Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Oh My God!! > > I have been trying to persuade my GP about biomed stuff( a year ago he > said he would do the same himself). Anyway I went in there last week > asking for blood tests CBC and CMP and he said I keep asking for > things that he can't give because it is not mainstream. I think he > actually believes that our kids have been poisoned but doesn't want to > know. We were going through a yeast overgrowth and I ended up getting > upset and crying. He told me that all his patients want to offload > their problems and everyone has their own problems - he has dying > parents he said. He said he finds it very sressful seeing me. > I got a letter this morning saying it's best if I find another GP. So > now I have lost my GP and paediatrician - I am very careless. I wasn't > even rude to my dr. I asked him wouldn't it be good to help Charlie > and see him get better and he said he is just in the job for the money! > Anyone know any good path labs in the South East who would accept a > Prescription from a US dr? Apparently one in Birmingham does but that > is a bit far > Thanks > Peta > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 I agree, points for honesty, no points for actually being a human being. This is terrible, Peta, feel very bad for you. What's the matter with these people? Re: No Doctor! Oh My God!!>> I have been trying to persuade my GP about biomed stuff( a year ago he > said he would do the same himself). Anyway I went in there last week > asking for blood tests CBC and CMP and he said I keep asking for > things that he can't give because it is not mainstream. I think he > actually believes that our kids have been poisoned but doesn't want to > know. We were going through a yeast overgrowth and I ended up getting > upset and crying. He told me that all his patients want to offload > their problems and everyone has their own problems - he has dying > parents he said. He said he finds it very sressful seeing me.> I got a letter this morning saying it's best if I find another GP. So > now I have lost my GP and paediatrician - I am very careless. I wasn't > even rude to my dr. I asked him wouldn't it be good to help Charlie > and see him get better and he said he is just in the job for the money!> Anyone know any good path labs in the South East who would accept a > Prescription from a US dr? Apparently one in Birmingham does but that > is a bit far> Thanks> Peta> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 A thought for you Peta "Most of the important things in all the world have been accomplished by people who kept on trying when there seemed to be no hope at all." Dale Carnegie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Your story just confirms what we have learned from our own experience that this " made of steel " attitude is widespread in the medical establishment. Spurs me on even more to do the " right thing " for my boy through biomed, etc. We are our children's only advocates! > > > > I have been trying to persuade my GP about biomed stuff( a year > ago he > > said he would do the same himself). Anyway I went in there last > week > > asking for blood tests CBC and CMP and he said I keep asking for > > things that he can't give because it is not mainstream. I think he > > actually believes that our kids have been poisoned but doesn't > want to > > know. We were going through a yeast overgrowth and I ended up > getting > > upset and crying. He told me that all his patients want to offload > > their problems and everyone has their own problems - he has dying > > parents he said. He said he finds it very sressful seeing me. > > I got a letter this morning saying it's best if I find another GP. > So > > now I have lost my GP and paediatrician - I am very careless. I > wasn't > > even rude to my dr. I asked him wouldn't it be good to help > Charlie > > and see him get better and he said he is just in the job for the > money! > > Anyone know any good path labs in the South East who would accept > a > > Prescription from a US dr? Apparently one in Birmingham does but > that > > is a bit far > > Thanks > > Peta > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 I can only chime in by saying, Knowledge IS power, so do your OWN research. It will give you the confidence to do do what you think is right by your child! Re: No Doctor! Your story just confirms what we have learned from our own experience that this "made of steel" attitude is widespread in the medical establishment. Spurs me on even more to do the "right thing" for my boy through biomed, etc. We are our children's only advocates!> >> > I have been trying to persuade my GP about biomed stuff( a year > ago he > > said he would do the same himself). Anyway I went in there last > week > > asking for blood tests CBC and CMP and he said I keep asking for > > things that he can't give because it is not mainstream. I think he > > actually believes that our kids have been poisoned but doesn't > want to > > know. We were going through a yeast overgrowth and I ended up > getting > > upset and crying. He told me that all his patients want to offload > > their problems and everyone has their own problems - he has dying > > parents he said. He said he finds it very sressful seeing me.> > I got a letter this morning saying it's best if I find another GP. > So > > now I have lost my GP and paediatrician - I am very careless. I > wasn't > > even rude to my dr. I asked him wouldn't it be good to help > Charlie > > and see him get better and he said he is just in the job for the > money!> > Anyone know any good path labs in the South East who would accept > a > > Prescription from a US dr? Apparently one in Birmingham does but > that > > is a bit far> > Thanks> > Peta> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Well, this is a great sentiment! Thanks again, Mandi! Re: No Doctor! A thought for you Peta "Most of the important things in all the world have been accomplished by people who kept on trying when there seemed to be no hope at all." Dale Carnegie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Thanks for your replies and support.Those of you who just have US dr's - how do you get your blood tests done? Does your pead or dr agree to do them or do you have to pay for another private dr in England? I have to start searching for another GP and will obviously have to be more guarded about what I say this time but I still need to get those damn blood tests! Very good quote Mandi. Another one I like from Bradsteet - old chinese proverb: " The person who says it cannot be done should not interrupt the person doing it " Peta -- In Autism Treatment , " Cochran " <Ladyshrink111@...> wrote: > > Well, this is a great sentiment! > > Thanks again, Mandi! > > > Re: No Doctor! > > > > A thought for you Peta > > " Most of the important things in all the world have been accomplished by people who kept on trying when there seemed to be no hope at all. " > Dale Carnegie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Peta We dont have a US Dr but I think I remember from earlier posts there is a place in London, off Harley Street, the Doctors Lab I think, and also a place near the Breakspear, Bedford perhraps, I remember Joanne posting details, maybe they are on the Treating Autism site? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Also a dr in Ohio, near me Dr. Philip DeMio will treat your child without seeing, with just a videotape and will order tests, although I admit I don't know how that works overseas. Mandi will probably have the information on this dr. Re: No Doctor! PetaWe dont have a US Dr but I think I remember from earlier posts there is a place in London, off Harley Street, the Doctors Lab I think, and also a place near the Breakspear, Bedford perhraps, I remember Joanne posting details, maybe they are on the Treating Autism site? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Thanks for posting that. We're knackered at the moment - new improved Tom is tiring! > > A thought for you Peta > > " Most of the important things in all the world have been accomplished by > people who kept on trying when there seemed to be no hope at all. " > Dale Carnegie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Thanks I will ring dr's lab on Monday. Peta-- - In Autism Treatment , " Charman " <charmanhome@...> wrote: > > Peta > We dont have a US Dr but I think I remember from earlier posts there > is a place in London, off Harley Street, the Doctors Lab I think, and > also a place near the Breakspear, Bedford perhraps, I remember Joanne > posting details, maybe they are on the Treating Autism site? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 You can order tests through IWDL labs. Ideally you want a DAN practitioner who can interpret them for you but IWDL take direct requests. Come to the treating autism conference.... A little birdie tells me someone is going to win a full panel of DAN testing worth a lot of money in the raffle.. You can get blood drawn at the Breakspear hospital in Hemel Hempstead for about £25 even if you are not one of their patients. Alternatively there is a lab called Mulhaven in Bedford. You can also go to various BUPA hospitals which are private and get the blood drawn there. Look up the bupa website. Once you have the tests and they show up alsorts GP's seem ok near me to help out treating the kids - with flagyl. The latest organix and stool tests recommend the treatments so helps the GP. Full blood counts.. Most kids are iron deficient (low ferritin) and you can ask him to retest to see if things have improved (whilst asking for a full blood count whilst he is doing it ). My GP has done quantative amino acid blood and urine following my first private one being so bad. Tests are good. Have managed to get the Doctor in the surgery up the road from my GP to agree to do it for a friend as well now - (fortunately his kid has aspergers and he was dead keen !) GP believes my kid is heavy metal toxic after showing him porphryin tests and urine toxic metals showing lead coming out and is doing all the routine bloods now which is great. Good on him.. its good to have the tests..but if i had to do it all again without tests my plan would be... 1) Oxypowder to clear gut. Possibly a course of flagyl which you dont need a script for and can get from the usa. 2) Plenty of probiotics - CP1 , Bifido , acidophilus, caseii, salivarius 3) Get the antifungals in - Kirkmans Yeast aid 4) Get the multivits in (metabolics) - top up with calcium , magnesium , B6 , zinc, folinic+B12, Molybdenum , CoQ10 ,Cod liver oil Add extra minerals formula - Add in extra vitamin C Vitamin E. Iron at some point. 5) Add in Amino Acid formula or get a base one and assume kid low in taurine , tryptophan and top up. 6) Trial B12 shots 7) Add TTFD cream 8) Chelation with whatever suits child best. Oral DMSA in our case. Hope you manage to find a more understanding GP. Joanne > > > > Well, this is a great sentiment! > > > > Thanks again, Mandi! > > > > > > Re: No Doctor! > > > > > > > > A thought for you Peta > > > > " Most of the important things in all the world have been > accomplished by people who kept on trying when there seemed to be no > hope at all. " > > Dale Carnegie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 Thanks Joanne Will look up IWDL labs. Found doctors lab in London that might be able to do them. My dr wouldn't even look at Charlie's awful test results ( this is going back a year even).Where i live (Eastbourne) I can't mention treating Charlie or biomed stuff without landing myself in trouble so I'm not going to bother from now on. You get to the point when you realise that lots of people know that our kids have been poisoned but actually very few people care and even fewer want to help us. Sorry feeling pissed off - have had a crap summer holidays! Peta- -- In Autism Treatment , " Joanne Burke " <joanne@...> wrote: > > You can order tests through IWDL labs. > Ideally you want a DAN practitioner who can interpret them for you > but IWDL take direct requests. > > Come to the treating autism conference.... > A little birdie tells me someone is going to win a full panel of DAN > testing worth a lot of money in the raffle.. > > You can get blood drawn at the Breakspear hospital in Hemel > Hempstead for about £25 even if you are not one of their patients. > > Alternatively there is a lab called Mulhaven in Bedford. > > You can also go to various BUPA hospitals which are private and get > the blood drawn there. Look up the bupa website. > > Once you have the tests and they show up alsorts GP's seem ok near > me to help out treating the kids - with flagyl. > The latest organix and stool tests recommend the treatments so helps > the GP. > Full blood counts.. > Most kids are iron deficient (low ferritin) and you can ask him to > retest to see if things have improved (whilst asking for a full > blood count whilst he is doing it ). > > My GP has done quantative amino acid blood and urine following my > first private one being so bad. > Tests are good. > Have managed to get the Doctor in the surgery up the road from my GP > to agree to do it for a friend as well now - (fortunately his kid > has aspergers and he was dead keen !) > > GP believes my kid is heavy metal toxic after showing him porphryin > tests and urine toxic metals showing lead coming out and is doing > all the routine bloods now which is great. > Good on him.. > > its good to have the tests..but if i had to do it all again without > tests my plan would be... > > 1) Oxypowder to clear gut. > Possibly a course of flagyl which you dont need a script for and can > get from the usa. > 2) Plenty of probiotics - CP1 , Bifido , acidophilus, caseii, > salivarius > 3) Get the antifungals in - Kirkmans Yeast aid > 4) Get the multivits in (metabolics) - top up with calcium , > magnesium , B6 , zinc, folinic+B12, Molybdenum , CoQ10 ,Cod liver > oil > Add extra minerals formula - > Add in extra vitamin C Vitamin E. > Iron at some point. > 5) Add in Amino Acid formula > or get a base one and assume kid low in taurine , tryptophan and top > up. > 6) Trial B12 shots > 7) Add TTFD cream > 8) Chelation with whatever suits child best. Oral DMSA in our case. > > Hope you manage to find a more understanding GP. > > Joanne > > > > > > > > > > > Well, this is a great sentiment! > > > > > > Thanks again, Mandi! > > > > > > > > > Re: No Doctor! > > > > > > > > > > > > A thought for you Peta > > > > > > " Most of the important things in all the world have been > > accomplished by people who kept on trying when there seemed to be > no > > hope at all. " > > > Dale Carnegie > > > > > > Quote Link to comment Share on other sites More sharing options...
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