EMG

[Guest guest]

Joanie I had to wear those too at the beginning and they really work.

Don't look so great tho.

Bev

rheumatic EMG

>From: Nad4735@...

>

>Well, I had my EMG done today.I do have carpal tunnel in my right hand.So

now

>I have an annoying brace to wear to bed and while on the computer.I aint

>giving up my keyboard for nothing..lol

> Joanie

>

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[Guest guest]

Hi everyone!

I had my EMG done this morning. It shows I have definite long term

nerve damage in my back and both legs (more on the right than left).

They need to do the blood test (DNA) to see if I do have CMT. He

said I " probably " have type 2 but the genetics is needed to confirm

it. The conduction readings were a little to high to definitely

diagnose CMT but considering the appearance of my feet, personal and

family history- he could not rule it out.

I am not sure where we go from here, I have to go back to my

neurologist and set up a game plan. In the meantime, I'll continue

with the brace, cane and pain pills. The nerve damage in my back is

probably from the fall I took in high school when I broke my

tailbone and has developed into sciatica. It hurts like he--!

I am just concerned as to whether Tricare will authorize it. I feel

like a definitive dx will help in applying for disability.

I am pretty sure they will send me to a neurosurgeon to see if

anything can be done for my back. I do not look forward to back

surgery but if it will help, I may consider it. I am only 51 with

(God willing) a lot of years ahead of me.

Hope everyone has a safe holiday weekend.

Amy in sunny Florida

[Guest guest]

Hi Kiwi,

Good luck to you! Last fall I had an EMG & NCS on my lower right leg.

Both my feet tingle often. The test is uncomfortable when the doc

sticks the little needles in making the nerve jump. Odd feeling. My

test came back normal. Hope your tests show why your legs and feet are

bothering you.

hugs,

Debbie L

--- In , " kiwimangodiva " <latreasewright@...>

wrote:

>

> DID ANYONE HAVE TO HAVE THIS DONE.. I AM HAVING THIS DONE ON THE

19TH

> TO CHECK THE FUNCTIONING OF MY LEGS CAUSE THEY ARE ALWAYS HURTING

VERY

> BAD ..ALSO THE LEFT SIDE AND SOMETIMES THE RIGHT SIDES OF MY FEET UP

> TO MY ANKLES GO MUMB.. IM NOW DEVELOPING RASHES WELL I WAS JUST

> CURIOUS.. I HOPE THAT THIS LETTER FIND EVERYONE DOING WELL.. IM ALSO

> GOING TO BE STARTED ON NEW MEDS SOON.. I HOPE IT GOES WELL ALTHOUGH

I

> DO NOT KNOW THE EXACT ONES JUST YET... I HAD AN ECD DONE ON MONDAY ..

> BUT THEY FOUND NOTHING.. BUT IT IS STILL BURNING OH WELL TT Y GUYS

> LATER .... KIWI

>

[Guest guest]

Just my two cents on the EMG testing. I have had five of them done. The

first was a breeze. So when the second one came around, different

technician, I though no sweat!! HA HA, I was wrong. I do not think they

are horrible, but pretty darn close. After each one my legs always felt

very weak and tired therefore I would always lay down after one. Not

something to look forward to anyway.

Teri

[Guest guest]

Oh I hate this test. Mid evil torture.

In a message dated 7/7/2008 8:43:12 A.M. Pacific Daylight Time,

gfijig@... writes:

So why no EMG?

[Guest guest]

I had an EMG done when they first suspected CMT. It was not that painful, but I

didn't know what to expect.All I felt was a pin-prink and waves of electricity.

I get cold easily, and with it being January, they covered the leg they were not

doing with a blanket. Then in July, I went to UCSF med center was told I had

type 2 CMT. I think the doctor's manners are important, But I also think that

need to listen to you. I had a fabulous Neurologist who took the time to listen

and explain what I was feeling.

Nina in Stockton, CA