Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Hi everyone..... I'm also a member of a PDD group and one of our members posted a very thought provoking question.... He was venting/asking if we, the group, think about our children's future...how will they live? do our wills need to set up for their care? will they be able to hold jobs? have a family? will another sibling be willing/able to care for their brother or sister? We have had a great response to it.....and for some, even asking more questions about how to prepare for what lies ahead.... So, I know a little off topic, but I thought I would ask it here.... When you look at your son/daughter, remembering the dreams/aspirations you had....what is it now that you dream/hope for? What planning do you think you will need to have set-up for him/her? Do you buy your home/setup your living space now because of what you will need for him/her later? My husband and I actually wrote a care plan into our wills for GW..... right now he is only 7yrs old, but we wanted it in their now, and then we can modify it as needed. For now, we only hope that he will be able to live on his own, maintain a good job, and be able to live happily~confident in his abilities and able to have a great friend or two. IF he can do that, we will be the happiest parents ever April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Mother of Blake now 15 yr. I have been doing alot of thinking and planning for my son. His father is very ill and wouldn't be able to take care of Blake if something happened to me. And Blake's brothers are just starting their lives. His brothers have been taking him and their father for years and I can emagine them taking care of Blake for the rest of the lives. Now Blake has a lot of behaviors and it is really hard to take care of him. So I started looking for places for Blake that take care of kids like him, group homes don't take kids till their 18 yrs. And with his behaviors, nobody wants to take him. I found a training school in Indianapolis Indiana that train kids for group homes. Blake will be moving there the first of Feb, I'm very excited for him, it is very hard to get kids in the school. I have to think of Blake and not myself where he concerned, I don't want to send him away to go to this school but I know its for the best, what if something happened to me tomorrow and dad couldn't take care of him, they would give him to the state and I really don't want that. I met the teacher today and she was really very nice, she said I can come and sit in class and I could come and take him to dinner or for the weekend, just like if he was away of at college, it so cool. I hope this really works for us. April aka Gypsycatwoman <gypsycatwoman@...> wrote: Hi everyone..... I'm also a member of a PDD group and one of our members posted a very thought provoking question.... He was venting/asking if we, the group, think about our children's future...how will they live? do our wills need to set up for their care? will they be able to hold jobs? have a family? will another sibling be willing/able to care for their brother or sister? We have had a great response to it.....and for some, even asking more questions about how to prepare for what lies ahead.... So, I know a little off topic, but I thought I would ask it here.... When you look at your son/daughter, remembering the dreams/aspirations you had....what is it now that you dream/hope for? What planning do you think you will need to have set-up for him/her? Do you buy your home/setup your living space now because of what you will need for him/her later? My husband and I actually wrote a care plan into our wills for GW..... right now he is only 7yrs old, but we wanted it in their now, and then we can modify it as needed. For now, we only hope that he will be able to live on his own, maintain a good job, and be able to live happily~confident in his abilities and able to have a great friend or two. IF he can do that, we will be the happiest parents ever April TV dinner still cooling?Check out "Tonight's Picks" on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Hi All, I just put up two new programs on my www.hiyah.net website. They are 'Going to the Grocery Store', and 'Happy Valentine's Day'. Remember all the downloads are completely free, so please feel free to download them. Sara RE: Do you think about your child's future? Hi everyone..... I'm also a member of a PDD group and one of our members posted a very thought provoking question.... He was venting/asking if we, the group, think about our children's future...how will they live? do our wills need to set up for their care? will they be able to hold jobs? have a family? will another sibling be willing/able to care for their brother or sister? We have had a great response to it.....and for some, even asking more questions about how to prepare for what lies ahead.... So, I know a little off topic, but I thought I would ask it here.... When you look at your son/daughter, remembering the dreams/aspirations you had....what is it now that you dream/hope for? What planning do you think you will need to have set-up for him/her? Do you buy your home/setup your living space now because of what you will need for him/her later? My husband and I actually wrote a care plan into our wills for GW..... right now he is only 7yrs old, but we wanted it in their now, and then we can modify it as needed. For now, we only hope that he will be able to live on his own, maintain a good job, and be able to live happily~confident in his abilities and able to have a great friend or two. IF he can do that, we will be the happiest parents ever April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 That sounds wonderful . I truly hope it works out for Blake. April <cynthia343@...> wrote: Mother of Blake now 15 yr. I have been doing alot of thinking and planning for my son. His father is very ill and wouldn't be able to take care of Blake if something happened to me. And Blake's brothers are just starting their lives. His brothers have been taking him and their father for years and I can emagine them taking care of Blake for the rest of the lives. Now Blake has a lot of behaviors and it is really hard to take care of him. So I started looking for places for Blake that take care of kids like him, group homes don't take kids till their 18 yrs. And with his behaviors, nobody wants to take him. I found a training school in Indianapolis Indiana that train kids for group homes. Blake will be moving there the first of Feb, I'm very excited for him, it is very hard to get kids in the school. I have to think of Blake and not myself where he concerned, I don't want to send him away to go to this school but I know its for the best, what if something happened to me tomorrow and dad couldn't take care of him, they would give him to the state and I really don't want that. I met the teacher today and she was really very nice, she said I can come and sit in class and I could come and take him to dinner or for the weekend, just like if he was away of at college, it so cool. I hope this really works for us. April aka Gypsycatwoman <gypsycatwoman > wrote: Hi everyone..... I'm also a member of a PDD group and one of our members posted a very thought provoking question.... He was venting/asking if we, the group, think about our children's future...how will they live? do our wills need to set up for their care? will they be able to hold jobs? have a family? will another sibling be willing/able to care for their brother or sister? We have had a great response to it.....and for some, even asking more questions about how to prepare for what lies ahead.... So, I know a little off topic, but I thought I would ask it here.... When you look at your son/daughter, remembering the dreams/aspirations you had....what is it now that you dream/hope for? What planning do you think you will need to have set-up for him/her? Do you buy your home/setup your living space now because of what you will need for him/her later? My husband and I actually wrote a care plan into our wills for GW..... right now he is only 7yrs old, but we wanted it in their now, and then we can modify it as needed. For now, we only hope that he will be able to live on his own, maintain a good job, and be able to live happily~confident in his abilities and able to have a great friend or two. IF he can do that, we will be the happiest parents ever April TV dinner still cooling?Check out "Tonight's Picks" on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 What types of ideas or solutions did other parents come up with on the other board? I too think of what will happen with my son once I am gone.No guarantee what my life expectancy is so I often think of my own mortality.I am a single parent.I have no other kids and I'm 36yrs old.I am scared for him and I worry almost every day.I have a very tight income so the only thing I have set up is a life ins policy that my parents and sister are beneficiaries of. My parents would care for him if something happened to me but they are in their early 60's and have their slight health issues(back problems,dad has diabetes)I know he's alot for them to handle even now at age 10 but they would not stand for him to be with anyone else.If they were gone my sister is not involved with my son ,so she would have no clue how to care for him.I do have a close friend who I would rather my son go to because she knows my son,I know her whole family,she has a daughter(downs)and we've known each others struggles.So,I'm just wondering what other ideas anyone had. Stacey > > Hi everyone..... > > I'm also a member of a PDD group and one of our members posted a very thought provoking question.... > > He was venting/asking if we, the group, think about our children's future...how will they live? do our wills need to set up for their care? will they be able to hold jobs? have a family? will another sibling be willing/able to care for their brother or sister? > > We have had a great response to it.....and for some, even asking more questions about how to prepare for what lies ahead.... > > So, I know a little off topic, but I thought I would ask it here.... > > When you look at your son/daughter, remembering the dreams/aspirations you had....what is it now that you dream/hope for? What planning do you think you will need to have set-up for him/her? Do you buy your home/setup your living space now because of what you will need for him/her later? > > My husband and I actually wrote a care plan into our wills for GW..... right now he is only 7yrs old, but we wanted it in their now, and then we can modify it as needed. For now, we only hope that he will be able to live on his own, maintain a good job, and be able to live happily~confident in his abilities and able to have a great friend or two. IF he can do that, we will be the happiest parents ever > > April > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 I really can't go down that road. I am 75 years old and have worked with my 14 year old grandson every day for 12 years. He calls my house "home". My husband and I adore him. I just pray to live in good health long enough to take care of Karac until he is 21 and I trust that the One who cares for the sparrow will provide for Karac. Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 Stacey, On the other board, the parents talked mainly about their wills, having named a permanent caregiver & where the source of funds would come for the care......but then we also talked about what we hoped for in their future.....like with GW, we are hoping that he can live efficiently on his own....maybe, maybe drive! But just simple, basic living hopes and dreams currently. AprilStacey <all4cam@...> wrote: What types of ideas or solutions did other parents come up with on the other board? I too think of what will happen with my son once I am gone.No guarantee what my life expectancy is so I often think of my own mortality.I am a single parent.I have no other kids and I'm 36yrs old.I am scared for him and I worry almost every day.I have a very tight income so the only thing I have set up is a life ins policy that my parents and sister are beneficiaries of.My parents would care for him if something happened to me but they are in their early 60's and have their slight health issues(back problems,dad has diabetes)I know he's alot for them to handle even now at age 10 but they would not stand for him to be with anyone else.If they were gone my sister is not involved with my son ,so she would have no clue how to care for him.I do have a close friend who I would rather my son go to because she knows my son,I know her whole family,she has a daughter(downs)and we've known each others struggles.So,I'm just wondering what other ideas anyone had.Stacey>> Hi everyone.....> > I'm also a member of a PDD group and one of our members posted a very thought provoking question....> > He was venting/asking if we, the group, think about our children's future...how will they live? do our wills need to set up for their care? will they be able to hold jobs? have a family? will another sibling be willing/able to care for their brother or sister? > > We have had a great response to it.....and for some, even asking more questions about how to prepare for what lies ahead....> > So, I know a little off topic, but I thought I would ask it here....> > When you look at your son/daughter, remembering the dreams/aspirations you had....what is it now that you dream/hope for? What planning do you think you will need to have set-up for him/her? Do you buy your home/setup your living space now because of what you will need for him/her later? > > My husband and I actually wrote a care plan into our wills for GW..... right now he is only 7yrs old, but we wanted it in their now, and then we can modify it as needed. For now, we only hope that he will be able to live on his own, maintain a good job, and be able to live happily~confident in his abilities and able to have a great friend or two. IF he can do that, we will be the happiest parents ever > > April> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 -Hi Pat I take your approach. I just can't imagine that Heaven could need me more that these 2 PDD boys I care for.... Icertainly don't feel immortal, but it's helped me reduce the stress of thinking about " what if... " I pray for strength and long life, so I can be here as long as possible for them, and then....(they have a younger sister who will probably step-in for me, but I hope to defer that as long as possible)I come from a family who cares for eachother, my grandmother lived with us, we (my parents) adopted special needs children and my brothers ( I have 5) of which 2 have increased their families by adopting special needs children. BUT none of them really can help us,it's just me and my husband and the support of school and extra- curricular activities we've arranged for our boys. ironic? -- In autism , pkuenstler@... wrote: > > I really can't go down that road. I am 75 years old and have worked with my > 14 year old grandson every day for 12 years. He calls my house " home " . My > husband and I adore him. I just pray to live in good health long enough to take > care of Karac until he is 21 and I trust that the One who cares for the > sparrow will provide for Karac. Pat K > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Louise? I think you for your response. It is validating and encouraging to know there is another kindred spirit. You sound like you come from a wonderful family. Karac also has a sister who might be the one to take my place. She lives with us and graduates from high school this fall. She plans to go to college and major in special ed. She worked at a special needs camp last summer. She loved it. She plans to work there again this summer to earn her spending money for college. I don't count on that; like you, I just trust. Love and blessings, Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 In all honesty the future scares the hell out of me...I hate our birthdays...his and mine.. I realize on one level this anxiety is not necessary because has a loving , knowledgable family surrounding him who can ( and do ) care for him perfectly well BUT I have been a part of his parenting unit since before birth and always was his 1/1 therapist and now homeschool him. He is an intriquate part of my life and heart and I cant imagine a day without my boy....great!! now I am crying...LOL ( hormonal and weepy) May you have warm words on a cold evening,a full moon on a dark night,and a smooth road all the way to your door. Re: Do you think about your child's future? -Hi PatI take your approach. I just can't imagine thatHeaven could need me more that these 2 PDD boysI care for.... Icertainly don't feel immortal,but it's helped me reduce the stress of thinkingabout "what if..." I pray for strength and longlife, so I can be here as long as possible forthem, and then....(they have a younger sisterwho will probably step-in for me, but I hope todefer that as long as possible)I come from a familywho cares for eachother, my grandmother lived withus, we (my parents) adopted special needs childrenand my brothers ( I have 5) of which 2 have increasedtheir families by adopting special needs children.BUT none of them really can help us,it's justme and my husband and the support of school and extra-curricular activities we've arranged for our boys.ironic? -- In autism , pkuenstler@... wrote:>> I really can't go down that road. I am 75 years old and have worked with my > 14 year old grandson every day for 12 years. He calls my house "home". My > husband and I adore him. I just pray to live in good health long enough to take > care of Karac until he is 21 and I trust that the One who cares for the > sparrow will provide for Karac. Pat K> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 , good for you; I would have given most anything if Karac's mother would have let me homeschool him. He was doing so well until he started public school. You and he are so blessed. Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 , good for you; I would have given most anything if Karac's mother would have let me homeschool him. He was doing so well until he started public school. You and he are so blessed. Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 , good for you; I would have given most anything if Karac's mother would have let me homeschool him. He was doing so well until he started public school. You and he are so blessed. Pat K Quote Link to comment Share on other sites More sharing options...
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