Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 There should be no problem in living with one adrenal unless it too harbors small adenoma(s) that are now generating slowly increasing levels of aldo.You need to get an send us a copy fo the pathology report on the gland removedWas the "normal" gland looked at during surgery? Rarely this can damage the normal gland and make it not work well-limited adrenal reserve.Rarely with AVS the "normal" gland will be infarcted and you will then have Addision's when the tumor is taken out. This must be very rare.You will need to plot your BPs and Ks and renins and aldos since surgery to give us better information. I don't recall what your AVS showed or even if it was done?If you desire I can work with you and your health care team one on one to help in management.Contact me at lowerbp2@... if interested in a more detailed consultation. May your salt intake and pressure be low!Clarence Grim BS, MS, MDClinical Professor of MedicineMedical College of WisconsinBoard Certified Hypertension SpecialistSpecializing in Difficult to control high blood pressure especially the numerous forms of Primary Aldsoteronism.Training you and your health care team to get to goal.ALL advice given by me MUST be discussed with your heath care team. They know you best. Don't gamble with your life. Don't become a cyberchondriac by looking at fringe groups. We encourage members of your health care team to join our efforts to learn what new and old in the BP business. On Feb 19, 2010, at 12:03 PM, langrallcarole wrote:Dr. Grim,Thank you for reading, posting and supporting my blog...I have been through a lot with Conn's as so many of us have, and my goal is to help others through this often difficult journey. I am almost at a year post-surgery, and living with one adrenal has it's ups and downs. None of my docs seem to know what to tell me, can you? I have noticed some serious fatigue after physical exertion and high stress, I want to know if this is normal?! Help me please if you are able~!Many thanks~Flower Spyhttp://hyperaldosteronism.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Concern is that there is an Aldo problem in the remaining adrenal. Please send post op renins and aldos. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 12:03 PM, langrallcarole <clangrall@...> wrote: Dr. Grim, Thank you for reading, posting and supporting my blog...I have been through a lot with Conn's as so many of us have, and my goal is to help others through this often difficult journey. I am almost at a year post-surgery, and living with one adrenal has it's ups and downs. None of my docs seem to know what to tell me, can you? I have noticed some serious fatigue after physical exertion and high stress, I want to know if this is normal?! Help me please if you are able~! Many thanks~ Flower Spy http://hyperaldosteronism.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Concern is that there is an Aldo problem in the remaining adrenal. Please send post op renins and aldos. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 12:03 PM, langrallcarole <clangrall@...> wrote: Dr. Grim, Thank you for reading, posting and supporting my blog...I have been through a lot with Conn's as so many of us have, and my goal is to help others through this often difficult journey. I am almost at a year post-surgery, and living with one adrenal has it's ups and downs. None of my docs seem to know what to tell me, can you? I have noticed some serious fatigue after physical exertion and high stress, I want to know if this is normal?! Help me please if you are able~! Many thanks~ Flower Spy http://hyperaldosteronism.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Concern is that there is an Aldo problem in the remaining adrenal. Please send post op renins and aldos. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 12:03 PM, langrallcarole <clangrall@...> wrote: Dr. Grim, Thank you for reading, posting and supporting my blog...I have been through a lot with Conn's as so many of us have, and my goal is to help others through this often difficult journey. I am almost at a year post-surgery, and living with one adrenal has it's ups and downs. None of my docs seem to know what to tell me, can you? I have noticed some serious fatigue after physical exertion and high stress, I want to know if this is normal?! Help me please if you are able~! Many thanks~ Flower Spy http://hyperaldosteronism.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 It is an informative site.keep up the good work. To the troops here. Please add link to this excellent site. To the site please link to our group here we have more experience than any one else in the world. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 12:03 PM, langrallcarole <clangrall@...> wrote: Dr. Grim, Thank you for reading, posting and supporting my blog...I have been through a lot with Conn's as so many of us have, and my goal is to help others through this often difficult journey. I am almost at a year post-surgery, and living with one adrenal has it's ups and downs. None of my docs seem to know what to tell me, can you? I have noticed some serious fatigue after physical exertion and high stress, I want to know if this is normal?! Help me please if you are able~! Many thanks~ Flower Spy http://hyperaldosteronism.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 It is an informative site.keep up the good work. To the troops here. Please add link to this excellent site. To the site please link to our group here we have more experience than any one else in the world. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 12:03 PM, langrallcarole <clangrall@...> wrote: Dr. Grim, Thank you for reading, posting and supporting my blog...I have been through a lot with Conn's as so many of us have, and my goal is to help others through this often difficult journey. I am almost at a year post-surgery, and living with one adrenal has it's ups and downs. None of my docs seem to know what to tell me, can you? I have noticed some serious fatigue after physical exertion and high stress, I want to know if this is normal?! Help me please if you are able~! Many thanks~ Flower Spy http://hyperaldosteronism.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 It is an informative site.keep up the good work. To the troops here. Please add link to this excellent site. To the site please link to our group here we have more experience than any one else in the world. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 19, 2010, at 12:03 PM, langrallcarole <clangrall@...> wrote: Dr. Grim, Thank you for reading, posting and supporting my blog...I have been through a lot with Conn's as so many of us have, and my goal is to help others through this often difficult journey. I am almost at a year post-surgery, and living with one adrenal has it's ups and downs. None of my docs seem to know what to tell me, can you? I have noticed some serious fatigue after physical exertion and high stress, I want to know if this is normal?! Help me please if you are able~! Many thanks~ Flower Spy http://hyperaldosteronism.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Thanks Dr. Grim, This group was listed on my blog before, but it wasn't as noticeable as it is now--I have it in BIG capital letters. Also, I appreciate your input on the mono-adrenal outlook. I don't have any doctors following me up- the surgeon did is job and wished me well, and the endo was clueless with my left adrenal-less life. She said to be sure the Conn's is gone, I should have another saline suppression test. I opted out and that was the last I saw her. My primary care doc surprisely is aware of Conn's and is on the ball, so I can ask her for the blood work you suggested I take. BTW- can stress and too much activity affect me more with one less gland? f.s. > > > Dr. Grim, > > > > Thank you for reading, posting and supporting my blog...I have been > > through a lot with Conn's as so many of us have, and my goal is to > > help others through this often difficult journey. I am almost at a > > year post-surgery, and living with one adrenal has it's ups and > > downs. None of my docs seem to know what to tell me, can you? I have > > noticed some serious fatigue after physical exertion and high > > stress, I want to know if this is normal?! Help me please if you are > > able~! > > > > Many thanks~ > > Flower Spy > > > > http://hyperaldosteronism.blogspot.com/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Thanks Dr. Grim, This group was listed on my blog before, but it wasn't as noticeable as it is now--I have it in BIG capital letters. Also, I appreciate your input on the mono-adrenal outlook. I don't have any doctors following me up- the surgeon did is job and wished me well, and the endo was clueless with my left adrenal-less life. She said to be sure the Conn's is gone, I should have another saline suppression test. I opted out and that was the last I saw her. My primary care doc surprisely is aware of Conn's and is on the ball, so I can ask her for the blood work you suggested I take. BTW- can stress and too much activity affect me more with one less gland? f.s. > > > Dr. Grim, > > > > Thank you for reading, posting and supporting my blog...I have been > > through a lot with Conn's as so many of us have, and my goal is to > > help others through this often difficult journey. I am almost at a > > year post-surgery, and living with one adrenal has it's ups and > > downs. None of my docs seem to know what to tell me, can you? I have > > noticed some serious fatigue after physical exertion and high > > stress, I want to know if this is normal?! Help me please if you are > > able~! > > > > Many thanks~ > > Flower Spy > > > > http://hyperaldosteronism.blogspot.com/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Thanks Dr. Grim, This group was listed on my blog before, but it wasn't as noticeable as it is now--I have it in BIG capital letters. Also, I appreciate your input on the mono-adrenal outlook. I don't have any doctors following me up- the surgeon did is job and wished me well, and the endo was clueless with my left adrenal-less life. She said to be sure the Conn's is gone, I should have another saline suppression test. I opted out and that was the last I saw her. My primary care doc surprisely is aware of Conn's and is on the ball, so I can ask her for the blood work you suggested I take. BTW- can stress and too much activity affect me more with one less gland? f.s. > > > Dr. Grim, > > > > Thank you for reading, posting and supporting my blog...I have been > > through a lot with Conn's as so many of us have, and my goal is to > > help others through this often difficult journey. I am almost at a > > year post-surgery, and living with one adrenal has it's ups and > > downs. None of my docs seem to know what to tell me, can you? I have > > noticed some serious fatigue after physical exertion and high > > stress, I want to know if this is normal?! Help me please if you are > > able~! > > > > Many thanks~ > > Flower Spy > > > > http://hyperaldosteronism.blogspot.com/ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Hi Flowerspy, I too am having difficulty finding medical help on living with one adrenal. While my quality of life is so much better post surgery, the appearance of several new strange symptoms often has me wondering if I lost my mind in addition to my adrenal gland 2 years ago. I recently came upon a website: http://www.drlam.com/conditioncareguide/adrenalhealth.asp?tab=1 & condition=adrena\ lhealth you may want to check out. Seeing as how so many of us also have thyroid issues and I've chatted offline with several members about menstrual changes, moods swings, exhaustion, etc...some of the symptoms Dr. Lam describes I felt like I could have wrote myself. I am quite certain I am suffering from an Ovarian/Adrenal/Thyroid axis imbalance but there are several other conditions Dr.Lam describes as well (adrenal fatique - may help those of you who have high cortisol levels but aren't Cushings). I am completely fed up with traditional medicine. I am 31, not overweight, I eat extremely healthy and can't get one medical professional to help me with all of these crazy and seemingly unrelated symptoms. All they want to do is give me pills and send me away because they can't figure out what is causing them. A few weeks ago I started seeing a naturopath and honestly am feeling better every day. Not cured but I don't expect to be overnight. It is amazing how so many naturopaths are in tune with adrenal health though. A simple search on naturopaths will confirm. I am also not suggesting that naturopaths are the answer here (there are some bad apples out there too so beware) but I do think western medicine can learn a thing or two from natural medicine - treat the whole person and not the symptom. All I want is to feel healthy. I don't want to be exhausted, bruised, bleeding, hair loss and moody all the time. It's not my nature and we all deserve to feel better. Wishing you all the best in health and happiness, Terri > > > > > Dr. Grim, > > > > > > Thank you for reading, posting and supporting my blog...I have been > > > through a lot with Conn's as so many of us have, and my goal is to > > > help others through this often difficult journey. I am almost at a > > > year post-surgery, and living with one adrenal has it's ups and > > > downs. None of my docs seem to know what to tell me, can you? I have > > > noticed some serious fatigue after physical exertion and high > > > stress, I want to know if this is normal?! Help me please if you are > > > able~! > > > > > > Many thanks~ > > > Flower Spy > > > > > > http://hyperaldosteronism.blogspot.com/ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Hi Flowerspy, I too am having difficulty finding medical help on living with one adrenal. While my quality of life is so much better post surgery, the appearance of several new strange symptoms often has me wondering if I lost my mind in addition to my adrenal gland 2 years ago. I recently came upon a website: http://www.drlam.com/conditioncareguide/adrenalhealth.asp?tab=1 & condition=adrena\ lhealth you may want to check out. Seeing as how so many of us also have thyroid issues and I've chatted offline with several members about menstrual changes, moods swings, exhaustion, etc...some of the symptoms Dr. Lam describes I felt like I could have wrote myself. I am quite certain I am suffering from an Ovarian/Adrenal/Thyroid axis imbalance but there are several other conditions Dr.Lam describes as well (adrenal fatique - may help those of you who have high cortisol levels but aren't Cushings). I am completely fed up with traditional medicine. I am 31, not overweight, I eat extremely healthy and can't get one medical professional to help me with all of these crazy and seemingly unrelated symptoms. All they want to do is give me pills and send me away because they can't figure out what is causing them. A few weeks ago I started seeing a naturopath and honestly am feeling better every day. Not cured but I don't expect to be overnight. It is amazing how so many naturopaths are in tune with adrenal health though. A simple search on naturopaths will confirm. I am also not suggesting that naturopaths are the answer here (there are some bad apples out there too so beware) but I do think western medicine can learn a thing or two from natural medicine - treat the whole person and not the symptom. All I want is to feel healthy. I don't want to be exhausted, bruised, bleeding, hair loss and moody all the time. It's not my nature and we all deserve to feel better. Wishing you all the best in health and happiness, Terri > > > > > Dr. Grim, > > > > > > Thank you for reading, posting and supporting my blog...I have been > > > through a lot with Conn's as so many of us have, and my goal is to > > > help others through this often difficult journey. I am almost at a > > > year post-surgery, and living with one adrenal has it's ups and > > > downs. None of my docs seem to know what to tell me, can you? I have > > > noticed some serious fatigue after physical exertion and high > > > stress, I want to know if this is normal?! Help me please if you are > > > able~! > > > > > > Many thanks~ > > > Flower Spy > > > > > > http://hyperaldosteronism.blogspot.com/ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Hi Flowerspy, I too am having difficulty finding medical help on living with one adrenal. While my quality of life is so much better post surgery, the appearance of several new strange symptoms often has me wondering if I lost my mind in addition to my adrenal gland 2 years ago. I recently came upon a website: http://www.drlam.com/conditioncareguide/adrenalhealth.asp?tab=1 & condition=adrena\ lhealth you may want to check out. Seeing as how so many of us also have thyroid issues and I've chatted offline with several members about menstrual changes, moods swings, exhaustion, etc...some of the symptoms Dr. Lam describes I felt like I could have wrote myself. I am quite certain I am suffering from an Ovarian/Adrenal/Thyroid axis imbalance but there are several other conditions Dr.Lam describes as well (adrenal fatique - may help those of you who have high cortisol levels but aren't Cushings). I am completely fed up with traditional medicine. I am 31, not overweight, I eat extremely healthy and can't get one medical professional to help me with all of these crazy and seemingly unrelated symptoms. All they want to do is give me pills and send me away because they can't figure out what is causing them. A few weeks ago I started seeing a naturopath and honestly am feeling better every day. Not cured but I don't expect to be overnight. It is amazing how so many naturopaths are in tune with adrenal health though. A simple search on naturopaths will confirm. I am also not suggesting that naturopaths are the answer here (there are some bad apples out there too so beware) but I do think western medicine can learn a thing or two from natural medicine - treat the whole person and not the symptom. All I want is to feel healthy. I don't want to be exhausted, bruised, bleeding, hair loss and moody all the time. It's not my nature and we all deserve to feel better. Wishing you all the best in health and happiness, Terri > > > > > Dr. Grim, > > > > > > Thank you for reading, posting and supporting my blog...I have been > > > through a lot with Conn's as so many of us have, and my goal is to > > > help others through this often difficult journey. I am almost at a > > > year post-surgery, and living with one adrenal has it's ups and > > > downs. None of my docs seem to know what to tell me, can you? I have > > > noticed some serious fatigue after physical exertion and high > > > stress, I want to know if this is normal?! Help me please if you are > > > able~! > > > > > > Many thanks~ > > > Flower Spy > > > > > > http://hyperaldosteronism.blogspot.com/ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 No suggestion that stress etc will likely exhaust your remaining gland. It tends to get bigger like when you take one kidney out.You do not need another saline. What you need is careful BP monitoring and and a plasma renin, electrolytes (drawn properly) and aldosterone at about a year and a 24 hr urine for Na, K, aldo and urinary free cortisol. Let me know the results.What did the path report show on the removed adrenal? On Feb 19, 2010, at 10:12 PM, langrallcarole wrote:Thanks Dr. Grim, This group was listed on my blog before, but it wasn't as noticeable as it is now--I have it in BIG capital letters. Also, I appreciate your input on the mono-adrenal outlook. I don't have any doctors following me up- the surgeon did is job and wished me well, and the endo was clueless with my left adrenal-less life. She said to be sure the Conn's is gone, I should have another saline suppression test. I opted out and that was the last I saw her. My primary care doc surprisely is aware of Conn's and is on the ball, so I can ask her for the blood work you suggested I take. BTW- can stress and too much activity affect me more with one less gland?f.s.> > > Dr. Grim,> >> > Thank you for reading, posting and supporting my blog...I have been > > through a lot with Conn's as so many of us have, and my goal is to > > help others through this often difficult journey. I am almost at a > > year post-surgery, and living with one adrenal has it's ups and > > downs. None of my docs seem to know what to tell me, can you? I have > > noticed some serious fatigue after physical exertion and high > > stress, I want to know if this is normal?! Help me please if you are > > able~!> >> > Many thanks~> > Flower Spy> >> > http://hyperaldosteronism.blogspot.com/> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 No suggestion that stress etc will likely exhaust your remaining gland. It tends to get bigger like when you take one kidney out.You do not need another saline. What you need is careful BP monitoring and and a plasma renin, electrolytes (drawn properly) and aldosterone at about a year and a 24 hr urine for Na, K, aldo and urinary free cortisol. Let me know the results.What did the path report show on the removed adrenal? On Feb 19, 2010, at 10:12 PM, langrallcarole wrote:Thanks Dr. Grim, This group was listed on my blog before, but it wasn't as noticeable as it is now--I have it in BIG capital letters. Also, I appreciate your input on the mono-adrenal outlook. I don't have any doctors following me up- the surgeon did is job and wished me well, and the endo was clueless with my left adrenal-less life. She said to be sure the Conn's is gone, I should have another saline suppression test. I opted out and that was the last I saw her. My primary care doc surprisely is aware of Conn's and is on the ball, so I can ask her for the blood work you suggested I take. BTW- can stress and too much activity affect me more with one less gland?f.s.> > > Dr. Grim,> >> > Thank you for reading, posting and supporting my blog...I have been > > through a lot with Conn's as so many of us have, and my goal is to > > help others through this often difficult journey. I am almost at a > > year post-surgery, and living with one adrenal has it's ups and > > downs. None of my docs seem to know what to tell me, can you? I have > > noticed some serious fatigue after physical exertion and high > > stress, I want to know if this is normal?! Help me please if you are > > able~!> >> > Many thanks~> > Flower Spy> >> > http://hyperaldosteronism.blogspot.com/> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 No suggestion that stress etc will likely exhaust your remaining gland. It tends to get bigger like when you take one kidney out.You do not need another saline. What you need is careful BP monitoring and and a plasma renin, electrolytes (drawn properly) and aldosterone at about a year and a 24 hr urine for Na, K, aldo and urinary free cortisol. Let me know the results.What did the path report show on the removed adrenal? On Feb 19, 2010, at 10:12 PM, langrallcarole wrote:Thanks Dr. Grim, This group was listed on my blog before, but it wasn't as noticeable as it is now--I have it in BIG capital letters. Also, I appreciate your input on the mono-adrenal outlook. I don't have any doctors following me up- the surgeon did is job and wished me well, and the endo was clueless with my left adrenal-less life. She said to be sure the Conn's is gone, I should have another saline suppression test. I opted out and that was the last I saw her. My primary care doc surprisely is aware of Conn's and is on the ball, so I can ask her for the blood work you suggested I take. BTW- can stress and too much activity affect me more with one less gland?f.s.> > > Dr. Grim,> >> > Thank you for reading, posting and supporting my blog...I have been > > through a lot with Conn's as so many of us have, and my goal is to > > help others through this often difficult journey. I am almost at a > > year post-surgery, and living with one adrenal has it's ups and > > downs. None of my docs seem to know what to tell me, can you? I have > > noticed some serious fatigue after physical exertion and high > > stress, I want to know if this is normal?! Help me please if you are > > able~!> >> > Many thanks~> > Flower Spy> >> > http://hyperaldosteronism.blogspot.com/> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Terri It was also suggested that I go see a naturopath because of my chronic abdominal pain. Did you have to go through a 2 hour new patient appointment? How much did it cost an hour? Dana Sent from my Verizon Wireless BlackBerryFrom: "terridelorenzo" <terridelorenzo@...>Date: Sat, 20 Feb 2010 14:40:58 -0000<hyperaldosteronism >Subject: Re: Living with one adrenal Hi Flowerspy,I too am having difficulty finding medical help on living with one adrenal. While my quality of life is so much better post surgery, the appearance of several new strange symptoms often has me wondering if I lost my mind in addition to my adrenal gland 2 years ago.I recently came upon a website:http://www.drlam.com/conditioncareguide/adrenalhealth.asp?tab=1 & condition=adrenalhealthyou may want to check out. Seeing as how so many of us also have thyroid issues and I've chatted offline with several members about menstrual changes, moods swings, exhaustion, etc...some of the symptoms Dr. Lam describes I felt like I could have wrote myself. I am quite certain I am suffering from an Ovarian/Adrenal/Thyroid axis imbalance but there are several other conditions Dr.Lam describes as well (adrenal fatique - may help those of you who have high cortisol levels but aren't Cushings).I am completely fed up with traditional medicine. I am 31, not overweight, I eat extremely healthy and can't get one medical professional to help me with all of these crazy and seemingly unrelated symptoms. All they want to do is give me pills and send me away because they can't figure out what is causing them. A few weeks ago I started seeing a naturopath and honestly am feeling better every day. Not cured but I don't expect to be overnight. It is amazing how so many naturopaths are in tune with adrenal health though. A simple search on naturopaths will confirm. I am also not suggesting that naturopaths are the answer here (there are some bad apples out there too so beware) but I do think western medicine can learn a thing or two from natural medicine - treat the whole person and not the symptom. All I want is to feel healthy. I don't want to be exhausted, bruised, bleeding, hair loss and moody all the time. It's not my nature and we all deserve to feel better.Wishing you all the best in health and happiness,Terri> > > > > Dr. Grim,> > >> > > Thank you for reading, posting and supporting my blog...I have been > > > through a lot with Conn's as so many of us have, and my goal is to > > > help others through this often difficult journey. I am almost at a > > > year post-surgery, and living with one adrenal has it's ups and > > > downs. None of my docs seem to know what to tell me, can you? I have > > > noticed some serious fatigue after physical exertion and high > > > stress, I want to know if this is normal?! Help me please if you are > > > able~!> > >> > > Many thanks~> > > Flower Spy> > >> > > http://hyperaldosteronism.blogspot.com/> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Terri It was also suggested that I go see a naturopath because of my chronic abdominal pain. Did you have to go through a 2 hour new patient appointment? How much did it cost an hour? Dana Sent from my Verizon Wireless BlackBerryFrom: "terridelorenzo" <terridelorenzo@...>Date: Sat, 20 Feb 2010 14:40:58 -0000<hyperaldosteronism >Subject: Re: Living with one adrenal Hi Flowerspy,I too am having difficulty finding medical help on living with one adrenal. While my quality of life is so much better post surgery, the appearance of several new strange symptoms often has me wondering if I lost my mind in addition to my adrenal gland 2 years ago.I recently came upon a website:http://www.drlam.com/conditioncareguide/adrenalhealth.asp?tab=1 & condition=adrenalhealthyou may want to check out. Seeing as how so many of us also have thyroid issues and I've chatted offline with several members about menstrual changes, moods swings, exhaustion, etc...some of the symptoms Dr. Lam describes I felt like I could have wrote myself. I am quite certain I am suffering from an Ovarian/Adrenal/Thyroid axis imbalance but there are several other conditions Dr.Lam describes as well (adrenal fatique - may help those of you who have high cortisol levels but aren't Cushings).I am completely fed up with traditional medicine. I am 31, not overweight, I eat extremely healthy and can't get one medical professional to help me with all of these crazy and seemingly unrelated symptoms. All they want to do is give me pills and send me away because they can't figure out what is causing them. A few weeks ago I started seeing a naturopath and honestly am feeling better every day. Not cured but I don't expect to be overnight. It is amazing how so many naturopaths are in tune with adrenal health though. A simple search on naturopaths will confirm. I am also not suggesting that naturopaths are the answer here (there are some bad apples out there too so beware) but I do think western medicine can learn a thing or two from natural medicine - treat the whole person and not the symptom. All I want is to feel healthy. I don't want to be exhausted, bruised, bleeding, hair loss and moody all the time. It's not my nature and we all deserve to feel better.Wishing you all the best in health and happiness,Terri> > > > > Dr. Grim,> > >> > > Thank you for reading, posting and supporting my blog...I have been > > > through a lot with Conn's as so many of us have, and my goal is to > > > help others through this often difficult journey. I am almost at a > > > year post-surgery, and living with one adrenal has it's ups and > > > downs. None of my docs seem to know what to tell me, can you? I have > > > noticed some serious fatigue after physical exertion and high > > > stress, I want to know if this is normal?! Help me please if you are > > > able~!> > >> > > Many thanks~> > > Flower Spy> > >> > > http://hyperaldosteronism.blogspot.com/> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Terri It was also suggested that I go see a naturopath because of my chronic abdominal pain. Did you have to go through a 2 hour new patient appointment? How much did it cost an hour? Dana Sent from my Verizon Wireless BlackBerryFrom: "terridelorenzo" <terridelorenzo@...>Date: Sat, 20 Feb 2010 14:40:58 -0000<hyperaldosteronism >Subject: Re: Living with one adrenal Hi Flowerspy,I too am having difficulty finding medical help on living with one adrenal. While my quality of life is so much better post surgery, the appearance of several new strange symptoms often has me wondering if I lost my mind in addition to my adrenal gland 2 years ago.I recently came upon a website:http://www.drlam.com/conditioncareguide/adrenalhealth.asp?tab=1 & condition=adrenalhealthyou may want to check out. Seeing as how so many of us also have thyroid issues and I've chatted offline with several members about menstrual changes, moods swings, exhaustion, etc...some of the symptoms Dr. Lam describes I felt like I could have wrote myself. I am quite certain I am suffering from an Ovarian/Adrenal/Thyroid axis imbalance but there are several other conditions Dr.Lam describes as well (adrenal fatique - may help those of you who have high cortisol levels but aren't Cushings).I am completely fed up with traditional medicine. I am 31, not overweight, I eat extremely healthy and can't get one medical professional to help me with all of these crazy and seemingly unrelated symptoms. All they want to do is give me pills and send me away because they can't figure out what is causing them. A few weeks ago I started seeing a naturopath and honestly am feeling better every day. Not cured but I don't expect to be overnight. It is amazing how so many naturopaths are in tune with adrenal health though. A simple search on naturopaths will confirm. I am also not suggesting that naturopaths are the answer here (there are some bad apples out there too so beware) but I do think western medicine can learn a thing or two from natural medicine - treat the whole person and not the symptom. All I want is to feel healthy. I don't want to be exhausted, bruised, bleeding, hair loss and moody all the time. It's not my nature and we all deserve to feel better.Wishing you all the best in health and happiness,Terri> > > > > Dr. Grim,> > >> > > Thank you for reading, posting and supporting my blog...I have been > > > through a lot with Conn's as so many of us have, and my goal is to > > > help others through this often difficult journey. I am almost at a > > > year post-surgery, and living with one adrenal has it's ups and > > > downs. None of my docs seem to know what to tell me, can you? I have > > > noticed some serious fatigue after physical exertion and high > > > stress, I want to know if this is normal?! Help me please if you are > > > able~!> > >> > > Many thanks~> > > Flower Spy> > >> > > http://hyperaldosteronism.blogspot.com/> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 I looked at this site and suggest you lam out of there-unless he can provide published articles (in humans he has treated with a control group). It would be good for someone to document his real credentials.But them I am suspicious by nature.Let us know what your find out.CE Grim MDOn Feb 20, 2010, at 8:40 AM, terridelorenzo wrote:Hi Flowerspy,I too am having difficulty finding medical help on living with one adrenal. While my quality of life is so much better post surgery, the appearance of several new strange symptoms often has me wondering if I lost my mind in addition to my adrenal gland 2 years ago.I recently came upon a website:http://www.drlam.com/conditioncareguide/adrenalhealth.asp?tab=1 & condition=adrenalhealthyou may want to check out. Seeing as how so many of us also have thyroid issues and I've chatted offline with several members about menstrual changes, moods swings, exhaustion, etc...some of the symptoms Dr. Lam describes I felt like I could have wrote myself. I am quite certain I am suffering from an Ovarian/Adrenal/Thyroid axis imbalance but there are several other conditions Dr.Lam describes as well (adrenal fatique - may help those of you who have high cortisol levels but aren't Cushings).I am completely fed up with traditional medicine. I am 31, not overweight, I eat extremely healthy and can't get one medical professional to help me with all of these crazy and seemingly unrelated symptoms. All they want to do is give me pills and send me away because they can't figure out what is causing them. A few weeks ago I started seeing a naturopath and honestly am feeling better every day. Not cured but I don't expect to be overnight. It is amazing how so many naturopaths are in tune with adrenal health though. A simple search on naturopaths will confirm. I am also not suggesting that naturopaths are the answer here (there are some bad apples out there too so beware) but I do think western medicine can learn a thing or two from natural medicine - treat the whole person and not the symptom. All I want is to feel healthy. I don't want to be exhausted, bruised, bleeding, hair loss and moody all the time. It's not my nature and we all deserve to feel better.Wishing you all the best in health and happiness,Terri> > > > > Dr. Grim,> > >> > > Thank you for reading, posting and supporting my blog...I have been > > > through a lot with Conn's as so many of us have, and my goal is to > > > help others through this often difficult journey. I am almost at a > > > year post-surgery, and living with one adrenal has it's ups and > > > downs. None of my docs seem to know what to tell me, can you? I have > > > noticed some serious fatigue after physical exertion and high > > > stress, I want to know if this is normal?! Help me please if you are > > > able~!> > >> > > Many thanks~> > > Flower Spy> > >> > > http://hyperaldosteronism.blogspot.com/> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Dr. Grim:It appears to me that most people end up with a left adrenalectomy. Is there anyone here you know of who has had the right gland removed?Farah On Sat, Feb 20, 2010 at 8:29 AM, Clarence Grim <lowerbp2@...> wrote:  No suggestion that stress etc will likely exhaust your remaining gland.  It tends to get bigger like when you take one kidney out.You do not need another saline. What you need is careful BP monitoring and and a plasma renin, electrolytes (drawn properly) and aldosterone at about a year and a 24 hr urine for Na, K, aldo and urinary free cortisol.  Let me know the results.What did the path report show on the removed adrenal? On Feb 19, 2010, at 10:12 PM, langrallcarole wrote: Thanks Dr. Grim, This group was listed on my blog before, but it wasn't as noticeable as it is now--I have it in BIG capital letters. Also, I appreciate your input on the mono-adrenal outlook. I don't have any doctors following me up- the surgeon did is job and wished me well, and the endo was clueless with my left adrenal-less life. She said to be sure the Conn's is gone, I should have another saline suppression test. I opted out and that was the last I saw her. My primary care doc surprisely is aware of Conn's and is on the ball, so I can ask her for the blood work you suggested I take. BTW- can stress and too much activity affect me more with one less gland? f.s.> > > Dr. Grim,> >> > Thank you for reading, posting and supporting my blog...I have been > > through a lot with Conn's as so many of us have, and my goal is to > > help others through this often difficult journey. I am almost at a > > year post-surgery, and living with one adrenal has it's ups and > > downs. None of my docs seem to know what to tell me, can you? I have > > noticed some serious fatigue after physical exertion and high > > stress, I want to know if this is normal?! Help me please if you are > & gt! ; able~! > >> > Many thanks~> > Flower Spy> >> > http://hyperaldosteronism.blogspot.com/ > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Ask for the data that their Rx is better than placebo. Or to give you alternating Rx (one real the other placebo) until you and they are convince that one is better than the other then break the code. Good Luck.CE Grim, MDOn Feb 20, 2010, at 10:36 AM, cowdoc@... wrote:Terri It was also suggested that I go see a naturopath because of my chronic abdominal pain. Did you have to go through a 2 hour new patient appointment? How much did it cost an hour? DanaSent from my Verizon Wireless BlackBerryFrom: "terridelorenzo" <terridelorenzohotmail>Date: Sat, 20 Feb 2010 14:40:58 -0000<hyperaldosteronism >Subject: Re: Living with one adrenal Hi Flowerspy,I too am having difficulty finding medical help on living with one adrenal. While my quality of life is so much better post surgery, the appearance of several new strange symptoms often has me wondering if I lost my mind in addition to my adrenal gland 2 years ago.I recently came upon a website:http://www.drlam.com/conditioncareguide/adrenalhealth.asp?tab=1 & condition=adrenalhealthyou may want to check out. Seeing as how so many of us also have thyroid issues and I've chatted offline with several members about menstrual changes, moods swings, exhaustion, etc...some of the symptoms Dr. Lam describes I felt like I could have wrote myself. I am quite certain I am suffering from an Ovarian/Adrenal/Thyroid axis imbalance but there are several other conditions Dr.Lam describes as well (adrenal fatique - may help those of you who have high cortisol levels but aren't Cushings).I am completely fed up with traditional medicine. I am 31, not overweight, I eat extremely healthy and can't get one medical professional to help me with all of these crazy and seemingly unrelated symptoms. All they want to do is give me pills and send me away because they can't figure out what is causing them. A few weeks ago I started seeing a naturopath and honestly am feeling better every day. Not cured but I don't expect to be overnight. It is amazing how so many naturopaths are in tune with adrenal health though. A simple search on naturopaths will confirm. I am also not suggesting that naturopaths are the answer here (there are some bad apples out there too so beware) but I do think western medicine can learn a thing or two from natural medicine - treat the whole person and not the symptom. All I want is to feel healthy. I don't want to be exhausted, bruised, bleeding, hair loss and moody all the time. It's not my nature and we all deserve to feel better.Wishing you all the best in health and happiness,Terri> > > > > Dr. Grim,> > >> > > Thank you for reading, posting and supporting my blog...I have been > > > through a lot with Conn's as so many of us have, and my goal is to > > > help others through this often difficult journey. I am almost at a > > > year post-surgery, and living with one adrenal has it's ups and > > > downs. None of my docs seem to know what to tell me, can you? I have > > > noticed some serious fatigue after physical exertion and high > > > stress, I want to know if this is normal?! Help me please if you are > > > able~!> > >> > > Many thanks~> > > Flower Spy> > >> > > http://hyperaldosteronism.blogspot.com/> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Good observation. Dr. Conn first reported the greater freq on L. For some reason they are more common on the left about 60/40 last time I looked. This could be because it is easier to see the left with imaging and get a good AVS sample from the left. On Feb 20, 2010, at 10:40 AM, Farah Rahbar wrote:Dr. Grim:It appears to me that most people end up with a left adrenalectomy. Is there anyone here you know of who has had the right gland removed?FarahOn Sat, Feb 20, 2010 at 8:29 AM, Clarence Grim <lowerbp2mac> wrote: No suggestion that stress etc will likely exhaust your remaining gland. It tends to get bigger like when you take one kidney out.You do not need another saline. What you need is careful BP monitoring and and a plasma renin, electrolytes (drawn properly) and aldosterone at about a year and a 24 hr urine for Na, K, aldo and urinary free cortisol. Let me know the results.What did the path report show on the removed adrenal? On Feb 19, 2010, at 10:12 PM, langrallcarole wrote:Thanks Dr. Grim, This group was listed on my blog before, but it wasn't as noticeable as it is now--I have it in BIG capital letters. Also, I appreciate your input on the mono-adrenal outlook. I don't have any doctors following me up- the surgeon did is job and wished me well, and the endo was clueless with my left adrenal-less life. She said to be sure the Conn's is gone, I should have another saline suppression test. I opted out and that was the last I saw her. My primary care doc surprisely is aware of Conn's and is on the ball, so I can ask her for the blood work you suggested I take. BTW- can stress and too much activity affect me more with one less gland?f.s.> > > Dr. Grim,> >> > Thank you for reading, posting and supporting my blog...I have been > > through a lot with Conn's as so many of us have, and my goal is to > > help others through this often difficult journey. I am almost at a > > year post-surgery, and living with one adrenal has it's ups and > > downs. None of my docs seem to know what to tell me, can you? I have > > noticed some serious fatigue after physical exertion and high > > stress, I want to know if this is normal?! Help me please if you are > & gt! ; able~! > >> > Many thanks~> > Flower Spy> >> > http://hyperaldosteronism.blogspot.com/> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Dr Grim I too am having trouble thinking about going to see a naturopath. It was just suggested yesterday by a pain management doc that is into the acupuncture stuff. I am concerned about interaction with my current drugs. Supposibly this is a naturopathic MD. Is there really such a thing? Sent from my Verizon Wireless BlackBerryFrom: Clarence Grim <lowerbp2@...>Date: Sat, 20 Feb 2010 10:39:28 -0600<hyperaldosteronism >Subject: Re: Re: Living with one adrenal I looked at this site and suggest you lam out of there-unless he can provide published articles (in humans he has treated with a control group). It would be good for someone to document his real credentials.But them I am suspicious by nature.Let us know what your find out.CE Grim MDOn Feb 20, 2010, at 8:40 AM, terridelorenzo wrote:Hi Flowerspy,I too am having difficulty finding medical help on living with one adrenal. While my quality of life is so much better post surgery, the appearance of several new strange symptoms often has me wondering if I lost my mind in addition to my adrenal gland 2 years ago.I recently came upon a website:http://www.drlam.com/conditioncareguide/adrenalhealth.asp?tab=1 & condition=adrenalhealthyou may want to check out. Seeing as how so many of us also have thyroid issues and I've chatted offline with several members about menstrual changes, moods swings, exhaustion, etc...some of the symptoms Dr. Lam describes I felt like I could have wrote myself. I am quite certain I am suffering from an Ovarian/Adrenal/Thyroid axis imbalance but there are several other conditions Dr.Lam describes as well (adrenal fatique - may help those of you who have !high cortisol levels but aren't Cushings).I am completely fed up with traditional medicine. I am 31, not overweight, I eat extremely healthy and can't get one medical professional to help me with all of these crazy and seemingly unrelated symptoms. All they want to do is give me pills and send me away because they can't figure out what is causing them. A few weeks ago I started seeing a naturopath and honestly am feeling better every day. Not cured but I don't expect to be overnight. It is amazing how so many naturopaths are in tune with adrenal health though. A simple search on naturopaths will confirm. I am also not suggesting that naturopaths are the answer here (there are some bad apples out there too so beware) but I do think western medicine can learn a thing or two from natural medicine - treat the whole person and not the symptom. All I want is to feel healthy. I don't want to be exhausted, bruised, bleeding, hair loss and moody all the time. It's not my nature and we all deserve to feel better.Wishing you all the best in health and happiness,Terri> > > > > Dr. Grim,> > >> > > Thank you for reading, posting and supporting my blog...I have been > > > through a lot with Conn's as so many of us have, and my goal is to > > > help others through this often difficult journey. I am almost at a > >!> year post-surgery, and living with one adrenal has it's ups and > > > downs. None of my docs seem to know what to tell me, can you? I have > > > noticed some serious fatigue after physical exertion and high > > > stress, I want to know if this is normal?! Help me please if you are > > > able~!> > >> > > Many thanks~> > > Flower Spy> > >> > > http://hyperaldosteronism.blogspot.com/> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Dr. Grim, Does that mean you discount their work? Several of the members of this group with my condition have contacted me that are using naturopaths and are feeling much better. Do you feel they shouldn't be pursued, and if so, are drugs our final answer? Thank you-Flowerspy > >> > > > >> > > > Dr. Grim, > >> > > > > >> > > > Thank you for reading, posting and supporting my blog...I > >> have been > >> > > > through a lot with Conn's as so many of us have, and my goal > >> is to > >> > > > help others through this often difficult journey. I am almost > >> at a > >> > >! > ye ar post-surgery, and living with one adrenal has it's ups > >> and > >> > > > downs. None of my docs seem to know what to tell me, can you? > >> I have > >> > > > noticed some serious fatigue after physical exertion and high > >> > > > stress, I want to know if this is normal?! Help me please if > >> you are > >> > > > able~! > >> > > > > >> > > > Many thanks~ > >> > > > Flower Spy > >> > > > > >> > > > http://hyperaldosteronism.blogspot.com/ > >> > > > > >> > > > > >> > > > >> > > >> > >> > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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