Re: Pacing Interventions - what next?

[Guest guest]

In a message dated 12/06/2006 17:13:40 GMT Daylight Time, nikkigoian44714@... writes:

Hi Joanne,sorry to butt in here but there was something in your post shich i didn't understand/hadn't come across before,was hoping you could explain a bit more.What is it in the organix urine test that shows up whethter MB12 might help your child???

>>>Not Joanne but Dr Nuebrander says there is no test

Mandi x

[Guest guest]

In a message dated 12/06/2006 17:13:40 GMT Daylight Time, nikkigoian44714@... writes:

Hi Joanne,sorry to butt in here but there was something in your post shich i didn't understand/hadn't come across before,was hoping you could explain a bit more.What is it in the organix urine test that shows up whethter MB12 might help your child???

>>>Not Joanne but Dr Nuebrander says there is no test

Mandi x

[Guest guest]

In a message dated 12/06/2006 17:13:40 GMT Daylight Time, nikkigoian44714@... writes:

Hi Joanne,sorry to butt in here but there was something in your post shich i didn't understand/hadn't come across before,was hoping you could explain a bit more.What is it in the organix urine test that shows up whethter MB12 might help your child???

>>>Not Joanne but Dr Nuebrander says there is no test

Mandi x

[Guest guest]

Hi Darla.

If you want to email me direct I have some info on the diet - what

to avoid where to buy etc.

Would suggest you buy " Children With Starving brains " book.

Its a guide to all the tests / treatments etc.

I can send you the link to it.

The DAN protocol would look at treating the gut first.

That would require a comprehensive stool analysis with parasitology.

It looks for good bacteria/ bad bacteria / yeast/ parasites /

inflammation / digestion of food etc..

You would treat depending on what you find.

Possibly antibiotics / probiotics / antifungals / enzymes .

The test is approx £240

An urine organix test would look at bacteria like candida /

chlostridia etc.. vitamins and mineral deficiencies.

Treat baddies and correct vitamins / minerals.

The test is approx £240

After that you can test for amino acids levels.

They all do jobs. e.g.Tryptophan affects melatonin (Sleep) and

Serotonin (mood)

So if you are low...poor sleep / bad mood .

Can be corrected with a customised formula or if just one of two low

you can supplement those.

Cost for this test approx £240 ... Customised formula £75 for 1

month.

Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20

shots.

It will show on the organix test whether this would help but worth a

try for most kids.

Would suggest you get vitamin levels sorted first as not enough

folinic acid will send your kid hyper and not enough B vits will

make them tired.

Then you can look at viruses - Herpes , chicken pox , epstein barr

virus etc..

You can do this through immunosciences in the USA.

Panel isnt cheap. You can do it via the Breakpear its about £700.

If viruses show up you can try some antivirals such as Acyclovir or

Valtrex if you GP is willing to give it.

Then you can look at Chelation ..Oral or transdermal DMSA or

Transdermal DMPS to shift heavy metals. (mercury lead etc )

Hope this helps you.

My email is

Joanne @ burkehouse . wanadoo . co. uk

>

> Hello All,

> Been trying to keep up with the posts and WOW - I can only just

comprehend

> what you lot are discussing!

>

> Here are some questions that I have -

> I started the enzymes and probiotics. I am on the wait for

Breakspear

> Hospital but that could be up to a year so in the meanwhile we are

visiting

> another practioner locally who will give me advice on supplements,

etc. I'll take

> Mandi's advice and put a two week gap in between interventions so

I'll go

> slow on our little man.

>

> What reading would be advisable to do next? I read that some of

you wished

> you'd starting chelating sooner, would it be good for me to look

into that?

> I only have a very rudimentary understanding of it. The

practioner that we

> see will conduct heavy metal testing on . Are there

different types

> of HMT? Obviously I don't want to waste our money on un-needed

tests!!

>

> Also - if anyone could give me some advice on GF/CF diets - I'd

like to be

> introducing solids/finger foods that are at least GF/CF but all

the

> biscuits/crackers, etc that I can find that qualify are loaded

with sugar. needs

> his crunchy bite and dissolve foods for his anxiety times (they

help him not

> to bite his clothes, arms, etc) Any recommendations?

>

> Thanks for any advice, books, links, etc that you may have.

>

> Regards,

> Darla

>

[Guest guest]

Hi Darla.

If you want to email me direct I have some info on the diet - what

to avoid where to buy etc.

Would suggest you buy " Children With Starving brains " book.

Its a guide to all the tests / treatments etc.

I can send you the link to it.

The DAN protocol would look at treating the gut first.

That would require a comprehensive stool analysis with parasitology.

It looks for good bacteria/ bad bacteria / yeast/ parasites /

inflammation / digestion of food etc..

You would treat depending on what you find.

Possibly antibiotics / probiotics / antifungals / enzymes .

The test is approx £240

An urine organix test would look at bacteria like candida /

chlostridia etc.. vitamins and mineral deficiencies.

Treat baddies and correct vitamins / minerals.

The test is approx £240

After that you can test for amino acids levels.

They all do jobs. e.g.Tryptophan affects melatonin (Sleep) and

Serotonin (mood)

So if you are low...poor sleep / bad mood .

Can be corrected with a customised formula or if just one of two low

you can supplement those.

Cost for this test approx £240 ... Customised formula £75 for 1

month.

Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20

shots.

It will show on the organix test whether this would help but worth a

try for most kids.

Would suggest you get vitamin levels sorted first as not enough

folinic acid will send your kid hyper and not enough B vits will

make them tired.

Then you can look at viruses - Herpes , chicken pox , epstein barr

virus etc..

You can do this through immunosciences in the USA.

Panel isnt cheap. You can do it via the Breakpear its about £700.

If viruses show up you can try some antivirals such as Acyclovir or

Valtrex if you GP is willing to give it.

Then you can look at Chelation ..Oral or transdermal DMSA or

Transdermal DMPS to shift heavy metals. (mercury lead etc )

Hope this helps you.

My email is

Joanne @ burkehouse . wanadoo . co. uk

>

> Hello All,

> Been trying to keep up with the posts and WOW - I can only just

comprehend

> what you lot are discussing!

>

> Here are some questions that I have -

> I started the enzymes and probiotics. I am on the wait for

Breakspear

> Hospital but that could be up to a year so in the meanwhile we are

visiting

> another practioner locally who will give me advice on supplements,

etc. I'll take

> Mandi's advice and put a two week gap in between interventions so

I'll go

> slow on our little man.

>

> What reading would be advisable to do next? I read that some of

you wished

> you'd starting chelating sooner, would it be good for me to look

into that?

> I only have a very rudimentary understanding of it. The

practioner that we

> see will conduct heavy metal testing on . Are there

different types

> of HMT? Obviously I don't want to waste our money on un-needed

tests!!

>

> Also - if anyone could give me some advice on GF/CF diets - I'd

like to be

> introducing solids/finger foods that are at least GF/CF but all

the

> biscuits/crackers, etc that I can find that qualify are loaded

with sugar. needs

> his crunchy bite and dissolve foods for his anxiety times (they

help him not

> to bite his clothes, arms, etc) Any recommendations?

>

> Thanks for any advice, books, links, etc that you may have.

>

> Regards,

> Darla

>

[Guest guest]

Hi Darla.

If you want to email me direct I have some info on the diet - what

to avoid where to buy etc.

Would suggest you buy " Children With Starving brains " book.

Its a guide to all the tests / treatments etc.

I can send you the link to it.

The DAN protocol would look at treating the gut first.

That would require a comprehensive stool analysis with parasitology.

It looks for good bacteria/ bad bacteria / yeast/ parasites /

inflammation / digestion of food etc..

You would treat depending on what you find.

Possibly antibiotics / probiotics / antifungals / enzymes .

The test is approx £240

An urine organix test would look at bacteria like candida /

chlostridia etc.. vitamins and mineral deficiencies.

Treat baddies and correct vitamins / minerals.

The test is approx £240

After that you can test for amino acids levels.

They all do jobs. e.g.Tryptophan affects melatonin (Sleep) and

Serotonin (mood)

So if you are low...poor sleep / bad mood .

Can be corrected with a customised formula or if just one of two low

you can supplement those.

Cost for this test approx £240 ... Customised formula £75 for 1

month.

Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20

shots.

It will show on the organix test whether this would help but worth a

try for most kids.

Would suggest you get vitamin levels sorted first as not enough

folinic acid will send your kid hyper and not enough B vits will

make them tired.

Then you can look at viruses - Herpes , chicken pox , epstein barr

virus etc..

You can do this through immunosciences in the USA.

Panel isnt cheap. You can do it via the Breakpear its about £700.

If viruses show up you can try some antivirals such as Acyclovir or

Valtrex if you GP is willing to give it.

Then you can look at Chelation ..Oral or transdermal DMSA or

Transdermal DMPS to shift heavy metals. (mercury lead etc )

Hope this helps you.

My email is

Joanne @ burkehouse . wanadoo . co. uk

>

> Hello All,

> Been trying to keep up with the posts and WOW - I can only just

comprehend

> what you lot are discussing!

>

> Here are some questions that I have -

> I started the enzymes and probiotics. I am on the wait for

Breakspear

> Hospital but that could be up to a year so in the meanwhile we are

visiting

> another practioner locally who will give me advice on supplements,

etc. I'll take

> Mandi's advice and put a two week gap in between interventions so

I'll go

> slow on our little man.

>

> What reading would be advisable to do next? I read that some of

you wished

> you'd starting chelating sooner, would it be good for me to look

into that?

> I only have a very rudimentary understanding of it. The

practioner that we

> see will conduct heavy metal testing on . Are there

different types

> of HMT? Obviously I don't want to waste our money on un-needed

tests!!

>

> Also - if anyone could give me some advice on GF/CF diets - I'd

like to be

> introducing solids/finger foods that are at least GF/CF but all

the

> biscuits/crackers, etc that I can find that qualify are loaded

with sugar. needs

> his crunchy bite and dissolve foods for his anxiety times (they

help him not

> to bite his clothes, arms, etc) Any recommendations?

>

> Thanks for any advice, books, links, etc that you may have.

>

> Regards,

> Darla

>

[Guest guest]

Hi Darla, this is a good link for all things diet-related:

http://www.autismndi.com/

I also find Specific Carbohydrate Diet links great for receipe ideas

etc, even if you are not on that diet it has great 'baked goods' recipe

links (chose the ones that are casein/dairy free, as SCD was not

originally designed for our kids).

If you have time and nerves it is best to bake your own gfcf snacks,

this site is great for ideas:

http://pecanbread.com/

(once you get into it the baking really does not take that much time!!)

to learn more about all biomed aspects, including latest treaments and

research:

www.danwebcast.com (free registration) - takes time to download and even

longer to watch, but invaluable latest info from the top people - Long

Beach is from the end of last year, they will have the April conference

on soon! I would highly recommend Martha Herbert's and Dr Bock's

presentations first if you are new to all this, will make a nice

introduction to all the other, more specific DAN! protocols and

theories...

Best of luck with it all,

Natasa

>

> Hello All,

> Been trying to keep up with the posts and WOW - I can only just

comprehend

> what you lot are discussing!

>

> Here are some questions that I have -

> I started the enzymes and probiotics. I am on the wait for Breakspear

> Hospital but that could be up to a year so in the meanwhile we are

visiting

> another practioner locally who will give me advice on supplements,

etc. I'll take

> Mandi's advice and put a two week gap in between interventions so I'll

go

> slow on our little man.

>

> What reading would be advisable to do next? I read that some of you

wished

> you'd starting chelating sooner, would it be good for me to look into

that?

> I only have a very rudimentary understanding of it. The practioner

that we

> see will conduct heavy metal testing on . Are there

different types

> of HMT? Obviously I don't want to waste our money on un-needed

tests!!

>

> Also - if anyone could give me some advice on GF/CF diets - I'd like

to be

> introducing solids/finger foods that are at least GF/CF but all the

> biscuits/crackers, etc that I can find that qualify are loaded with

sugar. needs

> his crunchy bite and dissolve foods for his anxiety times (they help

him not

> to bite his clothes, arms, etc) Any recommendations?

>

> Thanks for any advice, books, links, etc that you may have.

>

> Regards,

> Darla

>

[Guest guest]

Hi Joanne,

sorry to butt in here but there was something in your post shich i

didn't understand/hadn't come across before,was hoping you could

explain a bit more.

What is it in the organix urine test that shows up whethter MB12 might

help your child???

" always trying to learn more " Nikki ;+)

>

> Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20

> shots.

> It will show on the organix test whether this would help but worth a

> try for most kids.

[Guest guest]

Hi Joanne,

sorry to butt in here but there was something in your post shich i

didn't understand/hadn't come across before,was hoping you could

explain a bit more.

What is it in the organix urine test that shows up whethter MB12 might

help your child???

" always trying to learn more " Nikki ;+)

>

> Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20

> shots.

> It will show on the organix test whether this would help but worth a

> try for most kids.

[Guest guest]

Hi Joanne,

sorry to butt in here but there was something in your post shich i

didn't understand/hadn't come across before,was hoping you could

explain a bit more.

What is it in the organix urine test that shows up whethter MB12 might

help your child???

" always trying to learn more " Nikki ;+)

>

> Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20

> shots.

> It will show on the organix test whether this would help but worth a

> try for most kids.

[Guest guest]

A great place to start is

http://www.treatingautism.com/

It was set up by Mandi and others from this group and is prob

best place avail to guide you through all options and treatments.

I'd also call Breakspear again and beg! :-)

Gail

>

> Hello All,

> Been trying to keep up with the posts and WOW - I can only just

comprehend

> what you lot are discussing!

>

> Here are some questions that I have -

> I started the enzymes and probiotics. I am on the wait for

Breakspear

> Hospital but that could be up to a year so in the meanwhile we are

visiting

> another practioner locally who will give me advice on supplements,

etc. I'll take

> Mandi's advice and put a two week gap in between interventions so

I'll go

> slow on our little man.

>

> What reading would be advisable to do next? I read that some of

you wished

> you'd starting chelating sooner, would it be good for me to look

into that?

> I only have a very rudimentary understanding of it. The

practioner that we

> see will conduct heavy metal testing on . Are there

different types

> of HMT? Obviously I don't want to waste our money on un-needed

tests!!

>

> Also - if anyone could give me some advice on GF/CF diets - I'd

like to be

> introducing solids/finger foods that are at least GF/CF but all

the

> biscuits/crackers, etc that I can find that qualify are loaded

with sugar. needs

> his crunchy bite and dissolve foods for his anxiety times (they

help him not

> to bite his clothes, arms, etc) Any recommendations?

>

> Thanks for any advice, books, links, etc that you may have.

>

> Regards,

> Darla

>

[Guest guest]

What Joanne would mean is MMA (methylmalonate), one of the methylation cofactor markers, which if elevated may indicate if your child needs MB12. My lads MMA was raised and he's responded really well to MB12. Also, if homocysteine is either high or low is another indicator.

Diane

Re: Pacing Interventions - what next?

Hi Joanne,sorry to butt in here but there was something in your post shich i didn't understand/hadn't come across before,was hoping you could explain a bit more.What is it in the organix urine test that shows up whethter MB12 might help your child???"always trying to learn more" Nikki ;+)> > Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20 > shots.> It will show on the organix test whether this would help but worth a > try for most kids.

[Guest guest]

What Joanne would mean is MMA (methylmalonate), one of the methylation cofactor markers, which if elevated may indicate if your child needs MB12. My lads MMA was raised and he's responded really well to MB12. Also, if homocysteine is either high or low is another indicator.

Diane

Re: Pacing Interventions - what next?

Hi Joanne,sorry to butt in here but there was something in your post shich i didn't understand/hadn't come across before,was hoping you could explain a bit more.What is it in the organix urine test that shows up whethter MB12 might help your child???"always trying to learn more" Nikki ;+)> > Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20 > shots.> It will show on the organix test whether this would help but worth a > try for most kids.

[Guest guest]

What Joanne would mean is MMA (methylmalonate), one of the methylation cofactor markers, which if elevated may indicate if your child needs MB12. My lads MMA was raised and he's responded really well to MB12. Also, if homocysteine is either high or low is another indicator.

Diane

Re: Pacing Interventions - what next?

Hi Joanne,sorry to butt in here but there was something in your post shich i didn't understand/hadn't come across before,was hoping you could explain a bit more.What is it in the organix urine test that shows up whethter MB12 might help your child???"always trying to learn more" Nikki ;+)> > Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20 > shots.> It will show on the organix test whether this would help but worth a > try for most kids.

[Guest guest]

What level was the MMA? Luke's level was HIGH - 10.52 - but Dr has not picked this up as an issue and I am wondering if it is not that high?

Nicola

Re: Pacing Interventions - what next?

Hi Joanne,sorry to butt in here but there was something in your post shich i didn't understand/hadn't come across before,was hoping you could explain a bit more.What is it in the organix urine test that shows up whethter MB12 might help your child???"always trying to learn more" Nikki ;+)> > Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20 > shots.> It will show on the organix test whether this would help but worth a > try for most kids.

[Guest guest]

What reference range is on your results? On mine, it should be less than 4.8, I think. My lads was a bit less than this, but on the high side, we went more on the high homocysteine. Who is your doc?

Diane

Re: Pacing Interventions - what next?

Hi Joanne,sorry to butt in here but there was something in your post shich i didn't understand/hadn't come across before,was hoping you could explain a bit more.What is it in the organix urine test that shows up whethter MB12 might help your child???"always trying to learn more" Nikki ;+)> > Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20 > shots.> It will show on the organix test whether this would help but worth a > try for most kids.

[Guest guest]

What reference range is on your results? On mine, it should be less than 4.8, I think. My lads was a bit less than this, but on the high side, we went more on the high homocysteine. Who is your doc?

Diane

Re: Pacing Interventions - what next?

Hi Joanne,sorry to butt in here but there was something in your post shich i didn't understand/hadn't come across before,was hoping you could explain a bit more.What is it in the organix urine test that shows up whethter MB12 might help your child???"always trying to learn more" Nikki ;+)> > Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20 > shots.> It will show on the organix test whether this would help but worth a > try for most kids.

[Guest guest]

Hi Darla, this is a good link for all things diet-related:

http://www.autismndi.com/

I also find Specific Carbohydrate Diet links great for receipe ideas

etc, even if you are not on that diet it has great 'baked goods' recipe

links (chose the ones that are casein/dairy free, as SCD was not

originally designed for our kids).

If you have time and nerves it is best to bake your own gfcf snacks,

this site is great for ideas:

http://pecanbread.com/

(once you get into it the baking really does not take that much time!!)

to learn more about all biomed aspects, including latest treaments and

research:

www.danwebcast.com (free registration) - takes time to download and even

longer to watch, but invaluable latest info from the top people - Long

Beach is from the end of last year, they will have the April conference

on soon! I would highly recommend Martha Herbert's and Dr Bock's

presentations first if you are new to all this, will make a nice

introduction to all the other, more specific DAN! protocols and

theories...

Best of luck with it all,

Natasa

>

> Hello All,

> Been trying to keep up with the posts and WOW - I can only just

comprehend

> what you lot are discussing!

>

> Here are some questions that I have -

> I started the enzymes and probiotics. I am on the wait for Breakspear

> Hospital but that could be up to a year so in the meanwhile we are

visiting

> another practioner locally who will give me advice on supplements,

etc. I'll take

> Mandi's advice and put a two week gap in between interventions so I'll

go

> slow on our little man.

>

> What reading would be advisable to do next? I read that some of you

wished

> you'd starting chelating sooner, would it be good for me to look into

that?

> I only have a very rudimentary understanding of it. The practioner

that we

> see will conduct heavy metal testing on . Are there

different types

> of HMT? Obviously I don't want to waste our money on un-needed

tests!!

>

> Also - if anyone could give me some advice on GF/CF diets - I'd like

to be

> introducing solids/finger foods that are at least GF/CF but all the

> biscuits/crackers, etc that I can find that qualify are loaded with

sugar. needs

> his crunchy bite and dissolve foods for his anxiety times (they help

him not

> to bite his clothes, arms, etc) Any recommendations?

>

> Thanks for any advice, books, links, etc that you may have.

>

> Regards,

> Darla

>

[Guest guest]

Hi

Organix urine test available via your DAN practitioner.

Can also be done via IWDL.

I think Diane beat me to the answer.

Methylmalonate would be high.

Under Methylation co-factors number 20.

The Ref levels upto 4.8. so if its high indicates need for B12

Copied text from metametrix.

Methlymalonate.

This compound is converted into succinic acid using a vitamin B12-

dependent enzyme, methylmalonyl CoA mutase (Fig 1). The lack of

vitamin B12 impairs this conversion as well as the one in which

methionine is recovered from homocysteine, leading to accumulation

of methylmalonate. As discussed above, high levels indicate a

functional deficiency of vitamin B12. A differential diagnosis can

be made when considering both methylmalonate and the amino acid,

homocysteine. If homocysteine is also elevated, both B12 and folate

functional deficiencies are indicated. If only homocysteine is high,

folate and B6 supplementation are suggested. If methylmalonate only

is elevated, only B12 supplementation is needed [25].

Rocket science !

Joanne

>

> Hi Joanne,

>

> sorry to butt in here but there was something in your post shich i

> didn't understand/hadn't come across before,was hoping you could

> explain a bit more.

>

> What is it in the organix urine test that shows up whethter MB12

might

> help your child???

>

> " always trying to learn more " Nikki ;+)

>

>

>

> >

> > Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20

> > shots.

> > It will show on the organix test whether this would help but

worth a

> > try for most kids.

>

[Guest guest]

The reference range was 0-5.

My Dr is Dr Heard. But I have been having email consultations recently with Donna and she asked about the MMA levels and said these were very high and wondered why it hadn't been picked up by the DR.

Nicola

Re: Pacing Interventions - what next?

Hi Joanne,sorry to butt in here but there was something in your post shich i didn't understand/hadn't come across before,was hoping you could explain a bit more.What is it in the organix urine test that shows up whethter MB12 might help your child???"always trying to learn more" Nikki ;+)> > Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20 > shots.> It will show on the organix test whether this would help but worth a > try for most kids.

[Guest guest]

The reference range was 0-5.

My Dr is Dr Heard. But I have been having email consultations recently with Donna and she asked about the MMA levels and said these were very high and wondered why it hadn't been picked up by the DR.

Nicola

Re: Pacing Interventions - what next?

Hi Joanne,sorry to butt in here but there was something in your post shich i didn't understand/hadn't come across before,was hoping you could explain a bit more.What is it in the organix urine test that shows up whethter MB12 might help your child???"always trying to learn more" Nikki ;+)> > Then maybe you could try MB12 jabs. Jabs cost approx £38 for 20 > shots.> It will show on the organix test whether this would help but worth a > try for most kids.

[Guest guest]

Hi every one I I am having too much messages and even though I find them very important and useful I cant manage them all can any one tell me how I can manage without leaving the group Eva natasa778 <neno@...> wrote: Hi Darla, this is a good link for all things diet-related:http://www.autismndi.com/I also find Specific Carbohydrate Diet links great for receipe ideasetc, even if you are not on that diet it has great 'baked goods' recipelinks (chose the ones that are casein/dairy free, as SCD was notoriginally designed for our kids).If you have time and nerves it is best to bake your own gfcf snacks,this site is great for ideas:http://pecanbread.com/(once you get into it the baking really does not take that much time!!)to learn more about all biomed aspects, including latest treaments andresearch:www.danwebcast.com (free

registration) - takes time to download and evenlonger to watch, but invaluable latest info from the top people - LongBeach is from the end of last year, they will have the April conferenceon soon! I would highly recommend Martha Herbert's and Dr Bock'spresentations first if you are new to all this, will make a niceintroduction to all the other, more specific DAN! protocols andtheories...Best of luck with it all,Natasa>> Hello All,> Been trying to keep up with the posts and WOW - I can only justcomprehend> what you lot are discussing!>> Here are some questions that I have -> I started the enzymes and probiotics. I am on the wait for Breakspear> Hospital but that could be up to a year so in the meanwhile we arevisiting> another practioner locally who will give me advice on supplements,etc. I'll

take> Mandi's advice and put a two week gap in between interventions so I'llgo> slow on our little man.>> What reading would be advisable to do next? I read that some of you wished> you'd starting chelating sooner, would it be good for me to look into that?> I only have a very rudimentary understanding of it. The practionerthat we> see will conduct heavy metal testing on . Are theredifferent types> of HMT? Obviously I don't want to waste our money on un-neededtests!!>> Also - if anyone could give me some advice on GF/CF diets - I'd liketo be> introducing solids/finger foods that are at least GF/CF but all the> biscuits/crackers, etc that I can find that qualify are loaded withsugar. needs> his crunchy bite and dissolve foods for his anxiety times (they help him not> to bite his clothes, arms, etc) Any

recommendations?>> Thanks for any advice, books, links, etc that you may have.>> Regards,> Darla>

[Guest guest]

Hi every one I I am having too much messages and even though I find them very important and useful I cant manage them all can any one tell me how I can manage without leaving the group Eva natasa778 <neno@...> wrote: Hi Darla, this is a good link for all things diet-related:http://www.autismndi.com/I also find Specific Carbohydrate Diet links great for receipe ideasetc, even if you are not on that diet it has great 'baked goods' recipelinks (chose the ones that are casein/dairy free, as SCD was notoriginally designed for our kids).If you have time and nerves it is best to bake your own gfcf snacks,this site is great for ideas:http://pecanbread.com/(once you get into it the baking really does not take that much time!!)to learn more about all biomed aspects, including latest treaments andresearch:www.danwebcast.com (free

registration) - takes time to download and evenlonger to watch, but invaluable latest info from the top people - LongBeach is from the end of last year, they will have the April conferenceon soon! I would highly recommend Martha Herbert's and Dr Bock'spresentations first if you are new to all this, will make a niceintroduction to all the other, more specific DAN! protocols andtheories...Best of luck with it all,Natasa>> Hello All,> Been trying to keep up with the posts and WOW - I can only justcomprehend> what you lot are discussing!>> Here are some questions that I have -> I started the enzymes and probiotics. I am on the wait for Breakspear> Hospital but that could be up to a year so in the meanwhile we arevisiting> another practioner locally who will give me advice on supplements,etc. I'll

take> Mandi's advice and put a two week gap in between interventions so I'llgo> slow on our little man.>> What reading would be advisable to do next? I read that some of you wished> you'd starting chelating sooner, would it be good for me to look into that?> I only have a very rudimentary understanding of it. The practionerthat we> see will conduct heavy metal testing on . Are theredifferent types> of HMT? Obviously I don't want to waste our money on un-neededtests!!>> Also - if anyone could give me some advice on GF/CF diets - I'd liketo be> introducing solids/finger foods that are at least GF/CF but all the> biscuits/crackers, etc that I can find that qualify are loaded withsugar. needs> his crunchy bite and dissolve foods for his anxiety times (they help him not> to bite his clothes, arms, etc) Any

recommendations?>> Thanks for any advice, books, links, etc that you may have.>> Regards,> Darla>

[Guest guest]

Have you tried setting your e-mail messages to daily digest? That way, you get all the messages, but condensed into 1 or 2 messages per day. You could also choose no e-mails and read them on the website.

Diane

Re: Re: Pacing Interventions - what next?

Hi every one I

I am having too much messages and even though I find them very important and useful I cant manage them all can any one tell me how I can manage without leaving the group

Eva

natasa778 <neno@...> wrote:

Hi Darla, this is a good link for all things diet-related:http://www.autismndi.com/I also find Specific Carbohydrate Diet links great for receipe ideasetc, even if you are not on that diet it has great 'baked goods' recipelinks (chose the ones that are casein/dairy free, as SCD was notoriginally designed for our kids).If you have time and nerves it is best to bake your own gfcf snacks,this site is great for ideas:http://pecanbread.com/(once you get into it the baking really does not take that much time!!)to learn more about all biomed aspects, including latest treaments andresearch:www.danwebcast.com (free registration) - takes time to download and evenlonger to watch, but invaluable latest info from the top people - LongBeach is from the end of last year, they will have the April conferenceon soon! I would highly recommend Martha Herbert's and Dr Bock'spresentations first if you are new to all this, will make a niceintroduction to all the other, more specific DAN! protocols andtheories...Best of luck with it all,Natasa>> Hello All,> Been trying to keep up with the posts and WOW - I can only justcomprehend> what you lot are discussing!>> Here are some questions that I have -> I started the enzymes and probiotics. I am on the wait for Breakspear> Hospital but that could be up to a year so in the meanwhile we arevisiting> another practioner locally who will give me advice on supplements,etc. I'll take> Mandi's advice and put a two week gap in between interventions so I'llgo> slow on our little man.>> What reading would be advisable to do next? I read that some of you wished> you'd starting chelating sooner, would it be good for me to look into that?> I only have a very rudimentary understanding of it. The practionerthat we> see will conduct heavy metal testing on . Are theredifferent types> of HMT? Obviously I don't want to waste our money on un-neededtests!!>> Also - if anyone could give me some advice on GF/CF diets - I'd liketo be> introducing solids/finger foods that are at least GF/CF but all the> biscuits/crackers, etc that I can find that qualify are loaded withsugar. needs> his crunchy bite and dissolve foods for his anxiety times (they help him not> to bite his clothes, arms, etc) Any recommendations?>> Thanks for any advice, books, links, etc that you may have.>> Regards,> Darla>

[Guest guest]

Have you tried setting your e-mail messages to daily digest? That way, you get all the messages, but condensed into 1 or 2 messages per day. You could also choose no e-mails and read them on the website.

Diane

Re: Re: Pacing Interventions - what next?

Hi every one I

I am having too much messages and even though I find them very important and useful I cant manage them all can any one tell me how I can manage without leaving the group

Eva

natasa778 <neno@...> wrote:

Hi Darla, this is a good link for all things diet-related:http://www.autismndi.com/I also find Specific Carbohydrate Diet links great for receipe ideasetc, even if you are not on that diet it has great 'baked goods' recipelinks (chose the ones that are casein/dairy free, as SCD was notoriginally designed for our kids).If you have time and nerves it is best to bake your own gfcf snacks,this site is great for ideas:http://pecanbread.com/(once you get into it the baking really does not take that much time!!)to learn more about all biomed aspects, including latest treaments andresearch:www.danwebcast.com (free registration) - takes time to download and evenlonger to watch, but invaluable latest info from the top people - LongBeach is from the end of last year, they will have the April conferenceon soon! I would highly recommend Martha Herbert's and Dr Bock'spresentations first if you are new to all this, will make a niceintroduction to all the other, more specific DAN! protocols andtheories...Best of luck with it all,Natasa>> Hello All,> Been trying to keep up with the posts and WOW - I can only justcomprehend> what you lot are discussing!>> Here are some questions that I have -> I started the enzymes and probiotics. I am on the wait for Breakspear> Hospital but that could be up to a year so in the meanwhile we arevisiting> another practioner locally who will give me advice on supplements,etc. I'll take> Mandi's advice and put a two week gap in between interventions so I'llgo> slow on our little man.>> What reading would be advisable to do next? I read that some of you wished> you'd starting chelating sooner, would it be good for me to look into that?> I only have a very rudimentary understanding of it. The practionerthat we> see will conduct heavy metal testing on . Are theredifferent types> of HMT? Obviously I don't want to waste our money on un-neededtests!!>> Also - if anyone could give me some advice on GF/CF diets - I'd liketo be> introducing solids/finger foods that are at least GF/CF but all the> biscuits/crackers, etc that I can find that qualify are loaded withsugar. needs> his crunchy bite and dissolve foods for his anxiety times (they help him not> to bite his clothes, arms, etc) Any recommendations?>> Thanks for any advice, books, links, etc that you may have.>> Regards,> Darla>