Re: Secretin - anyone know more about this?

May 18, 2006

We also tried Ainsworth's Homeopathic Secretin without seeing anything.

Miles

Mum231ASD@... wrote:

> In a message dated 18/05/2006 12:07:19 GMT Daylight Time,

> stuartfinnes1@... writes:

>

> Has anybody tried a course of secretin?

>

> >>>We did the Homeopathic version from Ainsworths, not sure if we

> saw anything, I was still at the throw evberything at him wildy

> stage then - backin 1999, god I feel old!!

>

> I believe it was looking promising for helping with digestive tract

> issues, but it seems to have fallen by the wayside - anyone either

> tried it or know more about it?

>

> >>>Its was like everything really, some kids got major wows, some

> saw nothing. I have corresponded with 3 parents where there kid

> had first speech with it.

>

> You can't actually get the stuff the first lot of kids had because

> they stopped making it. They then made synthetix version but study

> results wern;t too positive, however, many chose to continue with

> treatment and there were more positives over time it seems from

> postings onb the lists

>

> There was a UK GP flying around the country giving IV Secrelux -

> another synthetic in parents back rooms and whizzing off to the

> next place. I spoke to some of the mums at the AiA conference in

> 2000 and they were seeing great things, one nearly crashed the car

> when the kid started talking ont he way home from the IV

>

> Then of course he was disciplined or arrested, something about the

> single MMR vaccs, I forget what, anyways, then he went off to

> Autrailia I think, they sell it as Secrelux Nasal Spray there and

> say loads of pople are using it but I never found anyone who

> has.........................

>

> Then came digestive enzymes, with the introduction of Serenaid (by

> Devin Houston BTW), Enzymeaid and then HNI, then the secretin

> looked expensive, bit hit and miss and because IV tricky to

> admimister and then it seemed to fade away.

>

> Seen some posts recently, not sure where about doing TD Secretin,

> didn;t pay much attention, I'll try and recall where I saw it

>

> I'm primarily interested because I saw some results that suggested it

> had helped with social and language skills.

>

> >>Language was a biggie for the kids that responded and was what

> gave the najor publicity, like instantly - words, I can;t even

> imgaine what that must be like, but I can still dream

>

> Mandi x

>

> DISCLAIMER

> No information contained in this post is to be construed as medical

> advice. If you need medical advice, please seek it from a suitably

> qualified practitioner.

>

May 18, 2006

We also tried Ainsworth's Homeopathic Secretin without seeing anything.

Miles

Mum231ASD@... wrote:

> In a message dated 18/05/2006 12:07:19 GMT Daylight Time,

> stuartfinnes1@... writes:

>

> Has anybody tried a course of secretin?

>

> >>>We did the Homeopathic version from Ainsworths, not sure if we

> saw anything, I was still at the throw evberything at him wildy

> stage then - backin 1999, god I feel old!!

>

> I believe it was looking promising for helping with digestive tract

> issues, but it seems to have fallen by the wayside - anyone either

> tried it or know more about it?

>

> >>>Its was like everything really, some kids got major wows, some

> saw nothing. I have corresponded with 3 parents where there kid

> had first speech with it.

>

> You can't actually get the stuff the first lot of kids had because

> they stopped making it. They then made synthetix version but study

> results wern;t too positive, however, many chose to continue with

> treatment and there were more positives over time it seems from

> postings onb the lists

>

> There was a UK GP flying around the country giving IV Secrelux -

> another synthetic in parents back rooms and whizzing off to the

> next place. I spoke to some of the mums at the AiA conference in

> 2000 and they were seeing great things, one nearly crashed the car

> when the kid started talking ont he way home from the IV

>

> Then of course he was disciplined or arrested, something about the

> single MMR vaccs, I forget what, anyways, then he went off to

> Autrailia I think, they sell it as Secrelux Nasal Spray there and

> say loads of pople are using it but I never found anyone who

> has.........................

>

> Then came digestive enzymes, with the introduction of Serenaid (by

> Devin Houston BTW), Enzymeaid and then HNI, then the secretin

> looked expensive, bit hit and miss and because IV tricky to

> admimister and then it seemed to fade away.

>

> Seen some posts recently, not sure where about doing TD Secretin,

> didn;t pay much attention, I'll try and recall where I saw it

>

> I'm primarily interested because I saw some results that suggested it

> had helped with social and language skills.

>

> >>Language was a biggie for the kids that responded and was what

> gave the najor publicity, like instantly - words, I can;t even

> imgaine what that must be like, but I can still dream

>

> Mandi x

>

> DISCLAIMER

> No information contained in this post is to be construed as medical

> advice. If you need medical advice, please seek it from a suitably

> qualified practitioner.

>

May 18, 2006

Thnaks Mandi - A full response as ever!

I hear you on the language - our little tough nut who had zero language

appears to be finally cracking though.

He is starting to get a few words now - as you may remember, we run a home

programme so his first major repeatable language is " I want go out " at the

first sign of taking him up to his room for the day, then he kicks in with

it again about 30 mins before he is due to finish in his room.

We haven't found a silver bullet, but we are seeing his " some " progress

moving towards " slow " progress - so hopefully we're on an upward curve.

I think chelation has helped, also we're probably getting closer to getting

his sulphation chain working and healing his gut dysbiosis.

The sulphation chain has been a bugger - we needed massive B6, MSM didn't

get absorbed at all, glutathione low, cysteine low, sulphate low, molybdenum

low etc etc. I think it's nearly there now, it will just take a few tweaks

to getting his pinwheel spinning.

Still rooting for you and Sam - I may not post often, but I read your

updates with interest.

Thanks, Stuart

>From: Mum231ASD@...

>Reply-Autism Treatment

>Autism Treatment

>Subject: Re: Secretin - anyone know more about

>this?

>Date: Thu, 18 May 2006 07:55:27 EDT

>

>In a message dated 18/05/2006 12:07:19 GMT Daylight Time,

>stuartfinnes1@... writes:

>

>Has anybody tried a course of secretin?

>

> >>>We did the Homeopathic version from Ainsworths, not sure if we saw

>anything, I was still at the throw evberything at him wildy stage then -

>backin

>1999, god I feel old!!

>

>I believe it was looking promising for helping with digestive tract

>issues, but it seems to have fallen by the wayside - anyone either

>tried it or know more about it?

>

> >>>Its was like everything really, some kids got major wows, some saw

>nothing. I have corresponded with 3 parents where there kid had first

>speech with

>it.

>

>You can't actually get the stuff the first lot of kids had because they

>stopped making it. They then made synthetix version but study results

>wern;t too

>positive, however, many chose to continue with treatment and there were

>more

>positives over time it seems from postings onb the lists

>

>There was a UK GP flying around the country giving IV Secrelux - another

>synthetic in parents back rooms and whizzing off to the next place. I spoke

>to

>some of the mums at the AiA conference in 2000 and they were seeing great

>things, one nearly crashed the car when the kid started talking ont he way

>home

>from the IV

>

>Then of course he was disciplined or arrested, something about the single

>MMR vaccs, I forget what, anyways, then he went off to Autrailia I think,

>they

>sell it as Secrelux Nasal Spray there and say loads of pople are using it

>but

>I never found anyone who has.........................

>

>Then came digestive enzymes, with the introduction of Serenaid (by Devin

>Houston BTW), Enzymeaid and then HNI, then the secretin looked expensive,

>bit

>hit and miss and because IV tricky to admimister and then it seemed to

>fade

>away.

>

>Seen some posts recently, not sure where about doing TD Secretin, didn;t

>pay

>much attention, I'll try and recall where I saw it

>

>I'm primarily interested because I saw some results that suggested it

>had helped with social and language skills.

>

> >>Language was a biggie for the kids that responded and was what gave the

>najor publicity, like instantly - words, I can;t even imgaine what that

>must be

>like, but I can still dream

>

>Mandi x

>

_________________________________________________________________

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May 18, 2006

Thnaks Mandi - A full response as ever!

I hear you on the language - our little tough nut who had zero language

appears to be finally cracking though.

He is starting to get a few words now - as you may remember, we run a home

programme so his first major repeatable language is " I want go out " at the

first sign of taking him up to his room for the day, then he kicks in with

it again about 30 mins before he is due to finish in his room.

We haven't found a silver bullet, but we are seeing his " some " progress

moving towards " slow " progress - so hopefully we're on an upward curve.

I think chelation has helped, also we're probably getting closer to getting

his sulphation chain working and healing his gut dysbiosis.

The sulphation chain has been a bugger - we needed massive B6, MSM didn't

get absorbed at all, glutathione low, cysteine low, sulphate low, molybdenum

low etc etc. I think it's nearly there now, it will just take a few tweaks

to getting his pinwheel spinning.

Still rooting for you and Sam - I may not post often, but I read your

updates with interest.

Thanks, Stuart

>From: Mum231ASD@...

>Reply-Autism Treatment

>Autism Treatment

>Subject: Re: Secretin - anyone know more about

>this?

>Date: Thu, 18 May 2006 07:55:27 EDT

>

>In a message dated 18/05/2006 12:07:19 GMT Daylight Time,

>stuartfinnes1@... writes:

>

>Has anybody tried a course of secretin?

>

> >>>We did the Homeopathic version from Ainsworths, not sure if we saw

>anything, I was still at the throw evberything at him wildy stage then -

>backin

>1999, god I feel old!!

>

>I believe it was looking promising for helping with digestive tract

>issues, but it seems to have fallen by the wayside - anyone either

>tried it or know more about it?

>

> >>>Its was like everything really, some kids got major wows, some saw

>nothing. I have corresponded with 3 parents where there kid had first

>speech with

>it.

>

>You can't actually get the stuff the first lot of kids had because they

>stopped making it. They then made synthetix version but study results

>wern;t too

>positive, however, many chose to continue with treatment and there were

>more

>positives over time it seems from postings onb the lists

>

>There was a UK GP flying around the country giving IV Secrelux - another

>synthetic in parents back rooms and whizzing off to the next place. I spoke

>to

>some of the mums at the AiA conference in 2000 and they were seeing great

>things, one nearly crashed the car when the kid started talking ont he way

>home

>from the IV

>

>Then of course he was disciplined or arrested, something about the single

>MMR vaccs, I forget what, anyways, then he went off to Autrailia I think,

>they

>sell it as Secrelux Nasal Spray there and say loads of pople are using it

>but

>I never found anyone who has.........................

>

>Then came digestive enzymes, with the introduction of Serenaid (by Devin

>Houston BTW), Enzymeaid and then HNI, then the secretin looked expensive,

>bit

>hit and miss and because IV tricky to admimister and then it seemed to

>fade

>away.

>

>Seen some posts recently, not sure where about doing TD Secretin, didn;t

>pay

>much attention, I'll try and recall where I saw it

>

>I'm primarily interested because I saw some results that suggested it

>had helped with social and language skills.

>

> >>Language was a biggie for the kids that responded and was what gave the

>najor publicity, like instantly - words, I can;t even imgaine what that

>must be

>like, but I can still dream

>

>Mandi x

>

_________________________________________________________________

Are you using the latest version of MSN Messenger? Download MSN Messenger

7.5 today! http://join.msn.com/messenger/overview

May 18, 2006

Hi,

we also tried the ainsworth stuff many years ago and had major

anxiety issues when using it, too scary to keep going with at the

time,we have got alot tougher since then!!! Haven't ever revisited

it as newer more interesting stuff has come up since.

Website for Oz co.: www.secrenase.com

Don't know anything about them despite having lived in Oz for nearly

4 years and sending off for their stuff whilst living there, also

never came across anyone using the stuff. I think i may have been

put off by our experience with ainsworths.

Nikki

>

> We also tried Ainsworth's Homeopathic Secretin without seeing

anything.

>

> Miles

>

> Mum231ASD@... wrote:

> > In a message dated 18/05/2006 12:07:19 GMT Daylight Time,

> > stuartfinnes1@... writes:

> >

> > Has anybody tried a course of secretin?

> >

> > >>>We did the Homeopathic version from Ainsworths, not sure

if we

> > saw anything, I was still at the throw evberything at him

wildy

> > stage then - backin 1999, god I feel old!!

> >

May 18, 2006

Hi,

we also tried the ainsworth stuff many years ago and had major

anxiety issues when using it, too scary to keep going with at the

time,we have got alot tougher since then!!! Haven't ever revisited

it as newer more interesting stuff has come up since.

Website for Oz co.: www.secrenase.com

Don't know anything about them despite having lived in Oz for nearly

4 years and sending off for their stuff whilst living there, also

never came across anyone using the stuff. I think i may have been

put off by our experience with ainsworths.

Nikki

>

> We also tried Ainsworth's Homeopathic Secretin without seeing

anything.

>

> Miles

>

> Mum231ASD@... wrote:

> > In a message dated 18/05/2006 12:07:19 GMT Daylight Time,

> > stuartfinnes1@... writes:

> >

> > Has anybody tried a course of secretin?

> >

> > >>>We did the Homeopathic version from Ainsworths, not sure

if we

> > saw anything, I was still at the throw evberything at him

wildy

> > stage then - backin 1999, god I feel old!!

> >

May 18, 2006

Thnaks for that,

I'll have a look

>From: " nm44714 " <nikkigoian44714@...>

>Reply-Autism Treatment

>Autism Treatment

>Subject: Re: Secretin - anyone know more about

>this?

>Date: Thu, 18 May 2006 15:47:23 -0000

>

>Hi,

>

>we also tried the ainsworth stuff many years ago and had major

>anxiety issues when using it, too scary to keep going with at the

>time,we have got alot tougher since then!!! Haven't ever revisited

>it as newer more interesting stuff has come up since.

>

>Website for Oz co.: www.secrenase.com

>

>Don't know anything about them despite having lived in Oz for nearly

>4 years and sending off for their stuff whilst living there, also

>never came across anyone using the stuff. I think i may have been

>put off by our experience with ainsworths.

>

>Nikki

>

> >

> > We also tried Ainsworth's Homeopathic Secretin without seeing

>anything.

> >

> > Miles

> >

> > Mum231ASD@... wrote:

> > > In a message dated 18/05/2006 12:07:19 GMT Daylight Time,

> > > stuartfinnes1@... writes:

> > >

> > > Has anybody tried a course of secretin?

> > >

> > > >>>We did the Homeopathic version from Ainsworths, not sure

>if we

> > > saw anything, I was still at the throw evberything at him

>wildy

> > > stage then - backin 1999, god I feel old!!

> > >

>

_________________________________________________________________

Be the first to hear what's new at MSN - sign up to our free newsletters!

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May 18, 2006

Thnaks for that,

I'll have a look

>From: " nm44714 " <nikkigoian44714@...>

>Reply-Autism Treatment

>Autism Treatment

>Subject: Re: Secretin - anyone know more about

>this?

>Date: Thu, 18 May 2006 15:47:23 -0000

>

>Hi,

>

>we also tried the ainsworth stuff many years ago and had major

>anxiety issues when using it, too scary to keep going with at the

>time,we have got alot tougher since then!!! Haven't ever revisited

>it as newer more interesting stuff has come up since.

>

>Website for Oz co.: www.secrenase.com

>

>Don't know anything about them despite having lived in Oz for nearly

>4 years and sending off for their stuff whilst living there, also

>never came across anyone using the stuff. I think i may have been

>put off by our experience with ainsworths.

>

>Nikki

>

> >

> > We also tried Ainsworth's Homeopathic Secretin without seeing

>anything.

> >

> > Miles

> >

> > Mum231ASD@... wrote:

> > > In a message dated 18/05/2006 12:07:19 GMT Daylight Time,

> > > stuartfinnes1@... writes:

> > >

> > > Has anybody tried a course of secretin?

> > >

> > > >>>We did the Homeopathic version from Ainsworths, not sure

>if we

> > > saw anything, I was still at the throw evberything at him

>wildy

> > > stage then - backin 1999, god I feel old!!

> > >

>

_________________________________________________________________

Be the first to hear what's new at MSN - sign up to our free newsletters!

http://www.msn.co.uk/newsletters

May 18, 2006

When testing low in elastase,it is suggested that a patient have malfunctioning pancreas, and Secretin is worth trying !Geir FlatabøOn 5/18/06,

Mum231ASD@... <Mum231ASD@...> wrote:

In a message dated 18/05/2006 12:07:19 GMT Daylight Time, stuartfinnes1@... writes:

Has anybody tried a course of secretin?

>>>We did the Homeopathic version from Ainsworths, not sure if we saw anything, I was still at the throw evberything at him wildy stage then - backin 1999, god I feel old!! I believe it was looking promising for helping with digestive tract issues, but it seems to have fallen by the wayside - anyone either tried it or know more about it?

>>>Its was like everything really, some kids got major wows, some saw nothing. I have corresponded with 3 parents where there kid had first speech with it.

You can't actually get the stuff the first lot of kids had because they stopped making it. They then made synthetix version but study results wern;t too positive, however, many chose to continue with treatment and there were more positives over time it seems from postings onb the lists

There was a UK GP flying around the country giving IV Secrelux - another synthetic in parents back rooms and whizzing off to the next place. I spoke to some of the mums at the AiA conference in 2000 and they were seeing great things, one nearly crashed the car when the kid started talking ont he way home from the IV

Then of course he was disciplined or arrested, something about the single MMR vaccs, I forget what, anyways, then he went off to Autrailia I think, they sell it as Secrelux Nasal Spray there and say loads of pople are using it but I never found anyone who has.........................

Then came digestive enzymes, with the introduction of Serenaid (by Devin Houston BTW), Enzymeaid and then HNI, then the secretin looked expensive, bit hit and miss and because IV tricky to admimister and then it seemed to fade away.

Seen some posts recently, not sure where about doing TD Secretin, didn;t pay much attention, I'll try and recall where I saw it

I'm primarily interested because I saw some results that suggested it had helped with social and language skills.

>>Language was a biggie for the kids that responded and was what gave the najor publicity, like instantly - words, I can;t even imgaine what that must be like, but I can still dream

Mandi x

DISCLAIMER

No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.

May 20, 2006

Hi Stuart

Well done on the progress you are seeing.

Can I just ask, how high a dose of B6 have you gone and is it the P5P form

of B6?

Thanks

Kay.

> The sulphation chain has been a bugger - we needed massive B6, >

Thanks, Stuart

>

> DISCLAIMER

> No information contained in this post is to be construed as medical

> advice. If you need medical advice, please seek it from a suitably

> qualified practitioner.

>

May 20, 2006

Hi Stuart

Well done on the progress you are seeing.

Can I just ask, how high a dose of B6 have you gone and is it the P5P form

of B6?

Thanks

Kay.

> The sulphation chain has been a bugger - we needed massive B6, >

Thanks, Stuart

>

> DISCLAIMER

> No information contained in this post is to be construed as medical

> advice. If you need medical advice, please seek it from a suitably

> qualified practitioner.

>

May 23, 2006

Hi Kay,

sorry for the delay, my home computer has given up on me.

Anyway, we had s B vits blood tested. His B6 was really really

low - the worst Dr.Heard had seen at that time, but someone's probably

surpassed it since!

We gave him pure b6 intitially, at a dosage of 270mg per day initially. To

put that in perspecitve, it initially equated to circa 13000% RDA. When we

retested hi B6 levels, it wasn't enough - his deficiency had decreased, but

not resolved. We then added in 250 mg per day of P5P. After about another 6

months, he has finally got his b6 levels within the normal range and we are

now easing down again. However, the therapeutic dose that got him there,

between the b6 and p5p was circa 26000% of RDA. I would have been very

concerned about giving that level without Dr.Heard's advice and the evidence

of the blood tests.

Hope that helps.

>From: " Kay & Steve " <kay.steve@...>

>Reply-Autism Treatment

><Autism Treatment >

>Subject: Re: Secretin - anyone know more about

>this?

>Date: Sat, 20 May 2006 18:16:59 +0100

>

>Hi Stuart

>

>Well done on the progress you are seeing.

>

>Can I just ask, how high a dose of B6 have you gone and is it the P5P form

>of B6?

>

>Thanks

>Kay.

>

> > The sulphation chain has been a bugger - we needed massive B6, >

> Thanks, Stuart

> >

> > DISCLAIMER

> > No information contained in this post is to be construed as medical

> > advice. If you need medical advice, please seek it from a suitably

> > qualified practitioner.

> >

May 23, 2006