Re: nothing to do with autism

[Guest guest]

In a message dated 26/07/2006 19:59:22 GMT Daylight Time, Moroza-@... writes:

The problem is that I don’t know who I need to be referred to! A podiatrist? OT? Someone else? Any ideas anyone?

Hi Sara

Paediatric Orthopaedic Specialist could be worth a try.

Love Caroline

xxx

PS Nothing offtopic here Honey, if it bothers you, ask us, we'll answer anything!

I once asked about buying a cake in London, nobody answered mind u but u know worth a shot!!

[Guest guest]

In a message dated 26/07/2006 19:59:22 GMT Daylight Time, Moroza-@... writes:

The problem is that I don’t know who I need to be referred to! A podiatrist? OT? Someone else? Any ideas anyone?

>>Othopaedic Sugeon I think, a paediatric one if you have access locally. Sam and Tom and my DH have wonky toes - they all look just the same this is third toe points wrong way and with secod toe opposite way, makes a circular gap there. No problems.

Mandi x

[Guest guest]

In a message dated 26/07/2006 19:59:22 GMT Daylight Time, Moroza-@... writes:

The problem is that I don’t know who I need to be referred to! A podiatrist? OT? Someone else? Any ideas anyone?

>>Othopaedic Sugeon I think, a paediatric one if you have access locally. Sam and Tom and my DH have wonky toes - they all look just the same this is third toe points wrong way and with secod toe opposite way, makes a circular gap there. No problems.

Mandi x

[Guest guest]

Hi Sara

I'd assume at some stage they can be operated on -just like with hammer toes.

But they

might make you wait until the operation wouldn't be undone by another 'toe'

growth spurt.

Jess

>

> Hello everybody, sorry to bother everybody with a problem that has nothing

> to do with autism but I don't know who else to ask! We have only recently

> noticed that Tom has deformed baby toes. At the `knuckle' the toes bend back

> in towards the feet at 90 degrees. I showed the GP yesterday and he just

> agreed that they weren't normal and said there's nothing we can do about it.

> I don't accept this and think they'll cause big problems when he's older and

> I want to ask for a second opinion/ referral. The problem is that I don't

> know who I need to be referred to! A podiatrist? OT? Someone else? Any ideas

> anyone?

>

> Sara x

>

>

>

> Re: OT: Proud Mum Moment

>

>

>

> Let me know when/ where to and I will send a cheque.

>

>

>

>

>

>

>

> Re: OT: Proud Mum Moment

>

>

>

> In a message dated 25/07/2006 08:11:20 GMT Daylight Time, HYPERLINK

> " mailto:jane_hogan@... " jane_hogan@... writes:

>

> Well done Tom, Put me down for £20 too.

>

> >>Its done, thank you very much from Tom

>

>

>

> Mandi x

>

>

>

>

> --

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> Checked by AVG Free Edition.

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>

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.1.394 / Virus Database: 268.10.3/395 - Release Date: 21/07/2006

>

[Guest guest]

Hi Sara

Just to confuse your picture. T has undeveloped arches/flat feet but

he doesn't and never has toe walked. We are off soon to have those

inserts for his shoes fitted.

The paed. podiatrist told me that undeveloped arches is fairly commn

across the whole child population not just autists. In fact, I had

them as a child.

Gail

>

> Hi Jane,

>

> Thanks for your reply. ‘there’s no reason why a child with

autism should toe walk’ but they do! According to our doctors,

there’s no reason why a child with autism should do anything and

there’s no reason for autism! I would like to hear from other

people on this list actually…can everyone with a child who toe

walks look at them standing with their weight on their feet, I just

want to know if my VB consultant is right and whether it’s caused

by undeveloped arches. Tom certainly hasn’t got any ! (arches)

>

> Interesting methinks…

>

> Sara x

>

>

>

> Re: Re: nothing to do with

autism

>

>

>

> 

>

> We were referred to Orthopaedic Surgeon at Alder Hey Children's

Hospital with my 11 year old a few years ago.

>

> He said there was no known reason why a child with autism should

toe walk. He said there was nothing physical that should lead to

this behaviour. He did say we could try splints to stretch the

tendons. The tendons on one of his legs had shortened because he

has toe walked for so long. However, the surgeon told us that the

likelihood was that my son would toe walk once again when the

splints were removed. He did say we could consider surgery at a

later date, but again this may not alter the toe walking in the long

term. We certainly would not go down that route unless toe walking

caused him discomfort or limited his mobility - which it does not at

the moment.

>

>

>

> We have tried physio, OT, you name it and nothing has worked. We

are now trying out prism glasses to see if they help. It is early

days but we have seem some improvement when he is wearing them and

immediately after he removes them. these alter lower the line of

vision which some research has shown can help with toe walking.

>

>

>

> Jane

>

> Re: [Autism-Biomedical--Europe] Re: nothing to do with

autism

>

>

>

>

>

> In a message dated 27/07/2006 13:27:40 GMT Standard Time,

HYPERLINK " mailto:m.easthope@... " m.easthope@... writes:

>

> Tom’s VB consultant said toe walking is the result of unformed

arches on a child’s feet †" ie failure ot develop which I think

is the definition of autism and not some mystery as is commonly made

out †" I’m wondering if Tom’s unformed arches and repetitive

jumping (he jumps almost non-stop) are causing a deformity. Just a

thought.

>

> Sara,

>

> I've heard this as well. I can ask my brother in law about the

deformity being caused by toe-walking. He's a pediatric bone

surgeon and he does lots of work on toes and finger bones. This is

of interest to me because toe-walks a lot (and has always done

so) he refuses to wear any shoes with hard soles so he can prance

around like a ballerina in his soft sole shoes. If it can cause bone

deformity then I guess it would be something that we might need to

look into further.

>

>

>

> I have on my *infinite list of things to do* to look into the sole

inserts for the unformed arches. I have heard that this can be

quite helpful as well in providing the sensory input that they need

to help the problem. We do deep massage on the bottom of his feet as

much as I can remember to do it and when he can tolerate it (just

when playing in the house or whatever). I have no idea if this is

helpful but hey, it makes me feel better, lol.

>

>

>

> Will let you know if I find anything interesting from the ped

surgeon.

>

>

>

> All the best,

>

> Darla

>

>

>

>

>

>

>

>

> --

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.394 / Virus Database: 268.10.3/395 - Release Date:

21/07/2006

>

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.1.394 / Virus Database: 268.10.4/401 - Release Date:

26/07/2006

>

[Guest guest]

.. What's NHA?

>

> Sorry I meant NHS lol!

PS My daughter, with the curly toes, is not autistic, sorry should

have said that earlier

K

[Guest guest]

My Joe used to toe walk, due to his sacrum being distended

(apparently). Our chiropractor treated this and he hasn't toe walked

in over a year now

[Guest guest]

I thought toe walking was a symptom of mercury poisoning;

as in the now famous paper by binstock/bernard/Redwood/McGinnis

comparing symptoms of autism and mercury poisoning:

http://www.autismwebsite.com/ari/vaccine/mercurylong.htm

There is table about halfway down with symptoms, just search

for 'toe'.

> > >

> > > Hi Jane,

> > >

> > > Thanks for your reply. ‘there’s no reason why a child with

autism

> > > should toe walk’ but they do! According to our doctors,

there’s no

> > > reason why a child with autism should do anything and there’s

no

> > > reason for autism! I would like to hear from other people on

this list

> > > actually…can everyone with a child who toe walks look at them

standing

> > > with their weight on their feet, I just want to know if my VB

> > > consultant is right and whether it’s caused by undeveloped

arches. Tom

> > > certainly hasn’t got any ! (arches)

> > >

> > > Interesting methinks…

> > >

> > > Sara x

> > >

> > >

> > >

> > > * Re: Re: nothing to do

with autism

> > >

> > >

> > >

> > > 

> > >

> > > We were referred to Orthopaedic Surgeon at Alder Hey Children's

> > > Hospital with my 11 year old a few years ago.

> > >

> > > He said there was no known reason why a child with autism

should toe

> > > walk. He said there was nothing physical that should lead to

this

> > > behaviour. He did say we could try splints to stretch the

tendons.

> > > The tendons on one of his legs had shortened because he has toe

walked

> > > for so long. However, the surgeon told us that the likelihood

was

> > > that my son would toe walk once again when the splints were

removed.

> > > He did say we could consider surgery at a later date, but again

this

> > > may not alter the toe walking in the long term. We certainly

would

> > > not go down that route unless toe walking caused him discomfort

or

> > > limited his mobility - which it does not at the moment.

> > >

> > >

> > >

> > > We have tried physio, OT, you name it and nothing has worked.

We are

> > > now trying out prism glasses to see if they help. It is early

days

> > > but we have seem some improvement when he is wearing them and

> > > immediately after he removes them. these alter lower the line of

> > > vision which some research has shown can help with toe walking.

> > >

> > >

> > >

> > > Jane

> > >

> > > * Re: Re: nothing to do with

> > > autism

> > >

> > >

> > >

> > >

> > >

> > > In a message dated 27/07/2006 13:27:40 GMT Standard Time,

> > > m.easthope@... <mailto:m.easthope%40>

> > <mailto:m.easthope@... <mailto:m.easthope%40>> writes:

> > >

> > > Tom’s VB consultant said toe walking is the result of unformed

> > > arches on a child’s feet †" ie failure ot develop which I

think

> > > is the definition of autism and not some mystery as is

> > > commonly made out †" I’m wondering if Tom’s unformed

arches and

> > > repetitive jumping (he jumps almost non-stop) are causing a

> > > deformity. Just a thought.

> > >

> > > Sara,

> > >

> > > I've heard this as well. I can ask my brother in law about the

> > > deformity being caused by toe-walking. He's a pediatric bone

> > > surgeon and he does lots of work on toes and finger bones. This

> > > is of interest to me because toe-walks a lot (and has

always

> > > done so) he refuses to wear any shoes with hard soles so he can

> > > prance around like a ballerina in his soft sole shoes. If it can

> > > cause bone deformity then I guess it would be something that we

> > > might need to look into further.

> > >

> > >

> > >

> > > I have on my *infinite list of things to do* to look into the

sole

> > > inserts for the unformed arches. I have heard that this can be

> > > quite helpful as well in providing the sensory input that they

> > > need to help the problem. We do deep massage on the bottom of

his

> > > feet as much as I can remember to do it and when he can tolerate

> > > it (just when playing in the house or whatever). I have no idea

> > > if this is helpful but hey, it makes me feel better, lol.

> > >

> > >

> > >

> > > Will let you know if I find anything interesting from the ped

surgeon.

> > >

> > >

> > >

> > > All the best,

> > >

> > > Darla

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > --

> > > No virus found in this incoming message.

> > > Checked by AVG Free Edition.

> > > Version: 7.1.394 / Virus Database: 268.10.3/395 - Release Date:

> > 21/07/2006

> > >

> > >

> > > --

> > > No virus found in this outgoing message.

> > > Checked by AVG Free Edition.

> > > Version: 7.1.394 / Virus Database: 268.10.4/401 - Release Date:

> > 26/07/2006

> > >

> > >

> > > ----------------------------------------------------------

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG Free Edition.

> > > Version: 7.1.394 / Virus Database: 268.10.4/401 - Release Date:

7/26/06

> >

> >

> >

> > --

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.1.394 / Virus Database: 268.10.4/401 - Release Date:

26/07/2006

> >

> >

> > --

> > No virus found in this outgoing message.

> > Checked by AVG Free Edition.

> > Version: 7.1.394 / Virus Database: 268.10.4/401 - Release Date:

26/07/2006

> >

> >

> > ------------------------------------------------------------------

------

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.1.394 / Virus Database: 268.10.4/401 - Release Date:

7/26/06

>