Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 In a message dated 3/6/02 8:59:20 AM Eastern Standard Time, Ltb3105@... writes: > Well, we finally did it......we have an appt. to see Dr. Capone on April > 22nd! , make sure you see Dr. Capone and not his associate. Make that clear up front. I'd hate to see you disappointed after all your hard work. He is very popular and his patient list grows so naturally he needs help. Just an FYI. I thought I had an appointment with Dr. Capone and so very little of him. Although he was very good about following up. And the little I saw of him was positive. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 In a message dated 3/6/02 8:59:20 AM Eastern Standard Time, Ltb3105@... writes: > Well, we finally did it......we have an appt. to see Dr. Capone on April > 22nd! , make sure you see Dr. Capone and not his associate. Make that clear up front. I'd hate to see you disappointed after all your hard work. He is very popular and his patient list grows so naturally he needs help. Just an FYI. I thought I had an appointment with Dr. Capone and so very little of him. Although he was very good about following up. And the little I saw of him was positive. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 In a message dated 3/6/02 8:59:41 AM Eastern Standard Time, Ltb3105@... writes: > Well, we finally did it......we have an appt. to see Dr. Capone on April > 22nd! I contacted my sources at MHMR and they refused to provide me with > any > funding for this trip, although the medical expenses will be covered by > HMO.....Medicaid is not state transferable. Nope, it's not. And my HMO would not pay. We had to do out of pocket. Granted, we didn't have air fare, merely gas and hotel bills. Each time we went though, and that has been numerous times. There were a couple things we paid for in that first visit, that we could have done without, but the information and help we gained for each visit has been incredibly helpful. Even in terms of getting certain services for Maddie, and we live out of state!!! I think it will be a big help to you . NOW, for YOUR homework!!!!! You should gather as much data as possible on . Write down your thoughts, concerns, issues, EVERYTHING!!! Write separately all your questions, so you have them at your fingertips. Whenever we go to important doc appts., Duff is the writer....I am the one who talks and asks questions. He writes it all down. It's really helpful to have hubby or someone wiht you during the appt. so he/she can do that. Goooooooooooood Luck!!!! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 In a message dated 3/7/02 7:36:24 PM Pacific Standard Time, writes: > And my HMO would not pay. We had to do out of pocket. > Granted, we didn't have air fare, merely gas and hotel bills. Donna, can you tell me why HMO refused? I'd better find out if I'm covered before we go, although at this point, it's not going to stop us! We can have our pediatrician write a letter saying it is medically necessary as we've tried five doctors here in TX who couldn't help him.......I would rather have my traveling expenses paid for though, and pay for the actual appt. As it is, it will cost about a 1,000 bucks just for that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 In a message dated 3/7/02 7:36:24 PM Pacific Standard Time, writes: > You should gather as much data as possible on . Write > down your thoughts, concerns, issues, EVERYTHING!!! Write separately all > your questions, so you have them at your fingertips. Are you kidding? Me, without ammo????? LMAO! I've already got school reports, eval's, other doctor's notes, you name it....we are also taking to get an autism test from the Child Study Center here in FW and I will take THAT with me too......I am still waiting for their package to arrive.....a lot of stuff will not be taken, but mailed ahead of time, so that he can go over it and know something about even before we walk in the door......he already has the basics, as I emailed him a questionnaire some time ago. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 In a message dated 3/8/02 3:03:56 PM Eastern Standard Time, Ltb3105@... writes: > Donna, can you tell me why HMO refused? , Yes. They said that we could find the same services here in Philadelphia. A bunch of malarky of course. We don't even have a Down Syndrome clinic here (Wood Center at CHOP for kids wiht all kinds of disabilities). My doc did write a letter, and we appealed, to no avail. For one of our visits to KKI, we did fight and got the school district to pay for half. Our argument was that Maddie had received no services under early intervention, since she was in such bad shape they couldn't get within three feet of her and were at a brick wall. Course, they didn't want to admit that and Duff (my pitt bull) really blasted them. This was when we were in an absolute crisis; I remember feeling like we weren't even living!! After he blasted each and every one of them (they were spouting about how they thought Maddie was making progress-----It was a JOKE----I ended up being good friends with all of them, but the reality is that everybody is covering their backs, ya know), they signed on the dotted line. BTW, I was disappointed with half......felt we should have gotten full. Oh well. , definitely check into the insurance thing first. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 In a message dated 3/8/02 3:03:56 PM Eastern Standard Time, Ltb3105@... writes: > Donna, can you tell me why HMO refused? , Yes. They said that we could find the same services here in Philadelphia. A bunch of malarky of course. We don't even have a Down Syndrome clinic here (Wood Center at CHOP for kids wiht all kinds of disabilities). My doc did write a letter, and we appealed, to no avail. For one of our visits to KKI, we did fight and got the school district to pay for half. Our argument was that Maddie had received no services under early intervention, since she was in such bad shape they couldn't get within three feet of her and were at a brick wall. Course, they didn't want to admit that and Duff (my pitt bull) really blasted them. This was when we were in an absolute crisis; I remember feeling like we weren't even living!! After he blasted each and every one of them (they were spouting about how they thought Maddie was making progress-----It was a JOKE----I ended up being good friends with all of them, but the reality is that everybody is covering their backs, ya know), they signed on the dotted line. BTW, I was disappointed with half......felt we should have gotten full. Oh well. , definitely check into the insurance thing first. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 In a message dated 3/12/02 12:09:14 PM Pacific Standard Time, writes: > It's my opinion that you need to come up with a behavior plan, > not just rely on meds. Actually, I can't believe they haven't come up > with > one at school? Have they ever done an fba on ? Nothing worked, except for the videos 's allowed to watch IF he completes his tasks first.......speaking of the fba, thanks, Donna, after spring break this week, I need to find out if they've completed their observations.......I was told they had an fba come in several times during one week, but no one's gotten back to me yet! And Donna, the copies of reports, eval's, medical records, notes, etc., etc. is big enough that I will probably have to send to Capone in a US priority box!!!!! hehe. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 In a message dated 3/13/02 10:35:22 AM Pacific Standard Time, writes: > Who is KKI? I don't know anything about this. Please inform. Thanks, > D > > Called " Kennedy Krieger Institute " , is a place where they treat rare conditions, challenging behaviors......and it's JUST for children with disabilities......doctors there from around the world who treat kids who come from around the world! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 that's pretty cool --- Ltb3105@... wrote: > In a message dated 3/13/02 10:35:22 AM Pacific > Standard Time, > writes: > > > > Who is KKI? I don't know anything about this. > Please inform. Thanks, > > D > > > > > > Called " Kennedy Krieger Institute " , is a place where > they treat rare > conditions, challenging behaviors......and it's JUST > for children with > disabilities......doctors there from around the > world who treat kids who come > from around the world! > > > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 that's pretty cool --- Ltb3105@... wrote: > In a message dated 3/13/02 10:35:22 AM Pacific > Standard Time, > writes: > > > > Who is KKI? I don't know anything about this. > Please inform. Thanks, > > D > > > > > > Called " Kennedy Krieger Institute " , is a place where > they treat rare > conditions, challenging behaviors......and it's JUST > for children with > disabilities......doctors there from around the > world who treat kids who come > from around the world! > > > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 What do they do for a family until age 21 after an autism identification and who pays for their " services? " Do they attend IEP meetings? Do they have social workers coming into the home afterward or only if your child attends one of its schools? ________________________________________________________________________ Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
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