Re: PCT - Meeting this week to discuss Sam

[Guest guest]

Oh Honey Good Luck, if anyone deserves it you do. All bits crossed here.

Luv C

x

[Guest guest]

Oh evrything crossed here Mandi, when will you know?

Really hoping for a positive result for you.

GOOD LUCK

Vicky

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

[Guest guest]

In a message dated 01/08/2006 10:31:06 GMT Standard Time, Mum231ASD@... writes:

Keep your bits crossed for me people

Mandi x

Thinking of you, Mandi! Bits all crossed here in our house!

Darla XXXXX

[Guest guest]

In a message dated 01/08/2006 13:46:33 GMT Daylight Time, MaddiganV@... writes:

Oh evrything crossed here Mandi, when will you know?

Really hoping for a positive result for you.

>>Me too - they asked if I want to be copied in on the response to Dr Heard and suggested that may only be a matter of weeks.................spooky

Had telephone consult with Dr H this AM, we have only asked for 1.5K at this stage - he needs tests to plan treatments so won't say what treatment are for - so he is hopeful too

Let them know 'who I am' and that I've worked extensively with both the assessing GP and CE

I think they will review it now rembering me and may just decide it would be easier to say yes LOL - I can hope!

Mandi x

[Guest guest]

Ooooh soo exsciting lots of luck again.

caroline

x

[Guest guest]

Best of luck, Mandi! Must say, I'd love to see you in action with these

people, lol.

Anne-Marie

[Guest guest]

BEST OF

LUCK MANDI!!! SARA XXX

PCT - Meeting this week to discuss Sam

Hi Troops

Finally got past the evil 'witch with the switch' receptionist

at the PCT to be told they are meeting later this week and that they meet on

demand and usually every 3 weeks - so this is excellent considering the wait Jo

had for review of Darryls case.

The request has to go to the clinical review committee - which I

found out is the Chief Exec of the PCT (worked with him during fundholding

days) and a GP - my ole mate Lionel (also worked with him

during fundholding). Thats all!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I explained that I didn't think Dr Heard gave enough background

information for them to make a decision but they said its too late to organise

me giving them a presentation for this week. I also said I was concerned

because if there was somebody who knew ewough about it to make a decision then

I wouldn't have to go out of the area. She said they contact experts if they

don't have the skills. I told her there aren't any LOL

Also said I was part of a group of parents who will be making an

application to N.I.C.E for a review of the evidence because there is plenty.

Keep your bits crossed for me people

Mandi x

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[Guest guest]

Good luck Mandi !!!

Hugs

Jess

>

> Hi Troops

>

> Finally got past the evil 'witch with the switch' receptionist at the PCT to

> be told they are meeting later this week and that they meet on demand and

> usually every 3 weeks - so this is excellent considering the wait Jo had for

> review of Darryls case.

>

> The request has to go to the clinical review committee - which I found out

> is the Chief Exec of the PCT (worked with him during fundholding days) and a

GP

> - my ole mate Lionel (also worked with him during fundholding). Thats

> all!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>

> I explained that I didn't think Dr Heard gave enough background information

> for them to make a decision but they said its too late to organise me giving

> them a presentation for this week. I also said I was concerned because if

> there was somebody who knew ewough about it to make a decision then I

wouldn't

> have to go out of the area. She said they contact experts if they don't have

> the skills. I told her there aren't any LOL

>

> Also said I was part of a group of parents who will be making an application

> to N.I.C.E for a review of the evidence because there is plenty.

>

> Keep your bits crossed for me people

>

> Mandi x

>

[Guest guest]

Good luck Mandi - I don't know how you keep you temper with these

people - they are such jobsworth! But if anyone can do it you can !

Peta x

>

> Hi Troops

>

> Finally got past the evil 'witch with the switch' receptionist at

the PCT to

> be told they are meeting later this week and that they meet on

demand and

> usually every 3 weeks - so this is excellent considering the wait

Jo had for

> review of Darryls case.

>

> The request has to go to the clinical review committee - which I

found out

> is the Chief Exec of the PCT (worked with him during fundholding

days) and a GP

> - my ole mate Lionel (also worked with him during fundholding).

Thats

> all!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>

> I explained that I didn't think Dr Heard gave enough background

information

> for them to make a decision but they said its too late to organise

me giving

> them a presentation for this week. I also said I was concerned

because if

> there was somebody who knew ewough about it to make a decision

then I wouldn't

> have to go out of the area. She said they contact experts if they

don't have

> the skills. I told her there aren't any LOL

>

> Also said I was part of a group of parents who will be making an

application

> to N.I.C.E for a review of the evidence because there is plenty.

>

> Keep your bits crossed for me people

>

> Mandi x

>

[Guest guest]

> >

> > Keep your bits crossed for me people

> >

> > Mandi x

> >

>

The very best of good wishes for the meeting Mandi. You work so hard

for your family and all of us on the list - it would be a lovely

justice if this meeting went the right way.

Good luck chuck Sue

[Guest guest]

In a message dated 03/08/2006 22:06:43 GMT Daylight Time, eileen_mclennan@... writes:

Good luck, its a really brave thing to do, I admire your courage and your strength so much.

>>>Oh thats a nice way of puttign it - I think of it more as pig-headedness and stubborn but I like yours better

Mandi x

[Guest guest]

>

> Hi Troops

>

> Finally got past the evil 'witch with the switch' receptionist at

the PCT to

> be told they are meeting later this week and that they meet on

demand and

> usually every 3 weeks - so this is excellent considering the wait

Jo had for

> review of Darryls case.

>

> The request has to go to the clinical review committee - which I

found out

> is the Chief Exec of the PCT (worked with him during fundholding

days) and a GP

> - my ole mate Lionel (also worked with him during fundholding).

Thats

> all!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>

> I explained that I didn't think Dr Heard gave enough background

information

> for them to make a decision but they said its too late to organise

me giving

> them a presentation for this week. I also said I was concerned

because if

> there was somebody who knew ewough about it to make a decision

then I wouldn't

> have to go out of the area. She said they contact experts if they

don't have

> the skills. I told her there aren't any LOL

>

> Also said I was part of a group of parents who will be making an

application

> to N.I.C.E for a review of the evidence because there is plenty.

>

> Keep your bits crossed for me people

>

> Mandi x

>

[Guest guest]

Hi Mandi

Good luck, its a really brave thing to do, I admire your courage and

your strength so much.

Eileen and

>