Re: Movicol etc plus language singing and carpet cleaning.

[Guest guest]

-Hi Steph,

Wow! Tom sounds like he's making great progress,but I did feel for

his suffering with tummy ache.

You've probably tried these things,but Katy has found warm Calmomile

and Peppermint teas very soothing,Also chicken broth and warm hot

water bottles.

Hope he's feeling better soon !

Love Sharon.XX

-- In Autism Treatment , " Sirr "

<mark.grabiec@...> wrote:

>

> Poor Tom still not cleared but getting better and lots more

language.

> Almost all of it echolalia but at least he's forming words and

saying

> them confidently. And singing like there's no tomorrow - we're

onto

> Kylie currently.

>

> BUT the movicol has made him virtually incontinent - his guts are

> virtually exploding. It's like gas builds up and he blows. Poor

man.

> And poor, poor carpet. Any ideas? We've also introduced quite a

bit

> more regularising food - veg (which he's eating!!!), less meat,

more

> water, more fruit, granary gf bread, no more dried pasta, fruit

juice

> lollies, lots of nuts (actually writing this I realise that his

diet

> is so much less restricted than 12 months ago). What on earth do

we

> do? it's been almost a month of exploding guts, that's not fair on

> anyone.

>

> Also - friends have seen him this weekend and he's been just

lovely

> with them. Mr Flirty, singing, interactive, bits of words. THey

were

> charmed and they've known him since birth. Lovely clever boy!

But

> damn those guts, when will it end. He's been in pain, taking my

hand

> and putting it on his lower gut always on his left (I think

there's a

> bend there)

>

> Any ideas anyone?

>

> Steph x

>

> Biomedical since Feb 05, changes every week!

>

[Guest guest]

-Hi Steph,

Wow! Tom sounds like he's making great progress,but I did feel for

his suffering with tummy ache.

You've probably tried these things,but Katy has found warm Calmomile

and Peppermint teas very soothing,Also chicken broth and warm hot

water bottles.

Hope he's feeling better soon !

Love Sharon.XX

-- In Autism Treatment , " Sirr "

<mark.grabiec@...> wrote:

>

> Poor Tom still not cleared but getting better and lots more

language.

> Almost all of it echolalia but at least he's forming words and

saying

> them confidently. And singing like there's no tomorrow - we're

onto

> Kylie currently.

>

> BUT the movicol has made him virtually incontinent - his guts are

> virtually exploding. It's like gas builds up and he blows. Poor

man.

> And poor, poor carpet. Any ideas? We've also introduced quite a

bit

> more regularising food - veg (which he's eating!!!), less meat,

more

> water, more fruit, granary gf bread, no more dried pasta, fruit

juice

> lollies, lots of nuts (actually writing this I realise that his

diet

> is so much less restricted than 12 months ago). What on earth do

we

> do? it's been almost a month of exploding guts, that's not fair on

> anyone.

>

> Also - friends have seen him this weekend and he's been just

lovely

> with them. Mr Flirty, singing, interactive, bits of words. THey

were

> charmed and they've known him since birth. Lovely clever boy!

But

> damn those guts, when will it end. He's been in pain, taking my

hand

> and putting it on his lower gut always on his left (I think

there's a

> bend there)

>

> Any ideas anyone?

>

> Steph x

>

> Biomedical since Feb 05, changes every week!

>

[Guest guest]

Hi Steph

we have had a bit of exploding diarhhea and have been advised to get

methycellulose. His poos are always mushy and he doesn't clear his

bowels. The above is fibre which will bulk it out helping Charlie to

go and his stretched rectum to start to shrink - that's the idea.

The trouble is I am still trying to find methyl.. which is suitable

and haven't found it yet.

Good luck

Peta-

-- In Autism Treatment , " Sharon "

<bill.molineux@...> wrote:

>

> -Hi Steph,

>

> Wow! Tom sounds like he's making great progress,but I did feel for

> his suffering with tummy ache.

>

> You've probably tried these things,but Katy has found warm

Calmomile

> and Peppermint teas very soothing,Also chicken broth and warm hot

> water bottles.

>

> Hope he's feeling better soon !

>

> Love Sharon.XX

>

>

>

> -- In Autism Treatment , " Sirr "

> <mark.grabiec@> wrote:

> >

> > Poor Tom still not cleared but getting better and lots more

> language.

> > Almost all of it echolalia but at least he's forming words and

> saying

> > them confidently. And singing like there's no tomorrow - we're

> onto

> > Kylie currently.

> >

> > BUT the movicol has made him virtually incontinent - his guts

are

> > virtually exploding. It's like gas builds up and he blows. Poor

> man.

> > And poor, poor carpet. Any ideas? We've also introduced quite

a

> bit

> > more regularising food - veg (which he's eating!!!), less meat,

> more

> > water, more fruit, granary gf bread, no more dried pasta, fruit

> juice

> > lollies, lots of nuts (actually writing this I realise that his

> diet

> > is so much less restricted than 12 months ago). What on earth

do

> we

> > do? it's been almost a month of exploding guts, that's not fair

on

> > anyone.

> >

> > Also - friends have seen him this weekend and he's been just

> lovely

> > with them. Mr Flirty, singing, interactive, bits of words.

THey

> were

> > charmed and they've known him since birth. Lovely clever boy!

> But

> > damn those guts, when will it end. He's been in pain, taking my

> hand

> > and putting it on his lower gut always on his left (I think

> there's a

> > bend there)

> >

> > Any ideas anyone?

> >

> > Steph x

> >

> > Biomedical since Feb 05, changes every week!

> >

>

[Guest guest]

Hi Steph

we have had a bit of exploding diarhhea and have been advised to get

methycellulose. His poos are always mushy and he doesn't clear his

bowels. The above is fibre which will bulk it out helping Charlie to

go and his stretched rectum to start to shrink - that's the idea.

The trouble is I am still trying to find methyl.. which is suitable

and haven't found it yet.

Good luck

Peta-

-- In Autism Treatment , " Sharon "

<bill.molineux@...> wrote:

>

> -Hi Steph,

>

> Wow! Tom sounds like he's making great progress,but I did feel for

> his suffering with tummy ache.

>

> You've probably tried these things,but Katy has found warm

Calmomile

> and Peppermint teas very soothing,Also chicken broth and warm hot

> water bottles.

>

> Hope he's feeling better soon !

>

> Love Sharon.XX

>

>

>

> -- In Autism Treatment , " Sirr "

> <mark.grabiec@> wrote:

> >

> > Poor Tom still not cleared but getting better and lots more

> language.

> > Almost all of it echolalia but at least he's forming words and

> saying

> > them confidently. And singing like there's no tomorrow - we're

> onto

> > Kylie currently.

> >

> > BUT the movicol has made him virtually incontinent - his guts

are

> > virtually exploding. It's like gas builds up and he blows. Poor

> man.

> > And poor, poor carpet. Any ideas? We've also introduced quite

a

> bit

> > more regularising food - veg (which he's eating!!!), less meat,

> more

> > water, more fruit, granary gf bread, no more dried pasta, fruit

> juice

> > lollies, lots of nuts (actually writing this I realise that his

> diet

> > is so much less restricted than 12 months ago). What on earth

do

> we

> > do? it's been almost a month of exploding guts, that's not fair

on

> > anyone.

> >

> > Also - friends have seen him this weekend and he's been just

> lovely

> > with them. Mr Flirty, singing, interactive, bits of words.

THey

> were

> > charmed and they've known him since birth. Lovely clever boy!

> But

> > damn those guts, when will it end. He's been in pain, taking my

> hand

> > and putting it on his lower gut always on his left (I think

> there's a

> > bend there)

> >

> > Any ideas anyone?

> >

> > Steph x

> >

> > Biomedical since Feb 05, changes every week!

> >

>

[Guest guest]

Hi Steph,

this is great news, obviously his constipation was causeing him alot

of problems.

IMO a month is a long time to have explosive diarrohea such as you

have described, if things are moving thro too fast he may not be

getting the nutrients he needs. Maybe it is time to reduce (or

stop) the movicol and see what happens?

Also his insides will be quite irritated by the movicol so i'm not

so sure about giving him too much strong roughage at the mo, such as

granary bread and nuts this may irrate more than it is helping IMHO,

perhaps stick to the fruit and veg more?

Do you think he has cleared all of the impaction yet? from your post

i suspect you think not?

On the sore spot that he wants you to touch, have you tried feeling

to see if it is firmer there? Maybe an impaction still if it is. You

could try fingertip massage there, if he will let you, to break it

up and move it along.

You are doing a great job, i would love to hear Kylie songs coming

from my ds, one day maybe.......

Hth, Nikki

ps i invested in a good steam cleaner for carpets and sofas, they

are really good at getting rid of the smell!!!!!!!!!!!!!!!!!!!!!!

>

> Poor Tom still not cleared but getting better and lots more

language.

> Almost all of it echolalia but at least he's forming words and

saying

> them confidently. And singing like there's no tomorrow - we're

onto

> Kylie currently.

>

> BUT the movicol has made him virtually incontinent - his guts are

> virtually exploding. It's like gas builds up and he blows. Poor

man.

> And poor, poor carpet. Any ideas? We've also introduced quite a

bit

> more regularising food - veg (which he's eating!!!), less meat,

more

> water, more fruit, granary gf bread, no more dried pasta, fruit

juice

> lollies, lots of nuts (actually writing this I realise that his

diet

> is so much less restricted than 12 months ago). What on earth do

we

> do? it's been almost a month of exploding guts, that's not fair on

> anyone.

>

> Also - friends have seen him this weekend and he's been just

lovely

> with them. Mr Flirty, singing, interactive, bits of words. THey

were

> charmed and they've known him since birth. Lovely clever boy!

But

> damn those guts, when will it end. He's been in pain, taking my

hand

> and putting it on his lower gut always on his left (I think

there's a

> bend there)

>

> Any ideas anyone?

>

> Steph x

>

> Biomedical since Feb 05, changes every week!

>

[Guest guest]

Hi Steph,

this is great news, obviously his constipation was causeing him alot

of problems.

IMO a month is a long time to have explosive diarrohea such as you

have described, if things are moving thro too fast he may not be

getting the nutrients he needs. Maybe it is time to reduce (or

stop) the movicol and see what happens?

Also his insides will be quite irritated by the movicol so i'm not

so sure about giving him too much strong roughage at the mo, such as

granary bread and nuts this may irrate more than it is helping IMHO,

perhaps stick to the fruit and veg more?

Do you think he has cleared all of the impaction yet? from your post

i suspect you think not?

On the sore spot that he wants you to touch, have you tried feeling

to see if it is firmer there? Maybe an impaction still if it is. You

could try fingertip massage there, if he will let you, to break it

up and move it along.

You are doing a great job, i would love to hear Kylie songs coming

from my ds, one day maybe.......

Hth, Nikki

ps i invested in a good steam cleaner for carpets and sofas, they

are really good at getting rid of the smell!!!!!!!!!!!!!!!!!!!!!!

>

> Poor Tom still not cleared but getting better and lots more

language.

> Almost all of it echolalia but at least he's forming words and

saying

> them confidently. And singing like there's no tomorrow - we're

onto

> Kylie currently.

>

> BUT the movicol has made him virtually incontinent - his guts are

> virtually exploding. It's like gas builds up and he blows. Poor

man.

> And poor, poor carpet. Any ideas? We've also introduced quite a

bit

> more regularising food - veg (which he's eating!!!), less meat,

more

> water, more fruit, granary gf bread, no more dried pasta, fruit

juice

> lollies, lots of nuts (actually writing this I realise that his

diet

> is so much less restricted than 12 months ago). What on earth do

we

> do? it's been almost a month of exploding guts, that's not fair on

> anyone.

>

> Also - friends have seen him this weekend and he's been just

lovely

> with them. Mr Flirty, singing, interactive, bits of words. THey

were

> charmed and they've known him since birth. Lovely clever boy!

But

> damn those guts, when will it end. He's been in pain, taking my

hand

> and putting it on his lower gut always on his left (I think

there's a

> bend there)

>

> Any ideas anyone?

>

> Steph x

>

> Biomedical since Feb 05, changes every week!

>

[Guest guest]

It's definitely firmer where he wants to touch BUT it comes and

goes, like pressure building up rather than like a blockage. Or

maybe it's actually both, he has a lovely flat tummy (not inherited

from me) yet it's still big loaded bowel.

Just played football with me - lovely.

He still needs to absolutely crouch to get the poo out - really

scrunched up. SItting on the loo doesn't do it any more. Eek.

> >

> > Poor Tom still not cleared but getting better and lots more

> language.

> > Almost all of it echolalia but at least he's forming words and

> saying

> > them confidently. And singing like there's no tomorrow - we're

> onto

> > Kylie currently.

> >

> > BUT the movicol has made him virtually incontinent - his guts

are

> > virtually exploding. It's like gas builds up and he blows. Poor

> man.

> > And poor, poor carpet. Any ideas? We've also introduced quite

a

> bit

> > more regularising food - veg (which he's eating!!!), less meat,

> more

> > water, more fruit, granary gf bread, no more dried pasta, fruit

> juice

> > lollies, lots of nuts (actually writing this I realise that his

> diet

> > is so much less restricted than 12 months ago). What on earth

do

> we

> > do? it's been almost a month of exploding guts, that's not fair

on

> > anyone.

> >

> > Also - friends have seen him this weekend and he's been just

> lovely

> > with them. Mr Flirty, singing, interactive, bits of words.

THey

> were

> > charmed and they've known him since birth. Lovely clever boy!

> But

> > damn those guts, when will it end. He's been in pain, taking my

> hand

> > and putting it on his lower gut always on his left (I think

> there's a

> > bend there)

> >

> > Any ideas anyone?

> >

> > Steph x

> >

> > Biomedical since Feb 05, changes every week!

> >

>

[Guest guest]

He's just voluntarily added bananas to his diet - got one from the

cupboard and peeled it. Also trying to spread his own peanut butter

etc. Good stuff. We have the carpet cleaner! Good grief, the poo,

the heat and the velocity. Not a match made in heaven nor anywhere

near it.

> >

> > Poor Tom still not cleared but getting better and lots more

> language.

> > Almost all of it echolalia but at least he's forming words and

> saying

> > them confidently. And singing like there's no tomorrow - we're

> onto

> > Kylie currently.

> >

> > BUT the movicol has made him virtually incontinent - his guts

are

> > virtually exploding. It's like gas builds up and he blows. Poor

> man.

> > And poor, poor carpet. Any ideas? We've also introduced quite

a

> bit

> > more regularising food - veg (which he's eating!!!), less meat,

> more

> > water, more fruit, granary gf bread, no more dried pasta, fruit

> juice

> > lollies, lots of nuts (actually writing this I realise that his

> diet

> > is so much less restricted than 12 months ago). What on earth

do

> we

> > do? it's been almost a month of exploding guts, that's not fair

on

> > anyone.

> >

> > Also - friends have seen him this weekend and he's been just

> lovely

> > with them. Mr Flirty, singing, interactive, bits of words.

THey

> were

> > charmed and they've known him since birth. Lovely clever boy!

> But

> > damn those guts, when will it end. He's been in pain, taking my

> hand

> > and putting it on his lower gut always on his left (I think

> there's a

> > bend there)

> >

> > Any ideas anyone?

> >

> > Steph x

> >

> > Biomedical since Feb 05, changes every week!

> >

>

[Guest guest]

Great idea Sharon, Tom is a big fan of fruit tea! Not sure he'd go

for broth but mint and chamomile a real possiblity

Steph

x

In the dark distant past we arranged to try and meet for coffee. SO

much time has elapsed I no longer drink coffee. If we leave it too

long I'll be on pureed food! Drop me an email!

> >

> > Poor Tom still not cleared but getting better and lots more

> language.

> > Almost all of it echolalia but at least he's forming words and

> saying

> > them confidently. And singing like there's no tomorrow - we're

> onto

> > Kylie currently.

> >

> > BUT the movicol has made him virtually incontinent - his guts

are

> > virtually exploding. It's like gas builds up and he blows. Poor

> man.

> > And poor, poor carpet. Any ideas? We've also introduced quite

a

> bit

> > more regularising food - veg (which he's eating!!!), less meat,

> more

> > water, more fruit, granary gf bread, no more dried pasta, fruit

> juice

> > lollies, lots of nuts (actually writing this I realise that his

> diet

> > is so much less restricted than 12 months ago). What on earth

do

> we

> > do? it's been almost a month of exploding guts, that's not fair

on

> > anyone.

> >

> > Also - friends have seen him this weekend and he's been just

> lovely

> > with them. Mr Flirty, singing, interactive, bits of words.

THey

> were

> > charmed and they've known him since birth. Lovely clever boy!

> But

> > damn those guts, when will it end. He's been in pain, taking my

> hand

> > and putting it on his lower gut always on his left (I think

> there's a

> > bend there)

> >

> > Any ideas anyone?

> >

> > Steph x

> >

> > Biomedical since Feb 05, changes every week!

> >

>

[Guest guest]

Hi Steph,

Is the place that we're talking about, where the colon turns on the

left side, at just below navel height, to go down the side to the

rectum?

If it is this is a common spot for blockages, i believe the turn

narrows the colon causing problems with stuff getting thro.

Try some gentle massage there, using finger tips to gentle push the

stuff in the direction that it should be going. Do this as often as

you can throughout the day to see if it helps. You may be surprised

what you can do from the outside :+)

Hth, Nikki

> It's definitely firmer where he wants to touch BUT it comes and

> goes, like pressure building up rather than like a blockage. Or

> maybe it's actually both, he has a lovely flat tummy (not

inherited

> from me) yet it's still big loaded bowel.

>