Re: Doing Yasko in Europe

[Guest guest]

In a message dated 27/08/2006 15:42:28 GMT Daylight Time, tltbaku@... writes:

As an update, after 7 months of Step One of Yasko, Lulu, now 3 1/2, is doing just fabulously with lots of improvements in cognition, behavior, gross and fine motor skills, and social interaction. She began babbling this summer, said her first real word (Mama -- tears in my eyes), and is now singing nonverbally something like 12 songs in their entirety. She also has had a major growth spurt (she is very small for her age, and had low growth hormone). All this, and we haven't even begun Yasko's metals/viral detox protocol, so we're still early on in the program. We are very happy with Yasko's program and the earth-shattering effects it has had on Lulu and our family life. So.... Anyone out there in Europe interested?

>>>Awesome news on Lulu - I wondered where you went - yes to Yasko Europe - I think there are at least 6 others who would be interested too - its bank holiday weekend here in UK so lots of folks are away or have visitors.

We do the Nutrigenomics in next weeks, I have started with Puzzle of Autism DVD's and I am about to work my way through some others. Not really explored the AA site yet forums do my head in and I decided getting the basic idea then tests results was better way for me to go about it - more motivation when I have a list of +/- ++/++ in fornt of me LOL

Glad you are back!

Mandi x

[Guest guest]

Hi

Theresa, I’ve done almost no research but what I’ve seen looks promising. I would

never have the guts to leave DAN! and do it but I’m still interested and will

perhaps dip into it. Does that count?

sara

Re:

Doing Yasko in Europe

In a message dated 27/08/2006 15:42:28 GMT Daylight Time,

tltbaku writes:

As

an update, after 7 months of Step One of Yasko, Lulu, now 3 1/2,

is doing just fabulously with lots of improvements in cognition,

behavior, gross and fine motor skills, and social interaction. She

began babbling this summer, said her first real word (Mama -- tears

in my eyes), and is now singing nonverbally something like 12 songs

in their entirety. She also has had a major growth spurt (she is

very small for her age, and had low growth hormone). All this, and

we haven't even begun Yasko's metals/viral detox protocol, so we're

still early on in the program. We are very happy with Yasko's

program and the earth-shattering effects it has had on Lulu and our

family life.

So.... Anyone out there in Europe interested?

>>>Awesome news on Lulu - I wondered where you went -

yes to Yasko Europe - I think there are at least 6 others who would be

interested too - its bank holiday weekend here in UK so lots of folks are away

or have visitors.

We do the Nutrigenomics in next weeks, I have started with

Puzzle of Autism DVD's and I am about to work my way through some others. Not

really explored the AA site yet forums do my head in and I decided getting the

basic idea then tests results was better way for me to go about it - more

motivation when I have a list of +/- ++/++ in fornt of me LOL

Glad you are back!

Mandi x

--

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.405 / Virus Database: 268.11.6/428 - Release Date: 25/08/2006

--

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.1.405 / Virus Database: 268.11.6/428 - Release Date: 25/08/2006

[Guest guest]

Hi

I haven't posted here before but I'm seriously thinking of doing the Yasko test

- for myself because I have CFS.

Has anyone had any problem getting the test through customs? I don't

particularly like the International Agreement they've asked me to sign.

I've read Pangbourne & Baker's DAN! book and I've just started Yasko's Genetic

Bypass. It's all a bit heavy going at times for a fogged-up CFS brain.

And if my presence wouldn't be thought inappropriate (since I'm not specifically

autism-focused) I too would wish to join a Yasko-in-Europe group.

Sue Spencer

Oakham, UK

nobodyinparticular wrote:

> I'm wondering if there is anyone on the list who is doing/ partially

> doing/ interested in doing Yasko's protocol in Europe? There are

> several of us on the autismanswer list who are doing the program

> from Europe and I am thinking of starting a group for us to

> share insights/problems. Much of our emphasis would be on the shere

> logistics -- working through the collective difficulties of getting

> supplements/labwork/doctors. But all related subjects would be

> welcome

[Guest guest]

>where can i get information on yasko dave

> Hi All!!!

>

> I haven't posted in a while -- have been away in the states, and

> then very busy with slogging through the horribly wet Dutch

summer.

> But, I'm finally up and at it again.

>

> I'm wondering if there is anyone on the list who is doing/

partially

> doing/ interested in doing Yasko's protocol in Europe? There are

> several of us on the autismanswer list who are doing the program

> from Europe and I am thinking of starting a group for us to

> share insights/problems. Much of our emphasis would be on the

shere

> logistics -- working through the collective difficulties of

getting

> supplements/labwork/doctors. But all related subjects would be

> welcome.

>

> As an update, after 7 months of Step One of Yasko, Lulu, now 3

1/2,

> is doing just fabulously with lots of improvements in cognition,

> behavior, gross and fine motor skills, and social interaction.

She

> began babbling this summer, said her first real word (Mama --

tears

> in my eyes), and is now singing nonverbally something like 12

songs

> in their entirety. She also has had a major growth spurt (she is

> very small for her age, and had low growth hormone). All this,

and

> we haven't even begun Yasko's metals/viral detox protocol, so

we're

> still early on in the program. We are very happy with Yasko's

> program and the earth-shattering effects it has had on Lulu and

our

> family life.

>

> So.... Anyone out there in Europe interested?

>

> Hugs to you all,

> Theresa

>

[Guest guest]

Count me in too. An about to watch her DVD and may well consider doing

the testing shortly.

nobodyinparticular wrote:

> Hi All!!!

>

> I haven't posted in a while -- have been away in the states, and

> then very busy with slogging through the horribly wet Dutch summer.

> But, I'm finally up and at it again.

>

> I'm wondering if there is anyone on the list who is doing/ partially

> doing/ interested in doing Yasko's protocol in Europe? There are

> several of us on the autismanswer list who are doing the program

> from Europe and I am thinking of starting a group for us to

> share insights/problems. Much of our emphasis would be on the shere

> logistics -- working through the collective difficulties of getting

> supplements/labwork/doctors. But all related subjects would be

> welcome.

>

> As an update, after 7 months of Step One of Yasko, Lulu, now 3 1/2,

> is doing just fabulously with lots of improvements in cognition,

> behavior, gross and fine motor skills, and social interaction. She

> began babbling this summer, said her first real word (Mama -- tears

> in my eyes), and is now singing nonverbally something like 12 songs

> in their entirety. She also has had a major growth spurt (she is

> very small for her age, and had low growth hormone). All this, and

> we haven't even begun Yasko's metals/viral detox protocol, so we're

> still early on in the program. We are very happy with Yasko's

> program and the earth-shattering effects it has had on Lulu and our

> family life.

>

> So.... Anyone out there in Europe interested?

>

> Hugs to you all,

> Theresa

>

>

[Guest guest]

Hey Mandi,

Thanks for the welcome! I have gotten lots of response, so I'm gong

to go ahead and start a list tomorrow and I will announce it here.

Hye, and I'm working on a long list of European

saupplement/testing/practitioner resources -- many of course culled

form the EXCELLENT links on Treating Autism site!

Well, let's see if we can make that list a place where we can

support one another as best we can. I have absolutely LOVED this

group you have put together -- areal beacon in the dark, Mandi.

Many, many hugs to you and everyone else here,

Theresa

>

>

> In a message dated 27/08/2006 15:42:28 GMT Daylight Time,

tltbaku@...

> writes:

>

> As an update, after 7 months of Step One of Yasko, Lulu, now 3

1/2,

> is doing just fabulously with lots of improvements in cognition,

> behavior, gross and fine motor skills, and social interaction.

She

> began babbling this summer, said her first real word (Mama --

tears

> in my eyes), and is now singing nonverbally something like 12

songs

> in their entirety. She also has had a major growth spurt (she is

> very small for her age, and had low growth hormone). All this,

and

> we haven't even begun Yasko's metals/viral detox protocol, so

we're

> still early on in the program. We are very happy with Yasko's

> program and the earth-shattering effects it has had on Lulu and

our

> family life.

>

> So.... Anyone out there in Europe interested?

>

>

>

> >>>Awesome news on Lulu - I wondered where you went - yes to

Yasko Europe -

> I think there are at least 6 others who would be interested too -

its bank

> holiday weekend here in UK so lots of folks are away or have

visitors.

>

> We do the Nutrigenomics in next weeks, I have started with Puzzle

of Autism

> DVD's and I am about to work my way through some others. Not

really explored

> the AA site yet forums do my head in and I decided getting the

basic idea then

> tests results was better way for me to go about it - more

motivation when I

> have a list of +/- ++/++ in fornt of me LOL

>

> Glad you are back!

>

> Mandi x

>

[Guest guest]

Hey Mandi,

Thanks for the welcome! I have gotten lots of response, so I'm gong

to go ahead and start a list tomorrow and I will announce it here.

Hye, and I'm working on a long list of European

saupplement/testing/practitioner resources -- many of course culled

form the EXCELLENT links on Treating Autism site!

Well, let's see if we can make that list a place where we can

support one another as best we can. I have absolutely LOVED this

group you have put together -- areal beacon in the dark, Mandi.

Many, many hugs to you and everyone else here,

Theresa

>

>

> In a message dated 27/08/2006 15:42:28 GMT Daylight Time,

tltbaku@...

> writes:

>

> As an update, after 7 months of Step One of Yasko, Lulu, now 3

1/2,

> is doing just fabulously with lots of improvements in cognition,

> behavior, gross and fine motor skills, and social interaction.

She

> began babbling this summer, said her first real word (Mama --

tears

> in my eyes), and is now singing nonverbally something like 12

songs

> in their entirety. She also has had a major growth spurt (she is

> very small for her age, and had low growth hormone). All this,

and

> we haven't even begun Yasko's metals/viral detox protocol, so

we're

> still early on in the program. We are very happy with Yasko's

> program and the earth-shattering effects it has had on Lulu and

our

> family life.

>

> So.... Anyone out there in Europe interested?

>

>

>

> >>>Awesome news on Lulu - I wondered where you went - yes to

Yasko Europe -

> I think there are at least 6 others who would be interested too -

its bank

> holiday weekend here in UK so lots of folks are away or have

visitors.

>

> We do the Nutrigenomics in next weeks, I have started with Puzzle

of Autism

> DVD's and I am about to work my way through some others. Not

really explored

> the AA site yet forums do my head in and I decided getting the

basic idea then

> tests results was better way for me to go about it - more

motivation when I

> have a list of +/- ++/++ in fornt of me LOL

>

> Glad you are back!

>

> Mandi x

>

[Guest guest]

In a message dated 28/08/2006 09:08:28 GMT Standard Time, tltbaku@... writes:

So... You can get information about Yasko's program on the AutismAnswer site - www.autismanswer.com. There is a link to the parent forum there, and other links to places to buy the testing and supplements. Dr. Yasko also has a site for her Neurological Research Institute, and you can find all of her PowerPoint presentations there and much more - www.holistichealth.com .I hope this helps!Hugs,Theresa

DEAR THERESA

WE ARE ALSO LOOKING AT YASKO AND AM INTERESTED IN YOUR FORUM. JUST RECEIVED MY BH4 FROM DR USMAN AND ARE GOING TO INTRODUCE THAT NEXT. HOWEVER WE ARE DOING A KINDA COMBINATION APPROACH WITH ELEMENTS OF YASKO AND ELEMENTS OF DAN TOO.

LUV CAROLINE

XX

[Guest guest]

Hey Sue,

Of course you would be welcome! There are a number of new members

on Yasko's AustismAnswer (AA) site with CFS, and she does have a

program specifically geared towards CFS. I very much suggest that

you look on that forum and get in contact with some of those

people. I would do two things for this -- look in the Parents and

Adults forum -- that's a new forum at AA where many of those with

CFS post -- and do a search with the term CFS.

As to the test, I had NO problems whatsoever. Neither did three

other people I know -- two in France and one in Ireland. The

agreement form looks daunting, but it's all legalese because of the

new era of genetics and the litigation culture in the US.

If you need help, please do not hesitate to ask me. I can help you

get started with Step One, get your oriented to using the AA forum,

put you in touch with those who know more about the application of

Dr. Yasko's program to CFS.

Best of luck to you, and lots of hugs!

Theresa

> > I'm wondering if there is anyone on the list who is doing/

partially

> > doing/ interested in doing Yasko's protocol in Europe? There

are

> > several of us on the autismanswer list who are doing the program

> > from Europe and I am thinking of starting a group for us

to

> > share insights/problems. Much of our emphasis would be on the

shere

> > logistics -- working through the collective difficulties of

getting

> > supplements/labwork/doctors. But all related subjects would be

> > welcome

>

[Guest guest]

Hi Jacqui

We waited about 8 weeks for our results just in case thats any use (that was end of June we received and tested on may 1st). I know someone recently who waited about 10, just so you are prepared... Are you using Autism Answers, I find it a bit difficult navigating my way around it, what do you think?

Luv Caroline

xxx

[Guest guest]

Dave and Sara,

Well, on a personal note, I strongly believe that each of us is best

doing the kind of intervention with our children that we feel

comfortable with and that we feel is working. For some that will

mean working with one program, for others mixing and matching

various strategies, doing it all on your own a la Dana, having a

doctor decide every step along the path, forgoing biomedical

altogether. Whatever works for you and your kid -- that's what

counts.

For me, I've found that working with Yasko not only suits my

personality (I like the science, and I like doing it on my won, I

like being able to ask questions of her, I like the AustimAnswer

community), but it also has made huge differences for Lulu's

development. So I've sort of found the right place for Lulu -- at

least for now. I'm sticking with that, and we'll see how things

progress and what we find as we go furhter. I do have some other

things up my sleeve, however -- items on my shelf that I'm plannng

on trying, or that I'm going to try again with. So I keep a VERY

open mind. Indeed, it took an open mind to jump into Yasko in the

first place. And man, am I glad I did!!!!

So... You can get information about Yasko's program on the

AutismAnswer site - www.autismanswer.com. There is a link to the

parent forum there, and other links to places to buy the testing and

supplements. Dr. Yasko also has a site for her Neurological Research

Institute, and you can find all of her PowerPoint presentations

there and much more - www.holistichealth.com .

I hope this helps!

Hugs,

Theresa

>

> Hi Theresa, I've done almost no research but what I've seen looks

promising.

> I would never have the guts to leave DAN! and do it but I'm still

interested

> and will perhaps dip into it. Does that count?

>

> sara

>

> Re: Doing Yasko in Europe

>

>

>

> In a message dated 27/08/2006 15:42:28 GMT Daylight Time,

tltbaku@...

> writes:

>

> As an update, after 7 months of Step One of Yasko, Lulu, now 3

1/2,

> is doing just fabulously with lots of improvements in cognition,

> behavior, gross and fine motor skills, and social interaction. She

> began babbling this summer, said her first real word (Mama --

tears

> in my eyes), and is now singing nonverbally something like 12

songs

> in their entirety. She also has had a major growth spurt (she is

> very small for her age, and had low growth hormone). All this, and

> we haven't even begun Yasko's metals/viral detox protocol, so

we're

> still early on in the program. We are very happy with Yasko's

> program and the earth-shattering effects it has had on Lulu and

our

> family life.

>

> So.... Anyone out there in Europe interested?

>

> >>>Awesome news on Lulu - I wondered where you went - yes to Yasko

Europe -

> I think there are at least 6 others who would be interested too -

its bank

> holiday weekend here in UK so lots of folks are away or have

visitors.

>

>

>

> We do the Nutrigenomics in next weeks, I have started with Puzzle

of Autism

> DVD's and I am about to work my way through some others. Not

really explored

> the AA site yet forums do my head in and I decided getting the

basic idea

> then tests results was better way for me to go about it - more

motivation

> when I have a list of +/- ++/++ in fornt of me LOL

>

>

>

> Glad you are back!

>

>

>

> Mandi x

>

>

>

>

> --

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.405 / Virus Database: 268.11.6/428 - Release Date:

25/08/2006

>

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.1.405 / Virus Database: 268.11.6/428 - Release Date:

25/08/2006

>

[Guest guest]

That's good news Theresa - where are you in Holland btw?

I'm struggling with the Yasko book as well - keep skipping pages, but I

know I need to read it all!

Elaine

> Re: Doing Yasko in Europe

>

>

> Hey Mandi,

>

> Thanks for the welcome! I have gotten lots of response, so I'm gong

> to go ahead and start a list tomorrow and I will announce it here.

>

> Hye, and I'm working on a long list of European

> saupplement/testing/practitioner resources -- many of course culled

> form the EXCELLENT links on Treating Autism site!

>

> Well, let's see if we can make that list a place where we can

> support one another as best we can. I have absolutely LOVED this

> group you have put together -- areal beacon in the dark, Mandi.

>

> Many, many hugs to you and everyone else here,

> Theresa

>

>

>

>

>

> >

> >

> > In a message dated 27/08/2006 15:42:28 GMT Daylight Time,

> tltbaku@...

> > writes:

> >

> > As an update, after 7 months of Step One of Yasko, Lulu, now 3

> 1/2,

> > is doing just fabulously with lots of improvements in cognition,

> > behavior, gross and fine motor skills, and social interaction.

> She

> > began babbling this summer, said her first real word (Mama --

> tears

> > in my eyes), and is now singing nonverbally something like 12

> songs

> > in their entirety. She also has had a major growth spurt (she is

> > very small for her age, and had low growth hormone). All this,

> and

> > we haven't even begun Yasko's metals/viral detox protocol, so

> we're

> > still early on in the program. We are very happy with Yasko's

> > program and the earth-shattering effects it has had on Lulu and

> our

> > family life.

> >

> > So.... Anyone out there in Europe interested?

> >

> >

> >

> > >>>Awesome news on Lulu - I wondered where you went - yes to

> Yasko Europe -

> > I think there are at least 6 others who would be interested too -

> its bank

> > holiday weekend here in UK so lots of folks are away or have

> visitors.

> >

> > We do the Nutrigenomics in next weeks, I have started with Puzzle

> of Autism

> > DVD's and I am about to work my way through some others. Not

> really explored

> > the AA site yet forums do my head in and I decided getting the

> basic idea then

> > tests results was better way for me to go about it - more

> motivation when I

> > have a list of +/- ++/++ in fornt of me LOL

> >

> > Glad you are back!

> >

> > Mandi x

> >

>

>

>

>

>

>

> DISCLAIMER

> No information contained in this post is to be construed as medical

> advice. If you need medical advice, please seek it from a suitably

> qualified practitioner.

>

>

[Guest guest]

Yes I would be interested too. Have just sent off 's Genetics Test so am guessing we should have results about Oct.

BW

Jacqui

[Guest guest]

Yes, I've heard that Dr. Usman works with a great number of patients

who are also working with Dr. Yasko, and that she has incorporated

much of Dr. Yasko's protocol into her own. She seems like she and Dr.

Amy may have similar personalities in relation to their deep and

heartful CARE for the people they treat. So, another example of how

you can do both Yasko and DAN! at the same time.

I'd love to hear more about how this goes!

Best,

Theresa

> DEAR THERESA

> WE ARE ALSO LOOKING AT YASKO AND AM INTERESTED IN YOUR FORUM. JUST

RECEIVED

> MY BH4 FROM DR USMAN AND ARE GOING TO INTRODUCE THAT NEXT. HOWEVER

WE ARE

> DOING A KINDA COMBINATION APPROACH WITH ELEMENTS OF YASKO AND

ELEMENTS OF DAN

> TOO.

> LUV CAROLINE

> XX

>

[Guest guest]

In a message dated 29/08/2006 07:50:28 GMT Standard Time, jacqui@... writes:

Hi Caroline

Thanks for that - I knew it took quite a while so I was reckoning on end of Oct/beg of Nov - but I guess it will come when it comes!! In the meantime we are waiting for a urine AA (which is the first one we've done) so that might give me some more info I haven't already got anyway.

Hiya

I have got the urine AA kit sitting here as well, we need to re-test and the little bit I have read suggests the importance of Tryptophan in the Dopamine/Serotonin stuff which is maybe an issue for us (Quite a lot of my deletions/alterations are +/- which makes it trickier to interpret being heterozygous). I was ordering stuff from Dr U's last week and mentioned that I thought it might be useful for us to do AAs to and said if Dr U thought it was good idea to bung in one of them as well, not realising it was $350!!!! GULP... Took a lotta explaining to hubby that one, We use DDI always, what about you? How much did you pay if you dont mind me asking? I see the French Lab do this too but dont think it seems as comprehensive as DDIs, Still maybe worth checking out if ever needs re-doing...

I am looking at the Autism Answer site (at the moment I am very tentatively adding one or two supps from the Step One part of the programme so I don't actually NEED much info yet). It does seem a little confusing, but I'm not trying to read every post so I just do a search on whatever has popped into my head - although that seems frustrating as I keep having to use the back button and refresh as it comes up page unavailable ARGHH!!

I guess you get used to how certain sites work, but I'm sure we'll get there.

Yes I just feel overwhelmed there but I am not genned up at all on this stuff so once I sit down and figure it out a bit more I will venture back again. I dont take stuff on board very easily which is why after 6 years we are only starting to chelate (Well that and gut problems I guess). But really I just dont absorb info like I used to, it needs to become so familiar to me or it just doesnt make sense. Another thing I find is that words are kinda meaningless to me when it comes to the metabolic daigrams I need to find the chemical structures somewhere, which sounds a bit cooky (Never realised I was a visual thinker til I noted this!!). I can see it better then and it just connects somehow, so as soon as I am finished my assignments and another few bits I am going to spend some time on this...

Just out of interest - did you find the Yasko results easy to interpret? What did your show (if you don't mind sharing)??

The results were awesome, Dr Usman helped me interpret them well she interpreted them actually, I knew a few bits like her requirement for MB12 wasnt great, we figured that previously and had cut down to weekly, we always suspected the Ammonia production from CBS and that is why we did this initially, increased urination... We already new her urinary pH was high at certian points in the day. MTHFR stuff I forget but showing a requiremnet for BH4 but because of the dopamine and serotonin deletions need to check those levels too. I am doing this off the top of my head because my notes are somewhere else. My results are posted on this group with a great response from Josie that helped enormously with the interpretation, if you search back in the files to July (mid) you will see them, when I am on my other computer I will send them to you.

We are just about to check the serotonin/dopamine levels too with a kit from Neurosciences its a urine test also. I dont think we will do anything with the BH4 right now tho I have just received form Dr U.

Have you joined the Yasko group cos I guess we should really post this onto there now as a lot of this stuff ABE folks might not be interested in right now, shall we pop these posts over there? I can dig out my results and put them on there too with Josies post and that will be useful for people referring back.

Love Craoline

xx

[Guest guest]

Hi Caroline

Thanks for that - I knew it took quite a while so I was reckoning on end of Oct/beg of Nov - but I guess it will come when it comes!! In the meantime we are waiting for a urine AA (which is the first one we've done) so that might give me some more info I haven't already got anyway.

I am looking at the Autism Answer site (at the moment I am very tentatively adding one or two supps from the Step One part of the programme so I don't actually NEED much info yet). It does seem a little confusing, but I'm not trying to read every post so I just do a search on whatever has popped into my head - although that seems frustrating as I keep having to use the back button and refresh as it comes up page unavailable ARGHH!!

I guess you get used to how certain sites work, but I'm sure we'll get there.

Just out of interest - did you find the Yasko results easy to interpret? What did your show (if you don't mind sharing)??

BW

Jacqui X

[Guest guest]

No probs will answer there

BW

Jacqui

>

> In a message dated 29/08/2006 07:50:28 GMT Standard Time,

> jacqui@... writes:

>

> Hi Caroline

>

> Thanks for that - I knew it took quite a while so I was reckoning

on end of

> Oct/beg of Nov - but I guess it will come when it comes!! In the

meantime we

> are waiting for a urine AA (which is the first one we've done) so

that might

> give me some more info I haven't already got anyway.

>

>

> Hiya

>

> I have got the urine AA kit sitting here as well, we need to re-

test and the

> little bit I have read suggests the importance of Tryptophan in

the

> Dopamine/Serotonin stuff which is maybe an issue for us (Quite a

lot of my

> deletions/alterations are +/- which makes it trickier to interpret

being heterozygous).

> I was ordering stuff from Dr U's last week and mentioned that I

thought it

> might be useful for us to do AAs to and said if Dr U thought it

was good idea

> to bung in one of them as well, not realising it was $350!!!!

GULP... Took a

> lotta explaining to hubby that one, We use DDI always, what about

you? How

> much did you pay if you dont mind me asking? I see the French Lab

do this too

> but dont think it seems as comprehensive as DDIs, Still maybe

worth checking

> out if ever needs re-doing...

>

>

> I am looking at the Autism Answer site (at the moment I am very

tentatively

> adding one or two supps from the Step One part of the programme

so I don't

> actually NEED much info yet). It does seem a little confusing,

but I'm not

> trying to read every post so I just do a search on whatever has

popped into my

> head - although that seems frustrating as I keep having to use

the back button

> and refresh as it comes up page unavailable ARGHH!!

>

> I guess you get used to how certain sites work, but I'm sure

we'll get there.

>

>

> Yes I just feel overwhelmed there but I am not genned up at all on

this

> stuff so once I sit down and figure it out a bit more I will

venture back again.

> I dont take stuff on board very easily which is why after 6 years

we are only

> starting to chelate (Well that and gut problems I guess). But

really I just

> dont absorb info like I used to, it needs to become so familiar

to me or it

> just doesnt make sense. Another thing I find is that words are

kinda

> meaningless to me when it comes to the metabolic daigrams I need

to find the chemical

> structures somewhere, which sounds a bit cooky (Never realised I

was a visual

> thinker til I noted this!!). I can see it better then and it just

connects

> somehow, so as soon as I am finished my assignments and another

few bits I am

> going to spend some time on this...

>

>

> Just out of interest - did you find the Yasko results easy to

interpret?

> What did your show (if you don't mind sharing)??

>

>

> The results were awesome, Dr Usman helped me interpret them well

she

> interpreted them actually, I knew a few bits like her requirement

for MB12 wasnt

> great, we figured that previously and had cut down to weekly, we

always

> suspected the Ammonia production from CBS and that is why we did

this initially,

> increased urination... We already new her urinary pH was high at

certian points

> in the day. MTHFR stuff I forget but showing a requiremnet for BH4

but because

> of the dopamine and serotonin deletions need to check those levels

too. I am

> doing this off the top of my head because my notes are somewhere

else. My

> results are posted on this group with a great response from Josie

that helped

> enormously with the interpretation, if you search back in the

files to July

> (mid) you will see them, when I am on my other computer I will

send them to you.

>

> We are just about to check the serotonin/dopamine levels too with

a kit from

> Neurosciences its a urine test also. I dont think we will do

anything with

> the BH4 right now tho I have just received form Dr U.

>

> Have you joined the Yasko group cos I guess we should really post

this onto

> there now as a lot of this stuff ABE folks might not be interested

in right

> now, shall we pop these posts over there? I can dig out my

results and put them

> on there too with Josies post and that will be useful for people

referring

> back.

>

> Love Craoline

>

> xx

>

[Guest guest]

In a message dated 29/08/2006 13:22:10 GMT Standard Time, crespin.michael@... writes:

Hi Caroline, I'm thinking about doing Yasko genetic tests.As you have experience with Dr Usman interpreting the results of the genetics, what you would recommend: taking appointment with Dr Usman to interpret the test, or adding the money to have the "GAR" which is Dr Yasko interpretation?

HI Liora

I dont reckon I am really experienced enough to say because a) I have never seen a GAR and I am not sure yet about our own results and havent looked into this enough.

I couldnt really afford that extra cash right now and am happy doing my combination approach anyway with Dr Usman. I think there are also lotsa people around that will help you with your interpretation, so sorry thats not much help...

PS Do you know about ht enew Yasko Europe forum, probably good to join there too if you are interested. I sahll post your message across and am sure Theresa will send you an invite.. Is this OK to do this Theresa??

Luv Caroline

xx

PS I will post my results later and some interpretation points and we can all add comments if you like...

[Guest guest]

The urine AA should be done by Yasko, or I can use any laboratory

that is doing a urine AA, Like Nataf in France (I think the urine AA

is about 100 dollars…)

Thanks

Liora

-- In Autism Treatment , CarolineTraa@...

wrote:

>

> In a message dated 29/08/2006 07:50:28 GMT Standard Time,

> jacqui@... writes:

>

> Hi Caroline

>

> Thanks for that - I knew it took quite a while so I was reckoning

on end of

> Oct/beg of Nov - but I guess it will come when it comes!! In the

meantime we

> are waiting for a urine AA (which is the first one we've done) so

that might

> give me some more info I haven't already got anyway.

>

>

> Hiya

>

> I have got the urine AA kit sitting here as well, we need to re-

test and the

> little bit I have read suggests the importance of Tryptophan in

the

> Dopamine/Serotonin stuff which is maybe an issue for us (Quite a

lot of my

> deletions/alterations are +/- which makes it trickier to interpret

being heterozygous).

> I was ordering stuff from Dr U's last week and mentioned that I

thought it

> might be useful for us to do AAs to and said if Dr U thought it

was good idea

> to bung in one of them as well, not realising it was $350!!!!

GULP... Took a

> lotta explaining to hubby that one, We use DDI always, what about

you? How

> much did you pay if you dont mind me asking? I see the French Lab

do this too

> but dont think it seems as comprehensive as DDIs, Still maybe

worth checking

> out if ever needs re-doing...

>

>

> I am looking at the Autism Answer site (at the moment I am very

tentatively

> adding one or two supps from the Step One part of the programme

so I don't

> actually NEED much info yet). It does seem a little confusing,

but I'm not

> trying to read every post so I just do a search on whatever has

popped into my

> head - although that seems frustrating as I keep having to use

the back button

> and refresh as it comes up page unavailable ARGHH!!

>

> I guess you get used to how certain sites work, but I'm sure

we'll get there.

>

>

> Yes I just feel overwhelmed there but I am not genned up at all on

this

> stuff so once I sit down and figure it out a bit more I will

venture back again.

> I dont take stuff on board very easily which is why after 6 years

we are only

> starting to chelate (Well that and gut problems I guess). But

really I just

> dont absorb info like I used to, it needs to become so familiar

to me or it

> just doesnt make sense. Another thing I find is that words are

kinda

> meaningless to me when it comes to the metabolic daigrams I need

to find the chemical

> structures somewhere, which sounds a bit cooky (Never realised I

was a visual

> thinker til I noted this!!). I can see it better then and it just

connects

> somehow, so as soon as I am finished my assignments and another

few bits I am

> going to spend some time on this...

>

>

> Just out of interest - did you find the Yasko results easy to

interpret?

> What did your show (if you don't mind sharing)??

>

>

> The results were awesome, Dr Usman helped me interpret them well

she

> interpreted them actually, I knew a few bits like her requirement

for MB12 wasnt

> great, we figured that previously and had cut down to weekly, we

always

> suspected the Ammonia production from CBS and that is why we did

this initially,

> increased urination... We already new her urinary pH was high at

certian points

> in the day. MTHFR stuff I forget but showing a requiremnet for BH4

but because

> of the dopamine and serotonin deletions need to check those levels

too. I am

> doing this off the top of my head because my notes are somewhere

else. My

> results are posted on this group with a great response from Josie

that helped

> enormously with the interpretation, if you search back in the

files to July

> (mid) you will see them, when I am on my other computer I will

send them to you.

>

> We are just about to check the serotonin/dopamine levels too with

a kit from

> Neurosciences its a urine test also. I dont think we will do

anything with

> the BH4 right now tho I have just received form Dr U.

>

> Have you joined the Yasko group cos I guess we should really post

this onto

> there now as a lot of this stuff ABE folks might not be interested

in right

> now, shall we pop these posts over there? I can dig out my

results and put them

> on there too with Josies post and that will be useful for people

referring

> back.

>

> Love Craoline

>

> xx

>

[Guest guest]

Hi Caroline, I'm thinking about doing Yasko genetic tests.

As you have experience with Dr Usman interpreting the results of the

genetics, what you would recommend: taking appointment with Dr Usman

to interpret the test, or adding the money to have the " GAR " which

is Dr Yasko interpretation?

Thanks

Liora

>

> In a message dated 29/08/2006 07:50:28 GMT Standard Time,

> jacqui@... writes:

>

> Hi Caroline

>

> Thanks for that - I knew it took quite a while so I was reckoning

on end of

> Oct/beg of Nov - but I guess it will come when it comes!! In the

meantime we

> are waiting for a urine AA (which is the first one we've done) so

that might

> give me some more info I haven't already got anyway.

>

>

> Hiya

>

> I have got the urine AA kit sitting here as well, we need to re-

test and the

> little bit I have read suggests the importance of Tryptophan in

the

> Dopamine/Serotonin stuff which is maybe an issue for us (Quite a

lot of my

> deletions/alterations are +/- which makes it trickier to interpret

being heterozygous).

> I was ordering stuff from Dr U's last week and mentioned that I

thought it

> might be useful for us to do AAs to and said if Dr U thought it

was good idea

> to bung in one of them as well, not realising it was $350!!!!

GULP... Took a

> lotta explaining to hubby that one, We use DDI always, what about

you? How

> much did you pay if you dont mind me asking? I see the French Lab

do this too

> but dont think it seems as comprehensive as DDIs, Still maybe

worth checking

> out if ever needs re-doing...

>

>

> I am looking at the Autism Answer site (at the moment I am very

tentatively

> adding one or two supps from the Step One part of the programme

so I don't

> actually NEED much info yet). It does seem a little confusing,

but I'm not

> trying to read every post so I just do a search on whatever has

popped into my

> head - although that seems frustrating as I keep having to use

the back button

> and refresh as it comes up page unavailable ARGHH!!

>

> I guess you get used to how certain sites work, but I'm sure

we'll get there.

>

>

> Yes I just feel overwhelmed there but I am not genned up at all on

this

> stuff so once I sit down and figure it out a bit more I will

venture back again.

> I dont take stuff on board very easily which is why after 6 years

we are only

> starting to chelate (Well that and gut problems I guess). But

really I just

> dont absorb info like I used to, it needs to become so familiar

to me or it

> just doesnt make sense. Another thing I find is that words are

kinda

> meaningless to me when it comes to the metabolic daigrams I need

to find the chemical

> structures somewhere, which sounds a bit cooky (Never realised I

was a visual

> thinker til I noted this!!). I can see it better then and it just

connects

> somehow, so as soon as I am finished my assignments and another

few bits I am

> going to spend some time on this...

>

>

> Just out of interest - did you find the Yasko results easy to

interpret?

> What did your show (if you don't mind sharing)??

>

>

> The results were awesome, Dr Usman helped me interpret them well

she

> interpreted them actually, I knew a few bits like her requirement

for MB12 wasnt

> great, we figured that previously and had cut down to weekly, we

always

> suspected the Ammonia production from CBS and that is why we did

this initially,

> increased urination... We already new her urinary pH was high at

certian points

> in the day. MTHFR stuff I forget but showing a requiremnet for BH4

but because

> of the dopamine and serotonin deletions need to check those levels

too. I am

> doing this off the top of my head because my notes are somewhere

else. My

> results are posted on this group with a great response from Josie

that helped

> enormously with the interpretation, if you search back in the

files to July

> (mid) you will see them, when I am on my other computer I will

send them to you.

>

> We are just about to check the serotonin/dopamine levels too with

a kit from

> Neurosciences its a urine test also. I dont think we will do

anything with

> the BH4 right now tho I have just received form Dr U.

>

> Have you joined the Yasko group cos I guess we should really post

this onto

> there now as a lot of this stuff ABE folks might not be interested

in right

> now, shall we pop these posts over there? I can dig out my

results and put them

> on there too with Josies post and that will be useful for people

referring

> back.

>

> Love Craoline

>

> xx

>

[Guest guest]

Thank you Caroline!

Liora

>

>

> In a message dated 29/08/2006 13:22:10 GMT Standard Time,

> crespin.michael@... writes:

>

> Hi Caroline, I'm thinking about doing Yasko genetic tests.

> As you have experience with Dr Usman interpreting the results of

the

> genetics, what you would recommend: taking appointment with Dr

Usman

> to interpret the test, or adding the money to have the " GAR "

which

> is Dr Yasko interpretation?

>

>

>

> HI Liora

> I dont reckon I am really experienced enough to say because a) I

have never

> seen a GAR and I am not sure yet about our own results and

havent looked

> into this enough.

> I couldnt really afford that extra cash right now and am happy

doing my

> combination approach anyway with Dr Usman. I think there are also

lotsa people

> around that will help you with your interpretation, so sorry thats

not much

> help...

> PS Do you know about ht enew Yasko Europe forum, probably good to

join there

> too if you are interested. I sahll post your message across and am

sure

> Theresa will send you an invite.. Is this OK to do this Theresa??

> Luv Caroline

> xx

> PS I will post my results later and some interpretation points and

we can

> all add comments if you like...

>

[Guest guest]

Hey All,

We are up and running at YaskoEurope and I encourage anyone to join -

- just go to the homepage, no need for an invitation -

YaskoEurope/

I have a GAR for Lulu and feel that it is excellent. 82 pages, but

that's including two annexes and some diagram pages. But it's quite

comprehensive. Still working on implementing it. The GAR is meant

to take you into Step Two, and that means that you can start Step

One before that, without the GAR.

I also have done a UAA a the lab in Paris. They do all the same

metabolites, but the reference ranges are not the same, and of

course if you order the DDI test through Dr. Yasko's office, you get

her comments on them via email, which helps immensely. Dr. Yasko

sometimes has very different things to suggest than Metametrix or

DDI, so it's always worth getting her input.

Liora, with your child's nitric/nitrous oxide issues, I guess that

BH4 might be an issue, alongside the methylation. In my opinion, it

could be well worth looking into Yasko. She recently wrote that she

believes that the fact that anesthesia can have ill effects on the

methylation pathway (as she sees it in it's expanded sense -- see

her diagram here http://www.holistichealth.com/Diagrams.html ) is a

testament to that pathway's central role. In my humble opinion,

suspect she might have some insights for you.

Best,

Theresa

>

>

> In a message dated 29/08/2006 13:22:10 GMT Standard Time,

> crespin.michael@... writes:

>

> Hi Caroline, I'm thinking about doing Yasko genetic tests.

> As you have experience with Dr Usman interpreting the results of

the

> genetics, what you would recommend: taking appointment with Dr

Usman

> to interpret the test, or adding the money to have the " GAR "

which

> is Dr Yasko interpretation?

>

>

>

> HI Liora

> I dont reckon I am really experienced enough to say because a) I

have never

> seen a GAR and I am not sure yet about our own results and

havent looked

> into this enough.

> I couldnt really afford that extra cash right now and am happy

doing my

> combination approach anyway with Dr Usman. I think there are also

lotsa people

> around that will help you with your interpretation, so sorry thats

not much

> help...

> PS Do you know about ht enew Yasko Europe forum, probably good to

join there

> too if you are interested. I sahll post your message across and am

sure

> Theresa will send you an invite.. Is this OK to do this Theresa??

> Luv Caroline

> xx

> PS I will post my results later and some interpretation points and

we can

> all add comments if you like...

>

[Guest guest]

Liora,

I forgot to add that Dr. Yasko will soon be offering a new

supplement add-on to the GAR. For something like $25 you will get a

list of the supplements that are recommended for your child's

genetics, along with a bar graph for each supplement giving you an

idea of how much of a need for that supplement your child's genetics

indicate. This doesn't take care of all the supplements you need --

because those always will be determined by molecular tests like

amino acids and CDSAs and essential elements and the like. But the

kinds of supplement guides you can learn from from knowing the

genetic blockages in the pathways will be made much more clear. I

twill be a general guideline, I guess, that you can then work on

detailing as you go along the road to detox and recovery.

Best,

Theresa

> >

> >

> > In a message dated 29/08/2006 13:22:10 GMT Standard Time,

> > crespin.michael@ writes:

> >

> > Hi Caroline, I'm thinking about doing Yasko genetic tests.

> > As you have experience with Dr Usman interpreting the results

of

> the

> > genetics, what you would recommend: taking appointment with Dr

> Usman

> > to interpret the test, or adding the money to have the " GAR "

> which

> > is Dr Yasko interpretation?

> >

> >

> >

> > HI Liora

> > I dont reckon I am really experienced enough to say because a) I

> have never

> > seen a GAR and I am not sure yet about our own results and

> havent looked

> > into this enough.

> > I couldnt really afford that extra cash right now and am happy

> doing my

> > combination approach anyway with Dr Usman. I think there are

also

> lotsa people

> > around that will help you with your interpretation, so sorry

thats

> not much

> > help...

> > PS Do you know about ht enew Yasko Europe forum, probably good

to

> join there

> > too if you are interested. I sahll post your message across and

am

> sure

> > Theresa will send you an invite.. Is this OK to do this Theresa??

> > Luv Caroline

> > xx

> > PS I will post my results later and some interpretation points

and

> we can

> > all add comments if you like...

> >

>

[Guest guest]

Thank you Theresa,

Indeed it is my son's complications after anaesthesia (Nitrous oxide

and some other stuff) that pointed to me the need to look more

deeply in this entire genetic/MTHFR staff.

He has some BIG regressions with some usual DAN things, so I am sure

that genetic is the way to go for him to understand more of this.

You are the first person that explained to me about some of the

Folates/B12/aneastesia stuff I was worry about because of my son's

head circumference decreasing after anaesthesia, while regressing

into autism in parallel.

I don't know why, I was always suspecting that all this Yasko/Gordon

staff is more like people trying to make money from snake oil, maybe

because of Gordon's very " MARKETING " style.

Now I am convinced that there is science behind it and I want to

try...

It is a little expansive though, so I am looking for the right

arguments too convince my dear husband that is tired of spending so

much money without seeing progress...

Regards,

Liora

> > >

> > >

> > > In a message dated 29/08/2006 13:22:10 GMT Standard Time,

> > > crespin.michael@ writes:

> > >

> > > Hi Caroline, I'm thinking about doing Yasko genetic tests.

> > > As you have experience with Dr Usman interpreting the results

> of

> > the

> > > genetics, what you would recommend: taking appointment with

Dr

> > Usman

> > > to interpret the test, or adding the money to have the " GAR "

> > which

> > > is Dr Yasko interpretation?

> > >

> > >

> > >

> > > HI Liora

> > > I dont reckon I am really experienced enough to say because a)

I

> > have never

> > > seen a GAR and I am not sure yet about our own results and

> > havent looked

> > > into this enough.

> > > I couldnt really afford that extra cash right now and am happy

> > doing my

> > > combination approach anyway with Dr Usman. I think there are

> also

> > lotsa people

> > > around that will help you with your interpretation, so sorry

> thats

> > not much

> > > help...

> > > PS Do you know about ht enew Yasko Europe forum, probably good

> to

> > join there

> > > too if you are interested. I sahll post your message across

and

> am

> > sure

> > > Theresa will send you an invite.. Is this OK to do this

Theresa??

> > > Luv Caroline

> > > xx

> > > PS I will post my results later and some interpretation points

> and

> > we can

> > > all add comments if you like...

> > >

> >

>

[Guest guest]

Hey Liora,

Yes, best not to believe the Gordon hype. Yasko is not Gordon, and

vice versa. Look at Yasko's personal website

http://www.holistichealth.com/Welcome.html and then at the one that

Gordon designed http://www.autismanswer.com/, and you will

immediately see the difference in styles. I don't think that Yasko

has a salesperson bone in her body. From what I can tell after 8

months of reading thousands of posts and having her answer so many

of my endless questions, she's too personal and spiritual for that.

She's all big brain and big heart. I have come to feel that Yasko

is one of those uniquely amazing people that you are lucky to have

cross your path. Really -- that's my very considered opinion in this

matter. I trust her with Lulu -- and if you knew me, you'd know

that that's saying a lot. Lulu is one of those hard nuts to crack --

they've checked for Rewtt Syndrome, Angelman Syndrome and they

thought for a long time that she might have Cerebral Folate

Deficiency -- but nothing sticks and no one has a clue as to what is

wrong with her. When I asked Bradstreet at the last DAN! conference

about hypomyelination -- he just looked at me like I was crazy and

said he had never seen it in autism. Yasko would not only NEVER do

something like that to the mother of a chidl with a neurological

disorder, but she would also be committed to getting to the bottom

of that child's problems. She treats children with Rett Syndrome and

Prader Willi Syndrome and Down Syndrome and seizure disorders and

all kinds of things. That says a lot to me in my position,

especially when Lulu responds to Yasko's protocol so well. The

difference Yasko has made in our house is gargantuan, so Maarten and

I just thank our lucky stars that we've found her. You, of course,

will have to make your own assessment, but that is mine at this

point.

All this being said, I do think that a number of the Gordon products

and the RNAs are very good products. Dr. Yasko seems dismayed at the

prices of the RNAs (I suspect that this may be Gordon, but just my

hunch here). She always says that they are tools you can choose to

use or not, as yu see ift and as finances allow. She always gives

many supplement alternatives, and she suggests ways of using the

RNAs in small doses in order to save on money. It took us a long

time to try the RNAs, but now that we have, we are sort of hooked on

several of them -- from our experience they seem to have a good

impact. And of course the Metals RNAs - which we haven't tried yet

as we are not yet in that detox part of the protocol (Step Two) --

are what is making for some of those legendary metal dumps you see

in some of the kids urinary and feces metal tests. So far, it's

mostly Yasko's supplement-based protocols that have made the

biggests impacts on Lulu -- the aluminum/lead protocol, strep

protocol, zinc/copper balance and glutamate/GABA balance protocols,

Vitamin D and Vitamin K1/K2, NADH for glutathione recycling. We

have a long way to go still, so I'm excited to finally have the

genetics and GAR and be able to move forward. I will certainly keep

you posted on how Lulu progresses.

I do think that the NO and BH4/folate issues will be interesting for

you to pursue. Lulu is hetero for an NOS mutation, as well as for

MTHFR 1298, so this does make for two strikes against BH4 -- and she

has all the markers of a problem with recycling BH4. So we hope to

begin that soon.

Well, got to go get dinner rolling!

Many hugs to you and yours,

Theresa

>

> Thank you Theresa,

>

> Indeed it is my son's complications after anaesthesia (Nitrous

oxide

> and some other stuff) that pointed to me the need to look more

> deeply in this entire genetic/MTHFR staff.

> He has some BIG regressions with some usual DAN things, so I am

sure

> that genetic is the way to go for him to understand more of this.

> You are the first person that explained to me about some of the

> Folates/B12/aneastesia stuff I was worry about because of my son's

> head circumference decreasing after anaesthesia, while regressing

> into autism in parallel.

> I don't know why, I was always suspecting that all this

Yasko/Gordon

> staff is more like people trying to make money from snake oil,

maybe

> because of Gordon's very " MARKETING " style.

> Now I am convinced that there is science behind it and I want to

> try...

> It is a little expansive though, so I am looking for the right

> arguments too convince my dear husband that is tired of spending

so

> much money without seeing progress...

>

> Regards,

>

> Liora

>

>