Re: Re: Not interested in food

[Guest guest]

Hello Nikki

I have had a look at the previous messages you mentioned and can say that we have had Calum's thyroid checked, it is normal. and I both agree that Calum does seem to be a viral child more than a metal one although of course metals are a problem, so maybe further down the virus protocal it will help? We will be ading Valtrex after a few rounds of TD-DMSA. Another reason why I think viruses are a major issue is because, we put Calum on a GF/CF diet days before his second birthday after a week of hell, he started to show an interest in food for the first time. He did eat all that he was given for the next month and it was great, until his ABA tutor got a really bad cold and Calum caught it, he was really ill for over two weeks and then, we went back to the old way of not wanting to eat. Calum has had gastroenteritus several times (before Jean!) and chicken pox so you can see why I say more virual than metal (he also did not have MMR but single measles jab, I think the virus in that added to his load).

Calum will go for red pepper everytime and will not eat the green pepper at all. His rice cakes are brown and I am going to go and read up on the low oxalate diet you mentioned although it does fill me with fear to even think about taking the only food he likes away. Calum does move his bowels (sorry!) every day at least once normally twice (all since the bio protocal). He we make sure his mineral levels are up. We do have to use good old oxy powder every couple of weeks (roughly) as he totally refuses to eat then and you can see his big hard belly showing consitpation.

Thank you Nikki for taking the time to e-mail me with such helpful info, sorry for sending such a long reply!

Regards

> Message Received: Sep 24 2006, 07:11 PM> From: "nm44714" > Autism Treatment > Cc: > Subject: Re: Not interested in food> >

> > Hello ,> > there was a discussion on this a little while ago starting with > message No 13799. Have a look at that and see if there is anything > useful for you there.> > It would be helpful to know what his bowels/stools are like to see > if there are any clues there as to why he dislikes eating so much.> > Also looking at the food he will willingly eat i think uyou also > need to ask about the Low Oxalate Diet. The reason i say this > is that Almond nut butter is High Oxalate (as are nearly all nuts) > or could possible be very high as it is a fairly concentrated paste, > carrots are high if raw or Medium if cooked, green peppers are high > but red are Low - just wondering which if any he chooses to eat > first, if it is the green this could be a clue that he is craving > something that is bad for him. Could not find rice cakes on a list > anywhere but white rice is Low, brown rice is Medium. So even though > he likes eating these things they could be bad for him. Needs > investigating IMHO.> > Hth, Nikki> > > Hello> > I have been reading e-mails on this site for a good few months and > found it helped knowing I was not alone in this fight to help my > little boy. I do not know if anyone will relate to what I am about > to say so here goes....> > I have a 3 year old son who has been under Muscroft for > almost a year on a full biomedical programe, We have also been doing > ABA for a whole year. Calum is coming on really well and is in the > advanced stages of his bio programe, on an endless list of sups and > TTFD, antivirus,MB12s, LDN and about to start TD-DMSA. In every area > we have major progress, and I can say he is recovering at a slow > steady pace. We have one area that is just hell and that is eating > or the lack of it. It is as if Calum has no feeling of hunger and > the only things he will eat by choice and feed himself with are his > beloved rice cakes with almond nut butter, sliced carrot and sliced > mix peppers. I have to force all his meals in, and have done for 18 > months. As you can imagine this is awful and life is even more > stressful than ever as we have to be at home for the battle at every > mealtime. We have tried various ABA methods to get Calum to eat but > he is not interested at all and would starve himself given the > choice (he is 3ft 3 and only 2 stone 2 pounds). He is a bright > little boy and can feed himself but chooses not to. I end up sat > with DVD's, puzzles, books etc trying to distract him to push in a > spoonful. It can often take up to 2 hours to get a small bowl of > food down him. He will scream and cry, pushing you away saying "No, > finished" and look at me as if I am trying to poision him! has > no idea as to why he will not eat and has not come across a child so > far into the programe who will not do so. I am not expecting anyone > to come up with a magic answer but just looking for any similar > stories that can give me a bit of hope! I am hoping that the > chelation will help unblock whatever is stoping him tasting/enjoying > food.> > Anyway thanks for reading! Must go and start round 3 today with > dinner!> > Thanks> > > > x> >> >

[Guest guest]

Someone else has the red peppers fad!!! I'm amazed I thought it was only my boy who would die for red peppers, he is ecstatic when he sees me get them out of the fridge, always struck me as a very odd fave food for a child lol.

Vicky

[Guest guest]

Hi Nikki

Thanks for the advise, Calum has had an x-ray before now (in July) and was slightly impacted which we treated with senna and oxy. I will have a look at the site you mentioned. I have an appointment by phone with Calum's paediatrician today as I want a referal to a gastro specialist so I can make sure he is not in pain. I certainly feel less useless now as I have a list of possibilites to explore so thank you Nikki and everyone else for your advise and support.

Regards

> Message Received: Sep 25 2006, 09:31 AM> From: "nm44714" > Autism Treatment > Cc: > Subject: Re: Not interested in food> >

> , > > >>>>>>>> Calum will go for red pepper everytime and will not eat the > green pepper at all. > > This is probably a good sign that he is not craving oxalates or as > in my ds case does not like to eat green coloured foods!!! Veggies > are a big No-no here :+( I would still investigate it though just > in case, does he have any other symptoms? In the files of the> > Trying_Low_Oxalates > > there is a list of parent reported symptoms and also food lists, > lots of useful info actually, have a browse and see what you think.> > >>>>>>>>>>> although it does fill me with fear to even think about > taking the only food he likes away.> > mmmmmmmmmm, yes i know exactly how you feel,when you have a child on > a limited diet taking stuff away he will eat really does seem to be > the wrong thing to do.> > >>>>>>>>>> Calum does move his bowels (sorry!) every day at least > once normally twice (all since the bio protocal). He we make sure > his mineral levels are up. We do have to use good old oxy powder > every couple of weeks (roughly) as he totally refuses to eat then > and you can see his big hard belly showing consitpation.> > Getting an x-ray done as others have suggested would be a good idea > IMO, having to use oxypowder that regularly would suggest a sluggish > bowel that needs investigating.> > Nikki> >

[Guest guest]

Hi

We had years and years of food difficulties - right from weaning at 4

months - a teaspoonful would take (without exaggeration) 2 or 3 hours

of effort and then it often came straight back up. Things improved

slightly with teeth - which made me think texture of food and issues

with spoon - harder finger food was better but still not a huge

improvement - over 3 or 4 years and lots of dietary

intervention/exclusion diets (ha ha - nothing went in any way )/testing

there was a gradual improvement and weight gain until now at 9 we have

the opposite problem of endless appetite. Another thing that helped was

strong tasting food - garlic, chilli etc. There were all sorts of

reasons - intolerance, sensory etc but eventually it came right. No

magic but a lot of perseverence - which I'm sure you can do. Not any

real help - but at the time I thought it would never end, as I'm sure

you do. You will eventually look back and see progress.

On Monday, September 25, 2006, at 10:26 am,

markchilds@... wrote:

>

>

>

> Hi Nikki

>

> Thanks for the advise, Calum has had an x-ray before now (in July) and

> was slightly impacted which we treated with senna and oxy. I will have

> a look at the site you mentioned.  I have an appointment by

> phone with Calum's paediatrician today as I want a referal to a gastro

> specialist so I can make sure he is not in pain. I certainly feel less

> useless now as I have a list of possibilites to explore so thank you

> Nikki and everyone else for your advise and support.

>

> Regards

>

>

>

>

>

> > Message Received: Sep 25 2006, 09:31 AM

> > From: " nm44714 "

> > Autism Treatment

> > Cc:

> > Subject: Re: Not interested in food

> >

> >

> > ,

> >

> > >>>>>>>> Calum will go for red pepper everytime and will not eat the

> > green pepper at all.

> >

> > This is probably a good sign that he is not craving oxalates or as

> > in my ds case does not like to eat green coloured foods!!! Veggies

> > are a big No-no here :+( I would still investigate it though just

> > in case, does he have any other symptoms? In the files of the

> >

> > Trying_Low_Oxalates

> >

> > there is a list of parent reported symptoms and also food lists,

> > lots of useful info actually, have a browse and see what you think.

> >

> > >>>>>>>>>>> although it does fill me with fear to even think about

> > taking the only food he likes away.

> >

> > mmmmmmmmmm, yes i know exactly how you feel,when you have a child on

> > a limited diet taking stuff away he will eat really does seem to be

> > the wrong thing to do.

> >

> > >>>>>>>>>> Calum does move his bowels (sorry!) every day at least

> > once normally twice (all since the bio protocal). He we make sure

> > his mineral levels are up. We do have to use good old oxy powder

> > every couple of weeks (roughly) as he totally refuses to eat then

> > and you can see his big hard belly showing consitpation.

> >

> > Getting an x-ray done as others have suggested would be a good idea

> > IMO, having to use oxypowder that regularly would suggest a sluggish

> > bowel that needs investigating.

> >

> > Nikki

> >

> >

>

>

[Guest guest]

In a message dated 24/09/2006 20:00:56 GMT Standard Time, markchilds@... writes:

Calum does move his bowels (sorry!) every day at least once normally twice (all since the bio protocal).

who has bowels from HELL, always goes to the toilet everyday even when she has impaction, just something to think about, I am certain its his bowel. Hope you get the help you need... sounds lovely, you are in good hands.

Lotsa Luck caroline

xxx

[Guest guest]

Thanks , it is good to know that it is not forever even if it does feel that way right now! I will try some garlic tonight to see if the strong taste helps.

xx

> Message Received: Sep 25 2006, 10:54 AM> From: " Bartley" > Autism Treatment > Cc: > Subject: Re: Re: Not interested in food> > Hi> We had years and years of food difficulties - right from weaning at 4 > months - a teaspoonful would take (without exaggeration) 2 or 3 hours > of effort and then it often came straight back up. Things improved > slightly with teeth - which made me think texture of food and issues > with spoon - harder finger food was better but still not a huge > improvement - over 3 or 4 years and lots of dietary > intervention/exclusion diets (ha ha - nothing went in any way )/testing > there was a gradual improvement and weight gain until now at 9 we have > the opposite problem of endless appetite. Another thing that helped was > strong tasting food - garlic, chilli etc. There were all sorts of > reasons - intolerance, sensory etc but eventually it came right. No > magic but a lot of perseverence - which I'm sure you can do. Not any > real help - but at the time I thought it would never end, as I'm sure > you do. You will eventually look back and see progress. > > On Monday, September 25, 2006, at 10:26 am, > markchilds@... wrote:> > >> >> >> > Hi Nikki> >> > Thanks for the advise, Calum has had an x-ray before now (in July) and > > was slightly impacted which we treated with senna and oxy. I will have > > a look at the site you mentioned. I have an appointment by > > phone with Calum's paediatrician today as I want a referal to a gastro > > specialist so I can make sure he is not in pain. I certainly feel less > > useless now as I have a list of possibilites to explore so thank you > > Nikki and everyone else for your advise and support.> >> > Regards> >> > > >> >> >> > > Message Received: Sep 25 2006, 09:31 AM> > > From: "nm44714"> > > Autism Treatment > > > Cc:> > > Subject: Re: Not interested in food> > >> > >> > > ,> > >> > > >>>>>>>> Calum will go for red pepper everytime and will not eat the> > > green pepper at all.> > >> > > This is probably a good sign that he is not craving oxalates or as> > > in my ds case does not like to eat green coloured foods!!! Veggies> > > are a big No-no here :+( I would still investigate it though just> > > in case, does he have any other symptoms? In the files of the> > >> > > Trying_Low_Oxalates > > >> > > there is a list of parent reported symptoms and also food lists,> > > lots of useful info actually, have a browse and see what you think.> > >> > > >>>>>>>>>>> although it does fill me with fear to even think about> > > taking the only food he likes away.> > >> > > mmmmmmmmmm, yes i know exactly how you feel,when you have a child on > > > a limited diet taking stuff away he will eat really does seem to be> > > the wrong thing to do.> > >> > > >>>>>>>>>> Calum does move his bowels (sorry!) every day at least> > > once normally twice (all since the bio protocal). He we make sure> > > his mineral levels are up. We do have to use good old oxy powder> > > every couple of weeks (roughly) as he totally refuses to eat then> > > and you can see his big hard belly showing consitpation.> > >> > > Getting an x-ray done as others have suggested would be a good idea> > > IMO, having to use oxypowder that regularly would suggest a sluggish> > > bowel that needs investigating.> > >> > > Nikki> > >> > >> >> > > > >> [ (no name for attachment) (6.2 Kb) ]

[Guest guest]

A fellow fan! Yes Calum is the same! I think it is because they are so sweet but not yukky to hold at least it is healthy!

x

> Message Received: Sep 25 2006, 12:07 PM> From: MaddiganV@...> Autism Treatment > Cc: MaddiganV@...> Subject: Re: Re: Not interested in food> >

>

Someone else has the red peppers fad!!! I'm amazed I thought it was only my boy who would die for red peppers, he is ecstatic when he sees me get them out of the fridge, always struck me as a very odd fave food for a child lol.

Vicky

[Guest guest]



Red peppers are a great source of Vitamin C.

Re: Re: Not interested in food> >

>

Someone else has the red peppers fad!!! I'm amazed I thought it was only my boy who would die for red peppers, he is ecstatic when he sees me get them out of the fridge, always struck me as a very odd fave food for a child lol.

Vicky