Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 my name is connie. I live in Pennsylvania. I was diagnosed with ALS in Feb. 2005. I feel many frustrations in dealing with this disease. Aside from losing my ability to drive, my independence has been taken from me. I no longer am able to get out and socialize and spend a lot my days alone. My husband and daughter go out to work and that leaves me here at home. Fortunately I have our 2 dogs and 4 cats to keep me company. The friends I had in the past have no longer associate with me.A couple of hours during the week I have an attendant come in to help me, but once she leaves I have to wait for the others to come home. Life at times is so boring. My husband has epilepsy. His seisures are not completely controlled so when he does have a seizure it can be either a gran mal or petit mal. Most recently they have been gran mal. I makes it difficult especially when we are home alone. I use a wheelchair and when he does fall to the ground I am unable to help him. I do my best to make sure nothing is in his way then I call my daughter. Once he is alert again he is totally unaware that he had a seizure and denies that anything happened. He gets angry when I tell him about his seizure. This is extremely frustrating. He is under doctors care and takes his meds as required, but the seizures still break through. Quote Link to comment Share on other sites More sharing options...
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