RE: Fw: MSP/ What can happen to parents when refus...

[Guest guest]

Really?!? (the bit about

the dietician) life is so tough with Tom that it is easy to forget people that

people have it even tougher with their autistic children. I would find it very

hard to take a comment like that. We have tried to be open about everything we

do because we think that (a) the truth is powerful and ( we may be helping

parents in the future but, much as much I’ve not liked the professionals I’ve

dealt with, none of them have ever accused me of being cruel to my child. (Having

said that there were such dodgy things in Tom’s original reports before

his diagnosis, they wrote things like ‘the uncle is very withdrawn’

and ‘the paternal grandmother is of a depressive nature’ which were

gross misquotes of things we had said and were taken totally out of context, they

also said that ‘Tom’s parents disagree about how to best parent

their child’. That was because they told me not to give Tom a dummy, he

hurt himself and I gave him one, DH shook his head and I said ‘no, it’ll

be alright’. So, actually, it’s beginning to sound a lot more

credible, unfortunately!!!

Sara

Re:

Fw: MSP/ What can happen to parents when refus...

Sara

I will

see if I can find the case of the lady that private eye and a couple of others

highlighted. When her boys were being diagnosed with autism she had terrible

trouble and kept getting things put on her notes that she was exaggerating

their problems and generally an attention seeker. It consequently took several

years to get her boys the diagnosis and the help they needed. She then became

unwell and , because her notes said she was attention seeking ( and if I

remeber rightly mentioned MSP) she kept being sent home. She was found to have

cancer and died because the treatment was so delayed. Her name was Debbie

something - i remeber the Debbie bit for obvious reasons. Her solicitor at tghe

time spoke out because she was so outraged at the way this lady had been

treated like a nutcase and that solicitor also said she had other similar

clients whom family court rules meant she could not discuss openly.

It is

crazy. I have always been wary as the first time I say a dietician (in 1999)

she told me that if I did gfcf she would report me to social services. I

don't tell anyone what I do with Charlie now and i have been very careful in

how I deal with Doctors per se.....

Deborah

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