Re: Luka's recent improvements - LONG

[Guest guest]

Hi Natasa

This sounds like really good progress - well done.

What is Inflammation Control by VRP?

Peta

>

> Hi all, a while ago I posted about our son’s massive improvements

> on Inflammation Control by VRP. We have added some other things

since

> and have now had almost 6 weeks of continuous improvements. We are

very

> pleased with what we are seeing and decided to share more details

in

> case someone recognises his ‘profile’ and can benefit in

> some way. Also, as two of the new supplements we have introduced

are

> relatively ‘unknown’, I would love to hear from anyone who

> has used them or is planning to try.

>

> Although we do not consider him ‘recovered’, and there is

> still a long way to go, for the first time now we feel like he has

got a

> ‘foot in the door’ recovery-wise. On particularly good

> days it feels like both his feet are firmly in the door!!! Like we

are

> seeing more and more of the real child inside him.

>

> He has been on LDN since late February (half dose only, as could

not

> tolerate the full dose after a while). We saw good things with it,

in

> most areas, mostly social and communication. About 6 weeks ago we

> started Inlammation Control and saw great improvements straight

away, as

> if all those good effects of LDN just amplified tenfold. We also

saw

> some rashes, runny nose and cough, and decided to added Candex, as

per

> viral protocols. A week or so later we added a herbal supplement

> Scutellaria B (by Solgar), another chinese herb that is supposed to

> inhibit inflammation. It is also a good antioxidant, antibacterial

> etc… as usual I have tons of papers on this one and can

forward

> Shortly after that we started Houston’s Zyme Prime and saw a FLAT

> belly for the first time ever!! (thanks Mandi, I honestly had no

idea

> there was such thing as a tastles enzymes )

>

> As I said he has been doing very well on the above combo. I am

> researching some more herbs at the moment (having seen the ‘magic

> of herbs’ in action I am now a convert!), will let you know of

> results, if any.

>

>

> Luka’s ‘symptoms and interventions’ profile:

>

> Luka was always a big ‘gut’ baby. Massive appetite with

> very poor digestion. Had diarrheas from the day he was born. Bad

reflux

> †" although unfortunatelly we did not know that at the time

> always screamed when put in horizontal possition. Always had a red

ring

> around annus (went away on LDN).

>

> He has also belonged to the ‘hyperimmune catergory’

> †" hardly ever had colds or runny nose, on few occasions that he

> did develop a fever he would regress in every way.

>

> Met all his physical milestones on time, or often before time †"

> he crawled (ran!) at the age of 5 months, at about the same time he

> started to prop himself up against furniture. As soon as he could

stand

> up he stood on his toes! Started teething at 4 months, by the end

of his

> 6th month had EIGHT fully grown teeth in all. Walked (ran!) at 11

> months, mostly on toes again.

>

> He was never severe, in terms of always having some, although

minimal,

> eye contact, also liked physical contact with parents †" cuddles

> and rough and tumble, liked presence of other people (although as

Darla

> said he did not feel any need to communicate or ‘share

> experiences’), also liked other kids, but only for as long as

> they would engage in physical 'play'. Mostly this meant him

running in

> circles and them chasing after him! As soon as a kid would get

tired

> Luka would lose interest in the ‘play’. He also loved

> having ‘screaming exchanges' with other kids (and still does lol,

> the difference being that now he looks them in the eyes and laughs,

> whereas before he used to scream and laugh while running away from

them)

>

> He never really regressed but never developed normally †" he

> bubbled less than other babies, and showed less interest in toys

(or

> more, as in obsessing over one or two toys or videos), and he

missed out

> on pointing and waving phase. When he was around 13-14 months of

age he

> did go through a short period of waving by-by and sometimes

pointing to

> things. That soon dissapeared and he started to show lots of OCD,

and

> more and more stimming. He would spin his cups for hours and hours

on

> end, literally. He also started to develop VERY bad ADHD †" his

> focus and attention were almost non-existant by the time he was 18

> months old. Became manic and quite agressive. When not manic then

> looking deeply anxious. He also develped ezcema. His tantrums and

> transition problems got worse and worse, he was just getting

impossible

> to handle. No language or any form of communication, when he e.g.

wanted

> a biscuit he would just go into the kitchen, stand there and

scream.

>

> He did not have the MMR or the single vaccines during this period

(he

> did have all the early childhood vacs on schedule).

>

> We ‘unknowingly’ started interventions when he was about

> 17 months †" as we were looking to find the source of his allergy

> (what was causing the eczema), we cut out dairy completely. No more

> formula milk before bedtime. Unexpected to us he started sleeping

better

> - less waking up screaming during the night, less screaming and

sitting

> up in bed while trying to fall asleep. (soooo painfully obvious

now in

> retrospect).

>

> At 20 months, after realising that he definitely WAS on the

spectrum, we

> started gfcf sugar free. He responded very well, with drastic

reduction

> of ADHD. He just seemed to sober up within days of starting the

diet.

> His eczema cleared completely!

>

> His lab tests at the time showed bad gut dysbiosis, next to 0 good

> bacteria. His OAT test markers were all over the place, hardly

anything

> in the normal range. His blood results were mostly fine, but he

did have

> markers of chronic inflammation. Some B vitamins were poor or

> borderline, as were his omega 3’s. The thing that was most

> surprising (to our DAN at least, as we did not know what to expect

> anyway) was that his provoked urine challenge came out fine.

Everything

> within range.

>

>

> A short summary of sucessful and unsucessful treatments:

>

> He has done well on gfcf and sugar free and later SCD (dairy

free). He

> regressed on Supernutera, and all other 'multies' we tried

introducing,

> also had a VERY bad regression on calcium supplements. Had

nosebleed the

> day we tried adding Taurine.

>

> We did mb12 shots for 7-8 months - saw some great things about a

month

> into them but then benefits leveled off... no bad things from it

either.

> No other methylation support. No chelation.

>

> Apart from those mentioned above these are the sups he has been

doing

> well on lately: cp-1 probiotics, benfothiamine, nadh (powder form,

have

> run out recently), riboflavin, p5p, zinc picolinate, magnesium

> glycinate, selenium, l-carnitine, milk thistle. td-gluthatione.

All this

> was introduced between January and March this year.

>

> Hope this information can one day be of help to someone else.

>

> Natasa

>

> p.s. will be posting this on other boards, sorry for repeats.

>

>

>

>

>

>

>

>

>

>

>

>

> PostPosted: Wed Jun 07, 2006 11:44 pm Post subject: Reply

with

> quote Edit/Delete this post

> Hi and others,

>

> just to let you know that I have found a 'western' product with

these

> ingredients. It also contains luteolin extract from another plant,

which

> has many amazing properties as well (I can forward abstracts and a

few

> complete studies if anyone interested). The product is called

> Inflammation Control by Vitamin Research Product.

>

>

> Our story (short version, in case it helps with " profile for seeing

> benefits " ):

>

>

>

>

>

>

>

>

>

>

>

>

> Luka has been making very good progress lately on LDN - we started

it in

> March and have seen LOTS of good things. We have added this

Inflammation

> Control a couple of weeks ago and since then his progress has

> eccelerated tenfold!!! We have not started or stopped anything

else in

> these past two weeks (we stopped mb12 shots but that was almost a

month

> ago).

>

> Of course it could all be a coincidence. And it could be temporary

(I

> soooo pray it isn't!!!). Or could be things of the past months

finally

> coming together, but I do feel these herbs have a lot to do with

it.

>

> We have not done his genetics yet. He has always been a 'gut kid'

with

> bad reflux and a 'hyperimmune kid' (hardly ever sick, when he was

sick

> he would regress and be EXTREMELY irritable and hard to handle - I

> suspect his immune system grossly overworked and overinflammed). I

also

> suspect he is COMT++ and probably some VDR issues, as history of

VDR

> related issues in my family. He never regressed into autism,

didn't have

> MMR but I believe now each of his early childhood vaccines made

him cry

> a bit louder and longer for days afterwards Sad He is not severe

but

> lots of OCD (less and less nowdays) and very short-fuse temper.

>

> He has done well on gfcf and sugar free and later SCD dairy free.

He

> regressed on Supernutera, and all other 'multies' we tried

introducing,

> also had a very bad regression on calcium supplements. Had

nosebleed the

> day we tried adding Taurine.

>

> We did mb12 shots for 7-8 months - saw some great things about a

month

> into them but then benefits leveled off... no bad things from it

either.

> No other methylation support at present.

>

> Apart from LDN these are the sups he has been doing well on lately:

> benfothiamine, nadh (powder form), riboflavin, p5p, zinc

picolinate,

> magnesium glycinate, selenium, l-carnitine, milk thistle.

> td-gluthatione. All this was introduced between January and March.

>

> Hope this information can one day be of help to someone else.

>

> Best,

> Natasa

>

[Guest guest]

Natasa

This is awesome... You guys with these youngsters are doing a great job and I am secretly hoping that by the next conference in 2008/2009 organised by Treating Autism we are gonna have a whole heap of recovered kids, how cool would that be??

The Inflammation Control sounds really great Natasa could you post me the link again, I thought I had saved it but cant find it as usual.

Its so heartening to hear these updates, it makes all the effort seem so worthwhile.

Lotsa Love Caroline

xxx

[Guest guest]

In a message dated 12/07/2006 08:50:18 GMT Standard Time, CarolineTraa@... writes:

>>>Its so heartening to hear these updates, it makes all the effort seem so worthwhile.>>>

I agree!! I'm happy even to hear that a kid's pooping has improved, lol. Even that can help to alleviate some of the physical distress that many ASD kids experience.

I recently watched "'s story" on the danwebcast and it was very interesting and inspiring - even though her child is still profoundly autistic, the improvements were phenomenal.

Darla ~who will be tackling 's sleepless nights with recently aquired melatonin

[Guest guest]

Caroline, here is the link - Nutricentre has it for £40 minus 25%,

unless you can get it from the states (I would be interested to hear

what DrUsman thinks, if you ever get the chance to discuss it):

http://vrp.com/det/1525.asp?c=1152653926312 & k=/vrpsearch.asp & m=/includes\

/vrp.css & p=no & s=0

Natasa

>

> Natasa

> This is awesome... You guys with these youngsters are doing a great

job and

> I am secretly hoping that by the next conference in 2008/2009

organised by

> Treating Autism we are gonna have a whole heap of recovered kids, how

cool

> would that be??

> The Inflammation Control sounds really great Natasa could you post me

the

> link again, I thought I had saved it but cant find it as usual.

> Its so heartening to hear these updates, it makes all the effort seem

so

> worthwhile.

> Lotsa Love Caroline

> xxx

>

[Guest guest]

In a message dated 12/07/2006 23:44:58 GMT Daylight Time, neno@... writes:

Caroline, here is the link - Nutricentre has it for £40 minus 25%,unless you can get it from the states (I would be interested to hearwhat DrUsman thinks, if you ever get the chance to discuss it):http://vrp.com/det/1525.asp?c=1152653926312 & k=/vrpsearch.asp & m=/includes\/vrp.css & p=no & s=0

Natasa

I think she might be going off now so I wont ask just now but I will speak with her briefly on August 1st I will definitely ask her then Natasa, Is it anti-inflammatory and anti-bacterial too, wow...

We have started using the Asthma medication Singulair with , its one of the meds that Krigsman uses I believe and is anti-inflammatory for other conditions too. Our pharmacist knew the bloke who was a sales rep for them and he told them they had been doing trials for other conditions but since that guy has left have no more info. This si the start of our 3rd month and from the start it has helped, we have less pain, less posturing and with s recent impaction I wondered if it actually didnt bother her so much because was less painful. A theory that our paediatrician agrees with. So its helping but not helping everything. still takes her senna and lactulose and if I reduce those she becomes constipated. Now with the oxypowder, I am hoping to phase out the lactulose.

Its such a juggle but I prefer to use Oxypowder than lactulose and senna which I feel affect the body more physiologically if you know what I mean, eg drawing water into the bowel, osmotically per lactulose.

So we shall see I will keep you all posted but I will definitely ask her next time I speak with her.

Kind Regards

Caroline, Aberdeenshire

xx