diagnosis - unusual gait

[Guest guest]

Gretchen473:

When I was your son's age, my parents were told that I had

an " unusual gait " and I was not diagnosed with CMT until I was 52

years old. When I was that young I did not have the high arch and

other foot abnormalities that I have now. In fact, I was completely

flat footed. But I walked on the outside of my feet.

Another thing to look for is your son's gait when he runs. Since

the muscles are not particularly efficient with CMT, the movement of

the legs while running can look very strange (at least mine did).

The " typical " blood tests would not disclose CMT - the required

genetic blood tests are expensive and only done by one or two labs

to my knowledge. I think you made a good call in getting a new

doctor when the current one saw nothing urgent.

Ken

[Guest guest]

At age 69 I was finally diagnosed as having something wrong - and it was a

diagnosis of CMT. But.......my gait when running was very " different from

others " when I was just a kid - I remember all the kids in gym class laughing

when I ran around the track of the football field. I remember feeling badly

because I could not run any other way and I didn't think I was running

differently.

Also.......I wore out my shoes on the inside of the foot.

It took all these long years for the symptoms to get bad enough for me to seek

help, finally admitting to myself something was wrong and seeing myself turn

into a clone of my dad as far as walking and balance went. He was never

diagnosed and died at age 82 in 1982, but I feel sure that had they looked for

CMT they would have found it.

June