Re: Informing Drs of biomed

[Guest guest]

Hi Caroline I have always been very up front with my GP and give him a briefing every 3 months or so on 's progress and test results. He has always been interested and positive. I also state in writing in 's annual review (LEA) that he has Mineral Metabolism disorder and toxic encephalopathy as diagnosed by Dr Usman, and is undergoing treatment. In my view, it is better to be honest and upfront about treatments. I consider 's school, the GP, SLT etc to be part of a 'treatment team' and I share all aspects of treatment between them. Tina CarolineTraa@... wrote: This is terrifying, how can we change things if this is the case? I am trying to be very up front with my GP and am now ondering if this is the right thing to do. Caroline Traa Aberdeenshire

[Guest guest]

Hi Caroline I have always been very up front with my GP and give him a briefing every 3 months or so on 's progress and test results. He has always been interested and positive. I also state in writing in 's annual review (LEA) that he has Mineral Metabolism disorder and toxic encephalopathy as diagnosed by Dr Usman, and is undergoing treatment. In my view, it is better to be honest and upfront about treatments. I consider 's school, the GP, SLT etc to be part of a 'treatment team' and I share all aspects of treatment between them. Tina CarolineTraa@... wrote: This is terrifying, how can we change things if this is the case? I am trying to be very up front with my GP and am now ondering if this is the right thing to do. Caroline Traa Aberdeenshire

[Guest guest]

Hi Tina

I think you are lucky that your GP is positive and interested. But

if he wasn't and your pead was very anti and you were a single

mother then the situation would be totally different. And if the

school was saying that your son was just fine and you were being

over the top about things and then ss start sniffing around.

Suddenly a very caring mother is seen as something totally different

or made out to be something different. My friend was also referred

to the royal free - inspite of tests from a DAN in the USA saying he

was very ill and alternating diaorrhea and constipation the dr there

said he was absolutely fine. What can she do in this situation when

everyone is against her other than not say anything to anyone?

Peta-

-- In Autism Treatment , SIMON WOOD

<simon_tinawood@...> wrote:

>

> Hi Caroline

>

> I have always been very up front with my GP and give him a

briefing every 3 months or so on 's progress and test results.

He has always been interested and positive.

>

> I also state in writing in 's annual review (LEA) that he

has Mineral Metabolism disorder and toxic encephalopathy as

diagnosed by Dr Usman, and is undergoing treatment.

>

> In my view, it is better to be honest and upfront about

treatments. I consider 's school, the GP, SLT etc to be part of

a 'treatment team' and I share all aspects of treatment between them.

>

> Tina

>

> CarolineTraa@... wrote:

> Jean

> This is terrifying, how can we change things if this is the

case? I am trying to be very up front with my GP and am now ondering

if this is the right thing to do.

> Caroline Traa

> Aberdeenshire

>

>

> DISCLAIMER

> No information contained in this post is to be construed as

medical advice. If you need medical advice, please seek it from a

suitably qualified practitioner.

>

>

>

>

>

[Guest guest]

Hi Tina

I think you are lucky that your GP is positive and interested. But

if he wasn't and your pead was very anti and you were a single

mother then the situation would be totally different. And if the

school was saying that your son was just fine and you were being

over the top about things and then ss start sniffing around.

Suddenly a very caring mother is seen as something totally different

or made out to be something different. My friend was also referred

to the royal free - inspite of tests from a DAN in the USA saying he

was very ill and alternating diaorrhea and constipation the dr there

said he was absolutely fine. What can she do in this situation when

everyone is against her other than not say anything to anyone?

Peta-

-- In Autism Treatment , SIMON WOOD

<simon_tinawood@...> wrote:

>

> Hi Caroline

>

> I have always been very up front with my GP and give him a

briefing every 3 months or so on 's progress and test results.

He has always been interested and positive.

>

> I also state in writing in 's annual review (LEA) that he

has Mineral Metabolism disorder and toxic encephalopathy as

diagnosed by Dr Usman, and is undergoing treatment.

>

> In my view, it is better to be honest and upfront about

treatments. I consider 's school, the GP, SLT etc to be part of

a 'treatment team' and I share all aspects of treatment between them.

>

> Tina

>

> CarolineTraa@... wrote:

> Jean

> This is terrifying, how can we change things if this is the

case? I am trying to be very up front with my GP and am now ondering

if this is the right thing to do.

> Caroline Traa

> Aberdeenshire

>

>

> DISCLAIMER

> No information contained in this post is to be construed as

medical advice. If you need medical advice, please seek it from a

suitably qualified practitioner.

>

>

>

>

>

[Guest guest]

My son went to RF in December, the Paed there was told all about our biomed and he put in writing there was nothing RF could offer my son and supported our case for funding.

It would be impossible to get funding without telling them exactly what you are doing, once they see the improvements come in they really cannot argue anymore, ofcourse whether funding will be given is another matter.

Vicky

[Guest guest]

Tina

Thanks for your mail and after I wrote this this morning I got so mad and I am not going to change what I do. I am going to still be honest open and up front and just let them try and take my kid. With they would give her back pretty quickly if she went full belt in a screaming tantrum. I can tell you that 4 sure.

Lotsa Luv Caroline

xxx

[Guest guest]

Hi Peta Yes, I probably am lucky with my GP, but the other people like SLT, SENCO etc are people we have built up a high degree of trust with over a number of years of ABA, biomed, SI etc. My GP I gave loads of reading to explain what I was doing any why. I would hate to be in a position where I could not be honest with the key people who are helping my son. Each case should clearly be made on a case by case basis, but I wouldn't like people to get too paranoid about this. Surely, you are in a much weaker position if you have concealed information from professionals - in the end if our children become ill and need medical care, you would need to tell the GP or hospital what treatment they have been getting otherwise you may get an incorrect diagnosis and inappropriate medication. JHMO Tina peta3366

<peta3366@...> wrote: Hi TinaI think you are lucky that your GP is positive and interested. But if he wasn't and your pead was very anti and you were a single mother then the situation would be totally different. And if the school was saying that your son was just fine and you were being over the top about things and then ss start sniffing around. Suddenly a very caring mother is seen as something totally different or made out to be something different. My friend was also referred to the royal free - inspite of tests from a DAN in the USA saying he was very ill and alternating diaorrhea and constipation the dr there said he was absolutely fine. What can she do in this situation when everyone is against her other than not say anything to anyone?Peta> Jean> This is terrifying, how can we change things if this is the case? I am trying to be very up front with my GP and am now ondering if this is the right thing to

do.> Caroline Traa> Aberdeenshire> > > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.> > > > >

[Guest guest]

Hi Peta Yes, I probably am lucky with my GP, but the other people like SLT, SENCO etc are people we have built up a high degree of trust with over a number of years of ABA, biomed, SI etc. My GP I gave loads of reading to explain what I was doing any why. I would hate to be in a position where I could not be honest with the key people who are helping my son. Each case should clearly be made on a case by case basis, but I wouldn't like people to get too paranoid about this. Surely, you are in a much weaker position if you have concealed information from professionals - in the end if our children become ill and need medical care, you would need to tell the GP or hospital what treatment they have been getting otherwise you may get an incorrect diagnosis and inappropriate medication. JHMO Tina peta3366

<peta3366@...> wrote: Hi TinaI think you are lucky that your GP is positive and interested. But if he wasn't and your pead was very anti and you were a single mother then the situation would be totally different. And if the school was saying that your son was just fine and you were being over the top about things and then ss start sniffing around. Suddenly a very caring mother is seen as something totally different or made out to be something different. My friend was also referred to the royal free - inspite of tests from a DAN in the USA saying he was very ill and alternating diaorrhea and constipation the dr there said he was absolutely fine. What can she do in this situation when everyone is against her other than not say anything to anyone?Peta> Jean> This is terrifying, how can we change things if this is the case? I am trying to be very up front with my GP and am now ondering if this is the right thing to

do.> Caroline Traa> Aberdeenshire> > > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.> > > > >

[Guest guest]

I wonder how they take

them. do you get enough warning to be able to skip the country?

Re:

Informing Drs of biomed

Tina

Thanks

for your mail and after I wrote this this morning I got so mad and I am not

going to change what I do. I am going to still be honest open and up front and

just let them try and take my kid. With they would give her back pretty

quickly if she went full belt in a screaming tantrum. I can tell you that 4

sure.

Lotsa

Luv Caroline

xxx

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[Guest guest]

I wonder how they take

them. do you get enough warning to be able to skip the country?

Re:

Informing Drs of biomed

Tina

Thanks

for your mail and after I wrote this this morning I got so mad and I am not

going to change what I do. I am going to still be honest open and up front and

just let them try and take my kid. With they would give her back pretty

quickly if she went full belt in a screaming tantrum. I can tell you that 4

sure.

Lotsa

Luv Caroline

xxx

--

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[Guest guest]

Having worked in social services for over 20 years before

leaving to focus on my son  I can answer

that one – no they cant just take them, not unless you ask them to take them

into care onf a voluntary basis and you sign the forms, they have to go to

court and get an emergency protection order granted by the court  which they can get that day, so basically

that would give you a bit of time between leaving your house and them returning

, now if they come to your house already in possession of one then you wont

have time!

nikki

Re:

Informing Drs of biomed

Tina

Thanks for your mail and after I wrote

this this morning I got so mad and I am not going to change what I do. I am

going to still be honest open and up front and just let them try and take my

kid. With they would give her back pretty quickly if she went full belt

in a screaming tantrum. I can tell you that 4 sure.

Lotsa Luv Caroline

xxx

--

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[Guest guest]

Having worked in social services for over 20 years before

leaving to focus on my son  I can answer

that one – no they cant just take them, not unless you ask them to take them

into care onf a voluntary basis and you sign the forms, they have to go to

court and get an emergency protection order granted by the court  which they can get that day, so basically

that would give you a bit of time between leaving your house and them returning

, now if they come to your house already in possession of one then you wont

have time!

nikki

Re:

Informing Drs of biomed

Tina

Thanks for your mail and after I wrote

this this morning I got so mad and I am not going to change what I do. I am

going to still be honest open and up front and just let them try and take my

kid. With they would give her back pretty quickly if she went full belt

in a screaming tantrum. I can tell you that 4 sure.

Lotsa Luv Caroline

xxx

--

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[Guest guest]

Its horrible that we are even having this discussion! But reality is

reality. Forewarned is forearmed.

>

> Having worked in social services for over 20 years before leaving

to focus

> on my son  I can answer that one – no they cant just take them, not

unless

> you ask them to take them into care onf a voluntary basis and you

sign the

> forms, they have to go to court and get an emergency protection

order

> granted by the court  which they can get that day, so basically

that would

> give you a bit of time between leaving your house and them

returning , now

> if they come to your house already in possession of one then you

wont have

> time!

>  

> nikki

>  

> Re: Informing Drs of biomed

>  

> Tina

> Thanks for your mail and after I wrote this this morning I got so

mad and I

> am not going to change what I do. I am going to still be honest

open and up

> front and just let them try and take my kid. With they

would give

> her back pretty quickly if she went full belt in a screaming

tantrum. I can

> tell you that 4 sure.

> Lotsa Luv Caroline

> xxx

>

>

>

> DISCLAIMER

> No information contained in this post is to be construed as medical

advice.

> If you need medical advice, please seek it from a suitably qualified

> practitioner.

>

>

>

>

>

[Guest guest]

And I suppose too that we have to be a lot more careful about talking about

the injections and chelation than the other stuff? This has all scared me to

death!

Sara

Re: Informing Drs of biomed

Hi Tina

I think you are lucky that your GP is positive and interested. But

if he wasn't and your pead was very anti and you were a single

mother then the situation would be totally different. And if the

school was saying that your son was just fine and you were being

over the top about things and then ss start sniffing around.

Suddenly a very caring mother is seen as something totally different

or made out to be something different. My friend was also referred

to the royal free - inspite of tests from a DAN in the USA saying he

was very ill and alternating diaorrhea and constipation the dr there

said he was absolutely fine. What can she do in this situation when

everyone is against her other than not say anything to anyone?

Peta-

-- In Autism Treatment , SIMON WOOD

<simon_tinawood@...> wrote:

>

> Hi Caroline

>

> I have always been very up front with my GP and give him a

briefing every 3 months or so on 's progress and test results.

He has always been interested and positive.

>

> I also state in writing in 's annual review (LEA) that he

has Mineral Metabolism disorder and toxic encephalopathy as

diagnosed by Dr Usman, and is undergoing treatment.

>

> In my view, it is better to be honest and upfront about

treatments. I consider 's school, the GP, SLT etc to be part of

a 'treatment team' and I share all aspects of treatment between them.

>

> Tina

>

> CarolineTraa@... wrote:

> Jean

> This is terrifying, how can we change things if this is the

case? I am trying to be very up front with my GP and am now ondering

if this is the right thing to do.

> Caroline Traa

> Aberdeenshire

>

>

> DISCLAIMER

> No information contained in this post is to be construed as

medical advice. If you need medical advice, please seek it from a

suitably qualified practitioner.

>

>

>

>

>

[Guest guest]

And I suppose too that we have to be a lot more careful about talking about

the injections and chelation than the other stuff? This has all scared me to

death!

Sara

Re: Informing Drs of biomed

Hi Tina

I think you are lucky that your GP is positive and interested. But

if he wasn't and your pead was very anti and you were a single

mother then the situation would be totally different. And if the

school was saying that your son was just fine and you were being

over the top about things and then ss start sniffing around.

Suddenly a very caring mother is seen as something totally different

or made out to be something different. My friend was also referred

to the royal free - inspite of tests from a DAN in the USA saying he

was very ill and alternating diaorrhea and constipation the dr there

said he was absolutely fine. What can she do in this situation when

everyone is against her other than not say anything to anyone?

Peta-

-- In Autism Treatment , SIMON WOOD

<simon_tinawood@...> wrote:

>

> Hi Caroline

>

> I have always been very up front with my GP and give him a

briefing every 3 months or so on 's progress and test results.

He has always been interested and positive.

>

> I also state in writing in 's annual review (LEA) that he

has Mineral Metabolism disorder and toxic encephalopathy as

diagnosed by Dr Usman, and is undergoing treatment.

>

> In my view, it is better to be honest and upfront about

treatments. I consider 's school, the GP, SLT etc to be part of

a 'treatment team' and I share all aspects of treatment between them.

>

> Tina

>

> CarolineTraa@... wrote:

> Jean

> This is terrifying, how can we change things if this is the

case? I am trying to be very up front with my GP and am now ondering

if this is the right thing to do.

> Caroline Traa

> Aberdeenshire

>

>

> DISCLAIMER

> No information contained in this post is to be construed as

medical advice. If you need medical advice, please seek it from a

suitably qualified practitioner.

>

>

>

>

>