/was: Re: Ammonia

[Guest guest]

,

What you are describing is exactly what Dr. Yasko sees in children

with a CBS upregulation mutation. Massively elevated taurine in

urine, high ammonia. B6, P5P, AKG, taurine and sulfur-based

supplements will all exacerbate this until you have some other

supplements in place to bypass the mutations that are part of the

problem (bacteria/viruses and metals are otehr parts of the whole

picture, of course. Even once you have started to bypass the

genetics with apprpriate supplementations, some of these supplements

will just not be advisable if you do have that genetics -- obviously

you need some B6, for instance). In addition, Acetyl-l-carnitine may

not be good for some children with excessive acteylcholine due to

excessive aluminum retention (related to a heavy bacterial load),

and these children may do better on plain carnitine. Choline can

also be related to seizure activity, so I wonder if you are using

any thing with choline or phosphatydily serine and the like? How

are glutamate and asparate levels, and calcium levels -- these can

all be related to seizure activity, too. With the GABA, my first

question would be to see if it was plain GABA, not mixed with

anything, and to see what other supplements you were giving along

with it. Dr. Yasko has a great number of children who are working

with her protocol who have seizures and have seen them be reduced. I

have a good friend with a little girl with Rett Syndrome who saw a

reduction in seizures on Dr. Yasko's program -- and this little girl

also had CBS upregulations with high urinary taurine/ammonia that

were part of the overall picture.

The first thing I would do if I were in your place would be to lower

the protein in the diet a little bit. This should help to tone down

the ammonia. Then I would look at Dr. Yasko's program. It may be

that this will be a fit with your little girl's problems. It very

much sounds that way to me, but that's just my perspective on things.

Many hugs to you and your beautiful little girl,

Theresa

> > > >

> > > > Please can someone explain? Tom has high ammonia, some

really

> > bad

> > > > behaviour recently. Also bacteria but, Dr Usman thinks,

not

> > > > necessarily too yeasty. Soooo, we're cutting l glutamine

> which

> > > > apparently encourages ammonia, cutting back on meat (good

bye

> > SCD,

> > > > unless we go for the nuts only version) and introducing

> > Liverlife and

> > > > Milk Thistle. Any other thoughts?

> > > >

> > >

> >

>