Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 In a message dated 04/10/2006 09:54:03 GMT Daylight Time, moppett1@... writes: I have found out that wheat and milk are high in glutamate >>>Add that to the pile of things that might make GFCF diet work other than 'opiate' peptides, reducing sulphur intake, reducing cysteine Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 , I'm so sorry that things are so tough with your son. I've seen a very young boy (2 years old) with autism who is seemingly completely oblivious to the entire world and indeed, I believe that his mother would be delighted if he showed such strong intention for anything, including a meltdown. I've no doubt that she would be absolutely delighted at a meltdown! My son is inclined to meltdowns - including busting my lip open last week in an impulsive moment of rage but I do know that that same ability to respond with such force also drives him to learn to speak, etc. It's a tough one and I really feel for you, keep holding out hope for your son, he's lucky to have you fighting for him in spite of the difficulties that you've faced. All the best, Darla In a message dated 04/10/2006 09:53:39 GMT Standard Time, awex@... writes: Thank you, Margaret,Vicky and Caroline, for your explanation of a "meltdown".I think that we must be lucky not to have had a "meltdown" whilst out shopping. Something we don't to very often with Ralph these days unfortunately. He tends to get too stressed and "claustrophobic" unless he is on a rare "good roll".Strange thing, autism. I get the impression that some kids can have "meltdowns" for no apparent reason, and be brilliant the rest of the time. With Ralph, he can't seem to do anything, not even meltdowns, he has become a video addict despite copious amount of input from ed psychs and behavioural consultants. We have now come to think that the only hope for our son is a medical breakthrough. Miles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 I have never understood exactly what American parents mean when they say that their child had a " meltdown " . Now UK parents are using the same expression and I still don't understand. Can somebody please explain. Miles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Honestly, what's gotten into me? I HATE it when people tell me that is lucky to have me as a parent because we are fighting so hard for him, blah blah blah (because it sure as hell doesn't feel like luck to me) and now I've gone and done it to someone. (apologies) I suppose I don't like it because it usually comes from parents who have NO IDEA what it means to have a child with developmental difficulties...anyway....I'm replying to myself here so I'll stop blabbering and do the dishes... Darla In a message dated 04/10/2006 13:09:44 GMT Standard Time, Rexel45 writes: , I'm so sorry that things are so tough with your son. I've seen a very young boy (2 years old) with autism who is seemingly completely oblivious to the entire world and indeed, I believe that his mother would be delighted if he showed such strong intention for anything, including a meltdown. I've no doubt that she would be absolutely delighted at a meltdown! My son is inclined to meltdowns - including busting my lip open last week in an impulsive moment of rage but I do know that that same ability to respond with such force also drives him to learn to speak, etc. It's a tough one and I really feel for you, keep holding out hope for your son, he's lucky to have you fighting for him in spite of the difficulties that you've faced. All the best, Darla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Or when they go to pieces, crying a lot.. julie Re: Meltdown Explanation ,I think it means a big tantrum.Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Regarding these meltdowns, I have been researching glutamate and MSG the last while as a reuslt of the thread on Vitamin K ( THANK-YOU for addressing this subject as it explains a lot of my daughter's food reactions!) . I have found out that wheat and milk are high in glutamate as well as tomatoes, strawberries and citrus fruit. I think that glutamate, which is, as you all know, an excitatory amino acid, should be considered when trying to decide what sparked the meltdown or rage/aggression. MSG of course in so many processed foods and often disguised (!) so they are hard to screen. There seems to be an overlap of glutamates and phenols and I am beginning to think maybe we should be thinking in terms also of glutamate. These glutamate receptors are ALL over the body, not just in the brain. My daughter gets tummyaches often. I used to think of these in terms of stomach migraines which could be serotonin excess. However I am beginning to think that maybe these tummyaches are actually a food reaction wich sets off the glutamate receptors in the digestive tract. Just a theory at the mo. I am looking into this the next few days I am just in the process of putting together a list of glutamate foods as I cannot find anything decent on the net. If anyone DOES have a list, I'd LOVE to have the source. Sorry this is rather hastily put together. Gotta run for an appointment.. Re: Meltdown Explanation I know what I mean when I say having a meltdown. I mean is completely in a rage cycle, absolutely lost it completely which could be due to any number of things. At the moment we are in a complete meltdown situation and have been for days, aggression, fury, destruction, you name it. I think the more severe non verbal children tend to have the most spectacular "meltdowns" probably because of the high levels of frustration associated with lack of communication, infact for my son "meltdown" is often the only way he can let us know how unhappy, frustrated, sad or even in pain he is! Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 I have often wondered about the peptide theory as one would expect the child to react rather in a doped fasion. Mine just went simply bonkers! Re: Meltdown Explanation In a message dated 04/10/2006 09:54:03 GMT Daylight Time, moppett1btinternet writes: I have found out that wheat and milk are high in glutamate >>>Add that to the pile of things that might make GFCF diet work other than 'opiate' peptides, reducing sulphur intake, reducing cysteine Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Thank you, Margaret,Vicky and Caroline, for your explanation of a " meltdown " . I think that we must be lucky not to have had a " meltdown " whilst out shopping. Something we don't to very often with Ralph these days unfortunately. He tends to get too stressed and " claustrophobic " unless he is on a rare " good roll " . Strange thing, autism. I get the impression that some kids can have " meltdowns " for no apparent reason, and be brilliant the rest of the time. With Ralph, he can't seem to do anything, not even meltdowns, he has become a video addict despite copious amount of input from ed psychs and behavioural consultants. We have now come to think that the only hope for our son is a medical breakthrough. Miles mcollins2001uk wrote: > , > I think it means a big tantrum. > Margaret > > > > > > > DISCLAIMER > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Hi You could try RDI as well as biomed? www.rdiconnect.com One UK based couple who have been doing RDI for 2 years have just updated their report on their son on the RDI UK list, and they say " At first he had lost all his communication and his life focused on ritualistic behaviors and an isolated existence.......So how is he now? We have still got a long way to go but we have seen remarkable changes.......our family quality of life has really improved and we feel we have very real hope for him in the future. His ADOS has come down into the non-autistic range (this does not mean he is cured!). We are working on stage 9 (level 5 inter-subjectivity). After going part-time in Reception Year in the local mainstream primary school, we are 3 weeks into him being full time in Year 1 and so far so good " . Zoe > > , > > I think it means a big tantrum. > > Margaret > > > > > > > > > > > > > > DISCLAIMER > > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Hi Zoe. Thanks for the information, I will give it a read. . Zoe wrote: > Hi > > You could try RDI as well as biomed? > > www.rdiconnect.com > > One UK based couple who have been doing RDI for 2 years have just > updated their report on their son on the RDI UK list, and they say > > " At first he had lost all his communication and his life focused on > ritualistic behaviors and an isolated existence.......So how is he > now? We have still got a long way to go but we have seen remarkable > changes.......our family quality of life has really improved and we > feel we have very real hope for him in the future. His ADOS has > come down into the non-autistic range (this does not mean he is > cured!). We are working on stage 9 (level 5 inter-subjectivity). > After going part-time in Reception Year in the local mainstream > primary school, we are 3 weeks into him being full time in Year 1 > and so far so good " . > > Zoe > > Quote Link to comment Share on other sites More sharing options...
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