Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 In a message dated 11/10/2006 22:19:47 GMT Daylight Time, acfloe@... writes: Just read this on digest and am thinking of you. You got lucky finally to get a decent human being (and you did great to tease her a bit). No-one could do better in presenting than you, and I can't imagine who could do as well. You're such a fighter, you've medical experience, you're smart and you know tons. The "bad guys" are overdue for their comeuppance from you. >>>Hee guys thanks for vote of confidence but I am siting here thinking where the hell do I start??? Well I know where I am starting - with that quote from the editor of the BMJ - only 15% of medical procedures and treatment shave any emprical secientific evidence as to their efficacy. Yep right - now what? Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 In a message dated 11/10/2006 23:49:34 GMT Daylight Time, Moroza-@... writes: Anyway, what do I know but I think it’s better to stick to real facts like the increase is real, the illness is real and something’s causing it. Only a thought. >>I agree - so I show them toxic testing where he has Hg coming out in bucket loads and they ask how did he get it - or INGEST it as the Chief Exec asked the Heardster - thats when I have to choose to say I don't know or tell them that I do know - amalgams and vaccines - thats what is worrying me turning them off by answering their question honestly Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 In a message dated 12/10/2006 01:18:29 GMT Daylight Time, neno@... writes: how about skipping the part on 'where it comes from', just going downthe line that ASD kids have impaired ability to excrete metals and sothey build up in their bodies doing no good. so regardless of the'causes' the stuff IS HERE and it should not be here full stop.... just thinking out loud. >>You are so smart Thanks Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 Very humble opinion here but I think best not to mention vaccines because 1. it’s controversial and 2. I saw Shattock speak recently and he really doesn’t think that vaccines are the main cause of autism in the UK (although I personally think they did cause Tom’s autism). He says there’s no link as there is in the US between an increase in the number given and the increase autism (I asked him about any link between giving them to younger children and an increase in autism and he said definitely not). He says the incidence of mercury in the environment in the UK is really low. He thinks that the symptoms of autism vary so greatly from person to person because the causes vary and sometimes the causes can clump in certain countries like mercury/ vaccines in the US. Anyway, what do I know but I think it’s better to stick to real facts like the increase is real, the illness is real and something’s causing it. Only a thought. Sara Re: PCT Update - Long > and for example I will > show fecal and UTM results showing Lead and Hg off the page - somebody will ask > where did it come from, I have to explain about Thimerosal and then they > will shut down if we get into vaccine issues. Gee whiz Mandi, you have such a lot on your plate just now. I have so much admiration for you, and gratitude to you. There would not be a medal big enough to reflect what you do. Try not to worry too much about them asking where the metals came from. Are you worried that they will try to get you to be controversial and so discredit your appeal? If your emphasis is on the fact that the metals are there, and you reiterate that as your main concern if they try digging, I am sure you will get your message across. You really are a star, good luck chuck. Sue -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.2/471 - Release Date: 10/10/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.2/471 - Release Date: 10/10/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 In a message dated 12/10/2006 07:38:47 GMT Daylight Time, bobsallyeva@... writes: These Elmiron pills that are prescribed for cystitis say on the medical notes that no one knows why they work. >>>OOOOh that might be good to to have up my sleve - I check that out thanks Sally Sally can I contact you off list about press/journalists in general and conference? As in trying to stop apolitical highjack? TIA Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 I'm really going to stick my neck out here, but when I spoke to Shattock about all the antibiotics had for ear infections when he was barely 2yrs old, he was of the opinion that the Dr's did the right thing in prescribing ever stronger Anti B's! I may not be a medical person but I strongly disagree. We had a bout of Croup with when he was a bit over 3 yrs old, the Dr asked if he was allergic to penicillin, I said he can't take any Anti B's, he said,"No matter, it would have cleared up by the time the medication takes effect anyway"! I think the link between vaccinations and Antibiotics is clear at the very least with the gut issues, and they are willy nilly prescribing and vaccinating with no thought of any consequences. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Say -- we don't know but that shouldn't stop us getting them out. Doctors do loads of stuff they don't know the reason for just because it works. These Elmiron pills that are prescribed for cystitis say on the medical notes that no one knows why they work. Sally Mum231ASD@... wrote: > > In a message dated 11/10/2006 23:49:34 GMT Daylight Time, > Moroza-@ Tiscali.co. uk writes: > > Anyway, what do I know but I think it’s better to stick to real > facts like the increase is real, the illness is real and > something’s causing it. > > On ly a thought. > > >>I agree - so I show them toxic testing where he has Hg coming out in > bucket loads and they ask how did he get it - or INGEST it as the > Chief Exec asked the Heardster - thats when I have to choose to say I > don't know or tell them that I do know - amalgams and vaccines - thats > what is worrying me turning them off by answering their question honestly > > Mandi x > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.408 / Virus Database: 268.13.2/471 - Release Date: 10/10/2006 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 I think the point is no matter what you are to all of us, they will be dealing primarily with the mother of an ill-child and why on earth would it matter to you at this stage where it comes from? He has heavy metal toxicity and they should damn well do something about it! OR another approach would be to say (sort of a quote from Wakefield) that it may or may not be vaccines but to dismiss vaccines as the cause without proper investigation is not justifiable. Sara Re: Re: PCT Update - Long In a message dated 12/10/2006 01:18:29 GMT Daylight Time, nenodalmaholidays (DOT) co.uk writes: how about skipping the part on 'where it comes from', just going down the line that ASD kids have impaired ability to excrete metals and so they build up in their bodies doing no good. so regardless of the 'causes' the stuff IS HERE and it should not be here full stop. .... just thinking out loud. >>You are so smart Thanks Mandi x -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.2/471 - Release Date: 10/10/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.2/472 - Release Date: 11/10/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Yes, I can’t remember where but I’ve read more than once that antibiotics don’t help with ear infections. I’m surprised P.S. said that! Re: Re: PCT Update - Long I'm really going to stick my neck out here, but when I spoke to Shattock about all the antibiotics had for ear infections when he was barely 2yrs old, he was of the opinion that the Dr's did the right thing in prescribing ever stronger Anti B's! I may not be a medical person but I strongly disagree. We had a bout of Croup with when he was a bit over 3 yrs old, the Dr asked if he was allergic to penicillin, I said he can't take any Anti B's, he said, " No matter, it would have cleared up by the time the medication takes effect anyway " ! I think the link between vaccinations and Antibiotics is clear at the very least with the gut issues, and they are willy nilly prescribing and vaccinating with no thought of any consequences. Vicky -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.2/472 - Release Date: 11/10/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.2/472 - Release Date: 11/10/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Vicky, probably meant it was the lesser of two evils. ear infections untreated spread quickly to the brain and possibly meninges...meningitis and encephalitis can set in....and then you're really up the creek without a paddle so to speak.... Just my humble opinion. julie Re: Re: PCT Update - Long I'm really going to stick my neck out here, but when I spoke to Shattock about all the antibiotics had for ear infections when he was barely 2yrs old, he was of the opinion that the Dr's did the right thing in prescribing ever stronger Anti B's! I may not be a medical person but I strongly disagree. We had a bout of Croup with when he was a bit over 3 yrs old, the Dr asked if he was allergic to penicillin, I said he can't take any Anti B's, he said,"No matter, it would have cleared up by the time the medication takes effect anyway"! I think the link between vaccinations and Antibiotics is clear at the very least with the gut issues, and they are willy nilly prescribing and vaccinating with no thought of any consequences. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Yes, but he quizzed me about MMR because fit the bill to a Tee. didn't have MMR but he was so sure he even had me questioning whether he had it or not lol. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 I know so little about this Peta. Any evidence or information I’ve ever read has been about the states and I would love to have some more facts about the UK. Shattock seemed to know what he was talking about but then again I’ve never ever heard anyone else talk about the UK. He said that all kids with autism are diagnosed because they tick the boxes but that they all vary (which we know) but he was talking about groups of kids having similar other traits. He said MMR kids have about 5 symptoms which they all share and non-MMR kids may have some of these traits but never all of them: funny gait, more affectionate than other autistic children, big thirst, bowel problems and damn, forgotten the fifth one. Tom has all these traits, had the MMR and has just tested positive for measles. He said that on his travels he had frequently seen whole groups of children with autism having common characteristics which seemed peculiar to that country. He mentioned one country where regression always happened at age 2 and another country where he had seen a large group of children with autism playing, they kept turning round to check that their mothers were there and he hadn’t seen that before. This has led him to believe that autism varies from country to country or group to group or that it varies according to its cause. I think he was saying that mercury and vaccines were the cause in the states. He is also adamant that it was wrong to inject newborns with mercury and he spoke about some vaccines being totally pointless and only there to make money for the drugs companies. I am really not qualified to express any opinion on any of this except that I think vaccines and a filling did cause Tom’s autism but also that Shattock is a clever, caring man. I would love to hear more about the changeover to new vaccines in 1988 – does anyone know of an increase in thimerosal at that time? When did the epidemic begin in this country and does it coincide with vaccines being given at a younger age? My dad has begun to write letters to “significant” people about vaccines. It would be great to have more info or questions to ask specifically about the UK. From: Autism Treatment [mailto:Autism Treatment ] On Behalf Of peta3366 Sent: 12 October 2006 14:47 Autism Treatment Subject: Re: PCT Update - Long It's interesting that Shattock doesn't think that thimerosal is the main cause. It is a fact that all children were injected with more than the FDA's " safe limit " of mercury.I wonder how much thimerosal was in each jab prior to about 1988 when all the new vaccines were introduced. It is difficult not to mention that the mercury came from the vaccines. Also Mandi said there are now 1:86 in this country - that means we are worse than the States. Peta > > and for example I will > > show fecal and UTM results showing Lead and Hg off the page - > somebody will ask > > where did it come from, I have to explain about Thimerosal and then > they > > will shut down if we get into vaccine issues. > > Gee whiz Mandi, you have such a lot on your plate just now. I have so > much admiration for you, and gratitude to you. There would not be a > medal big enough to reflect what you do. > > Try not to worry too much about them asking where the metals came from. > Are you worried that they will try to get you to be controversial and > so discredit your appeal? If your emphasis is on the fact that the > metals are there, and you reiterate that as your main concern if they > try digging, I am sure you will get your message across. You really > are a star, good luck chuck. > > Sue > > > > > -- > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.408 / Virus Database: 268.13.2/471 - Release Date: 10/10/2006 > > > > -- > No virus found in this outgoing message. > Checked by AVG Free Edition. > Version: 7.1.408 / Virus Database: 268.13.2/471 - Release Date: 10/10/2006 > -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.2/472 - Release Date: 11/10/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.2/472 - Release Date: 11/10/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 the precise words are " Elmiron is used to treat the pain or discomfort of interstitial cystitis. It is not known exactly how Elmiron works but it is not a pain medication like.............and must therefore be taken continuously for relief as prescribed " ie we don't know what it does but it works and once started you take it forever. I enjoy the word " therefore " -- we don't know how it works and therefore it must be taken continuously Sally Mum231ASD@... wrote: > > In a message dated 12/10/2006 07:38:47 GMT Daylight Time, bobsallyeva@ > ntlworld. com writes: > > These Elmiron pills that are prescribed for cystitis say on the > medical notes that no one knows why they work. > > >>>OOOOh that might be good to to have up my sleve - I check that out > thanks Sally > > Sally can I contact you off list about press/journalists in general > and conference? As in trying to stop apolitical highjack? > > TIA > > Mandi x > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.408 / Virus Database: 268.13.2/472 - Release Date: 11/10/2006 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 I don't know if this is it, but he has said that the kids with the large IAG gluten peak don't tend to be the MMR kids. Diane Re: PCT Update - Long Hi, i would be very interested to know what the fifth one is if you remember it, my son definitely has the other 4 !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Nikki >> I know so little about this Peta. > > Any evidence or information I've ever read has been about the states and I> would love to have some more facts about the UK. Shattock seemed to> know what he was talking about but then again I've never ever heard anyone> else talk about the UK. > > He said that all kids with autism are diagnosed because they tick the boxes> but that they all vary (which we know) but he was talking about groups of> kids having similar other traits. He said MMR kids have about 5 symptoms> which they all share and non-MMR kids may have some of these traits but> never all of them: funny gait, more affectionate than other autistic> children, big thirst, bowel problems and damn, forgotten the fifth one. Tom> has all these traits, had the MMR and has just tested positive for measles.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Just found my notes – there were only 4. sorry! Re: PCT Update - Long Hi, i would be very interested to know what the fifth one is if you remember it, my son definitely has the other 4 !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Nikki > > I know so little about this Peta. > > Any evidence or information I've ever read has been about the states and I > would love to have some more facts about the UK. Shattock seemed to > know what he was talking about but then again I've never ever heard anyone > else talk about the UK. > > He said that all kids with autism are diagnosed because they tick the boxes > but that they all vary (which we know) but he was talking about groups of > kids having similar other traits. He said MMR kids have about 5 symptoms > which they all share and non-MMR kids may have some of these traits but > never all of them: funny gait, more affectionate than other autistic > children, big thirst, bowel problems and damn, forgotten the fifth one. Tom > has all these traits, had the MMR a nd has just tested positive for measles. > -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.2/472 - Release Date: 11/10/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.2/472 - Release Date: 11/10/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 In a message dated 12/10/2006 08:19:53 GMT Daylight Time, m.collins9@... writes: how do you know your workplace past and present or your home has never had a thermometer break in it? >>Yeah, scarey isn;t it - you have no idea what previous owners did. At least we have hard floors and they are concrete underneath so I am convincing myself less of a worry than floorboards Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 I have seen a copy of your letter of July 2005 to Dr DB Shortland, Consultant Paediatrician, about . On page 3 of this you referred to elevated levels of numerous heavy metals. As part of your reply to me, it would be very helpful to hear what the reference ranges are for all of these, to what extent ’s levels exceeded these, and your views as to how such substances may have been ingested by him. >>This is part of what she wrote to the Heardster. More later Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 I don't see why you need be expected to have any v iews on how these substances were ingested by him.That's irrelevant to a doctor unless the ingestion is ongoing Sally Mum231ASD@... wrote: > > I have seen a copy of your letter of July 2005 to Dr DB Shortland, > Consultant Paediatrician, about . On page 3 of this you > referred to elevated levels of numerous heavy metals. As part of your > reply to me, it would be very helpful to hear what the reference > ranges are for all of these, to what extent ’s levels exceeded > these, and your views as to how such substances may have been ingested > by him. > > >>This is part of what she wrote to the Heardster. More later > > Mandi x > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.408 / Virus Database: 268.13.3/473 - Release Date: 12/10/2006 > Quote Link to comment Share on other sites More sharing options...
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