > > Sue> > >> >>

[Guest guest]

Thanks for your update Nikki- Lovely to hear you finally have some

improvements with the bowel issues. It has been great not to have to

follow my son round the house with an enema bag trying to negotiate

it with him but it never cleared out the bowel like the Oxypowder

does. It has been lovely to see him today looking brighter and more

NT and engaged. He was singing along to his cd's and though all the

words are a bit muffled, we all enjoyed it. Your little lad's

constipation sounded appalling. was never that bad but he

would double up and pass out with the pain. Once he cracked his head

open on the garden steps before i could get to him. The docs

wouldn't take me seriously in the UK. You get what you pay for- that

is why we have a proper DAN! now and his progress since then has

been great though it is a daily trial to do everything although we

do it enthusiastically...

Biggest players for us have been MB12 shots, chelation (ONLY the

Cutler protocol- by the way where IS the man????has he done a

runner? fed up with all the mothers emailing him?)HBOT and epsom

salt baths.

I have given potato today and pulled all nuts and eggs until I

get allergy panel back. He has been on the enzymes for 5 yrs anyway

so that base is covered.

HE REALLY ENJOYED HIS BAKED POTATO!!!!!!!!!!!!!!!!!!!!!!!!! we will

see if he can tolerate it. We fight a daily battle with viruses and

yeast too.

Best wishes to you and your family. There is no such thing in life

as normal I have come to realise. I am certainly not, nor do I want

to be!

Sue

> > > >

> > > > Hello,

> > > > My son started oxypwder last Friday and we are reall

impressed

> > with it

> > > > as he has had chronic constipation for years,due to heavy

metal

> > > > toxicity we think. I would appreciate feedback from other

> > parents as

> > > to

> > > > whether their child initially regressed badly (due to die

> > off???) The

> > > > problem for us is that die off always looks similar to

> > overgrowth of

> > > > candida, though my son has slept like a log from day 1 of

> > Oxypowder

> > > > which is a good sign. However he has been extremely spacey

and

> > giggly,

> > > > spaced out zoned out hard to reach and in his own world. Also

> > skin has

> > > > really flared up bad rashes and eczema. All thoughts on this

> > > > appreciated.

> > > >

> > > > Thanks,

> > > >

> > > > Sue

> > > >

> > >

> >

>