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PCT Update - Sam

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Hmmmmmmm, as you may recall I cancelled the last panel meeting because I was poorly with colitis. Anyways I just had a letter from this morning saying they would contact me to reconvene and ..............

At this panel you will be given the opportunity to:-

1. Give a twenty min presetnation (it was 45 min last time) on the treatment I am seeking for

2. Listen to a member of the panel who will give a twenty min presetnation os HIS FINDINGS RELATING TO THE EVDIENCE RELATING TO TEH TREATMENT you are seeking for .

Hmmmmmmmmmm, that should be fun

Mandi x

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In a message dated 07/11/2006 13:13:17 GMT Standard Time, bobsallyeva@... writes:

Surely it shouldn't be a member of the panel who gives evidence to the panel. and how can he give evidence on the evidence relating to the treatment when he doesn't know what you are going to say. Are you going to exchange papers before the meeting?

>>They all had copies of Dr Heards letters and my consultant paeds to the CEO of PCT. However, when I rang last week and said does one of the doctors want the books and videos so they can be researching they said no because they didn;t know who was going to be on the panel this time. I think they are lining up their big guns, though who they are I have no idea. I am not worried I know I know more about this than they do

But good point you made I might ring the woman and ask the same question lol

Mandi x

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Surely it shouldn't be a member of the panel who gives evidence to the

panel. and how can he give evidence on the evidence relating to the

treatment when he doesn't know what you are going to say. Are you going

to exchange papers before the meeting?

Sally

Mum231ASD@... wrote:

>

> Hmmmmmmm, as you may recall I cancelled the last panel meeting because

> I was poorly with colitis. Anyways I just had a letter from this

> morning saying they would contact me to reconvene and ............ ..

>

> At this panel you will be given the opportunity to:-

> 1. Give a twenty min presetnation (it was 45 min last time) on the

> treatment I am seeking for

>

> 2. Listen to a member of the panel who will give a twenty min

> presetnation os HIS FINDINGS RELATING TO THE EVDIENCE RELATING TO TEH

> TREATMENT you are seeking for .

>

> Hmmmmmmmmmm, that should be fun

>

> Mandi x

>

> ------------------------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.409 / Virus Database: 268.13.28/518 - Release Date: 04/11/2006

>

>

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Certainly you should know who they are. You could offer them your papers

as a courtesy. That would stop them saying no evidence because you could

say " I'm surprised that given two weeks notice you were unable to

find................ " etc. Who ever it is will probably be too busy to

put in much effort -- just rely on his expertise. But if he has notice

of what you intend to say you can expect him to discuss it ie not to

just ignore it and recite received wisdom

Sally

Mum231ASD@... wrote:

>

> In a message dated 07/11/2006 13:13:17 GMT Standard Time, bobsallyeva@

> ntlworld. com writes:

>

> Surely it shouldn't be a member of the panel who gives evidence to

> the

> panel. and how can he give evidence on the evidence relating to the

> treatment when he doesn't know what you are going to say. Are you

> going

> to exchange papers before the meeting?

>

> >>They all had copies of Dr Heards letters and my consultant paeds to

> the CEO of PCT. However, when I rang last week and said does one of

> the doctors want the books and videos so they can be researching they

> said no because they didn;t know who was going to be on the panel this

> time. I think they are lining up their big guns, though who they are I

> have no idea. I am not worried I know I know more about this than they do

>

> But good point you made I might ring the woman and ask the same

> question lol

>

> Mandi x

>

> ------------------------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.409 / Virus Database: 268.13.28/518 - Release Date: 04/11/2006

>

>

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Will you get a chance to see any written evidence on his findings - so that you can prepare to respond to it ?

Jane

PCT Update - Sam

Hmmmmmmm, as you may recall I cancelled the last panel meeting because I was poorly with colitis. Anyways I just had a letter from this morning saying they would contact me to reconvene and ..............

At this panel you will be given the opportunity to:-

1. Give a twenty min presetnation (it was 45 min last time) on the treatment I am seeking for

2. Listen to a member of the panel who will give a twenty min presetnation os HIS FINDINGS RELATING TO THE EVDIENCE RELATING TO TEH TREATMENT you are seeking for .

Hmmmmmmmmmm, that should be fun

Mandi x

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  • 2 months later...

Hi Mandi,

Nightmare City! Why dont you suggest they come and meet him initially at the Conference.... ! Or have you been there already. And he is right DR H Your presentation is fantastico... And you better now get it up on the website cos everyone will wnat a copy now!! ... Hope ur feeling better, if not get to bed!

Lotsa Luv caroline

xxx

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Why dont you suggest they come and meet him initially at the> Conference.... !

>>well if they actually attended the conference they would learn a whole bunch more, I mailed the Heardster to see what he says

Mandi x

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Actually that's quite cheering. That could be presented as "PCT seeking

further info on..................expecting deluge of requests" Have you

kept your local paper upto date? They should be able to say "Turned

down request but demanding further info in face of expected deluge etc"

something like that

xx Sally

Mum231ASD@... wrote:

Dr Heard rang me this morning. They are wanting a face to face

meeting with him, Consultant Paed and GP - offering to pay his travel

expenses - well fat lot of good that is - he going to write and explain

he has 12 month waiting list and he not prepared to cancel patients for

this. I know my GP will refuse to go and likely Paed also.

Apparently they want to be well infomred because this is

unlikley to be the last request for such treatment. So they are using

us to educate them to stop hassles in the future. Hmmmm

The Heardster said my presentation was very good :)

Mandi x

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.432 / Virus Database: 268.17.4/644 - Release Date: 22/01/2007 07:30

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