DAWN__Re: Check in Please!!!

[Guest guest]

Helen,

It took 20 years for Teri Garr to be diagnosed, and the woman who

developed fit MS, Joy, it took 10 years. This is not an easy disease

to pin down. The diagnosis is by ellimination using the standard

Mc 2001 criteria. One of those criteria states you need two

exacerbations. The disease also affects each person differently

depending where in the Central nervous system it attacks, eye nerves,

the spin, the brain, or where ever. My case is complex because I have

a multitude of other things going on at the same time and what is

what gets real confusing. I have to be patient and not get all worked

up about this. It only makes me feel sicker to be upset about getting

a diagnosis. I have to keep functioning because I have a 5 year old

and 2 year old and I don't want to freak them out. For me this has to

be a journey and not a destination. I have to keep my eyes on the

road and not get caught up in the horizon.

Dawn

>

>

>

> Why is it taking the Dr. so long to diagnose you??? Are they

giving a

> reason??? My niece has MS and it took the doc 1 week to confirm

hers... She went

> from a healthy lady to a basket case in less than 2 weeks... They

have her

> on meds now and a special med I can't remember the name of and

she's able to

> walk again and has her sight back pretty good now too... She

tires so easy

> though... Good luck in getting a diagnosis...

> ((( Healthy Hugs )))

> Helen

>

> I am still in the process of being diagnosed with MS (it has been

3

> months now). My Neuro-Opthomologist said I have Dawson's fingers,

a

> type of leason very indicative of MS and now I have developed

Utoff

> symptom, loss of sight in my left eye due to over heating. The

Doctor

> said I am one execerbation away from being diagnosed. Other than

that

> I am great!

>

>

>

>

>

>

> " When life's problems seem overwhelming,

> look around and see what other people are coping with.

> You may consider yourself fortunate. "

>

[Guest guest]

) There's nothing to be sorry about Dawn ) We all have bad days... I'm sure everyone is giving you advice, (We like to to) Its not that we Know what you are to do, its just that we offer what we have experienced... I have learned to accept all advice politely and sort out what I want to listen too... Like they say, in one ear out the other ) It is depressing waiting for an answer, its the unknown that is so scary... Like a lot of us have said and gone through, we were very relieved to finally get the diagnosis, but not glad for what it was... Being ill and having small children to raise is very hard indeed! Been there done that, as so many on here probably have... To me my children were what kept me on my feet, now my grand daughters do the same thing as I watch them 6 days out of 7... Even my doc said that the girls are what keeps me active enough to not give up and just lay down and give in to this mess I deal with... So I try to look for even the slightest good thing even in a bad situation, very hard at times but there's usually something there to find that's good ) Don't get me wrong, I have Plenty of feeling blue days, but at least they don't last as long when I stop to think about it... Keep your chin up, post when ya can and we're always a good listening board ( and advice too! )

((( Happy Hugs )))Helen

I'm sorry Helen. I snapped a little. I have so many people asking so many questions I can hardly answer. I know so little and I do feel this frustration just laying under the surface of everything. I also snapped at the sears deliver people when they called today at 4pm saying my washer wouldn't be delivered. I think my snapping made them work hard to deliver it at 9pm last night. I have had such a crappy week. A hot water pipe burst in the kitchen and flooded our hard wood floors and they are warped. Everyone got the flu starting last Friday and since I had used the towels on the flood and I had no washer, I had nothing to clean puke up with, just boxes of tissues. I have had stinky laundry piling up for 2 weeks and I have no energy to go the laundry mat, if I even knew where one was...I am sorry if I was curt. With this new diagnosis everyone seems to have a lot to say about what I sould do. My sister-in-law believes I should have God cure me, but I go to the wrong church for that. I am not born again and no one finds a cure in the Catholic church. My parents want to move next to us to help out, one of my neighbors told me to be more positive and not get depressed. It's like.... wo... I need to get on meds and do my laundry before thinking about all of that!Helen. Hugs and Thanks.Dawn

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

[Guest guest]

) There's nothing to be sorry about Dawn ) We all have bad days... I'm sure everyone is giving you advice, (We like to to) Its not that we Know what you are to do, its just that we offer what we have experienced... I have learned to accept all advice politely and sort out what I want to listen too... Like they say, in one ear out the other ) It is depressing waiting for an answer, its the unknown that is so scary... Like a lot of us have said and gone through, we were very relieved to finally get the diagnosis, but not glad for what it was... Being ill and having small children to raise is very hard indeed! Been there done that, as so many on here probably have... To me my children were what kept me on my feet, now my grand daughters do the same thing as I watch them 6 days out of 7... Even my doc said that the girls are what keeps me active enough to not give up and just lay down and give in to this mess I deal with... So I try to look for even the slightest good thing even in a bad situation, very hard at times but there's usually something there to find that's good ) Don't get me wrong, I have Plenty of feeling blue days, but at least they don't last as long when I stop to think about it... Keep your chin up, post when ya can and we're always a good listening board ( and advice too! )

((( Happy Hugs )))Helen

I'm sorry Helen. I snapped a little. I have so many people asking so many questions I can hardly answer. I know so little and I do feel this frustration just laying under the surface of everything. I also snapped at the sears deliver people when they called today at 4pm saying my washer wouldn't be delivered. I think my snapping made them work hard to deliver it at 9pm last night. I have had such a crappy week. A hot water pipe burst in the kitchen and flooded our hard wood floors and they are warped. Everyone got the flu starting last Friday and since I had used the towels on the flood and I had no washer, I had nothing to clean puke up with, just boxes of tissues. I have had stinky laundry piling up for 2 weeks and I have no energy to go the laundry mat, if I even knew where one was...I am sorry if I was curt. With this new diagnosis everyone seems to have a lot to say about what I sould do. My sister-in-law believes I should have God cure me, but I go to the wrong church for that. I am not born again and no one finds a cure in the Catholic church. My parents want to move next to us to help out, one of my neighbors told me to be more positive and not get depressed. It's like.... wo... I need to get on meds and do my laundry before thinking about all of that!Helen. Hugs and Thanks.Dawn

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."