Re: CMT is not a predictable disorder

[Guest guest]

In a message dated 12/14/2005 6:23:01 P.M. Pacific Standard Time,

GfijiG6@... writes:

My original diagnosing doctor, Marshall Urist, MD of West Los Angeles

(R.I.P) told my mother " her CMT MAY be progressive, or not at all

That was a darn good doctor in my opinion. Our doctor Saul Bernstein of Van

Nuys CA, Looks at Adam as weak as he is, smiles at me and says 'he is doing

good.' He is doing good for a child with CMT as severe as he is he amazes me.

Nice to hear encouraging words.

[Guest guest]

My husband was supposed to be in a wheel chair by age 21 yrs. He is now 21

years and 5 months old. He has his pains in his legs, hips, knees from time to

time, and has tremors. But none keep him from doing what he loves taking long

walks (usually 3 to 5 miles, we walk almost everywhere), running after our

children, driving ,and swimming.

Well Happy Holidays everyone!!!!!!

[Guest guest]

This is true. I have CMT Type X, the second most common Type after CMT

1A. When my daughters were young (twins) they were DNA tested. They

tested positive - no surprize there - but for their whole life (they

are in their mid-20's now) they have been asymtomatic - meaning they

show NO symptoms.

[Guest guest]

glw8479@... writes:

<they have been asymtomatic - meaning they show NO symptoms.>

,

That is what my doctor's report says about my Dad and my sister. I think my

sister is CMT free only because all 7 of her kids seem fine.