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Adding Biomed to educational statement?

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In a message dated 13/05/2006 06:04:32 GMT Daylight Time, bbrowne123@... writes:

Is it possible, before signing your child's statement of ed. needs, to add in that your child is on a strict diet and GF/CF etc and that this must be adhered to in school?How would one do this and in what section. I want it to be known by everyone in the school system who comes into contact with my son that he is NOT to receive any gluten or casein. I would assume that if this is put into the statement that this would make it legally binding?Anyone do this?

>>>I tried (not very hard - asking made my point) but they said no it wasn;t possible - maybe it would have been with a Dr's note - I did not have any help back then, actually I was being hounded about biomed even.

They put n IEP in the US - I aked about that too (this is when we had the impossible teacvhers x 2 a few years back) but then they said it wasn't a measurable target so it couldn't go in there either! (it would have been one for them LOL)

Worth a shot anyways I think, good luck

Mandi x

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Is it possible, before signing your child's statement of ed. needs, to

add in that your child is on a strict diet and GF/CF etc and that this

must be adhered to in school?

How would one do this and in what section. I want it to be known by

everyone in the school system who comes into contact with my son that

he is NOT to receive any gluten or casein. I would assume that if this

is put into the statement that this would make it legally binding?

Anyone do this?

thanks

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Not sure if it's the same but we have dietary issues in the statement, not GF/CF but more to do with what he can't have, just says can only eat the food I provide, had a bit of a hurdle with the school dinners and re-heating health and safetey etc, but we have got round it now.

The biggest problem for me was not so much statement but ensuring it's policed properly like everything else in his statement really, and given that is non verbal, so much is trust, and I don't like trust.

They also give him his enzymes but not without a huge hoo ha, class teacher is the worst offender, ie she will give fruit or fruit juice and it's always an oversight [sigh] accompanied by much raised eyebrows, I do wonder if the class teacher ever actually read the statements, surely once proven to the LEA is enough and I need not offer up explanations to anyone else on a weekly basis!

So for me in the statement or not it still remains a constant battle with the class teacher, and that is every teacher he has ever had.

Vicky

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Not sure if it's the same but we have dietary issues in the statement, not GF/CF but more to do with what he can't have, just says can only eat the food I provide, had a bit of a hurdle with the school dinners and re-heating health and safetey etc, but we have got round it now.

The biggest problem for me was not so much statement but ensuring it's policed properly like everything else in his statement really, and given that is non verbal, so much is trust, and I don't like trust.

They also give him his enzymes but not without a huge hoo ha, class teacher is the worst offender, ie she will give fruit or fruit juice and it's always an oversight [sigh] accompanied by much raised eyebrows, I do wonder if the class teacher ever actually read the statements, surely once proven to the LEA is enough and I need not offer up explanations to anyone else on a weekly basis!

So for me in the statement or not it still remains a constant battle with the class teacher, and that is every teacher he has ever had.

Vicky

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I remember when we were going through the tribunal process being told by legal rep that you can do this. However, you need medical backing to show that your child really needs to be on the diet and that it is detrimental to his/ her health. He said there had been cases where the parents had been allowed to home ed because the school could not guarantee keeping to this. I just think of peanut allergies etc., How do they make sure the kids don't come into contact with nuts ??

Jane

Re: Adding Biomed to educational statement?

In a message dated 13/05/2006 06:04:32 GMT Daylight Time, bbrowne123@... writes:

Is it possible, before signing your child's statement of ed. needs, to add in that your child is on a strict diet and GF/CF etc and that this must be adhered to in school?How would one do this and in what section. I want it to be known by everyone in the school system who comes into contact with my son that he is NOT to receive any gluten or casein. I would assume that if this is put into the statement that this would make it legally binding?Anyone do this?

>>>I tried (not very hard - asking made my point) but they said no it wasn;t possible - maybe it would have been with a Dr's note - I did not have any help back then, actually I was being hounded about biomed even.

They put n IEP in the US - I aked about that too (this is when we had the impossible teacvhers x 2 a few years back) but then they said it wasn't a measurable target so it couldn't go in there either! (it would have been one for them LOL)

Worth a shot anyways I think, good luck

Mandi x

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I remember when we were going through the tribunal process being told by legal rep that you can do this. However, you need medical backing to show that your child really needs to be on the diet and that it is detrimental to his/ her health. He said there had been cases where the parents had been allowed to home ed because the school could not guarantee keeping to this. I just think of peanut allergies etc., How do they make sure the kids don't come into contact with nuts ??

Jane

Re: Adding Biomed to educational statement?

In a message dated 13/05/2006 06:04:32 GMT Daylight Time, bbrowne123@... writes:

Is it possible, before signing your child's statement of ed. needs, to add in that your child is on a strict diet and GF/CF etc and that this must be adhered to in school?How would one do this and in what section. I want it to be known by everyone in the school system who comes into contact with my son that he is NOT to receive any gluten or casein. I would assume that if this is put into the statement that this would make it legally binding?Anyone do this?

>>>I tried (not very hard - asking made my point) but they said no it wasn;t possible - maybe it would have been with a Dr's note - I did not have any help back then, actually I was being hounded about biomed even.

They put n IEP in the US - I aked about that too (this is when we had the impossible teacvhers x 2 a few years back) but then they said it wasn't a measurable target so it couldn't go in there either! (it would have been one for them LOL)

Worth a shot anyways I think, good luck

Mandi x

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I had 's diet mentioned "Certain foods make him ill" under non-medical provision I think. I then wanted 's statement changed, as her statement was finalised before she was on the SCD, changing it appears to be a different kettle of fish. I rang County Hall, who asked me to get a medical letter, so very kindly wrote me one, but they still wouldn't change it. It hasn't really mattered as the school have seen (and benefited from) the massive improvement in 's concentration and behaviour, and I've told them verbally to only let the children have food and drink that I provide. I'll mention it again at the next review, see where I get, as I still want it added in, as has Syndrome X, where if she continued to eat sugary items, she would eventually develop diabetes, so I do think it's important to have it included, as can't always help herself (she's been known to sneak into the staff room and pinch the teachers kit-kats!)

Diane

Adding Biomed to educational statement?

Is it possible, before signing your child's statement of ed. needs, to add in that your child is on a strict diet and GF/CF etc and that this must be adhered to in school?How would one do this and in what section. I want it to be known by everyone in the school system who comes into contact with my son that he is NOT to receive any gluten or casein. I would assume that if this is put into the statement that this would make it legally binding?Anyone do this?thanks

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Take this in in case it case.

J Autism Child Schizophr. 1978 Sep;8(3):325-37.

Related Articles,

Links

Disruptive behavior: a dietary approach.O'Banion D, Armstrong B, Cummings RA, Stange J.The effect of particular foods on levels of hyperactivity, uncontrolled laughter, and disruptive behaviors was studied in an 8-year-old autistic boy. The floor of the child's room was taped off into six equal-sized rectangles to measure general activity level. Frequency data were recorded on screaming, biting, scratching, and object throwing. A time-sample technique was used to record data on laughing. Data were gathered during four phases. During an initial 4-day period the child was fed a normal American diet. A 6-day fasting period followed, during which time only spring water was allowed. The third phase lasted 18 days and involved the presentation of individual foods. During the final phase of the study the child was given only foods that had not provoked a reaction in the third phase. Results showed that foods such as wheat, corn, tomatoes, sugar, mushrooms, and dairy products were instrumental in producing behavioral disorders with this child.PMID: 690067 [PubMed - indexed for MEDLINE]

Fw: Adding Biomed to educational statement?

I remember when we were going through the tribunal process being told by legal rep that you can do this. However, you need medical backing to show that your child really needs to be on the diet and that it is detrimental to his/ her health. He said there had been cases where the parents had been allowed to home ed because the school could not guarantee keeping to this. I just think of peanut allergies etc., How do they make sure the kids don't come into contact with nuts ??

Jane

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Am I reading this correctly, they didn't give this child any food for SIX days? Where did they do this study? This is ethical?

Fw: Adding Biomed to educational statement?

I remember when we were going through the tribunal process being told by legal rep that you can do this. However, you need medical backing to show that your child really needs to be on the diet and that it is detrimental to his/ her health. He said there had been cases where the parents had been allowed to home ed because the school could not guarantee keeping to this. I just think of peanut allergies etc., How do they make sure the kids don't come into contact with nuts ??

Jane

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Hi

Yes we have it in Darryl's statement.

Section 5 - non educational needs.

" Darryl is on a gluten and dairy free diet ..The school must take

due care and attention to his dietary needs and liase with home "

I think its important to get it in there.

His school only feed him what I send in and are very understanding.

They have big notices in the class as well.

They even say he is the healthiest kid in the class.

The rest have faddy diets..and eat beige or crispy foods.

They recently had a 6 week block where the poor old teacher had to

organise cooking every Friday for 6 weeks.

She wanted to do Pizza's which fell ok cos Darryl was off with LDN

fever.

Then they did veg soup - so I sent in chicken stock and they got the

veggies.

None of the kids would touch it.. and the teacher was vegetarian so

decided not to add the chicken stock so Darryl was having none of

it.

Then they made miracle bread rolls which went down really well.

Then they made sandwiches so they had rice cakes and bananas.

The school also takes them to asda regularly ...Have they got a

death wish or something 6 kids with autism, too big for a trolley

shopping in asda ! So they also need to make sure he doesnt get his

mits on anything when out and about.

Luckily he knows that certain foods makes him ill and he refuses

them.

Hope this help you

Joanne

>

> Is it possible, before signing your child's statement of ed.

needs, to

> add in that your child is on a strict diet and GF/CF etc and that

this

> must be adhered to in school?

>

> How would one do this and in what section. I want it to be known

by

> everyone in the school system who comes into contact with my son

that

> he is NOT to receive any gluten or casein. I would assume that if

this

> is put into the statement that this would make it legally binding?

>

> Anyone do this?

>

> thanks

>

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