Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 In a message dated 13/10/2006 14:36:24 GMT Daylight Time, peta3366@... writes: Hi I phoned living well to ask about BH4 and was told I would have to have a consult with Payne costing $45 to see if we are suitable. The girl on reception said it is about $4 a pill. Is anyone using BH4 and are you seeing any results? >>Most everybody I know who is using it is seeing results - they are all in the USA Is it something ( if needed) you have to be on all the time. Will find out more from dr next week but I am curious as to what it all means.Also the girl at living well said Yasko is an alternative to DAN - don't they work together? >>DAN! don't generally go for alternative protocols, you haven;t been around long enough to remember the fiasco over enzymes for instance - Yasko and DAN! hardly ever are the same - Yasko is very child specific, they use some of the same supps but in a completely different way and order and in waaaaaay lesser amounts. From my reading most everybody could benefit from BH4 - There is an alternative source in Switzerland - I send you attachment off list - but this guy says is suggesting sending without ice shipping and everybody else says they do ice due to oxidation apparently - will let you know more when I find out next week. Same old story about MB12 - Neubrander says they never used ice in the old days - now you can't get it without paying extra fot the ice from USA. Its cheaper than MB12 or LDN per month, neither of which we do now (no changes from pulling it out) so I am going to get some - Theresa helped interpret my organix for me and the Yasko recommnedations are totally diff from what the DAN ones would be. My brain hurts Mandi x PS the pills are 10mg and Yasko dosing is usually 5mg so yu cut them in half so they last twice as long - small mercies eh? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 In a message dated 13/10/2006 18:41:41 GMT Daylight Time, peta3366@... writes: Have you done the pterine test from the French lab for Sam so you can see what his neopterine/biopterine levels are? Our dr said that nearly everyone who has had the MMR has abnormal levels with this test and they think it is measles in the brain. The test is only 60 euros ( cheap for our kids!) and because Sam didn't have the MMr you might be pleasently surprised. >>Yasko reasons for using it have nothing to do with this I don't think. I don't hold much store in testing, it has to be something useful treatment wise or I don't bother as funds are very limited We have not even done the Porphyrins, I know Sam is toxic Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 Thanks Mandi Have you done the pterine test from the French lab for Sam so you can see what his neopterine/biopterine levels are? Our dr said that nearly everyone who has had the MMR has abnormal levels with this test and they think it is measles in the brain. The test is only 60 euros ( cheap for our kids!) and because Sam didn't have the MMr you might be pleasently surprised. Peta-- - In Autism Treatment , Mum231ASD@... wrote: > > In a message dated 13/10/2006 14:36:24 GMT Daylight Time, > peta3366@... writes: > > Hi I phoned living well to ask about BH4 and was told I would have to > have a consult with Payne costing $45 to see if we are > suitable. The girl on reception said it is about $4 a pill. Is anyone > using BH4 and are you seeing any results? > > >>Most everybody I know who is using it is seeing results - they are all in > the USA > > Is it something ( if needed) > you have to be on all the time. Will find out more from dr next week > but I am curious as to what it all means. > Also the girl at living well said Yasko is an alternative to DAN - > don't they work together? > >>DAN! don't generally go for alternative protocols, you haven;t been around > long enough to remember the fiasco over enzymes for instance - Yasko and > DAN! hardly ever are the same - Yasko is very child specific, they use some of > the same supps but in a completely different way and order and in waaaaaay > lesser amounts. > > From my reading most everybody could benefit from BH4 - There is an > alternative source in Switzerland - I send you attachment off list - but this guy > says is suggesting sending without ice shipping and everybody else says they do > ice due to oxidation apparently - will let you know more when I find out next > week. Same old story about MB12 - Neubrander says they never used ice in the > old days - now you can't get it without paying extra fot the ice from USA. > > Its cheaper than MB12 or LDN per month, neither of which we do now (no > changes from pulling it out) so I am going to get some - Theresa helped interpret > my organix for me and the Yasko recommnedations are totally diff from what > the DAN ones would be. My brain hurts > > Mandi x > PS the pills are 10mg and Yasko dosing is usually 5mg so yu cut them in half > so they last twice as long - small mercies eh? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2006 Report Share Posted October 13, 2006 Thanks Mandi Have you done the pterine test from the French lab for Sam so you can see what his neopterine/biopterine levels are? Our dr said that nearly everyone who has had the MMR has abnormal levels with this test and they think it is measles in the brain. The test is only 60 euros ( cheap for our kids!) and because Sam didn't have the MMr you might be pleasently surprised. Peta-- - In Autism Treatment , Mum231ASD@... wrote: > > In a message dated 13/10/2006 14:36:24 GMT Daylight Time, > peta3366@... writes: > > Hi I phoned living well to ask about BH4 and was told I would have to > have a consult with Payne costing $45 to see if we are > suitable. The girl on reception said it is about $4 a pill. Is anyone > using BH4 and are you seeing any results? > > >>Most everybody I know who is using it is seeing results - they are all in > the USA > > Is it something ( if needed) > you have to be on all the time. Will find out more from dr next week > but I am curious as to what it all means. > Also the girl at living well said Yasko is an alternative to DAN - > don't they work together? > >>DAN! don't generally go for alternative protocols, you haven;t been around > long enough to remember the fiasco over enzymes for instance - Yasko and > DAN! hardly ever are the same - Yasko is very child specific, they use some of > the same supps but in a completely different way and order and in waaaaaay > lesser amounts. > > From my reading most everybody could benefit from BH4 - There is an > alternative source in Switzerland - I send you attachment off list - but this guy > says is suggesting sending without ice shipping and everybody else says they do > ice due to oxidation apparently - will let you know more when I find out next > week. Same old story about MB12 - Neubrander says they never used ice in the > old days - now you can't get it without paying extra fot the ice from USA. > > Its cheaper than MB12 or LDN per month, neither of which we do now (no > changes from pulling it out) so I am going to get some - Theresa helped interpret > my organix for me and the Yasko recommnedations are totally diff from what > the DAN ones would be. My brain hurts > > Mandi x > PS the pills are 10mg and Yasko dosing is usually 5mg so yu cut them in half > so they last twice as long - small mercies eh? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2006 Report Share Posted October 15, 2006 Hey guys, I did do the pterins urinary testing for Lulu, and Lulu's was out the roof. She was in the red like you wouldn't belive -- I think they called it " . But her BH2 was much greater than her BH4, so that indicated that she was having a hard time recycling the BH4 from the oxidized form. That's didn't come as any surprise given that her baseline testing by the neurologist in March 2005 revealed elevated phenylalanine and low tyrosine in urine, plasma and especially in CSFD. Way lower than in PKU, but still definitely pointing to some problems in BH4 recycling. Lulu's neurotransmitters are also all messed up on her OATs, and she realy, really, really doesnt'pas the dopamine blink test -- she blinks about 5 to 6 times a minute, and normal is 20-30 a minute (this is a test Parkinson's patients use to check their dopamine levels -- lots of articles in PubMed on " blink rate " indicating dopamine in various neurological disorders, mental retardation, etc). So I'm sure she is low in dopamine -- she breaks down dopamine like it was going out of style -- always sky-high HVA in urine, which means accelerated dopamine breakdown. Genetically, she does have the lowest COMT/VDR status that you can have, so it makes sense. That being said, Dr. Yasko doesn't think that the urinary test is very reliable. She looked into the possibility of making this test available to her patients, but she wasn't satisfied with it's reliability. Here are a number of PubMed ID numbers for articles concerning low BH4 in autism, and a copuple of them deal with treatment of autism with BH4 with very good results - 16160627 ; 10727395 ; 9236697 ; 7559284 ; 7898761 ; 1624410 ; 1361176 ; 11517215 -- Just punch these numbers into their search engine and they will come up - http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed I am VERY much interested in this connection with measles. Why do they think that the BH2:BH4 ratio in urine is related to measles? Any idea? I know that Yasko is in close contact with Wakefield and they have had a lot of good exchanges on the viral end of things. She feels that measles is a very big issue. Best, Theresa > > > In a message dated 13/10/2006 18:41:41 GMT Daylight Time, > peta3366@... writes: > > Have you done the pterine test from the French lab for Sam so you > can see what his neopterine/biopterican see what his neopterine/ > nearly everyone who has had the MMR has abnormal levels with this > test and they think it is measles in the brain. The test is only 60 > euros ( cheap for our kids!) and because Sam didn't have the MMr you > might be pleasently surprised. > > > > >>Yasko reasons for using it have nothing to do with this I don't think. > > I don't hold much store in testing, it has to be something useful treatment > wise or I don't bother as funds are very limited We have not even done the > Porphyrins, I know Sam is toxic > > Mandi x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2006 Report Share Posted October 15, 2006 Hey Peta, The DAN! and Yasko programs do have many differences. That being said, there are some DAN! doctors who have incorporated some of the Yasko program into their DAN! work, others who work with patients who are following the Yasko protocol completely, and still others who have gone over to Yasko's program. Some people do mix and match, but most just do one or the other program as the differences in interpretation and treatment program can be big. Hugs, Theresa > > Hi I phoned living well to ask about BH4 and was told I would have to > have a consult with Payne costing $45 to see if we are > suitable. The girl on reception said it is about $4 a pill. Is anyone > using BH4 and are you seeing any results? Is it something ( if needed) > you have to be on all the time. Will find out more from dr next week > but I am curious as to what it all means. > Also the girl at living well said Yasko is an alternative to DAN - > don't they work together? > Thanks Peta > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2006 Report Share Posted October 15, 2006 Just as a note, it's probably wise to start with lower doses and to work up slowly. It may likely bring on some detox, so go low and slow... > > In a message dated 13/10/2006 14:36:24 GMT Daylight Time, > peta3366@... writes: > > Hi I phoned living well to ask about BH4 and was told I would have to > have a consult with Payne costing $45 to see if we are > suitable. The girl on reception said it is about $4 a pill. Is anyone > using BH4 and are you seeing any results? > > >>Most everybody I know who is using it is seeing results - they are all in > the USA > > Is it something ( if needed) > you have to be on all the time. Will find out more from dr next week > but I am curious as to what it all means. > Also the girl at living well said Yasko is an alternative to DAN - > don't they work together? > >>DAN! don't generally go for alternative protocols, you haven;t been around > long enough to remember the fiasco over enzymes for instance - Yasko and > DAN! hardly ever are the same - Yasko is very child specific, they use some of > the same supps but in a completely different way and order and in waaaaaay > lesser amounts. > > From my reading most everybody could benefit from BH4 - There is an > alternative source in Switzerland - I send you attachment off list - but this guy > says is suggesting sending without ice shipping and everybody else says they do > ice due to oxidation apparently - will let you know more when I find out next > week. Same old story about MB12 - Neubrander says they never used ice in the > old days - now you can't get it without paying extra fot the ice from USA. > > Its cheaper than MB12 or LDN per month, neither of which we do now (no > changes from pulling it out) so I am going to get some - Theresa helped interpret > my organix for me and the Yasko recommnedations are totally diff from what > the DAN ones would be. My brain hurts > > Mandi x > PS the pills are 10mg and Yasko dosing is usually 5mg so yu cut them in half > so they last twice as long - small mercies eh? > Quote Link to comment Share on other sites More sharing options...
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