RE: Re: Met a recovered child today

[Guest guest]

In a message dated 29/08/2006 08:34:51 GMT Standard Time, bbrowne123@... writes:

Dear Eileen

Thanks so much for posting this its awesome and a similar thing happened to me a couple of years ago... I tell you about in a min just wanted to say some stuff about your post...

I think I've got a fairly practiced eye and I could > not tell, at all, there was anything wrong. Me and him had a long, > brilliant conversation, they told me they had "killed themselves > getting him right" for four years.

We all know that feeling, but if this is the end result awesome!!

They also said that it was only > recently, at age 6, that his talking had blossomed into true > converation and they thought it might not happen.

Me too, s speech is anything but brilliant but its there and its getting better, and for us the same thing 6 years old, gradual, more sounds, 10 months after starting PECS, 2 years of ABA, she was in mainstream then and they were and are amazing! I sat one night having a couple of glasses of wine (MOI!!, I hear you gasp!!) and foned round all my ABA therpaists who had all been volunteers and told them that last was definitely trying to speak, it wasnt really so evident by then but I knew we were starting. I even foned our parents who I speak to every day but just felt they were huge part of it too and that this was a special conversation I wanted to share with them too! My mum burst out crying and it was an evening I will always remember...

I asked them what > they did because of my Son, and they have done chelation and home > therapy. I said we were doing the same, and that I thought their son > was totally amazing I could not tell there was anything wrong at > all!

Amazing, couldnt you have gotten there names addresses, phone numbers and signed them up to our list there and then?? I guess its undersatndable because for the family I met I guess you just want to get on with life

At this point Mum burst into tears and said, "You just don't > know how much that means to me, from another mother".

Wow, can imagine, the joy, the stress and the pride, makes me well up thinking about it...

I said to the > boy, "You are so amazing" he smiled and said, "Why?" Couldn't > answer. They told me they couldn't send him to school yet because > he has sensitive hearing but that is his only issue. I was so > inspired. His Gran said, "I am so proud of him, you can't imagine!"

Grandma we can imagine, and I would love to have been there...

Our little story not going to mention names or places... I had a phone call from a relative whose friends child was probably autistic, not great behaviour, no language, interaction with kids etc at nuresery. I said ABA would be what I would do first, before I got back into biomed so heavily!) I called this lady and chatted and gave her a few contacts. Our ABA consultant visited them too.

They began a programme in the Jan I think it was, VB style, family therapists in afternoons and nursery in the mornings, I think he was 3 when he began, I asked could I come visit there programme about 8 months later. I was very heavily pregnant by then and nearly gave birth as I watched this little 4 year old intercating with his therapist, before that interacting with his cousin, or should I say talking and playing!! I almost gave birth sitting on the sofa! They chatted about the weather for their what day is it, whats the weather like today at the start... Then did a few puzzles and singing, very appropraite language, wow... Then she said he could play for a little while whilst we chatted... The tears were pouring down my face as I listened to his songs and I said to the girl, I dont think he is autistic, if he is he is the least autistic person I have ever met! She said that at the start of that year the babble was unrecognisable, the screaming, the lack of socialisation were so pronounced. It was incredible and shows changes do happen.

Exactly a year from when he started his programme after Xmas that year he was undiagnosed... Miracles happen!

Keep at it everyone

Love Caroline

xx

[Guest guest]

This is all really interesting, but you know I'm probably a very hard person, but the whole thing makes me fume really.

Everything mentioned from biomed to ABA is being funded at least to start with by parents, I actually think any recovered children would serve a better purpose as proof to all the providers, gosh what a misnomer, I mean supposed providers.

I also don't consider these recoveries miraculous because absolutely enormous amounts of hard work and perseverance has gone in to get the child to where they are, I believe recovery or at the very least huge improvements are there for all our children, but at the moment only those whose parents can raise enough funds and are strong enough to do endless battles actually get the opportunity.

I wonder if we will ever meet the recovered child who got there by NHS and LEA intervention, now that would be a miracle.

Please don't misunderstand I am delighted people have met recovered kids, but feeling very bruised at the prospect of yet another upcoming fight, and have to ring PCT today no doubt to hear the latest reason for refusal.

Vicky

[Guest guest]

In a message dated 29/08/2006 10:42:28 GMT Standard Time, MaddiganV@... writes:

Please don't misunderstand I am delighted people have met recovered kids, but feeling very bruised at the prospect of yet another upcoming fight, and have to ring PCT today no doubt to hear the latest reason for refusal

Here here, so agree with you its heart breaking to think of.... Good luck today honey, keep us posted.

Luv caroline

xxx

[Guest guest]

Thank

you Caroline and Eileen,

These stories help to make it all seem

worthwhile. I am so grateful to hear them.

I just wanted to share with everyone that

we have a really genuine massive WOW with Tom lately and it’s due to

GABA. said she hadn’t heard of any other proper wows with it, just

more subtle stuff but our progress is definitely unsubtle. Basically he has

gone from solemn, pretty quiet Tom to laughing out loud, smiley, chatty Tom.

His speech is rocketing – I just wish I could understand more of it! But he

is looking me in the eyes saying LONG sentences and I can only make out some of

them, when I do they are often really clever and relevant (but occasionally random

bits of video). Anyway, for those of you thinking of giving it a try, it has

worked wonders for Tom.

Sara

Re:

Re: Met a recovered child today

In a

message dated 29/08/2006 08:34:51 GMT Standard Time, bbrowne123

writes:

Dear

Eileen

Thanks

so much for posting this its awesome and a similar thing happened to me a

couple of years ago... I tell you about in a min just wanted to say some stuff

about your post...

I

think I've got a fairly practiced eye and I could

> not tell, at all, there was anything wrong. Me and him had a

long,

> brilliant conversation, they told me they had " killed themselves

> getting him right " for four years.

We all

know that feeling, but if this is the end result awesome!!

They

also said that it was

only

> recently, at age 6, that his talking had blossomed into true

> converation and they thought it might not happen.

Me too,

s speech is anything but brilliant but its there and its getting better,

and for us the same thing 6 years old, gradual, more sounds, 10 months after

starting PECS, 2 years of ABA, she was in mainstream then and they were and are

amazing! I sat one night having a couple of glasses of wine (MOI!!, I hear you

gasp!!) and foned round all my ABA therpaists who had all been volunteers and

told them that last was definitely trying to speak, it wasnt really so

evident by then but I knew we were starting. I even foned our parents who I

speak to every day but just felt they were huge part of it too and that this

was a special conversation I wanted to share with them too! My mum burst out

crying and it was an evening I will always remember...

I

asked them

what

> they did because of my Son, and they have done chelation and home

> therapy. I said we were doing the same, and that I thought their

son

> was totally amazing I could not tell there was anything wrong at

> all!

Amazing,

couldnt you have gotten there names addresses, phone numbers and signed them up

to our list there and then?? I guess its undersatndable because for the family

I met I guess you just want to get on with life

At

this point Mum burst into tears and said, " You just don't

> know how much that means to me, from another mother " .

Wow,

can imagine, the joy, the stress and the pride, makes me well up thinking about

it...

I

said to

the

> boy, " You are so amazing " he smiled and said, " Why? "

Couldn't

> answer. They told me they couldn't send him to school yet

because

> he has sensitive hearing but that is his only issue. I was so

> inspired. His Gran said, " I am so proud of him, you can't

imagine! "

Grandma

we can imagine, and I would love to have been there...

Our

little story not going to mention names or places... I had a phone call from a

relative whose friends child was probably autistic, not great behaviour, no

language, interaction with kids etc at nuresery. I said ABA would be what I

would do first, before I got back into biomed so heavily!) I called this lady

and chatted and gave her a few contacts. Our ABA consultant visited them too.

They

began a programme in the Jan I think it was, VB style, family therapists in

afternoons and nursery in the mornings, I think he was 3 when he began, I asked

could I come visit there programme about 8 months later. I was very heavily

pregnant by then and nearly gave birth as I watched this little 4 year old

intercating with his therapist, before that interacting with his cousin, or

should I say talking and playing!! I almost gave birth sitting on the sofa!

They chatted about the weather for their what day is it, whats the weather like

today at the start... Then did a few puzzles and singing, very appropraite

language, wow... Then she said he could play for a little while whilst we

chatted... The tears were pouring down my face as I listened to his songs and I

said to the girl, I dont think he is autistic, if he is he is the least

autistic person I have ever met! She said that at the start of that year the babble

was unrecognisable, the screaming, the lack of socialisation were so

pronounced. It was incredible and shows changes do happen.

Exactly

a year from when he started his programme after Xmas that year he was

undiagnosed... Miracles happen!

Keep

at it everyone

Love

Caroline

xx

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[Guest guest]

In a message dated 29/08/2006 14:24:57 GMT Standard Time, simondavis@... writes:

I just wanted to share with everyone that we have a really genuine massive WOW with Tom lately and it’s due to GABA. said she hadn’t heard of any other proper wows with it, just more subtle stuff but our progress is definitely unsubtle. Basically he has gone from solemn, pretty quiet Tom to laughing out loud, smiley, chatty Tom. His speech is rocketing – I just wish I could understand more of it! But he is looking me in the eyes saying LONG sentences and I can only make out some of them, when I do they are often really clever and relevant (but occasionally random bits of video). Anyway, for those of you thinking of giving it a try, it has worked wonders for Tom.

Hi Sara

Thats great news, what great leaps, I think we will need to up our dose actually! Will keep you posted.

Luv Caroline

[Guest guest]

Sara,

Really great to hear ! – Elaine

Re:

Re: Met a recovered child today

In a message dated 29/08/2006 08:34:51 GMT

Standard Time, bbrowne123 writes:

Dear Eileen

Thanks so much for posting this its

awesome and a similar thing happened to me a couple of years ago... I tell you

about in a min just wanted to say some stuff about your post...

I think I've got a fairly practiced eye

and I could

> not tell, at all, there was anything wrong. Me and him had a

long,

> brilliant conversation, they told me they had " killed themselves

> getting him right " for four years.

We all know that feeling, but if this is

the end result awesome!!

They also said that it was

only

> recently, at age 6, that his talking had blossomed into true

> converation and they thought it might not happen.

Me too, s speech is anything but

brilliant but its there and its getting better, and for us the same thing 6

years old, gradual, more sounds, 10 months after starting PECS, 2 years of ABA,

she was in mainstream then and they were and are amazing! I sat one night

having a couple of glasses of wine (MOI!!, I hear you gasp!!) and foned round

all my ABA therpaists who had all been volunteers and told them that last

was definitely trying to speak, it wasnt really so evident by then but

I knew we were starting. I even foned our parents who I speak to every day but

just felt they were huge part of it too and that this was a special

conversation I wanted to share with them too! My mum burst out crying and it

was an evening I will always remember...

I asked them

what

> they did because of my Son, and they have done chelation and home

> therapy. I said we were doing the same, and that I thought their

son

> was totally amazing I could not tell there was anything wrong at

> all!

Amazing, couldnt you have gotten there

names addresses, phone numbers and signed them up to our list there and then??

I guess its undersatndable because for the family I met I guess you just want

to get on with life

At this point Mum burst into tears and

said, " You just don't

> know how much that means to me, from another mother " .

Wow, can imagine, the joy, the stress and

the pride, makes me well up thinking about it...

I said to

the

> boy, " You are so amazing " he smiled and said, " Why? "

Couldn't

> answer. They told me they couldn't send him to school yet

because

> he has sensitive hearing but that is his only issue. I was so

> inspired. His Gran said, " I am so proud of him, you can't

imagine! "

Grandma we can imagine, and I would love

to have been there...

Our little story not going to mention

names or places... I had a phone call from a relative whose friends child was

probably autistic, not great behaviour, no language, interaction with kids etc

at nuresery. I said ABA would be what I would do first, before I got back into

biomed so heavily!) I called this lady and chatted and gave her a few contacts.

Our ABA consultant visited them too.

They began a programme in the Jan I think

it was, VB style, family therapists in afternoons and nursery in the mornings,

I think he was 3 when he began, I asked could I come visit there programme

about 8 months later. I was very heavily pregnant by then and nearly gave birth

as I watched this little 4 year old intercating with his therapist, before that

interacting with his cousin, or should I say talking and playing!! I almost

gave birth sitting on the sofa! They chatted about the weather for their what

day is it, whats the weather like today at the start... Then did a few puzzles

and singing, very appropraite language, wow... Then she said he could play for

a little while whilst we chatted... The tears were pouring down my face as I

listened to his songs and I said to the girl, I dont think he is autistic, if

he is he is the least autistic person I have ever met! She said that at the

start of that year the babble was unrecognisable, the screaming, the lack of

socialisation were so pronounced. It was incredible and shows changes do

happen.

Exactly a year from when he started his

programme after Xmas that year he was undiagnosed... Miracles happen!

Keep at it everyone

Love Caroline

xx

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http://www.moose.co.uk/

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