Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 I personally think that the reluctance to diagnose is due to their obligation to provide additional support for the child once a statement is in place. If your child needs some help then they should be giving it to him. They can always remove the statement at a later date when hopefully he improves/ recovers. Just my thoughts. Jane Advice on diagnosis I have heard from many people at our local autism parenting group that they wished they had had their children diagnosed earlier on. At our CDC centre they seem to think that you can't diagnose autism spectrum until 7. My son is due to start mainstream school in September and I wonder whether a formal diagnosis would be prudent and help with any statementing. The reason our CDC is reluctant is because once the diagnosis is there it will always be on his records which may affect him in later life. He is, what I would say, semantic pragmatic disorder. That is kind of the "social" side of autism but with delayed and curious speech. He is very high functioning and I think he will be o.k at school but just wonder what others think.Thanks in anticipation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 If he can function ok without additional support I also would not seek diagnosis - as Jane said it will stay there for good and the label might affect things later on, like for example getting a driving licence etc. I have heard of few cases where AS people had trouble obtaining car insurance etc because they were officially classed as 'disabled' (in the eyes of insurance people) ... that kind of thing. Natasa > > I personally think that the reluctance to diagnose is due to their obligation to provide additional support for the child once a statement is in place. If your child needs some help then they should be giving it to him. They can always remove the statement at a later date when hopefully he improves/ recovers. > > Just my thoughts. > > Jane > > > Advice on diagnosis > > > I have heard from many people at our local autism parenting group that > they wished they had had their children diagnosed earlier on. At our > CDC centre they seem to think that you can't diagnose autism spectrum > until 7. > > My son is due to start mainstream school in September and I wonder > whether a formal diagnosis would be prudent and help with any > statementing. > > The reason our CDC is reluctant is because once the diagnosis is there > it will always be on his records which may affect him in later life. > He is, what I would say, semantic pragmatic disorder. That is kind of > the " social " side of autism but with delayed and curious speech. He is > very high functioning and I think he will be o.k at school but just > wonder what others think. > > Thanks in anticipation > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 If he can function ok without additional support I also would not seek diagnosis - as Jane said it will stay there for good and the label might affect things later on, like for example getting a driving licence etc. I have heard of few cases where AS people had trouble obtaining car insurance etc because they were officially classed as 'disabled' (in the eyes of insurance people) ... that kind of thing. Natasa > > I personally think that the reluctance to diagnose is due to their obligation to provide additional support for the child once a statement is in place. If your child needs some help then they should be giving it to him. They can always remove the statement at a later date when hopefully he improves/ recovers. > > Just my thoughts. > > Jane > > > Advice on diagnosis > > > I have heard from many people at our local autism parenting group that > they wished they had had their children diagnosed earlier on. At our > CDC centre they seem to think that you can't diagnose autism spectrum > until 7. > > My son is due to start mainstream school in September and I wonder > whether a formal diagnosis would be prudent and help with any > statementing. > > The reason our CDC is reluctant is because once the diagnosis is there > it will always be on his records which may affect him in later life. > He is, what I would say, semantic pragmatic disorder. That is kind of > the " social " side of autism but with delayed and curious speech. He is > very high functioning and I think he will be o.k at school but just > wonder what others think. > > Thanks in anticipation > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 My daughter was diagnosed with semantic pragmatic disorder pre-school and starting school for her was disastrous. She was labelled anyway, but as 'naughty', by the teacher in nursery, but the label stuck in the mind of all the other kids. When she started school SPD didn't warrant any help for her, no statement, no DLA, etc, so by junior school, after my son was diagnosed ASD when he was 3, it became obvious to me that she had more symptoms than just SPD. She was referred to a child psychiatrist, who eventually diagnosed her with PDD-NOS (ASD), and she now has a full statement, more understanding from her teachers (who have put up with having things thrown at them, their lunches scoffed and their clothes rubbed with toilet water), support from various agencies and DLA. Before she started school, it didn't occur to me that she wouldn't be fine, but I was getting reports of her hyperventilating and running off, both of which I've never seen her do before. I can understand why the people you are speaking of wished for an earlier diagnosis, however, it all depends on the school he is going to. If your son needs speech therapy, he will be placed on the schools own special needs register as he is receiving therapy from an 'outside agency', he will probably receive an IEP and if any problems are noticed with him settling in, you should be informed. Sorry for waffling, I just felt that going into school with a diagnosis was so much better for my son than for my daughter, because of allowances made and support received. Diane Advice on diagnosis I have heard from many people at our local autism parenting group that they wished they had had their children diagnosed earlier on. At our CDC centre they seem to think that you can't diagnose autism spectrum until 7. My son is due to start mainstream school in September and I wonder whether a formal diagnosis would be prudent and help with any statementing. The reason our CDC is reluctant is because once the diagnosis is there it will always be on his records which may affect him in later life. He is, what I would say, semantic pragmatic disorder. That is kind of the "social" side of autism but with delayed and curious speech. He is very high functioning and I think he will be o.k at school but just wonder what others think.Thanks in anticipation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Diane and others thanks for your response. Diane, sounds like your daughter had a rough time at school, which is sad to hear. We went to the CDC centre yesterday and whether we would need a diagnosis to help with statementing but she said that our council were quite anit statementing and that the school is going to does have a lot of special need support. is at an assessment nursery (although he has now been taken off the assessment placement). He does have an IEP and we have arranged a transition meeting. I think for the time being all I can do is wait and see how he does at school and like you say keep in constant contact with the school. Thank you very much for your advice. > > My daughter was diagnosed with semantic pragmatic disorder pre- school and starting school for her was disastrous. She was labelled anyway, but as 'naughty', by the teacher in nursery, but the label stuck in the mind of all the other kids. When she started school SPD didn't warrant any help for her, no statement, no DLA, etc, so by junior school, after my son was diagnosed ASD when he was 3, it became obvious to me that she had more symptoms than just SPD. She was referred to a child psychiatrist, who eventually diagnosed her with PDD-NOS (ASD), and she now has a full statement, more understanding from her teachers (who have put up with having things thrown at them, their lunches scoffed and their clothes rubbed with toilet water), support from various agencies and DLA. Before she started school, it didn't occur to me that she wouldn't be fine, but I was getting reports of her hyperventilating and running off, both of which I've never seen her do before. I can understand why the people you are speaking of wished for an earlier diagnosis, however, it all depends on the school he is going to. If your son needs speech therapy, he will be placed on the schools own special needs register as he is receiving therapy from an 'outside agency', he will probably receive an IEP and if any problems are noticed with him settling in, you should be informed. Sorry for waffling, I just felt that going into school with a diagnosis was so much better for my son than for my daughter, because of allowances made and support received. > > Diane > > Advice on diagnosis > > > I have heard from many people at our local autism parenting group that > they wished they had had their children diagnosed earlier on. At our > CDC centre they seem to think that you can't diagnose autism spectrum > until 7. > > My son is due to start mainstream school in September and I wonder > whether a formal diagnosis would be prudent and help with any > statementing. > > The reason our CDC is reluctant is because once the diagnosis is there > it will always be on his records which may affect him in later life. > He is, what I would say, semantic pragmatic disorder. That is kind of > the " social " side of autism but with delayed and curious speech. He is > very high functioning and I think he will be o.k at school but just > wonder what others think. > > Thanks in anticipation > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Margaret wrote: > I just read in today's Shafer Autism report that in a recent study > those diagnosed with autism young were still with the diagnosis at a > later age, whereas children diagnosed with less definite ASD eg > PDD/NOS commonly had the diagnosis changed to autism as they grew. > The value of a diagnosis is 1. in getting a Statement of Special > Educational Needs (which if properly written gives a legal entitlement > to what's written in at part 3) 2. in accessing any pre-school > intervention - some LEAs, not many, have them and may provide up to > about 12 hours early intervention weekly working with families in the > home. 3) makes it easier to get Disability Living Allowance. > Autism can clearly be diagnosed at age 2, some places can do it > earlier (rare). > I suppose another value of a formal diagnosis would be that if your > child recovers with BioMed and educational intervention, professionals > wouldn't then turn round and say " But that child never was autistic > anyway " - the official view being that recovery is impossible. > Margaret > > * Advice on diagnosis > > I have heard from many people at our local autism parenting group > that > they wished they had had their children diagnosed earlier on. At our > CDC centre they seem to think that you can't diagnose autism spectrum > until 7. > > My son is due to start mainstream school in September and I wonder > whether a formal diagnosis would be prudent and help with any > statementing. > > The reason our CDC is reluctant is because once the diagnosis is > there > it will always be on his records which may affect him in later life. > He is, what I would say, semantic pragmatic disorder. That is kind of > the " social " side of autism but with delayed and curious speech. > He is > very high functioning and I think he will be o.k at school but just > wonder what others think. > > Thanks in anticipation > > > > > > __________ NOD32 1.1588 (20060609) Information __________ > > This message was checked by NOD32 antivirus system. > http://www.eset.com > > Can anyone advise the best people we have in the UK to give an accurate diagnosis for our children? My son was diagnosed aged 2.5 by a paediatrician and clinical psychologist, but would like someone else to see him 7 years on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 sorry, North of Nottingham, think it might now be called the Newsome centre but it comes under either name on Google. > > > > > > I have heard from many people at our local autism parenting group > > that > > > they wished they had had their children diagnosed earlier on. At > > our > > > CDC centre they seem to think that you can't diagnose autism > > spectrum > > > until 7. > > > > > > My son is due to start mainstream school in September and I wonder > > > whether a formal diagnosis would be prudent and help with any > > > statementing. > > > > > > The reason our CDC is reluctant is because once the diagnosis is > > there > > > it will always be on his records which may affect him in later > > life. > > > He is, what I would say, semantic pragmatic disorder. That is > > kind of > > > the " social " side of autism but with delayed and curious speech. > > He is > > > very high functioning and I think he will be o.k at school but > > just > > > wonder what others think. > > > > > > Thanks in anticipation > > > > > > > > > > > > > > > Hi Steph, > Pardon my ignorance but where's Ravenshead? > x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Would that be the Nottingham Early yrs in Mansfield? This is interesting to me, my oldest boy is very HFA, and I am wondering how smart a move it was having autism on his medical records, it really worries me that he may be discriminated against in many areas, and to be honest it really hasn't brought loads of help on board. My youngest son is profound so no getting round that one, he has even less help other than being in an SLD school,but I'm always mystified by the statement that a dx gives access to services, I could go even further and say my boys dx walks in before him everywhere and if anything he is treated as a lesser being in many ways! Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Hi , just noticed Sutherland House mentioned,I've just heard about them through my inclusion support worker andthe'yre not far from us. I'm going to visit this month as a possibility for my son Jay, any other info on it? ( I mean as a parent-I have their prospectus) wondering whether to send him there or mainstream at the moment or a dual placement, can I ask them to do statementing/ more detailed diagnosis then? thanks a lot for anything on this! best wishes, Josie > > > > I have heard from many people at our local autism parenting group > that > > they wished they had had their children diagnosed earlier on. At > our > > CDC centre they seem to think that you can't diagnose autism > spectrum > > until 7. > > > > My son is due to start mainstream school in September and I wonder > > whether a formal diagnosis would be prudent and help with any > > statementing. > > > > The reason our CDC is reluctant is because once the diagnosis is > there > > it will always be on his records which may affect him in later > life. > > He is, what I would say, semantic pragmatic disorder. That is > kind of > > the " social " side of autism but with delayed and curious speech. > He is > > very high functioning and I think he will be o.k at school but > just > > wonder what others think. > > > > Thanks in anticipation > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 I have seen both of them; in my opinion Dr, Al-Ahmed is better! Isabel -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 I have seen both of them; in my opinion Dr, Al-Ahmed is better! Isabel -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 My son have been diagnosed by DR.Al-Ahmed and Dr. Keen; in my opinion Dr. Al-Ahmed is the best!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Hi I don't know - it depends how LF your child is. I don't think they take any HF children, they diagnose and those reports are useful for Ed psychs but you need to be referred there (the school) by your LEA and to the diagnostic centre I believe by the NHS/paed or GP at least. We got Tom in because he'd lost more skills than any other autistic child anyone had ever seen and they had a space. > > > > > > I have heard from many people at our local autism parenting group > > that > > > they wished they had had their children diagnosed earlier on. At > > our > > > CDC centre they seem to think that you can't diagnose autism > > spectrum > > > until 7. > > > > > > My son is due to start mainstream school in September and I wonder > > > whether a formal diagnosis would be prudent and help with any > > > statementing. > > > > > > The reason our CDC is reluctant is because once the diagnosis is > > there > > > it will always be on his records which may affect him in later > > life. > > > He is, what I would say, semantic pragmatic disorder. That is > > kind of > > > the " social " side of autism but with delayed and curious speech. > > He is > > > very high functioning and I think he will be o.k at school but > > just > > > wonder what others think. > > > > > > Thanks in anticipation > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Hi I don't know - it depends how LF your child is. I don't think they take any HF children, they diagnose and those reports are useful for Ed psychs but you need to be referred there (the school) by your LEA and to the diagnostic centre I believe by the NHS/paed or GP at least. We got Tom in because he'd lost more skills than any other autistic child anyone had ever seen and they had a space. > > > > > > I have heard from many people at our local autism parenting group > > that > > > they wished they had had their children diagnosed earlier on. At > > our > > > CDC centre they seem to think that you can't diagnose autism > > spectrum > > > until 7. > > > > > > My son is due to start mainstream school in September and I wonder > > > whether a formal diagnosis would be prudent and help with any > > > statementing. > > > > > > The reason our CDC is reluctant is because once the diagnosis is > > there > > > it will always be on his records which may affect him in later > > life. > > > He is, what I would say, semantic pragmatic disorder. That is > > kind of > > > the " social " side of autism but with delayed and curious speech. > > He is > > > very high functioning and I think he will be o.k at school but > > just > > > wonder what others think. > > > > > > Thanks in anticipation > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Sorry, to be clear they diagnose any level of autism at the diagnostic centre, my comment was about the school where there are few HF autistic children, I would say. Best to ask them. > > > > > > > > I have heard from many people at our local autism parenting > group > > > that > > > > they wished they had had their children diagnosed earlier on. > At > > > our > > > > CDC centre they seem to think that you can't diagnose autism > > > spectrum > > > > until 7. > > > > > > > > My son is due to start mainstream school in September and I > wonder > > > > whether a formal diagnosis would be prudent and help with any > > > > statementing. > > > > > > > > The reason our CDC is reluctant is because once the diagnosis > is > > > there > > > > it will always be on his records which may affect him in later > > > life. > > > > He is, what I would say, semantic pragmatic disorder. That is > > > kind of > > > > the " social " side of autism but with delayed and curious > speech. > > > He is > > > > very high functioning and I think he will be o.k at school but > > > just > > > > wonder what others think. > > > > > > > > Thanks in anticipation > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Sorry, to be clear they diagnose any level of autism at the diagnostic centre, my comment was about the school where there are few HF autistic children, I would say. Best to ask them. > > > > > > > > I have heard from many people at our local autism parenting > group > > > that > > > > they wished they had had their children diagnosed earlier on. > At > > > our > > > > CDC centre they seem to think that you can't diagnose autism > > > spectrum > > > > until 7. > > > > > > > > My son is due to start mainstream school in September and I > wonder > > > > whether a formal diagnosis would be prudent and help with any > > > > statementing. > > > > > > > > The reason our CDC is reluctant is because once the diagnosis > is > > > there > > > > it will always be on his records which may affect him in later > > > life. > > > > He is, what I would say, semantic pragmatic disorder. That is > > > kind of > > > > the " social " side of autism but with delayed and curious > speech. > > > He is > > > > very high functioning and I think he will be o.k at school but > > > just > > > > wonder what others think. > > > > > > > > Thanks in anticipation > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Hi , The best info that I can get on her is that she is "Consultant Paediatrician, Special Education Needs" and also holds a position as chair (or head) of Community Child Health for a local NHS trust. Her name is Dr. Suhaila Al-Ahmed but I cannot find her credentials anywhere and they were not listed on the appointment letter that we received. Sorry don't know more about her credentials, perhaps when her report comes through I can tell you more. Regards, Darla In a message dated 12/06/2006 11:51:25 GMT Standard Time, catherine.devereux@... writes: rexel45aol wrote:> Our posts crossed - I see she is at St 's, a hospital with> a lot of good people working there.> Margaret>> Yes, that's right! We'll be seeing her colleague on the 27th of June, > Dr. Al-Ahmed at St. 's, so I can update on how that goes if > anyone's interested.> Darla> Hi Darla,What exactly is Dr Al-Ahmed's title? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Hi , The best info that I can get on her is that she is "Consultant Paediatrician, Special Education Needs" and also holds a position as chair (or head) of Community Child Health for a local NHS trust. Her name is Dr. Suhaila Al-Ahmed but I cannot find her credentials anywhere and they were not listed on the appointment letter that we received. Sorry don't know more about her credentials, perhaps when her report comes through I can tell you more. Regards, Darla In a message dated 12/06/2006 11:51:25 GMT Standard Time, catherine.devereux@... writes: rexel45aol wrote:> Our posts crossed - I see she is at St 's, a hospital with> a lot of good people working there.> Margaret>> Yes, that's right! We'll be seeing her colleague on the 27th of June, > Dr. Al-Ahmed at St. 's, so I can update on how that goes if > anyone's interested.> Darla> Hi Darla,What exactly is Dr Al-Ahmed's title? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Hi , The best info that I can get on her is that she is "Consultant Paediatrician, Special Education Needs" and also holds a position as chair (or head) of Community Child Health for a local NHS trust. Her name is Dr. Suhaila Al-Ahmed but I cannot find her credentials anywhere and they were not listed on the appointment letter that we received. Sorry don't know more about her credentials, perhaps when her report comes through I can tell you more. Regards, Darla In a message dated 12/06/2006 11:51:25 GMT Standard Time, catherine.devereux@... writes: rexel45aol wrote:> Our posts crossed - I see she is at St 's, a hospital with> a lot of good people working there.> Margaret>> Yes, that's right! We'll be seeing her colleague on the 27th of June, > Dr. Al-Ahmed at St. 's, so I can update on how that goes if > anyone's interested.> Darla> Hi Darla,What exactly is Dr Al-Ahmed's title? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 rexel45@... wrote: > Hi , > > The best info that I can get on her is that she is " Consultant > Paediatrician, Special Education Needs " and also holds a position as > chair (or head) of Community Child Health for a local NHS trust. Her > name is Dr. Suhaila Al-Ahmed but I cannot find her credentials > anywhere and they were not listed > > on the appointment letter that we received. > > > > Sorry don't know more about her credentials, perhaps when her report > comes through I can tell you more. > > Regards, > > Darla > > Thanks Darla - is she the paed most local to you? Does she take > referrals from outside her PCT do you know? Many thanks > In a message dated 12/06/2006 11:51:25 GMT Standard Time, > catherine.devereux@... writes: > > rexel45aol (DOT) com <mailto:rexel45%40aol.com> wrote: > > > Our posts crossed - I see she is at St 's, a hospital with > > a lot of good people working there. > > Margaret > > > > Yes, that's right! We'll be seeing her colleague on the 27th of > June, > > Dr. Al-Ahmed at St. 's, so I can update on how that goes if > > anyone's interested. > > Darla > > Hi Darla, > > What exactly is Dr Al-Ahmed's title? > > > > Quote Link to comment Share on other sites More sharing options...
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