Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 In a message dated 18/10/2006 11:18:14 GMT Daylight Time, MaddiganV@... writes: Different is cool, yeah right, tell that to the person next to you in the supermarket when your child has just headbutted you whilst stirpping off his clothes. >>>Oh hear hear, or is that here here never quite sure! Feeling the sparks coming off your keyboard Vicks Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Exactly, my oldest boy didn't speak till he was four and a half, had no therapies, no biomed, ABA, nothing at all, he just was never going to be as severe as was first thought, he is to the untrained eye a regular kid, to those that know autism then he has issues but nothing like s. What does this tell me as the mother of both children, it tells me absolutley nothing, I cannot sit back with aged nine and think he will just suddenly come on like his brother did, but more than that I cannot say because his brothers autism is liveable then so is s. What I do know though is everything dislikes about himself, his stupid brain as he calls it is directly because of his autism, he has no "don't cure me" attitude, he doesen't want to be dyslexic, he wants to make friends and be popular and his biggest wish in life is that his brother can be normal, so one autistic who certainly doesen't think different is cool. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 I'm never sure either Mandi lol. Sparks off the keyboard, OMG when I next catch up with you I will fill you in on the latest disaster befallen us, courtesy of the gift of autism. Vickxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Could they be friends of drugs companies? Or just mums who feel that they can’t manage it and are trying to justify the terrible decision they have made? OT -- human nature Someone wrote that a very anti-bio person on a French chatline had spoken more kindly of bio intervention after the latest genetic discoveries (of a brain/gut/immunity genetic mutation link). I can understand that people don't want to do bio-interventions themselves -- I can understand that people for whom authority figures (scientific consensus) are very important don't want to travel outside that. What I can't understand is the antipathy that biodoctors and bio interventions encounter. There seem to be loads of aggressive blogs on line ranting on about bio-interventions and proclaiming their author's determination to ignore them. Why bother? At the Awares conference there is a woman laying aggressively into Dr Karl Reichelt and Shattock and their opioid theory. I simply can't understand why get so aggressive about a theory that you disagree with. If you know in your own mind that it's wrong, why get cross? It's just wrong and in the end will be demonstrated to be so. There are aspects of complementary medicine that I find a bit peculiar -- as Karl Reichelt said " perhaps the scientific evidence for some of the things is not so strong " . Particularly if people are reporting that they work the question is what's happening why do they work or appear to work rather than shouting " they can't be working the science doesn't support it " . Anyway I'm really curious as to what other people think. Why does bio-medical stuff seem to incense some people? Sally -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.4/477 - Release Date: 16/10/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.4/477 - Release Date: 16/10/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Mmm, that makes sense. Sometimes when I read " my child didn't speak until it was 3, it had violent tantrums etc, I did nothing bio medical and now it's just about to take a biology degree at Cambridge " I think " Well bully for you sunshine. My child spoke at 9months and now she's 14 I would be thrilled if she made up a sentence of her own " . I suppose such people are solipsistic they can't understand that your child is not like their child. It's their aggression I can't understand. Guilt and fear as Mandi says Sally MaddiganV@... wrote: > > They are so aggressive because many of them believe autism is an > alternative way of being, they do not believe there is anything to > " cure " . It doesen't matter to them what the science is they do not > think we should be trying to " cure " our children. > I myself have run into a certain woman online who has accused me of > not loving my child as I cannot accept him as he is, how can I love > him and yet want to change him? > They are totally and utterly barking mad, they choose to ignore the > fact that most very severe children grow into very severe adults, > always they have the story of someone who was so profound and is now a > genious, married with kids and having a succesful life. > Different is cool, yeah right, tell that to the person next to you in > the supermarket when your child has just headbutted you whilst > stirpping off his clothes. > Vicky > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.408 / Virus Database: 268.13.4/480 - Release Date: 17/10/2006 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Yes, people keep expecting Edith to get better and saying confidently that she will. She gets more cheerful and she gets bigger but she stays as batty as every. Maybe she will but it seems an unsatisfactory basis on which to lay into others. Anyway, I do understand it all a bit more now Sally MaddiganV@... wrote: > > Exactly, my oldest boy didn't speak till he was four and a half, had > no therapies, no biomed, ABA, nothing at all, he just was never going > to be as severe as was first thought, he is to the untrained eye a > regular kid, to those that know autism then he has issues but nothing > like s. > What does this tell me as the mother of both children, it tells me > absolutley nothing, I cannot sit back with aged nine and think he > will just suddenly come on like his brother did, but more than that I > cannot say because his brothers autism is liveable then so is s. > What I do know though is everything dislikes about himself, > his stupid brain as he calls it is directly because of his autism, he > has no " don't cure me " attitude, he doesen't want to be dyslexic, he > wants to make friends and be popular and his biggest wish in life is > that his brother can be normal, so one autistic who certainly doesen't > think different is cool. > Vicky > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.408 / Virus Database: 268.13.4/480 - Release Date: 17/10/2006 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 In a message dated 18/10/2006 17:46:11 GMT Daylight Time, mel@... writes: I had a paediatrician's view about this recently....apparantly we parents are ill-informed, adamant and desperate, lambs to the slaughter for people who want to fleece us.........so now you all know - please go back to your homes citizens, be quiet and invisible and do not bother all these important intellectual people whot has degrees and suchlike, it plays havoc with their scientific and intellectual ego, and we can't have that, can we? ! >>OK Mel - so glad you posted, I can rest now LOL Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 I had a paediatrician's view about this recently....apparantly we parents are ill-informed, adamant and desperate, lambs to the slaughter for people who want to fleece us..... .....so now you all know - please go back to your homes citizens, be quiet and invisible and do not bother all these important intellectual people whot has degrees and suchlike, it plays havoc with their scientific and intellectual ego, and we can't have that, can we? ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Yeah, been there, heard that one too, like a lot of people on this list, I should think! Margaret > > I had a paediatrician's view about this recently....apparantly we > parents are ill-informed, adamant and desperate, lambs to the > slaughter for people who want to fleece us..... > > ....so now you all know - please go back to your homes citizens, be > quiet and invisible and do not bother all these important intellectual > people whot has degrees and suchlike, it plays havoc with their > scientific and intellectual ego, and we can't have that, can we? ! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Couldn't agree more Peta- -- In Autism Treatment , Mum231ASD@... wrote: > > > In a message dated 18/10/2006 10:22:58 GMT Daylight Time, > Moroza-@... writes: > > Anyway I'm really curious as to what other people think. Why does > bio-medical stuff seem to incense some people? > > > > >>GUILT that they are doing nothing and FEAR we may actually be right > > Mandi x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Best in his " hating autism blog has something to say about this and i agree with him:http://hatingautism.blogspot.com/ Autism Hub, AKA Insanity Is Us Neurodiversity came up with a good idea to publicize their cult designed to harm autistic people. They were aware that nobody with an autistic child would ever go searching for something called Neurodiversity so they gave themselves a phony name that might trap more innocent people looking for information about autism. The truth of the matter is that there are virtually no autistic people associated with the Autism Hub. This cult which is designed to prevent true autistic people from helping themselves is made up of adults with Asperger's Syndrome which is nothing like autism and some very strange people who claim to have autistic children. This bunch of liars use the slogan " We Don't Need No Stinkin' Cure " to try to convince parents that it is dangerous to try to cure their autistic children. When one questions cult members by pointing out that children are being cured with biomedical interventions, standard replies include claiming that no children can be cured unless there are scientific studies attesting to the fact. I'm sure they will demand a scientific study every time someone gets over a cold before they will believe that the cold is gone. They also like to have allegedly autistic bloggers cry that curing autism is akin to killing the autistic person. They make ridiculous assertions that Einstein was autistic so curing anyone with autism could deny the world the next Einstein. Some of them truly believe that they are more intelligent than the rest of the world even though it is obvious to any sane person that autism is actually a form of brain damage. If these people's brains weren't damaged, they certainly would not need to have any sort of diagnosis to describe their disability. Another tremendous lie by this cult claims that all autistics show natural progression and that any cures are simply that progression and have nothing to do with the interventions that address the particular form of brain damage that caused the autism. Autism Hub claims to be the very best in autism blogging when the fact is it is nothing of the sort. The bloggers associated with Autism Hub are some very clever liars whose sole purpose in blogging is to discredit parents of autistic children who have discovered the truth about autism. The truth is that Thimerosal (mercury) caused an epidemic of autism and chelation to remove the mercury is curing these children. The leaders of this cult have convinced some less than intelligent parents to go along with this nonsense and blog their guts out to claim they don't want their children to be cured of this lifelong nightmare that makes apparent vegetables out of their children. One might ask why anyone would want to lie publicly about such a horrible condition as autism. The answer is in the stock prices of the pharmaceutical companies who caused the autism epidemic by giving babies much more mercury in vaccines than is known to be safe. These companies have bought lots of peotection from lawsuits from crooked politicians. Most parents of autistic children are prohibited from filing lawsuits against them. Curing children of autism is something these companies would like to prevent. Cured children walking into coutrooms to testify about their recoveries from autism is one thing no high-priced attorneys can defend. Cured children gaining media attention is something our crooked politicians will not be able to " stonewall " . Every cured child is another nail in the coffin of the pharmaceutical companies. One need not wonder any further what drives the motivation of alleged parents belonging to Autism Hub who rant against curing autism. Sane parents are not this sadistic. > > I had a paediatrician's view about this recently....apparantly we > parents are ill-informed, adamant and desperate, lambs to the > slaughter for people who want to fleece us..... > > ....so now you all know - please go back to your homes citizens, be > quiet and invisible and do not bother all these important intellectual > people whot has degrees and suchlike, it plays havoc with their > scientific and intellectual ego, and we can't have that, can we? ! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Well, personally, i dont care anymore about what anyone else does with their children, i dont have the time to bang my head against their wall of resistance. I dont know anyone in " real life " who is using biomedical intervention in my area and despite gently trying to persuade other parents to investigate it, i have not succeeded. Doctors are to blame, as well as what was said above, i think some parents feel they have to justify what they do/don't do and come down on us like a ton of bricks to alleviate their " guilt " , for not trying harder, especially parents of older children, you know the ones who say they " have tried everything, etc etc " . I have decided that my approach from now on has the acronym SOS i.e. save (my) own son and to heck with anyone else who won't open up their minds. I feel for their kids, but what are you supposed to do, kidnap them and stuff supplements down their throats? I just don't get it how a parent who is presented with the information of biomedical interventions, could possibly poo poo it. I mean, i really DONT understand it. I would do ANYTHING for my son, and i dont care where i would have to go to do it, how much it cost or how long it took. sheesh, rant over > > > > > > In a message dated 18/10/2006 10:22:58 GMT Daylight Time, > > Moroza-@ writes: > > > > Anyway I'm really curious as to what other people think. Why does > > bio-medical stuff seem to incense some people? > > > > > > > > >>GUILT that they are doing nothing and FEAR we may actually be > right > > > > Mandi x > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Most people meeting my oldest would think he was normal, slightly geeky, maybe, not the coolest kid, but he so wants to be and doesn't think different is cool. I understand perfectly people trying to instil confidence in their HFA/Asperger kids, I do it all the time with , but to try and sell autism per se as "cool" or a gift I think is actually a huge disservice to autistics, it implies nothing is needed, way beyond biomedical, it assumes the rest of the world needs to change and whether anyone agrees with that or not it's highly unlikely ever to happen. That's just my perspective as the parent of a HFA child, as far as 'cool" goes for my severe son, well, really in that instance cool and autism don't even belong in the same sentence, we are struggling with being human here, would love to be concerned as to whether or not he is cool enough. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 I can understand those who say ASD people are just different normal. I know one boy I think is just different normal. I feel really sorry for him, beset with people telling him that his independence of thought and behaviour are signs that he is a mental case. He would be so much better off being accepted for himself. I personally think there is nothing wrong with him at all. So I think the " different is Cool " bunch just have limited experience and poor imaginations. it's the venom with which bio-medicine is attacked that mystifies me. I think Mandi is right, guilt, fear, and (in the case of professionals) fear that they will be expected to work harder and know more. Fascinating discussion on the AWARES conference about " overinvolved parents " . For those whose blood pressure will stand it it gives an very good insight into what professionals think of us Sally MaddiganV@... wrote: > > I suppose everyone is singing to their own choir and those who think > 'Different is cool " do not believe they or their children as the case > may be, are chronically ill, just different. > Vicky > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.408 / Virus Database: 268.13.10/491 - Release Date: 23/10/2006 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Hi Sally, which thread/topic is that discussion under? Many thanks, . > > > > I suppose everyone is singing to their own choir and those who think > > 'Different is cool " do not believe they or their children as the case > > may be, are chronically ill, just different. > > Vicky > > > > ------------------------------------------------------------------------ > > > > No virus found in this incoming message. > > Checked by AVG Free Edition. > > Version: 7.1.408 / Virus Database: 268.13.10/491 - Release Date: 23/10/2006 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 I couldn't agree more!! In Iowa where we live there is actually a Talented and Gifted Program at the University. It seeks out children from across the state/nation to participate in testing, summer camps etc. Well, don't you know they also have an arm of that program targeted to the HFA/Asperger population. What do they call it - " Twice Gifted " . To me it's an insult to completely overlook the biological damage that has landed our children within this category and to offer nothing which might give hope for repair of that damage. The 'smart' people who run this program do so with blinders on; never looking beyond the classification as it relates to their mission which is education. We also have a U with great resources for diagnosing and treating children's disorders. They will not even look at possible causes for the labels in this category that they dish out. They still disdain any heavy metal, viral, vaccine connection. I don't think they even know what urine porphyrins are. Sorry for the rant. > > Most people meeting my oldest would think he was normal, slightly geeky, > maybe, not the coolest kid, but he so wants to be and doesn't think different is > cool. > I understand perfectly people trying to instil confidence in their > HFA/Asperger kids, I do it all the time with , but to try and sell autism per > se as " cool " or a gift I think is actually a huge disservice to autistics, it > implies nothing is needed, way beyond biomedical, it assumes the rest of the > world needs to change and whether anyone agrees with that or not it's highly > unlikely ever to happen. > That's just my perspective as the parent of a HFA child, as far as 'cool " > Vicky > Quote Link to comment Share on other sites More sharing options...
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