Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Sheri you many not need SSI, but rather medical assistance to get her medical and therapy needs covered. In MOST states, there's a loop hole that will cover a disabled child, even if the household income is over the rate that's determined by the state. Since it's the CHILD that you are seeking the benefit for, the CHILDS income alone must be over that rate (which it never is.) If you contact the assistance office in your county, they should be able to give you an application which is fairly quick to fill out, and you should have a determination for benefits in less than a month. You'll get an access card and can use that to pay for services from providers that accept it (I've found here that not many do.) This should help you greatly defer the cost of therapies and medications that your child needs. If I can help you, please don't hesitate to email me privately. ~karyn Sheri wrote: Hello, I am trying to get some advice I applied for SSI for my 2 year old daughter that has Apraxia and some sensory issues. She is totally " non-verbal " . I reced. the determination letter from SSI and was told that she is disabled but not under their guidelines. I just sat there and cried. I am appealing the decision. I am going to bring my daughter with me and tell the judge to tell me what she wants or needs. Tell me if she is hurt or if someone has hurt her. I am so frustrated with the whole system. If any one else has been in my place please pass on some advice. I am really at my witts end. Thank you, Sheri Coon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 I am a disabled Mom with four special needs children we adopted. It took me 5 years to get one son and dau approved for SSI, and another son 12 years. As for me, the only one with JRA, and had Adult Child Benefits before due to my being disabled, it took me 8 years! And my JRA is very visible! Only good thing, the retro money! But all those years-no Medicare! Kids got SSI, I SSD. I am good with legal issues, but none got approved until I got an attny, and my one son, his case went to the Appeals Council 3x! Sorry to be so discouraging, but you have to keep chipping away at the system, don't give up! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 I am a disabled Mom with four special needs children we adopted. It took me 5 years to get one son and dau approved for SSI, and another son 12 years. As for me, the only one with JRA, and had Adult Child Benefits before due to my being disabled, it took me 8 years! And my JRA is very visible! Only good thing, the retro money! But all those years-no Medicare! Kids got SSI, I SSD. I am good with legal issues, but none got approved until I got an attny, and my one son, his case went to the Appeals Council 3x! Sorry to be so discouraging, but you have to keep chipping away at the system, don't give up! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2005 Report Share Posted September 30, 2005 , I CAN ONLY SPEAK FOR THE STATE OF KANSAS, BUT I ORIGINALLY FILED IN FEB OF 2002, AND HAVE BEEN TURNED DOWN TWICE. I DON'T KNOW HOW YOUR STATE WORKS, BUT WE ONLY HAVE 4 JUDGES THAT HEAR CASES FOR THE ENTIRE STATE. FROM WHAT i HAVE LEARNED, THEY MOST ALWAYS TURN YOU DOWN THE FIRST 2 TIMES AND FORCE YOU TO HIRE AN ATTY, WHICH I FINALLY DID IN JAN OF THIS YEAR. AT LEAST I AM LUCKY THAT MY HUBBY MAKES ENOUGH TO COVER OUR LIVING EXPENSES. I AM FINALLY GOING TO GET MY HEARING IN THE NEXT FEW MONTHS. I THINK THEY JUST TRY TO FORCE YOU TO GIVE UP, BUT HANG IN THERE. I WISH I HAD BETTER NEWS FOR YOU, SORRY. I WILL KEEP YOU IN MY PRAYERS. SHIRLEY __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2005 Report Share Posted September 30, 2005 , I CAN ONLY SPEAK FOR THE STATE OF KANSAS, BUT I ORIGINALLY FILED IN FEB OF 2002, AND HAVE BEEN TURNED DOWN TWICE. I DON'T KNOW HOW YOUR STATE WORKS, BUT WE ONLY HAVE 4 JUDGES THAT HEAR CASES FOR THE ENTIRE STATE. FROM WHAT i HAVE LEARNED, THEY MOST ALWAYS TURN YOU DOWN THE FIRST 2 TIMES AND FORCE YOU TO HIRE AN ATTY, WHICH I FINALLY DID IN JAN OF THIS YEAR. AT LEAST I AM LUCKY THAT MY HUBBY MAKES ENOUGH TO COVER OUR LIVING EXPENSES. I AM FINALLY GOING TO GET MY HEARING IN THE NEXT FEW MONTHS. I THINK THEY JUST TRY TO FORCE YOU TO GIVE UP, BUT HANG IN THERE. I WISH I HAD BETTER NEWS FOR YOU, SORRY. I WILL KEEP YOU IN MY PRAYERS. SHIRLEY __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 , You can do the SSDI application on line which is designed to make the process go faster. (I did a tutorial in this - it takes about 4 hours if you have all of the required information with you) Here is the link - read about both SSDI and SSI before you go any farther. You may want to get the " starter kit " . Here is the direct link for SSI http://www.ssa.gov/notices/supplemental- security-income/ Make sure to read all of it through and have ALL the required papers with you before making the application. As for SSI, you cannot file for this on-line. The best way is to contact your local Social Security office by phone, ask for an application, complete it, and then either have a phone interview or make an appointment for your husband and go together into the Sociall Security office. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 Hi, You call social sec. make an apt (don't ever cancel it, reschedule only) bring a psych eval and rent amt and any other monthly bills etc., you will get a check 6 mts later and a expl. of what the check is for 2 weeks after the check. I send them my paystubs monthly now because they always over estimate your income if you don't. Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 ok, we are new at this (first time posting). our son has been diagnosed with AS. what does one need to qualify for social security (i'm assuming that's what SSI stands for)? thanks! Re: ( ) ssi Hi, You call social sec. make an apt (don't ever cancel it, reschedule only) bring a psych eval and rent amt and any other monthly bills etc., you will get a check 6 mts later and a expl. of what the check is for 2 weeks after the check. I send them my paystubs monthly now because they always over estimate your income if you don't. Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 Has anyone out there had any luck getting the SSI? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 I am 46 years old, used to do computer program work. I have two girls (ages 10 and 11). I first went to the doctor in May of 2005 with my hands swelling and my fingers being stiff. They finally diagnosed me in August of that year. By that time I could not stand without help, could not get into the bed by myself, or even tie my own shoes. My doctor told me to file for disability, which I did in August. I recieved SSI until my Disability went through. I was told my disability had been approved in the beginning of October. I now take MTX, mobic, and Arava. I can at least tie my own shoes, get in and out of bed by myself, and kinda stand up with a little help. I have even gotten brave enough to start cooking. I still hurt each and every day, but I refuse to give up. I have two girls to think about, so every time I get down I think of them and it helps me. > > Has anyone out there had any luck getting the SSI? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2007 Report Share Posted March 4, 2007 Hi ditmersr newbie Sorry to hear that you are in so much pain. Did you know that you had CMT before the car accident? Keep fighting with SSI eventually you will win. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2007 Report Share Posted March 5, 2007 I was diagnosed CMT year and a half after the accident due to unresolved neck/shoulder/arm pain that doc and physical therapy could not fix. But looking back at all the ankle/knee/leg pain I've dealt for years all point to this disease. We are at ALJ level with SSI with a lawyer on the hook. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2007 Report Share Posted April 21, 2007 Mark, Are you sure you applied for SSI, or was it SSDI? 2 different programs. But for either you must be found " disabled " under the program rules. Here's a few links http://www.ssa.gov/disability/professionals/bluebook/ http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm (look over categories 1.00 and 11.00 http://www.ssa.gov/disability/professionals/bluebook/evidentiary.htm http://www.ssa.gov/disability/professionals/bluebook/general-info.htm http://www.ssa.gov/dibplan/dqualify5.htm ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 I thought the 1st time I applied they said I was not qualified for one of the programs (sorry to sound ignorant) but I do not know the difference between the two and I am writing you back before reading the links you responded with. I appreciate your feedback. Thanks Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.