Re: Living with one adrenal

February 21, 2010

If anyone ever told u life was suppsed to be ez they lied. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 21, 2010, at 12:44 AM, moseleymand@... wrote:

Yes, if you have both out wouldn't you then have addisons / adrenal insufficency?I think homeopaths are good for helping you maintain some level of well being until you get diagnosed. My homeopath thought it was just from antibiotics but after some months said you have an underlying problem, it won't go until you sort it out.I wrote to gastro I saw who didntb help me asking about candidas. She said yes, if you had autoimune (celiac etc) you would have bugs in your belly but once it starts to heal and you take anti fungals it will go!My mum is very hypot, 29 years old was told perimenopause. (Mine kicked off at 29 also). She has struggled with weight, depression, no libido (split with my dad due to this), cold all the time etc her gp hadn't tested thyroid until last year! It was so low the new GP said but she is not better on meds, dizzy, craving salt, high BP, depressed etc, dioreah, nausea...She went back to new gp and the doc said seems okay your tsh, at the weekends just take an extra one for more energy but stop if u get pains in your arms!!!!!!!That's ridiculous, we need to feel like we have energy and balanced all the time. You can see my mu is very hypo puffy etc...So we are going back changed gp but once she is sorted we are going to take her to nutritional/homeopath. Too sort out the candidas and allergies etc....I think they are great but the underlying cause needs to addressed by the nhs, candidas isJust a symptoms of something not working as it should....Sent using BlackBerryÂ® from OrangeFrom: Clarence Grim <lowerbp2mac>

Date: Sat, 20 Feb 2010 22:38:41 -0800hyperaldosteronism <hyperaldosteronism >Subject: Re: Re: Living with one adrenal

I have followed perhaps 50 folks with one adrenal and 10 who had both out which is aMuch bigger problem. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 20, 2010, at 8:09 PM, Clarence Grim <lowerbp2mac> wrote:

Must await ur 1 year renin Aldo tests Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 20, 2010, at 7:43 PM, langrallcarole <clangrallgmail> wrote:

Terri-

Thank so much for your candid post. I too, feel that there is a correlation between these organs. I also was told I am "cured", and while it will be a year next month- I still feel like there's some adrenal recalibration stuff going on. There are weeks I feel like I'm 20 again, but then something happens (maybe stress?) and I go into high fatigue mood, combined with depression. I no longer menstruate, but when I did it was excessive and I was put on hormornes-big surprise. I was also on and off prednisone for years and deep down I believe that drug is coming back to haunt me. I applaud your choice to seek alternative means, as will I. I have had it up to my head with Drs who don't even know what Conn's is, and simply factor in menopause (I'm also over that) or just age-am 47 yrs young.

I am moving to New Mexico later this year and plan to locate a naturopath out there. I respect Dr. Grim for his expertise, but feel we are such a small group suffering from a relatively new disease, that there is still MUCH to be discovered by Conn's, and our adrenal glands. All I want is to live a "balanced" life where I can keep up with my loved ones and not be so exhausted.

Peace-F.S.

> > > >> > >

> > > >> > > > Dr. Grim,

> > > >> > > >

> > > >> > > > Thank you for reading, posting and supporting my blog...I

> > > >> have been

> > > >> > > > through a lot with Conn's as so many of us have, and my goal

> > > >> is to

> > > >> > > > help others through this often difficult journey. I am almost

> > > >> at a

> > > >> > >! > ye ar post-surgery, and living with one adrenal has it's ups

> > > >> and

> > > >> > > > downs. None of my docs seem to know what to tell me, can you?

> > > >> I have

> > > >> > > > noticed some serious fatigue after physical exertion and high

> > > >> > > > stress, I want to know if this is normal?! Help me please if

> > > >> you are

> > > >> > > > able~!

> > > >> > > >

> > > >> > > > Many thanks~

> > > >> > > > Flower Spy

> > > >> > > >

> > > >> > > > http://hyperaldosteronism.blogspot.com/

> > > >> > > >

> > > >> > >

> > > >> >

> > > >>

> > > >

> > >

> >

>

February 21, 2010

My guess is not. But u can ask. Will prob save them and u time and treasure. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 21, 2010, at 9:20 AM, bugstr <bugstr@...> wrote:

Dr Grim, do you know if any insurance plans cover this one on one?

> > > > > > > >> > >

> > > > > > > >> > > > Dr. Grim,

> > > > > > > >> > > >

> > > > > > > >> > > > Thank you for reading, posting and supporting my

> > > > blog...I

> > > > > > > >> have been

> > > > > > > >> > > > through a lot with Conn's as so many of us have,

> > and my

> > > > > > goal

> > > > > > > >> is to

> > > > > > > >> > > > help others through this often difficult journey.

> > I am

> > > > > > almost

> > > > > > > >> at a

> > > > > > > >> > >! > ye ar post-surgery, and living with one adrenal

> > has

> > > > it's

> > > > > > ups

> > > > > > > >> and

> > > > > > > >> > > > downs. None of my docs seem to know what to tell

> > me,

> > > > can

> > > > > > you?

> > > > > > > >> I have

> > > > > > > >> > > > noticed some serious fatigue after physical

> > exertion

> > > > and

> > > > > > high

> > > > > > > >> > > > stress, I want to know if this is normal?! Help me

> > > > please

> > > > > > if

> > > > > > > >> you are

> > > > > > > >> > > > able~!

> > > > > > > >> > > >

> > > > > > > >> > > > Many thanks~

> > > > > > > >> > > > Flower Spy

> > > > > > > >> > > >

> > > > > > > >> > > > http://hyperaldosteronism.blogspot.com/

> > > > > > > >> > > >

> > > > > > > >> > >

> > > > > > > >> >

> > > > > > > >>

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

February 21, 2010

My guess is not. But u can ask. Will prob save them and u time and treasure. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 21, 2010, at 9:20 AM, bugstr <bugstr@...> wrote:

Dr Grim, do you know if any insurance plans cover this one on one?

> > > > > > > >> > >

> > > > > > > >> > > > Dr. Grim,

> > > > > > > >> > > >

> > > > > > > >> > > > Thank you for reading, posting and supporting my

> > > > blog...I

> > > > > > > >> have been

> > > > > > > >> > > > through a lot with Conn's as so many of us have,

> > and my

> > > > > > goal

> > > > > > > >> is to

> > > > > > > >> > > > help others through this often difficult journey.

> > I am

> > > > > > almost

> > > > > > > >> at a

> > > > > > > >> > >! > ye ar post-surgery, and living with one adrenal

> > has

> > > > it's

> > > > > > ups

> > > > > > > >> and

> > > > > > > >> > > > downs. None of my docs seem to know what to tell

> > me,

> > > > can

> > > > > > you?

> > > > > > > >> I have

> > > > > > > >> > > > noticed some serious fatigue after physical

> > exertion

> > > > and

> > > > > > high

> > > > > > > >> > > > stress, I want to know if this is normal?! Help me

> > > > please

> > > > > > if

> > > > > > > >> you are

> > > > > > > >> > > > able~!

> > > > > > > >> > > >

> > > > > > > >> > > > Many thanks~

> > > > > > > >> > > > Flower Spy

> > > > > > > >> > > >

> > > > > > > >> > > > http://hyperaldosteronism.blogspot.com/

> > > > > > > >> > > >

> > > > > > > >> > >

> > > > > > > >> >

> > > > > > > >>

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

February 21, 2010

The data is there for u to search. U will note that most who do well don't come back and we don't have a tracking person who's job it is to contact them say every 6 month to see how they RAre doing Maybe that could be your mission?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 21, 2010, at 8:44 AM, terridelorenzo <terridelorenzo@...> wrote:

Can you provide us with the data Dr. Grimm? Is it saved out there somewhere in this forum that I have yet to see? Surely you have to concede that this many people, post adrenalectomy or even still suffering cannot be wrong merely because science has yet to catch up with it? I think science has done wonders in helping to help those of us suffering from Conn's or post-op but the focus is primarily on the K deficiency and the high BP but what about all of the other symptoms that come along with adrenal dysfunction. While not as life threatening they are still life IMPACTING. Surely, all the members in this group complaining about seemingly unrelated symptoms from different races, health backgrounds, ages and countries can't be wrong because science doesn't yet say so. Perhaps this is a sign that someone (you or one of your colleagues) should start trying to see if there is a link???

There is lots of science talking about the correlation between the pituitary, adrenal and thyroid glands and how they interact with each other. There is also plenty of data on how thyroid dysfunction impacts a woman's ovaries and menstrual cycle, moods, etc. What is lacking in this science is something that addresses what happens to the delicate balance between these glands once one of the adrenal glands is removed.

I agree with you Dr. Grimm, testimonials are not science but where does that leave those of us who science is ignoring under the guise of we're "cured". Yes we very may well be cured of the K, aldo-renin and high BP but we are fully cured. We've now traded one set of symptoms for another and while less life altering I refuse to accept that this is as good as it is going to get. I am 31 and I want my damn life back and until science finds a way to help me deal with it I am going to be forced to find new ways to try to help myself. You seem to think the naturopaths are out to gauge us but that has not been my experience so far. Mine is trying to help me help myself through simple lifestyle changes not unlike some of what you are saying. As a registered dietician she recommended a diet very similar to DASH with a few modifications amongst other things. I don't need my aldo-renin checked â€“ it's fine as is my bp and K. That isn't helpful to me but it's all you recommend to us. Wait it out and get checked after a year. Well I am 2 years post op. What now? I've had all the tests you recommend and nothing. No one can explain what is wrong with me and yet the naturopath seems very in tune with it and has plenty of books on the topic of adrenal fatigue. One of which I list here.

http://www.adrenalfatigue.org/adrenal-fatigue-the-21st-century-stress-syndrome.html

Dr. Grimm, I think the work you do here is fantastic and I love my peers in this group but let's not discount our members' experiences and testimonies merely because the science isn't there yet. We are above that ignorance. Let's work together to help one another and explore EVERY option available to us. I'm sorry but battling with more doctors once a new study is done isn't as high on my priority list as feeling good again. Nor am I willing to stand still untiI a doctor or scientist somewhere has time to properly study it. I've had a hard enough time getting them to read your article. Some were downright hostile that I dared bring them something and discredited you as an online quack...which we all know was not the appropriate response, right?

> > > >> > >

> > > >> > > > Dr. Grim,

> > > >> > > >

> > > >> > > > Thank you for reading, posting and supporting my blog...I

> > > >> have been

> > > >> > > > through a lot with Conn's as so many of us have, and my

> > goal

> > > >> is to

> > > >> > > > help others through this often difficult journey. I am

> > almost

> > > >> at a

> > > >> > >! > ye ar post-surgery, and living with one adrenal has it's

> > ups

> > > >> and

> > > >> > > > downs. None of my docs seem to know what to tell me, can

> > you?

> > > >> I have

> > > >> > > > noticed some serious fatigue after physical exertion and

> > high

> > > >> > > > stress, I want to know if this is normal?! Help me please

> > if

> > > >> you are

> > > >> > > > able~!

> > > >> > > >

> > > >> > > > Many thanks~

> > > >> > > > Flower Spy

> > > >> > > >

> > > >> > > > http://hyperaldosteronism.blogspot.com/

> > > >> > > >

> > > >> > >

> > > >> >

> > > >>

> > > >

> > >

> >

>

February 21, 2010

The data is there for u to search. U will note that most who do well don't come back and we don't have a tracking person who's job it is to contact them say every 6 month to see how they RAre doing Maybe that could be your mission?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 21, 2010, at 8:44 AM, terridelorenzo <terridelorenzo@...> wrote:

Can you provide us with the data Dr. Grimm? Is it saved out there somewhere in this forum that I have yet to see? Surely you have to concede that this many people, post adrenalectomy or even still suffering cannot be wrong merely because science has yet to catch up with it? I think science has done wonders in helping to help those of us suffering from Conn's or post-op but the focus is primarily on the K deficiency and the high BP but what about all of the other symptoms that come along with adrenal dysfunction. While not as life threatening they are still life IMPACTING. Surely, all the members in this group complaining about seemingly unrelated symptoms from different races, health backgrounds, ages and countries can't be wrong because science doesn't yet say so. Perhaps this is a sign that someone (you or one of your colleagues) should start trying to see if there is a link???

There is lots of science talking about the correlation between the pituitary, adrenal and thyroid glands and how they interact with each other. There is also plenty of data on how thyroid dysfunction impacts a woman's ovaries and menstrual cycle, moods, etc. What is lacking in this science is something that addresses what happens to the delicate balance between these glands once one of the adrenal glands is removed.

I agree with you Dr. Grimm, testimonials are not science but where does that leave those of us who science is ignoring under the guise of we're "cured". Yes we very may well be cured of the K, aldo-renin and high BP but we are fully cured. We've now traded one set of symptoms for another and while less life altering I refuse to accept that this is as good as it is going to get. I am 31 and I want my damn life back and until science finds a way to help me deal with it I am going to be forced to find new ways to try to help myself. You seem to think the naturopaths are out to gauge us but that has not been my experience so far. Mine is trying to help me help myself through simple lifestyle changes not unlike some of what you are saying. As a registered dietician she recommended a diet very similar to DASH with a few modifications amongst other things. I don't need my aldo-renin checked â€“ it's fine as is my bp and K. That isn't helpful to me but it's all you recommend to us. Wait it out and get checked after a year. Well I am 2 years post op. What now? I've had all the tests you recommend and nothing. No one can explain what is wrong with me and yet the naturopath seems very in tune with it and has plenty of books on the topic of adrenal fatigue. One of which I list here.

http://www.adrenalfatigue.org/adrenal-fatigue-the-21st-century-stress-syndrome.html

Dr. Grimm, I think the work you do here is fantastic and I love my peers in this group but let's not discount our members' experiences and testimonies merely because the science isn't there yet. We are above that ignorance. Let's work together to help one another and explore EVERY option available to us. I'm sorry but battling with more doctors once a new study is done isn't as high on my priority list as feeling good again. Nor am I willing to stand still untiI a doctor or scientist somewhere has time to properly study it. I've had a hard enough time getting them to read your article. Some were downright hostile that I dared bring them something and discredited you as an online quack...which we all know was not the appropriate response, right?

> > > >> > >

> > > >> > > > Dr. Grim,

> > > >> > > >

> > > >> > > > Thank you for reading, posting and supporting my blog...I

> > > >> have been

> > > >> > > > through a lot with Conn's as so many of us have, and my

> > goal

> > > >> is to

> > > >> > > > help others through this often difficult journey. I am

> > almost

> > > >> at a

> > > >> > >! > ye ar post-surgery, and living with one adrenal has it's

> > ups

> > > >> and

> > > >> > > > downs. None of my docs seem to know what to tell me, can

> > you?

> > > >> I have

> > > >> > > > noticed some serious fatigue after physical exertion and

> > high

> > > >> > > > stress, I want to know if this is normal?! Help me please

> > if

> > > >> you are

> > > >> > > > able~!

> > > >> > > >

> > > >> > > > Many thanks~

> > > >> > > > Flower Spy

> > > >> > > >

> > > >> > > > http://hyperaldosteronism.blogspot.com/

> > > >> > > >

> > > >> > >

> > > >> >

> > > >>

> > > >

> > >

> >

>

February 21, 2010

For the record, I had my adrenalectomy (right side) in Nov. 2007 and the only thing I see that may still be related to my Conn's is my heat intolerance. Otherwise, outside of a few other health issues, I am doing good. Although I seldom post on here, I am lurking regularly.

Debi

February 21, 2010

I don't pretend to be a medical professional but I would certainly be willing to

partake in any endeavor to further the science behind the percentage of us who

do not do well post surgery and help put some strength behind what I and so many

of us believe to be post-adrenalectomy symptoms. Is tracking people every 6

months the way it would have to be done? Is this something you would be willing

to help with? Without a medical professional involved I doubt I would be able to

get off the ground or have meaningful research that medical professionals would

buy into.

Dr. Grim, I sincerely hope you aren't taking my comments the wrong way. I know

emails can sometimes get taken out of context and I certainly hope that is not

the case. This is a forum where we are supposed to be able to talk to one

another and share our stories and experiences (and frustrations) and without

different points of view, we may never get to the end goal of a completely

healthy, happy group . I think the work you do is wonderful Dr. Grim and I

applaud your efforts and time to helping us. I never wished to take away from

that and this group was so very comforting to me while I was coping with Conn's.

Thank you.

I also apologize for the misspelling of your name in my earlier post. My bad -

didn't mean any disrespect with the extra " m " . Honest mistake.

> > > > > >> > >

> > > > > >> > > > Dr. Grim,

> > > > > >> > > >

> > > > > >> > > > Thank you for reading, posting and supporting my

> > blog...I

> > > > > >> have been

> > > > > >> > > > through a lot with Conn's as so many of us have, and my

> > > > goal

> > > > > >> is to

> > > > > >> > > > help others through this often difficult journey. I am

> > > > almost

> > > > > >> at a

> > > > > >> > >! > ye ar post-surgery, and living with one adrenal has

> > it's

> > > > ups

> > > > > >> and

> > > > > >> > > > downs. None of my docs seem to know what to tell me,

> > can

> > > > you?

> > > > > >> I have

> > > > > >> > > > noticed some serious fatigue after physical exertion

> > and

> > > > high

> > > > > >> > > > stress, I want to know if this is normal?! Help me

> > please

> > > > if

> > > > > >> you are

> > > > > >> > > > able~!

> > > > > >> > > >

> > > > > >> > > > Many thanks~

> > > > > >> > > > Flower Spy

> > > > > >> > > >

> > > > > >> > > > http://hyperaldosteronism.blogspot.com/

> > > > > >> > > >

> > > > > >> > >

> > > > > >> >

> > > > > >>

> > > > > >

> > > > >

> > > >

> > >

> >

>

February 21, 2010